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+[House Hearing, 116 Congress] +[From the U.S. Government Publishing Office] + + + EXAMINING THREATS TO WORKERS + WITH PREEXISTING CONDITIONS + +======================================================================= + + HEARING + + BEFORE THE + + COMMITTEE ON EDUCATION + AND LABOR + U.S. HOUSE OF REPRESENTATIVES + + ONE HUNDRED SIXTEENTH CONGRESS + + FIRST SESSION + + __________ + + HEARING HELD IN WASHINGTON, DC, FEBRUARY 6, 2019 + + __________ + + Serial No. 116-1 + + __________ + + Printed for the use of the Committee on Education and Labor + +[GRAPHIC NOT AVAILABLE IN TIFF FORMAT] + + + + Available via the World Wide Web: www.govinfo.gov + or + Committee address: https://edlabor.house.gov + + + __________ + + + U.S. GOVERNMENT PUBLISHING OFFICE +35-267 PDF WASHINGTON : 2019 + +----------------------------------------------------------------------------------- +For sale by the Superintendent of Documents, U.S. Government Publishing Office, +http://bookstore.gpo.gov. For more information, contact the GPO Customer Contact Center, +U.S. Government Publishing Office. Phone 202-512-1800, or 866-512-1800 (toll-free).E-mail, +[email protected]. + + + + COMMITTEE ON EDUCATION AND LABOR + + ROBERT C. ``BOBBY'' SCOTT, Virginia, Chairman + +Susan A. Davis, California Virginia Foxx, North Carolina, +Raul M. Grijalva, Arizona Ranking Member +Joe Courtney, Connecticut David P. Roe, Tennessee +Marcia L. Fudge, Ohio Glenn Thompson, Pennsylvania +Gregorio Kilili Camacho Sablan, Tim Walberg, Michigan + Northern Mariana Islands Brett Guthrie, Kentucky +Frederica S. Wilson, Florida Bradley Byrne, Alabama +Suzanne Bonamici, Oregon Glenn Grothman, Wisconsin +Mark Takano, California Elise M. Stefanik, New York +Alma S. Adams, North Carolina Rick W. Allen, Georgia +Mark DeSaulnier, California Francis Rooney, Florida +Donald Norcross, New Jersey Lloyd Smucker, Pennsylvania +Pramila Jayapal, Washington Jim Banks, Indiana +Joseph D. Morelle, New York Mark Walker, North Carolina +Susan Wild, Pennsylvania James Comer, Kentucky +Josh Harder, California Ben Cline, Virginia +Lucy McBath, Georgia Russ Fulcher, Idaho +Kim Schrier, Washington Van Taylor, Texas +Lauren Underwood, Illinois Steve Watkins, Kansas +Jahana Hayes, Connecticut Ron Wright, Texas +Donna E. Shalala, Florida Daniel Meuser, Pennsylvania +Andy Levin, Michigan* William R. Timmons, IV, South +Ilhan Omar, Minnesota Carolina +David J. Trone, Maryland Dusty Johnson, South Dakota +Haley M. Stevens, Michigan +Susie Lee, Nevada +Lori Trahan, Massachusetts +Joaquin Castro, Texas +* Vice-Chair + + Veronique Pluviose, Staff Director + Brandon Renz, Minority Staff Director + + + ------ + + + C O N T E N T S + + ---------- + Page + +Hearing held on February 6, 2019................................. 1 + +Statement of Members: + Scott, Hon. Robert C. ``Bobby'', Chairman, Committee on + Education and Labor........................................ 1 + Prepared statement of.................................... 4 + Foxx, Hon. Virginia, Ranking Member, Committee on Education + and Labor.................................................. 5 + Prepared statement of.................................... 7 + +Statement of Witnesses: + Corlette, Ms. Sabrina, Research Professor, Center on Health + Insurance Reforms, Georgetown University Health Policy + Institute.................................................. 9 + Prepared statement of.................................... 11 + Gupta, Dr. Rahul, Senior Vice President and Chief Medical and + Health Officer, March of Dimes............................. 42 + Prepared statement of.................................... 44 + Riedy, Mr. Chad, Resident, Alexandria, VA.................... 23 + Prepared statement of.................................... 25 + Turner, Ms. Grace-Marie, President, Galen Institute.......... 30 + Prepared statement of.................................... 32 + +Additional Submissions: + Adams, Hon. Alma S., a Representative in Congress from the + State of North Carolina: + Article: House Health Bill Would Lead To Less Coverage, + Higher Patient Costs................................... 108 + Prepared statement from MomsRising....................... 110 + Article: National Disability Rights Network Opposes + American Health Care Act............................... 112 + Jayapal, Hon. Pramila, a Representative in Congress from the + State of Washington: + Prepared statement from Asian and Pacific Islander + American Health Forum (APIAHF)......................... 113 + Underwood, Hon. Lauren, a Representative in Congress from the + State of Illinois: + Article: Final Rule on Short-term Insurance plans will + leave Patients With High costs, Less Coverage.......... 118 + Questions submitted for the record by: + Guthrie, Hon. Brett, a Representative in Congress from + the State of Kentucky.................................. 121 + Smucker, Hon. Lloyd K., a Representative in Congress from + the State of Pennsylvania.............................. 121 + Ms. Turner's response to questions submitted for the record.. 122 + + + EXAMINING THREATS TO WORKERS WITH PREEXISTING CONDITIONS + + ---------- + + + Wednesday, February 6, 2019 + + House of Representatives + + Committee on Education and Labor, + + Washington, DC. + + ---------- + + The committee met, pursuant to notice, at 10:15 a.m., in +room 2175, Rayburn House Office Building. Hon. Robert C. +``Bobby'' Scott (chairman of the committee) presiding. + Present: Representatives Scott, Davis, Courtney, Sablan, +Bonamici, Takano, Adams, Norcross, Jayapal, Morelle, Harder, +McBath, Schrier, Underwood, Hayes, Shalala, Levin, Omar, Trone, +Stevens, Lee, Trahan, Castro, Foxx, Roe, Thompson, Walberg, +Guthrie, Byrne, Grothman, Stefanik, Allen, Smucker, Banks, +Walker, Comer, Cline, Fulcher, Taylor, Watkins, Wright, Meuser, +Timmons, and Johnson. + Staff present: Tylease Alli, Chief Clerk; Nekea Brown, +Deputy Clerk; Ilana Brunner, General Counsel; David Dailey, +Senior Counsel; Daniel Foster, Health and Labor Counsel; +Mishawn Freeman, Staff Assistant; Alison Hart, Professional +Staff; Carrie Hughes, Director of Health and Human Services; +Eli Hovland, Staff Assistant; Eunice Ikene, Labor Policy +Advisor; Ariel Jona, Staff Assistant; Kimberly Knackstedt, +Disability Policy Advisor; Stephanie Lalle, Deputy +Communications Director; Andre Lindsay, Staff Assistant; Max +Moore, Office Aide; Merrick Nelson, Digital Manager; Udochi +Onwubiko, Labor Policy Counsel; Veronique Pluviose, Staff +Director; Banyon Vassar, Deputy Director of Information +Technology; Joshua Weisz, Communications Director; Cyrus Artz, +Minority Parliamentarian; Marty Boughton, Minority Press +Secretary; Courtney Butcher, Minority Coalitions and Member +Services Coordinator; Rob Green, Minority Director of Workforce +Policy; John Martin, Minority Workforce Policy Counsel; Sarah +Martin, Minority Professional Staff Member; Hannah Matesic, +Minority Legislative Operations Manager; Kelley McNabb, +Minority Communications Director; Alexis Murray, Minority +Professional Staff Member; Brandon Renz, Minority Staff +Director; Ben Ridder, Minority Legislative Assistant; Meredith +Schellin, Minority Deputy Press Secretary and Digital Advisor; +Heather Wadyka, Minority Staff Assistant; and Lauren Williams, +Minority Professional Staff Member. + Chairman Scott. The Committee on Education and Labor will +come to order, and I want to welcome everyone to the hearing. I +note that a quorum is present. The Committee is meeting today +to hear testimony on examining threats to workers with +preexisting conditions. + Pursuant to committee rule 7(c) opening statements are +limited to the chair and the ranking member. This allows us to +hear from our witnesses a lot sooner and provides all members +with adequate time to ask questions. + I recognize myself now for the purpose of making an opening +Statement. + Today we are here to examine the threats to affordable +healthcare for workers with preexisting conditions. I want to +welcome our distinguished witnesses for agreeing to be here +today and to testify on an issue that affects roughly 133 +million Americans across the country. + On March 23, 2010, President Barack Obama signed the +Patient Protection and Affordable Care Act into law. Over the +last 9 years, this historic legislation has improved the lives +of countless Americans by making insurance more affordable and +more accessible, while strengthening the quality of health +coverage and enacting lifesaving consumer protections. + The Affordable Care Act's success is even more remarkable +in the context of the persistent attempts to repeal and +sabotage the law. Since it was passed the House Republicans +called more than 70 votes to repeal all or parts of the ACA. +Those efforts were punctuated by the American Health Care Act, +a bill passed by House Republicans in 2017, which gutted +protections for patients with preexisting conditions. According +to the CBO, the repeal bill would have resulted in 23 million +fewer Americans with health coverage, would have raised +premiums by 20 percent the first year while providing less +comprehensive benefits, and would have jeopardized many of the +consumer protections found in the ACA. + The Trump Administration has taken an equally aggressive +approach to undermining the law. For example, the +Administration has expanded the use of junk plans that roll +back consumer protections, raise the costs for most consumers, +and have a troubling record of fraud and abuse. + On June 19, 2018, the Department of Labor finalized a rule +to expand association health plans. Under the rule, +associations can sell coverage to small businesses and self- +employed individuals without meeting certain ACA standards that +would otherwise apply, such as: the requirement to cover +essential benefits, the prohibition against charging higher +premiums based on factors such as gender or occupation, and the +age rating limit, which prevents insurers from charging +unaffordable premiums to older people. + Extensive research has shown that association health plans +create a few winners and a lot of losers. A report published by +the Government Accountability Office in 2000 found that they +are likely to increase costs for most workers who are not in +association plans and make it harder for older, sicker workers +to get affordable care. The prevalence of fraud in these plans +is equally concerning. A 2004 Congressional Budget Office +report identified 144 ``unauthorized or bogus'' plans from 2000 +to 2002. Those plans covered at least 15,000 employers and more +than 200,000 policyholders, and left unpaid medical bills over +$252 million. + On August 3, 2018, the Departments of Health and Human +Services, Labor, and Treasury jointly moved to expand the use +of short-term health plans. The Departments issued a final rule +to extend the allowable duration of short-term plans from 3 +months to up to 12 months, with renewability up to 36 months. +Under the rule the short-term plans do not have include Federal +consumer protections, including protections for patients with +preexisting conditions. Because of the risk of confusion and +overall lack of consumer safeguards, not one single group +representing patients, physicians, nurses or hospitals voiced +support for the rule expanding the use of short-term plans. + The Administration's final and most dangerous attack on the +ACA is its unusual decision to side with a group of Republican +attorneys general in a lawsuit against the Federal Government +seeking to strike the ACA in court. So the Trump Administration +is effectively arguing that the ACA's consumer protections +should be invalidated, along with the rest of the law. + If this ultimately prevails, as it did in the district +court in Texas, the result would be catastrophic. All +Americans, whether insured through the ACA marketplace or +through their employers, would lose the consumer protections we +all take for granted, including elimination of lifetime and +annual caps. The prohibition on lifetime and annual coverage +limits, which protects workers from incurring unreasonable out- +of-pocket expenses. Before the ACA, more than 90 percent of +non-group plans had annual or lifetime caps on coverage, and a +majority of the employer-provided plans imposed lifetime +limits. + Cost-sharing protections, the requirement that plans offer +to limit out-of-pocket costs to an affordable percentage of a +worker's income, elimination of preexisting health condition +exclusions, the requirement that all health plans cover +patients with preexisting conditions at the standard rate. Last +night I was pleased to hear the President's comment that he +wants to protect patients with preexisting conditions and end +the spread of AIDS. As I said, the actions of the +Administration have jeopardized those protections and people +with HIV or AIDS who would be excluded from coverage based on +preexisting conditions if those initiatives succeed. Preventive +services without cost-sharing, the protection that allows +workers and families to access vital preventive care without +paying out-of-pocket expenses. That protection would be +eliminated. + While I appreciate that my Republican colleagues are now +voicing support for many of these protections, their words have +not translated into actions. On January 9, Democrats voted on a +resolution to empower the House counsel to intervene in the +Texas case to defend the ACA and protect people with +preexisting conditions. Only three House Republicans voted to +support the resolution. + There many different views within the Democratic Party and +across the political spectrum regarding the best path forward +to further expand affordable care. But we must all commit, both +with our words and deeds, to maintaining the lifesaving +consumer protections enacted in the ACA and we must refuse to +go backward. + Until efforts to repeal and sabotage this historic +legislation cease, workers with preexisting conditions will be +at risk of losing access to the care they need to live healthy +and fulfilling lives. + I now recognize the distinguished ranking member for the +purpose of an opening statement. + [The statement of Chairman Scott follows:] + + Prepared Statement of Hon. Robert C. ``Bobby'' Scott, Chairman, + Committee on Education and Labor + + Today, we are here to examine the threats to affordable health care +for workers with pre-existing conditions. I want to welcome and thank +our distinguished witnesses for agreeing to be here and testify today +on an issue that effects roughly 133 million Americans across this +country. + On March 23, 2010, President Barack Obama signed the Patient +Protection and Affordable Care Act into law. Over the past 9 years, +this historic legislation has improved the lives of countless Americans +by making insurance more affordable and more accessible, while also +strengthening the quality of health coverage and enacting lifesaving +consumer protections. + Prior to the ACA, Federal law allowed insurers to deny people +coverage for certain pre-existing conditions, including recently +treated substance use disorder, pregnancy, and cancer. Prior to the +ACA, insurers in the individual market could exclude these individuals +from coverage, charge higher premiums, or put annual or lifetime caps +of health care coverage. + According to a 2007 Commonwealth Fund survey, 36 percent of adults +who attempted to purchase coverage in the individual market reported +being turned down or charged a higher price because of their medical +history. The ACA guaranteed access to affordable care for the roughly +133 million Americans with pre-existing conditions at the standard +rate. + By any objective measure, the Affordable Care Act has been a +success. The uninsured rate, which was 16.7 percent in 2009, fell to +just 8.8 percent in 2017. + The ACA's success is even more remarkable in the context of the +persistent attempts to repeal and sabotage the law. Since it was +passed, House Republicans have voted more than 70 times to repeal all +or parts of the ACA. Those efforts were punctuated by the American +Health Care Act, a bill passed by House Republicans in 2017, which +gutted protections for patients with pre-existing conditions. According +to the CBO, the repeal bill would have resulted in 23 million fewer +Americans with health coverage and would have raised premiums by 20 +percent in the first year while providing less comprehensive benefits. + The Trump Administration has taken an equally aggressive approach +to undermining the law. For example, the Administration has expanded +the use of junk health plans that rollback consumer protections, raise +costs for all consumers, and have a troubling record of fraud and +abuse. + On June 19th, 2018, the Department of Labor finalized a rule to +expand association health plans. Under the rule, associations can sell +coverage to small businesses and self-employed individuals without +meeting certain ACA standards that would otherwise apply, such as: 1) +the requirement to cover essential health benefits; 2) the prohibition +against charging higher premiums based on factors such as gender or +occupation; and 3) the age rating limit, which prevents insurers from +charging unaffordable premiums to older people. + Extensive research has shown that association health plans create +winners and losers. A report published by the Government Accountability +Office in 2000, found that they are likely to increase costs to some +workers and make it harder for older, sicker workers to get affordable +care. The prevalence of fraud in these plans is equally concerning. A +2004 Congressional Budget Office identified 144 ``unauthorized or +bogus'' plans from 2000 to 2002, covering at least 15,000 employers and +more than 200,000 policyholders, leaving $252 million in unpaid medical +claims. + On August 3rd, 2018, the Departments of Health and Human Services, +Labor, and the Treasury jointly moved to expand the use of short-term +health plans. The Departments issued a final rule to extend the +allowable duration of short-term health plans from 3 months to up to 12 +months, with plans renewable for up to 36 months. Under the rule, +short-term plans do not have include Federal consumer protections, +including protections for patients with pre-existing conditions. + Because of the risk of confusion and the overall lack of consumer +safeguards, not one single group representing patients, physicians, +nurses or hospitals voiced support for the rule expanding the use of +short-term plans. + The Administration's final and most dangerous attack on the ACA is +its unusual decision to side with a group of Republican Attorneys +General in a lawsuit against the Federal Government seeking to strike +down the law in court. Specifically, the Trump Administration is +arguing that the ACA's consumer protections should be invalidated. + If it ultimately prevails, as it did in a District Court in Texas, +the result would be catastrophic. All Americans, whether insured +through an ACA marketplace or through their employer, would lose the +consumer protections we all take for granted, including: + Elimination of Lifetime and Annual Caps: The prohibition on +lifetime and annual coverage limits, which protects workers from +incurring unreasonable out-of-pocket expenses. Before the ACA, more +than 90 percent of nongroup plans had annual or lifetime caps on +coverage, and a majority of employer-provided plans imposed lifetime +limits. + Cost-Sharing Protections: The requirement that plans limit out-of- +pocket costs to an affordable percentage of a worker's income. + Elimination of Preexisting Health Condition Exclusions: The +requirement that all health plans cover patients' pre-existing +conditions. + Preventive Services without Cost-sharing: The protection that +allows workers and families to access vital preventive care without +paying out-of-pocket. + While I appreciate that my Republican colleagues are now voicing +support for many of these protections, their words have not translated +into actions. On January 9, House Democrats voted on a resolution to +empower the House counsel to intervene in the Texas case to defend the +ACA and protect people with pre-existing conditions. Only three House +Republicans votes to support the resolution. + There many different views both within the Democratic Party and +across the political spectrum regarding the best path forward to +further expand access to affordable care. But we must all commit both +with our words and our actions to maintaining the lifesaving consumer +protections enacted in the ACA and refusing to go backward. + Until efforts to repeal and sabotage this historic legislation +cease, workers with pre-existing conditions will be at risk of losing +access to the care they need to live healthy and fulfilling lives. + Thank you and I now yield to the Ranking Member, Dr. Foxx. + ______ + + Mrs. Foxx. Thank you, Mr. Chairman. Americans with +preexisting conditions need health insurance. This is a fact +and a value that Congress and the President have affirmed +countless times. It is also the law. Insurance companies are +prohibited from denying or not renewing health coverage due to +a preexisting condition. Insurance companies are banned from +rescinding coverage based on a preexisting condition. Insurance +companies are banned from excluding benefits based on a +preexisting condition. Insurance companies are prevented from +raising premiums on individuals with preexisting conditions who +maintain continuous coverage. + So it is perplexing why Committee Democrats are even +holding this hearing. And by doing so, they are making it about +threats. Instead, this hearing should focus on how the strong +economy, with its extraordinary job growth, is increasing the +number of workers with employer-sponsored health coverage. + This committee's work on--employer-based health care +options dates back to when the cost of health care began to +rise several decades ago. The status quo was not sustainable, +then and in 2010, the tide took a radical turn for the worse +with the Affordable Care Act, which decimated options for +employers earnestly seeking to provide competitive benefits +packages to recruit and retain workers and sent individual +premium costs on an even faster upward trajectory. Workers paid +the price, employers paid the price. + But, after 8 years of Republican leadership in the House of +Representatives and the election of President Trump, the U.S. +economy and job markets are thriving. With consistent wage +growth and greater availability of highly competitive jobs, +smart employers are continuing to ensure that they offer +competitive benefits packages--including sponsored health care +plans--to recruit and retain workers. And their efforts are +working. + According to the Kaiser Family Foundation, 152 million +Americans--including many who have preexisting conditions--are +insured through plans offered by their employer. That is the +majority of the American work force and more than the +individual market, Medicare, or Medicaid. Since 2013, 7 million +more Americans have gained employer-sponsored health care +coverage, with 2.6 million gaining coverage since President +Trump took office. The plans employers offer are on average +higher quality and provide better value than what can be found +on the individual market. + In 2017, the average premium for individual and family +employer-sponsored coverage increased by a modest 3 and 5 +percent respectively. In contrast, the average exchange +premium, Obamacare, went up by roughly 30 percent. + So, if we are going to have this hearing at all, we welcome +it as an opportunity to talk once more about the importance of +making sure American workers have more options, more +flexibility, and more freedom. + Last Congress, the Republican-led House of Representatives +passed the American Health Care Act. The legislation would +restore stability to the health care marketplace and deliver +lower costs to consumers. Ensuring protections for individuals +with preexisting conditions was a central piece of the bill. It +was Section 137 of the legislation stating: ``Nothing in this +Act shall be construed as permitting health insurance insurers +to limit access to health coverage for individuals with +preexisting conditions.'' So, people may have an opinion, but +they cannot argue with the facts. The facts are written in this +legislation--Section 137. + Republicans on this committee also led the passage of the +Small Business Health Fairness Act. That legislation would +empower small businesses to band together through association +health plans, AHPs, to negotiate for lower health insurance +costs on behalf of their employees. And last summer, the +Department of Labor finalized a rule expanding access to AHPs. + During the 115th Congress, House Republicans also passed +the Competitive Health Insurance Reform Act and the Committee- +led Self Insurance Protection Act. What all of these bills have +in common is their goal to expand coverage, lower health care +costs for all Americans, and again, give freedom to Americans. + Committee Republicans welcome this opportunity once again +to assure Americans with preexisting conditions that their +coverage is protected. + House Republicans will continue to champion legislative +solutions to combat some of the most pressing problems facing +our healthcare system, including skyrocketing costs, the high +prices of certain drugs, the industry's lack of cost +transparency, and the looming threat of a single payer system. +These are the factors that pose the real threat to Americans +having options to work for them. + I yield back, Mr. Chairman. + [The statement of Mrs. Foxx follows:] + +Prepared Statement of Hon. Virginia Foxx, Ranking Member, Committee on + Education and Labor + + Americans with pre-existing conditions need health insurance. This +is a fact, and a value that Congress and the President have affirmed +countless times. It's also the law. Insurance companies are prohibited +from denying or not renewing health coverage due to a pre-existing +condition. Insurance companies are banned from rescinding coverage +based on a pre-existing condition. Insurance companies are banned from +excluding benefits based on a pre-existing condition. Insurance +companies are prevented from raising premiums on individuals with pre- +existing conditions who maintain continuous coverage. + So it's perplexing why Committee Democrats are even holding this +hearing, and by doing so they are trying to make it about threats. +Instead, this hearing should focus on how the strong economy with its +extraordinary job growth is increasing the number of workers with +employer-sponsored health coverage. + This committee's work on employer-based health care options dates +back to when the costs of health care began to rise several decades +ago. The status quo was not sustainable then, and in 2010 the tide took +a radical turn for the worse with the Affordable Care Act, which +decimated options for employers earnestly seeking to provide +competitive benefits packages to recruit and retain workers and sent +individual premium costs on an even faster upward trajectory. + Workers paid the price. Employers paid the price. + But, after 8 years of Republican leadership in the House of +Representatives, and the election of President Trump, the U.S. economy +and job markets are thriving. With consistent wage growth and greater +availability of highly competitive jobs, smart employers are continuing +to ensure that they offer competitive benefits packages including +sponsored health care plans to recruit and retain workers. + And their efforts are working. According to the Kaiser Family +Foundation, + 152 million Americans--including many who have pre-existing +conditions--are insured through plans offered by their employer. That's +the majority of the American work force, and more than the individual +market, Medicare, or Medicaid. + Since 2013, 7 million more Americans have gained employer-sponsored +health care coverage, with 2.6 million gaining coverage since President +Trump took office. The plans employers offer are, on average, higher +quality and provide better value than what can be found on the +individual market. + In 2017, the average premium for individual and family employer- +sponsored coverage increased by a modest 3 and 5 percent, respectively. +In contrast, the average Exchange premium Obamacare went up by roughly +30 percent. + So, if we are going to have this hearing at all, we welcome it as +an opportunity to talk once more about the importance of making sure +American workers have more options, more flexibility, and more freedom. + Last Congress, the Republican-led House of Representatives passed +the American Health Care Act. The legislation would restore stability +to the health care marketplace and deliver lower costs to consumers. +Ensuring protections for individuals with pre-existing conditions was a +central piece of the bill with Section 137 of the legislation stating: +``Nothing in this Act shall be construed as permitting health insurance +issuers to limit access to health coverage for individuals with +preexisting conditions.'' + So, people may have an opinion, but they cannot argue with the +facts, and the facts are written in this legislation. Section 137. + Republicans on this committee also led the passage of the Small +Business + Health Fairness Act. That legislation would empower small +businesses to band together through association health plans (AHPs) to +negotiate for lower health insurance costs on behalf of their +employees, and last summer, the Department of Labor finalized a rule +expanding access to AHPs. + During the 115th Congress, House Republicans also passed the +Competitive Health Insurance Reform Act and the committee-led Self- +Insurance Protection Act. What all of these bills have in common is +their goal to expand coverage, lower health care costs for all +Americans, and again, give freedom to Americans. + Committee Republicans welcome this opportunity once again to assure +Americans with pre-existing conditions that their coverage is +protected. House Republicans will continue to champion legislative +solutions to combat some of the most pressing problems facing our +health care system, including skyrocketing costs, the high prices of +certain drugs, the industry's lack of cost transparency, and the +looming threat of a single-payer system. These are the factors that +pose the real threat to Americans having options that work for them. + ______ + + Chairman Scott. Thank you. Without objection, all the +members who wish to insert written statements to the record +should do so by submitting them to the committee clerk +electronically in Microsoft Word format by 5 p.m. February 19, +2019. + I will now introduce our witnesses. + Our first witness will be Sabrina Corlette, a research +professor at the Center on Health Insurance Reforms at +Georgetown University's McCourt School of Public Policy where +she directs research on private health insurance and market +research. Prior to joining Georgetown faculty she was the +director of health policy programs at the National Partnership +for Women and Families where she focused on insurance market +reform, benefit design, and the quality and affordability of +healthcare. She is a member of the Washington, DC Bar +Association. + Chad Riedy is 37 years old, has cystic fibrosis. He lives +in Alexandria, Virginia with his wife, Julie, and two sons. In +addition to volunteering for the Cystic Fibrosis Foundation he +has spent the last 13 year working in the real estate industry. + Grace-Marie Turner is president of Galen Institute, a +public policy research organization she founded in 1995 to +promote free market ideas for health reform. She has served as +a member of the Long-term Care Commission, the Medicaid +Commission, the National Advisory Board for the Agency for +Healthcare Research and Quality. Prior to founding the Galen +Institute she served as executive director for the National +Commission on Economic Growth and Tax Reform. + Dr. Rahul Gupta is the senior vice president and chief +medical and health officer for the March of Dimes. He is one of +the world's leading health experts. In his role Dr. Gupta +provides strategic oversight for the March of Dimes' medical +and public health efforts to improve healthcare for moms and +babies. Prior to joining the March of Dimes he served under two +Governors as West Virginia's health commissioner, and as the +chief health officer he led the State's opioid crisis response +efforts and several public health initiatives. + We appreciate all of the witnesses for being here today and +look forward to your testimony. Let me remind the witnesses +that we have read your written statements and they will appear +in full in the hearing record. Pursuant to committee rule 7(d), +the committee, and committee practice, each of you will be +asked to limit your oral presentation to a 5-minute summary of +your written Statement. + Let me remind the witnesses that pursuant to Title 18 of +the U.S. Code Section 1, it is illegal to knowingly and +willfully falsify a Statement, representation, writing +document, or material fact presented to Congress or otherwise +conceal or cover up a material fact. + Before you begin your testimony please remember to press +the button on your microphone in front of you so that it will +be turned on and the members can hear you. As you begin to +speak the light in front of you will turn green, after 4 +minutes the light will turn yellow to signal you have 1 minute +remaining. When the light turns red we ask you to summarize and +end your testimony. + We will then let the entire panel make their presentations +before we move to member questions. When answering a question +please remember once again to turn your microphone on. + I will first recognize Ms. Corlette. + + TESTIMONY OF SABRINA CORLETTE, RESEARCH PROFESSOR, CENTER ON + HEALTH INSURANCE REFORMS, GEORGETOWN UNIVERSITY HEALTH POLICY + INSTITUTE + + Ms. Corlette. Thank you, Mr. Chairman. Ranking Member Foxx, +members of this committee, it is really an honor to be here +with you today and to discuss the need for affordable, adequate +insurance coverage, particularly for those with preexisting +conditions. + In my testimony I will focus on some of the challenges +faced by people with preexisting conditions before the ACA was +enacted and how current threats to the ACA could have +disproportionately harmful effects on these individuals and +workers. + Before the ACA was enacted roughly 48 million people lacked +health insurance and an estimated 22,000 died prematurely each +year due to being uninsured. 60 percent of the uninsured +reported having problems with medical debt. The high number of +uninsured was costing providers an estimated $1,000 per person +in uncompensated care costs. The lack of affordable adequate +coverage also led to a phenomenon called ``job lock'', where +workers are reluctant to leave the guarantee of subsidized +employer-based coverage for the uncertainty of the individual +market. And for many people with health issues job-based +coverage could also be spotty or include barriers to enrolling. + Prior to the ACA, in most States, people seeking health +insurance could be denied a policy or charged more because of +their health status, age, or gender, or have the services +needed to treat their condition excluded from their benefit +package. Indeed, a 2011 GAO study found that insurance +companies denied applicants a policy close to 20 percent of the +time. Under the ACA these practices are prohibited. + Prior to the ACA coverage also could come with significant +gaps, such as for prescription drugs, mental health, and +substance use services and maternity care. Under the ACA +insurers must cover a basic set of essential benefits. + Extremely high deductibles and annual or lifetime limits on +benefits were also common before the ACA. The law protects +people from both by capping the annual amount paid out-of- +pocket each year and prohibiting insurers from placing +arbitrary caps on coverage. + Members of this committee are aware that the ACA is now +under threat of being overturned due to pending litigation in +Federal court. If the plaintiffs' argument prevails it would be +tantamount to repealing the ACA without any public policy to +replace it. And this is a scenario that Congress rejected in +multiple votes in 2017. Congress rejected it because repealing +the ACA without replacing it would result in 32 million +Americans losing insurance, double premiums for people in the +individual insurance market, leave an estimated three-quarters +of the Nation's population in areas without any insurer, cause +a significant financial harm for hospitals and other providers +due to uncompensated care costs, cause the loss of an estimated +2.6 million jobs around the country, and importantly for this +committee, result in harm to people with job-based covered, +including the loss of coverage for preventative service without +cost-sharing, such as vaccines, well visits, and contraception, +the return to preexisting condition exclusions, young adults no +longer allowed to stay on their parents health plans, and +insecurity due to crippling out-of-pocket costs for people with +high cost conditions. + This Administration has also instituted regulatory changes +that have resulted in higher premiums for people in the +individual market. These include the decision to cut off a key +ACA subsidy, the dramatic reduction in outreach and consumer +enrollment assistance, and the introduction of junk insurance +policies that are permitted to discriminate against people with +preexisting conditions. The zeroing out of the mandate penalty +has also increased premiums. + While the bulk of the negative effects of these policies +are felt by people in the individual market, these negative +effects spill over into the job-based market. The ACA is by no +means perfect. Even its most ardent supporters argue that more +could be done to expand Medicaid and improve affordability for +middle class families. There are a range of policy options that +this committee and others can explore to strengthen the law's +foundation while also building on its remarkable achievements. + Thank you for providing this forum and I look forward to +the discussion. + [The statement of Ms. Corlette follows:] + [GRAPHICS NOT AVAILABLE IN TIFF FORMAT] + + + Chairman Scott. Thank you. Mr. Riedy? + + TESTIMONY OF CHAD RIEDY, RESIDENT, ALEXANDRIA, VIRGINIA + + Mr. Riedy. Good morning. Thank you, Chairman Scott, Ranking +Member Foxx, and distinguished members of the committee for +inviting me to testify today. + I would also like to thank my wife, Julie, and my parents +for being here today and for their support. + My name is Chad Riedy and I have cystic fibrosis. I would +like to share my story of what living with CF is like and what +the protections in the ACA mean to me and millions of other +Americans living with chronic health conditions. CF is a rare +genetic disease that affects about 30,000 people in the U.S. +and causes a thick, sticky mucus to buildup in the airways +causing infections. There is no cure for CF. + When I was diagnosed in 1984 at 3 years old, my parents +were told that they should not expect me to live to age 12. +Today I sit here at 37. I have been married for 12 years and a +father of our 2 boys, Liam, who is 8, and Tate, who just turned +7. + Let me tell you what it is like to live with CF. Every day +I take 30 pills to help me breathe, digest food, and reduce +inflammation in my lungs. I also take inhaled medicines and use +a vest that shakes loose mucus in my lungs. Four times a year I +go through a lengthy evaluation process with a team of doctors +at Johns Hopkins. I do this to keep my lungs well enough to +keep me alive. But I will never have the lung capacity of any +of you sitting here today. + When I was 26 I got really sick for the first time. My wife +and I had just returned from our honeymoon when I started to +notice that I was having a hard time breathing performing +normal, routine activities, like walking up stairs or talking +on the phone. After a visit to my care team I was admitted +immediately to the hospital, where I stayed for 7 days +receiving intravenous antibiotics, chest physical therapy, and +other procedures to stabilize my health. While my healthcare +was covered under my employer-based insurance plan, when I +returned home I received constant reminders about how close I +was to hitting my lifetime and annual caps. Before the ACA +banned these practices I would stay awake wondering would I +exceed my limits or be denied coverage, then what, how would I +pay for these things? + The next time, in 2014, when I got very sick again, over 8 +months my lung function, which had been stable for 7 years, +declined dramatically. I was so sick that not only was I +missing work, I could not walk 10 feet across our living room +floor without having to stop and catch my breath. I struggled +to carry my kids, who at the time were four and one. Things +progressed to the point where we started to have conversations +about needing a lung transplant just to stay alive. Thankfully, +because the ACA was in place, I could focus on making a strong +recovery instead of the financial hardships from all these +medical bills. + In January 2018 I started on a drug that has changed my +life called SYMDEKO. It treats the underlying cause of my CF, +not just the symptoms. It has brought more stability to my lung +function, but most importantly it has allowed me to be a better +husband, father, and friend. I no longer worry when carrying +laundry up a couple flights of steps from the basement. And +when my boys are tired and want a piggyback ride or need extra +love, daddy is there for them. + My treatments and care help me breathe a little easier and +stay healthy so that I can work to help provide for my family, +but they are expensive. In 2018 the total cost of all my +medicines was about $450,000. This does not include my care +team, visits to them, or other procedures. While we spend a lot +out of pocket, I am thankful that our insurance covers most of +these. + This is my story and there are so many more like it across +the country. For people battling rare and chronic disease, the +policies we are discussing today are a matter of life and +death. If the Judge's ruling against the ACA stands and +insurance companies are allowed to implement annual and +lifetime caps I would reach them in a matter of years and be on +the hook for unimaginable financial costs. In addition, the cap +on out-of-pocket sharing is vital for someone like me. + I am grateful that I have coverage that allows me to access +a great team of doctors and cutting-edge medicines that help me +fight this disease. Because of this I have hope, hope for a +future where I grow old with my wife, see my kids grow up, +graduate college, get married, and start families of their own. + I am not asking for you to take care of me, I do that +myself. I also understand that the ACA is not perfect, but the +protections it contains are critical to me and millions of +other Americans with preexisting conditions. + I thank the committee for giving me the opportunity to +share my story and I ask that you are to keep our hope alive as +you consider legislation this Congress. + Thank you. + [The statement of Mr. Riedy follows:] + [GRAPHICS NOT AVAILABLE IN TIFF FORMAT] + + + Chairman Scott. Thank you, Mr. Riedy. Ms. Turner? + + TESTIMONY OF GRACE-MARIE TURNER, PRESIDENT, GALEN INSTITUTE + + Ms. Turner. Thank you, Chairman Scott, Ranking Member Foxx, +and members of the Committee for inviting me to testify today. + At the Galen Institute we focus on ways to ensure +affordable health coverage to all Americans, particularly +protection for the most vulnerable. I am really pleased to be +on the panel with Mr. Riedy, and thank you for so bravely +sharing your story. I am thankful for the health care system +that supports your care and for continued innovations so new +treatments can be available. + Today in my testimony I am going to discuss the centralrole +that the employer health insurance market plays in our health +sector, new opportunities to reduce costs and expand access to +coverage, and bipartisan support for preexisting condition +protections, and the need for further improvements. + Nine out of ten workers are employed in the U.S. by +companies that offer health insurance. These benefits are tax +free, both to workers and companies, a generous benefit but one +that leverages nearly $3 in private employer spending for every +$1 in Federal tax revenue losses. Employers and employees want +the best value for their health care dollar and often work very +hard to balance cost and quality. + Long before the ACA, employers offered preventative +services because they know that addressing health issues before +they become a crisis can lead to better outcomes and minimize +costs. These employers also play a vital role in supporting our +health sector. Physicians and hospitals are paid much less +under Medicare and Medicaid than under employer plans, and +because private insurance pays more, they provide the margins +that allow many hospitals and providers to stay in business. +Leading proposals to expand Medicare coverage to all Americans +would extend these public disbursement rates universally, +diminishing quality and access to care. + The Trump administration is offering several options +through its regulatory authority to help individuals and +employees with more affordable coverage. The Chairman mentioned +one of them, including association health plans. They allow +small firms to group together to get some of the same benefits +that large employers have. A Washington Post story just +reported on a new study showing that AHP benefits are +comparable to most workplace plans and plans are not +discriminating on patients with preexisting conditions. They +also have new flexibility under Section 1332 of the ACA to +lower costs through risk mitigation programs. They separately +subsidize patients with the highest cost, lowering premiums for +others, and leading to increased enrollment. In Alaska, +premiums for the lowest-cost bronze plan fell by 39 percent in +2018 and Maryland is seeing an even larger drop this year. + Putting the sickest people in the same pool with others +means that their premiums are higher. Virginia Senator Bryce +Reeves talked with one of his constituents recently who said he +makes a good living, provides for his family, but he said his +health insurance premiums are $4,000 a month. And he said that +is more than my mortgage, and really pleading for help. +Unfortunately, many healthy people are dropping out of the +market because costs are so high. + There is strong bipartisan support for preexisting +condition protections. The ACA assures people cannot be turned +down or have their policies canceled because of their health +status, and these protections are still in place. Legislation +passed by the House of Representatives maintained preexisting +condition protection. But they do not work for everyone. +Janet--did not use her last name--reported that she was +diagnosed in 1999 with Hepatitis C. She lives in Colorado and +applied for coverage in the State's high-risk pool. Her +premiums in 2010 were $275 a month. Then her liver failed. She +needed a transplant. The $600,000 bill was covered 100 percent +with only $2,500 out-of-pocket. Colorado's high-risk pools +closed when the ACA started in 2014. Her premiums rose to $450. +By 2018 they were $1,100 a month. The deductible was $6,300. +But her anti-rejection medications were not covered. She said +almost everything I needed was denied, which threw me into a +world of having to appeal to get the care I needed. She said +those of us who are self-employed and are not eligible for tax +credits wind up footing way too much of the bill. She said her +costs are $19,000 a year before insurance pays and she has to +pay extras for her medication. She keeps her insurance because +if something else happened, and her liver failed and she needed +another transplant, she said it would bankrupt my family. + I hope to work with you to achieve the goals of better +access to more affordable coverage and better protection with +those with preexisting conditions. + Thank you for the opportunity to testify today. + [The statement of Ms. Turner follows:] + [GRAPHICS NOT AVAILABLE IN TIFF FORMAT] + + + Chairman Scott. Thank you. Dr. Gupta, before you start I +think I need to give full disclosure. I have been an active +member of the--volunteer for the March of Dimes for several +decades. So I appreciate your testimony. + + TESTIMONY OF RAHUL GUPTA, SENIOR VICE PRESIDENT AND CHIEF + MEDICAL AND HEALTH OFFICER, MARCH OF DIMES + + Dr. Gupta. Thank you for being an active member, Mr. +Chairman, and thank you, along with Ranking Member Foxx and +members of the committee, for the opportunity to testify today. + My name is Rahul Gupta, I am the senior vice president and +chief medical and health officer at the March of Dimes. In +addition to my role representing the March of Dimes I also +bring perspective from my experience as a practicing physician +and as a former State health commissioner and a local health +officer. + As a primary care physician, it was not uncommon for me to +treat women who were struggling with high costs of employer- +based health insurance or priced out of coverage altogether due +to their preexisting conditions. These women were in the +impossible condition of having to make choices between getting +the care they needed and affording their families' basic +necessities, such as food and prescription medications. +Preexisting conditions are common among Americans. Six in every +ten American adults in the U.S. has a chronic disease, and four +in ten have two or more. + Chronic conditions, such as high blood pressure, diabetes, +heart disease, and obesity can have tragic consequences for +women during pregnancy. Each day in the United States more than +two women die of pregnancy-related causes, and more than 50,000 +have severe pregnancy complications. More American women are +dying of pregnancy-related complications than any other +developed country in the world, and it is not getting any +better. + As pregnancy or childbirth are also widely considered +preexisting conditions the prevalence of at least one +preexisting condition in this population is almost universal. +If conditions like preterm birth, birth defects, or neonatal +abstinence syndrome, are considered tens of millions of +children could be subject to insurance discrimination +throughout their lives. The Affordable Care Act contains a +range of provisions to help ensure comprehensive, meaningful, +and affordable coverage for women, children, and their +families. Amongst its most important popular provisions is the +requirement that health plans cover all individuals regardless +of preexisting conditions. The law ensures that all American +can obtain coverage without worrying that they will be subject +to discrimination, whether outright denial of coverage, or +carve-outs of the benefits they need the most. + It is difficult for me to overstate the importance of ACA's +requirements that all plans cover the 10 essential health +benefits, including maternity care. + The ACA has also addressed a range of issues related to +affordability of coverage. Cost has historically been and +remains one of the greatest barriers to care. If people are +unable to afford coverage, healthcare becomes all but +inaccessible. Under the ACA, policies sold on the individual +and small group markets are prohibited from charging women high +premiums. Health plans can no longer impose annual or lifetime +caps. In the case of maternal and childbirth and child health, +these caps could be financially devastating. + A woman, for example, with a high-risk pregnancy and +delivery could easily exceed an annual cap, leaving her unable +to obtain needed care for the rest of the year. Worse, a baby +born extremely preterm, who needs months of care in the +neonatal ICU, could exhaust a lifetime cap before even coming +home. + This triad of preexisting condition protections, essential +health benefits, and affordability provisions represent a +three-legged stool that supports access to comprehensive +quality and affordable coverage for all Americans. All three of +these legs must be maintained to protect and promote our +Nation's health, especially the health of women, children, and +families. + March of Dimes is deeply troubled by Texas v. U.S. This +lawsuit appears to have been undertaken as a legal exercise +divorced from any real appreciation of its ramification for +millions of Americans and their health and wellbeing. With the +recent decision of the Federal court judge to declare ACA +unconstitutional in its entirety, the plaintiffs appear to be +in a classic situation of the dog that caught the car. They +were caught off guard by their own victory and now are unsure +how to explain that they have argued for an action that will +cost millions of Americans their health coverage and +potentially even their lives. + In addition, we are deeply concerned about efforts by the +Administration to promote access to short-term, limited +duration insurance plans. These plans are not required to cover +essential health benefits, including maternity care, mental +health, and substance use treatment, and could again exclude or +charge patients more based on their preexisting conditions. +Whatever changes may be undertaken to our Nation's health laws +and systems, they must be made with the express goal of +improving access to coverage and care that is accessible, +comprehensive, and affordable. + In essence, this concept is no different than when I am +seeing a patient in my office. I endeavor to provide her with +the highest quality care in a compassionate manner, keeping in +mind that she should not have to sacrifice her next trip to the +grocery store in exchange. I sincerely hope that we can provide +the same guarantee to all Americans. + Thank you for holding this meeting, and I look forward to +any questions. + [The statement of Dr. Gupta follows:] + [GRAPHICS NOT AVAILABLE IN TIFF FORMAT] + + + Chairman Scott. Thank you, thank you. And now we will have +our members ask questions. First, I am going to defer on my +side, and the gentleman from Connecticut, Mr. Courtney. + Mr. Courtney. Thank you, Mr. Chairman. And, again, I want +to applaud the fact that we are holding this hearing in this +committee. Back in 2009 and 2010, when the Affordable Care Act +was crafted with three different committees, it was our +committee which led the way in terms of preexisting conditions +and all the patient protections, because we have jurisdiction +over ERISA. So, again, we actually were the place where the law +was written that was, in my opinion, you know, one of the great +steps forward of our Nation in terms of social and civil +rights. + You know, again, Ms. Corlette talked about what the +landscape looked like back in 2009 and 2010. I brought along a +flyer that was being sold to a lot of businesses, which again, +brings back the bad old days. Again, it is a health plan where +it is touted as great news for people who buy their own health +insurance, a flexible health plan, affordable. However, if you +flip to the back, it had sort of in the smaller print the fact +that they may not be able to cover people who have ever had +treatment for the following, AIDS, alcohol or drug dependence, +cancer, COPD, connective tissue disorder, Crohn's disease, +diabetes, emphysema, heart attack or stroke, hepatitis, +inpatient emotional or mental illness, organ or tissue +transplant, or colitis. So if you are like an episode of +survivor and you are not in that category, however, you are +still not out of the woods yet because it also says that other +individuals who are obese, underweight, have undergone +diagnostic tests for a whole variety of different illnesses, as +well as expectant parents or children less than 2 months old +are also not going not be able to take advantage of that +policy. And, last, it says this list is not all inclusive. +Other conditions may apply. + So, I mean that is what health insurance looked like until +President Obama signed the Affordable Care Act in March 2010, +which once and for all abolished this whole type of medical +underwriting practice. And, again, it was also architecture +that was built around it to make that meaningful, such as +essential health benefits, the lifetime caps, which Mr. Riedy +so powerfully testified to, adjusted community rating so that +older people can't be charged more than three times a younger +individual. + So, again, regarding the Texas case, as Dr. Gupta said, I +mean there is absolutely no question that the Justice +Department, which participated with the plaintiffs and did not +defend the Department of Health and Human Services, if that +ruling were to stand, again, that would just take a wrecking +ball to the whole architecture, again, that was built. Is that +correct, Ms. Corlette? + Ms. Corlette. That is correct. For the plaintiff States, if +their position prevails the entire law would be invalidated. + Mr. Courtney. And in terms of some of the other changes +that they have made through the regulatory process, the +association health plans, which, again, on surface sounds +great, that small businesses can team together in different +sectors and go out and buy collectively. By the way, that was +totally legal prior to the Trump Administration's ruling and +there were about 600 association health plans across the +country. What the ruling really did was it basically allowed +those plans to avoid, again, a lot of these patient +protections, such as essential health benefits, which were +painstakingly designed with the Institute of Medicine in terms +of what is healthcare and what should health insurance be, and +lifetime caps, et cetera. + So, again, I just wonder if you could sort of focus on that +point, that the Administration, again, is in fact undermining +preexisting conditions and preexisting condition protections +with those types of regulatory actions. + Ms. Corlette. That is absolutely correct. Groups of +employers have always been able to join an association and +offer benefits if they choose to do so. What the Administration +is encouraging is arrangements that essentially are allowed to +cherry pick the healthiest and youngest employer groups out of +the regulated market and thereby gain a pricing advantage. + Mr. Courtney. And the short-term plans, Dr. Gupta, you +mentioned, again, it is the same story, that it is really a +device to avoid again the protections that were built into the +Affordable Care Act. + Dr. Gupta. That is very true. And along with that, the +other part of this is the medical loss ratio that was built +into the ACA and that is not subject to in the short-term +plans. So they can have as much as 50 percent medical loss +ratio and actually profit disproportionately out of-- + Mr. Courtney. And the short-terms plans are really not that +short. Again, when the prior Administration allowed for a very +short, short-term plan, these now almost are basically going to +be sold for an entire year. Isn't that correct? + Dr. Gupta. Correct. They could be sold for about 364 days +and then renewable afterwards. + Mr. Courtney. So, I mean it is basically a whole new +product. And, again, we would see the bad old days in terms of, +you know, this type of laundry list of fine print where people +are going to have a rude awakening when they thought they had +insurance and in fact it was totally useless and meaningless. + I yield back. + Chairman Scott. Dr. Foxx. + Mrs. Foxx. Thank you, Mr. Chairman. Ms. Turner, people +living with preexisting conditions, such as cancer, diabetes, +or other illnesses face an incredibly difficult battle each and +every day. And, in particular, I commend Mr. Riedy for his +strength and courage to share his story with us today. People +should not worry about having their coverage denied because of +a medical condition when they should be focused on getting well +and managing their quality of life. That is why congressional +Republicans have voted time and time again to protect +preexisting condition protections. + Ms. Turner, are these protections under current law +sufficient to protect access to coverage for the most +vulnerable healthcare consumers, and do you agree that these +protections should be maintained? + Ms. Turner. The protections absolutely should be +maintained. But I do believe that we do have to address the +issue of cost because many people who need coverage are not +able to afford it and then are completely, completely exposed. +So I believe that the preexisting conditions that are in law +today and that the House of Representatives supported in the +American Health Care Act were important, will continue to be +important. I see the strong support, both in Congress and with +the American people, to maintain those protections. + Mrs. Foxx. Thank you, Ms. Turner. Because of policies +enacted by the previous House Republican majority and +regulatory actions taken the by Trump administration our +economy is thriving. As I mentioned, the economy added 304,000 +jobs last month, almost double what economists were expecting. +As a result, the number of individuals with employer sponsored +coverage has grown by nearly 7 million since 2013, with 2.6 +million gaining coverage since President Trump took office. How +does strong economic growth contribute to more workers gaining +health insurance from their employers? + Ms. Turner. Virtually all employers want to offer health +insurance to their employees, but many smaller businesses, in +particular, just can't afford it, both because of the +regulatory burdens as well as the cost. The Trump +administration is giving them some new options, both with +association health plans and with health reimbursement +arrangements. For those that have employer coverage, it is such +a valued benefit and employers and employees work together to +balance cost and quality and comprehensiveness of benefits. And +as a result, employer-sponsored health insurance is certainly +the most popular benefit offered by employers. And I am pleased +to say that is not only continuing but being enhanced by the +strong economy. + Mrs. Foxx. Thank you. Ms. Turner, when I travel around my +district in North Carolina, I hear stories from so many people +who struggle with the high and sometimes unpredictable costs +that they face when taking care of themselves and their +families. Out-of-control drug prices, surprise medical bills +are two topics that President Trump has recently identified as +places for reform and areas where I believe we can find +bipartisan agreement. + In addition to these issues, what other areas do you think +that Republicans and Democrats can move forward and work on +together to find a solution that benefits patients, workers, +and families? + Ms. Turner. I do work with a number of people in the policy +community and it is surprising to see how much agreement there +is on really trying to help people. I think we need to +strengthen the system for the most vulnerable. I was on a panel +yesterday--on Monday at the Academy of Health with several +people from center-left and we talked about the importance of +thinking of the whole person, of comprehensiveness of care, of +allowing people to not only have coverage for health care, but +housing support and food support and transportation support. +Thinking of the whole person I think is really crucial and +devolving more power and authority to the States and localities +that have the understanding of their markets and resources I +think is really crucial. But I also think addressing the cost +of health coverage is so important. + Between 2017 and 2018 we lost 2 million people in the +individual health insurance market. They dropped out because of +cost. So we have got to address the cost for people who want +health insurance, who currently are healthy, but know they need +protection. And we need to make sure that we are strengthening +the system for the most vulnerable. + Mrs. Foxx. Thank you, Ms. Turner. I yield back, Mr. +Chairman. + Chairman Scott. Thank you. The gentlelady from Oregon, Ms. +Bonamici. + Ms. Bonamici. Thank you, Mr. Chairman, and thank you to all +of our witnesses. + Last week there was a hearing in the Ways and Means +Committee here in the House about preexisting conditions and +one of the witnesses was the insurance commissioner from my +home State of Oregon, Andrew Stolfi. And he talked about how in +Oregon since the ACA we now have more than 3.7 million +Oregonians, which is about 94 percent of our population, with +health insurance coverage. And since the ACA that has been a +significant improvement, significantly reducing the number of +people without insurance. And before the ACA insurers had +offered limited coverage or excluded so many people who +applied. In fact, before the ACA the denial rate was about 30 +percent, 30 percent of people who applied were denied. And in +Commissioner Stolfi's words, he said the ACA has helped change +all of this, pregnant mothers know they can get the care they +need and their babies need, children with developmental +disabilities can get all of the essential physician-recommended +physical, occupational, and behavioral therapy they need to +grow to their fullest potential. + So, the ACA is now protecting millions of people in Oregon +who have preexisting medical conditions. Lisa from Beaverton is +26 years old, she received a diagnosis when she was 23, stage 4 +lymphoma. I am happy to report that her cancer is now in +remission and she is pursuing a master's degree, but she is +pretty worried, frankly, when she hears all the conversations +about repealing the ACA, this Texas lawsuit. She said ``I have +hopefully a lot of life ahead of me and it frustrates me that +my history of cancer could limit my access to healthcare.'' + Mr. Riedy, thank you so much for sharing your story. I have +an advocate in the district I represent, Ella, a young woman +with CF, and she comes to the Capitol when she can to advocate +for more research and funding. And her family shares your +concern about lifetime caps. + How is the last couple of years--how have you personally +felt when you hear all these conversations about repealing the +Affordable Care Act? And when you hear about this lawsuit that +might repeal the Act? + Mr. Riedy. Thank you. It is scary to think, especially like +I testified earlier, with the cost of my care currently, having +caps or potentially being able to be denied coverage is a scary +thought. Knowing that there is access to drugs that are +changing my life and that there is more medicine coming down +the pike that will ultimately, I fully believe, one day cure +cystic fibrosis. But that will come at a cost. And it is hard +to think or sort of comprehend that those treatments may be +there and because of a lifetime cap or because of being denied +access, that I will not be able to get those medicines, or your +constituent's daughter would not be able to get those medicines +that could potentially save or prolong her life. + Ms. Bonamici. Thank you so much. And you made an excellent +point, that access does not mean affordability. And if there is +not the prohibition against discrimination for people with +preexisting conditions, if the companies are saying well, we +offer insurance to people with preexisting conditions, it just +costs a fortune, it is not meaningful access. + I have another question to Dr. Corlette. I have another +constituent, Diane, who is a small business owner and for a +long time she--she has a son with autism and a small business-- +for a long time she could not afford insurance before the ACA. +She almost lost her home and business during the financial +collapse. She went several years without coverage and she was +uninsurable because she had preexisting conditions. + So, she was not able to manage her arthritis, made it +difficult for her to work. So, under the ACA she was able to +get coverage, she could see a doctor, she eventually had hip +replacement surgery, she is now able to work, has rebuilt her +business. So, a really positive story largely because of that +access to marketplace coverage. + So, Professor Corlette, if the ACA protections we have +discussed are undermined, what might that mean for Diane and +other small business owners who do look to provide coverage for +themselves, their families, and their employees? + Ms. Corlette. Sure. So, if the ACA is invalidated in a +Texas court it will wipe away some of the protections that your +constituent has benefited from. So, for example, in the group +market, if she is buying as a small business owner she could-- +her employees could face what are called preexisting condition +exclusions where the insurance company excludes from your +benefit package those services that would actually treat your +condition, for which you actually need services, for up to a +year. The insurance company would not be required to cover +essential health benefits, which is a list of benefits that the +Institute of Medicine and others have said should be in a basic +benefit package, it could impose lifetime annual limits, there +may not be a cap on the annual amount that she or her employees +would pay out-of-pocket. So, there are a number of critical +protections that people in job-based coverage would lose. + Ms. Bonamici. Thank you very much and I see my time has +expired. I yield back. Thank you, Mr. Chairman. + Chairman Scott. Thank you. Dr. Roe. + Dr. Roe. Thank you, Mr. Chairman. And, Mr. Riedy, I want to +start with you. + First of all, the easiest vote I have made here in the U.S. +Congress was for the 21st Century Cures Act. To Dr. Collins, +Francis Collins, the director of the NIH, it is very easy for +me to vote to increase his budget to $39 billion. When I was a +medical student, the first pediatric rotation I had in Memphis +was St. Jude's Children's Hospital. Eighty percent of those +children died in 1969 when I rotated there, today 80 percent of +them live. If you have a rare condition, it is 100 percent for +you. So I think there is a cure out there in the way and I +think your future is very optimistic. And thank you for being +here today. + Look, we could all agree that we want to increase coverage +and access and lower costs. That is exactly what we wanted to +do with the ACA. Everyone can agree to that. And we agreed that +we wanted to discuss preexisting conditions. And I want to go +over very quickly, so everybody understands, that if you have +health-based insurance, which I provide in my office for my +employees, everyone--you cannot discriminate based on a +preexisting condition. No. 2, if you have Medicaid or Medicare, +you cannot discriminate versus on a preexisting condition. It +is only in the small group and individual market where this +occurred. And people feared if they lost their job and they +ended up in the small group or individual market that they +couldn't do that. + I have a bill that I am dropping today, a very simple bill. +It has one paragraph, it is three pages long, that essentially +provides ERISA coverage to the small group and individual +market. It treats them--me--as an individual--and I have been +on the individual market--exactly like a large corporation. And +that solves the problem and everyone in here--no matter what +the Court does--if the Court rules whatever they rule. If they +rule and it takes apart this, we have covered everybody and +treated each individual exactly the same as a big company. This +should be simple to do, it is one paragraph. + And let me also say, Dr. Gupta, to you, let me share some +experiences in Tennessee. We were promised the costs were going +to go down. Our costs went up 175 percent and we lowered the +number of plans out there that we could have. In my district, +where I live, three-fourths as many people paid the penalty as +actually get a subsidy. And what is happening in the real world +is with these out-of-pockets and co-pays, if the hospital were +our practice for 30 years, over 60 percent of the uncollectible +debt are people with the insurance, not without insurance, but +with insurance. And what happens is a patient will come to my +office and if they had a condition, one of the 10 essential +health benefits, they got their screening procedure done, that +was fine, that was ``free''. If I found anything wrong with +them and I had to send them down to the hospital for a test, +they then have to meet their out-of-pocket and co-pay, which +can be $3-4-5,000--and my family is $10,000. And so what +happens, the hospitals, the providers, end up eating that. That +is what his happening in the real world. Or people don't get +the second test that they need, and that is what we have to +look at. + I also want to say to you all that I have a preexisting +condition. I was treated 17-18 months ago for proState cancer. +So I am in that pool of preexisting conditions and I don't want +to be excluded either, nor do I want my patients excluded. And +that is why I think we should all support this bill right here. + And, Miss Turner, if you would, I would like for you to +comment a little bit about my suggestion, about just applying +these ERISA rules to me or to any individual out there. + Ms. Turner. As we said, employers so highly value their +employer coverage, and one of the reasons is because someone is +negotiating on their behalf for a quality health plan. And +health plans in the workplace are basically community rated. +You may have different plan options, but everybody is basically +paying the same amount for premiums. And HIPAA, of course, +protections say that if you have group coverage through an +employer and you move from one employer to another, that next +employer must cover you at the same rate. So you can't then be +basically underwritten. So there are a lot of existing +protections in law. + And I am very intrigued with your very creative legislation +to basically extend those protections. I think it is important +to note that if the Supreme Court--and I don't know anyone who +knows what the Supreme Court is going to do--were to strike +down the law, Congress is absolutely determined to fix it and +to maybe improve the ACA in the process. + Dr. Roe. I agree. And one of the things that I think is out +there in the group market, in the self insured market--and we +did this when I was on the City Commission in my hometown--is +you can have disease management--Dr. Gupta knows this very +well. And I have seen those cases where I have a friend of mine +who has a large company with 15,000 employees, had a 1 percent +increase in their premium per year for the last 5 years. And we +can do that in the small group and individual market if we work +together. + Mr. Chairman, thank you. I yield back. + Chairman Scott. Thank you. Gentleman from California, Mr. +Takano. + Mr. Takano. Thank you, Mr. Chairman. Let me begin by saying +that my home district in Riverside, California, we cut--the +Affordable Care Act enabled us to cut our uninsured rate by +more than half because of expanded Medicaid and because of +Covered California, which is the name of our exchange. I have +personally spoken to older people in my district who have not +reached Medicare age, but at an age when if there were no ACA +they would not get any cost-sharing subsidies and they could +not have afforded the insurance. They were very grateful that +they got the cost-sharing subsidies so that they could reduce +their exposure to a major medical incident. + So, the majority offers these really false solutions of +association plans and short-terms plans. Ms. Corlette, could +you--you know, I think these plans are really evasions around +minimum benefits. Is that correct? + Ms. Corlette. That is right. So short-term plans are exempt +from all of the Affordable Care Act rules, so they don't have +to enroll people who have health issues, they don't have to +cover the essential health benefits, and quite commonly with +these plans, if you do get diagnosed with something after you +enroll, they will do what is called post-claims underwriting +and drop you from the plan to avoid paying your medical bills. +So, if you do have an unexpected medical event or diagnosis, +you might find yourself uncovered. + The concern is that they will siphon away healthy people +from the Affordable Care Act marketplaces and result in higher +premiums for those who are not perfectly healthy and have to +buy one of these ACA plans. + Mr. Takano. So, the same for association plans, which were +available, but the way the Administration has structured them, +a similar sort of result. + Ms. Corlette. Association health plans are similar but not +exactly the same. They do have to comply with some of the ACA +rules, but not all. And so they can use essentially the rating +advantage they have, because they can charge higher rates based +on age and other factors to cherry pick healthier employer +groups from the ACA market. + Mr. Takano. And there goes, you know, any affordability +gain by the ACA. So, these are really ways to undermine the ACA +and to undermine by extension protections for people with +preexisting conditions, is that right? + Ms. Corlette. That is right. If you have a preexisting +condition or you simply want comprehensive coverage, like +maternity care or other things that you feel are important, you +would be buying in the ACA market, and if healthy people are +siphoned away the ACA market risk pool will be smaller and it +will be sicker, and insurers will price higher as a result. + Mr. Takano. So, I would say that attempts to undermine the +pools, undermine enrollment periods--so if we look at slashing +funding for outreach and enrollment activities, that means less +people enroll and makes these insurance pools less viable. That +is also hurting people with preexisting conditions. + Ms. Corlette. That is right. There is no question that +research shows that advertising, marketing, outreach, +education, consumer assistance, those all work to get healthy +people into the pool. + Mr. Takano. And this Administration has, you know, really +refused to spend the outreach to get people to sign up for +insurance, which then creates the premium dollar pool to make +insurance viable and actually keep the cost down. + Ms. Corlette. That is right. This Administration has +slashed outreach and marketing by about 80 percent. So it is +hard to bring healthy people in if they are not aware that the +coverage opportunity exists. + Mr. Takano. It was hard for me to square this President +wanting to protect people with preexisting conditions knowing +that his Administration intentionally did that. + So also shortening the enrollment period, making it less-- +giving people less time to enroll into these insurance plans +also has the same result. + Ms. Corlette. That is right. And a number of the State- +based marketplaces that can choose their own open enrollment +periods have extended them to give people more time to enroll, +and that has been a successful strategy. + Mr. Takano. Well, and the Administration has also engaged +in undermining the stability of the markets through ending the +cost-sharing reduction payments for lower-income consumers. +Would prevent people from being able to buy insurance because +they don't have these subsidies. + Ms. Corlette. It is absolutely the case that the decision +by this Administration to cut the cost-sharing reduction +subsidy led to an increase in premiums in the individual market +significantly. I think 20 percent. + Mr. Takano. Well, this intentional undermining in at least +the three ways that I have spoken about, I mean certainly +reduces the viability of these healthcare exchanges and also +really makes meaningless any statement that this President +wants to protect people with preexisting conditions and their +ability to get insurance. + I yield back, Mr. Chairman. + Chairman Scott. Thank you. Gentleman from Pennsylvania, Mr. +Thompson. + Mr. Thompson. Chairman, thank you for hosting this hearing. +Incredibly important topic. As someone who practiced healthcare +for 28 years as a therapist, rehabilitation services manager, +licensed nursing home administrator, I mean this is an +important topic and preexisting conditions is a serious issue, +an incredibly important issue. I have been disappointed over +the past couple of years where, you know, with preexisting +conditions individuals living with preexisting conditions +obviously need confidence in their lives that they are going to +be able to purchase insurance that they need to cover that +condition, for treatment, rehabilitation. But quite frankly, +what I have been disappointed in is how--there are people with +preexisting conditions--need that health care professionals who +are compassionate and dedicated, they want to provide those +service, they want to access--they want those patients to be +able to access those services. Well, we have got a lot of +politicians that have been weaponizing preexisting conditions +for political purposes. And whenever we do that, you know, my +experience--I have only been here--this is my 11th year. I was +here in 2009-2010. It doesn't serve anyone well. + And so also my background, I used to get very frustrated +advocating for my patients, whether it was in a nursing home, +comprehensive inpatient, rehab, acute care, you know, going to +battle with insurance companies. The people with some of the +more chronic conditions are the ones that are facing those +lifetime benefits. So I certainly support those improvements. + But that said, let us--you know, I really want to clarify +here, Ms. Turner, you know, protections for individuals with +preexisting conditions has been a consistent area of agreement +for both Republicans and Democrats. You Stated that protections +for people with preexisting conditions are currently the law of +the land and under the American Health Care Act, passed by the +House last Congress, would the current law's legal protections +for individuals with preexisting conditions be retained? + Ms. Turner. If the Supreme Court were to invalidate the ACA +and find the individual mandate unconstitutional and non- +severable, which I think is unlikely, but if it would, it would +certainly give several years of transition time before it went +into effect to give Congress ample time to figure out how to +back up these protections. And as you said, the Congress at +the--whoever has been in control of the Congress has been a +strong support of protection for preexisting conditions. Even +if people don't have them now, they think they could get them +in the future and they know someone has chronic conditions. So +those protections need to be in place, but they need to be in a +place in a way that actually allows the market to continue to +work and doesn't drive out the healthy people because the costs +are so high. + Mr. Thompson. I mean there are a lot of things that impact. +I think people getting into the pool, so to speak, that was +mentioned by my friend from California, but the folks that have +gotten out of the pool, I think there is a significant number +who have gotten out because of post ACA, the cost, the +escalating cost. And people with preexisting conditions that +have--that were pleased that they could get it, the insurance +but their costs have escalated. So we can't be complacent with +the law as it is now, whether--we have to take measures. + One final question for you, Ms. Turner. We constantly hear +about the challenges that small employers face when dealing +with costs and compliance burdens in providing health insurance +coverage to their employees. While some small businesses are +able to offer health coverage, many simply can't afford to do +so. And one option, among others, which was passed by this +committee, is for the small employers to band together to +provide economies of scale for purchasing health insurance +through association health plans. + Now, what are other alternatives that encourage and enable +employers, both small and large, to preserve and expand quality +health coverage for their employees? + Ms. Turner. Well, I do think it is important to focus on +association health plans because this recent study by a very +well respected analyst, Kev Coleman, said that he did not see +that the plans that these new association health plans, which +are offered in 13 States, just in the 7-months since the rule +was finalized, and offering more than two dozen plans, that +they really do provide an option for employers. + I have been in seminars with H.R. directors of Fortune 500 +companies and talked with innumerable small businesses. They +want to negotiate benefits that their employees want and they +listen to their employees. And they are as comprehensive of +benefits as they can afford and offer that coverage. So I think +that it is important to give respect to the people purchasing +these policies, that they will find a way to make sure people +have coverage that is as good as they can afford, rather than +no coverage at all, which is where too many people are without +these options. + Mr. Thompson. Thank you, Ms. Turner. Thank you, Chairman. + Chairman Scott. Thank you. The gentlelady from Washington, +Ms. Jayapal. + Ms. Jayapal. Thank you, Mr. Chairman. On October 31 of last +year, conveniently just a few days before the midterm election, +President Trump tweeted, and I quote, ``Republicans will +protect people with preexisting conditions far better than +Democrats.'' That was a pretty big flip-flop given that the +President and Republicans in Congress, including many on this +very committee, spent most of last Congress voting to try to +kill the Affordable Care Act and its protections for +individuals with preexisting conditions. In fact, I think I am +right about this, the only Republican members of this committee +who did not vote for the horrible Trump Care bill last Congress +were the eight new members who had not yet been elected. + Now, this Administration is backing a lawsuit that could +strip coverage for more than 133 million Americans with +preexisting conditions with absolutely no plan to replace that +coverage. And if this ruling takes effect more than 17 million +people would lose coverage in the first year alone. + So, to my Republican colleagues, which one is it? Do the +American people deserve coverage for preexisting conditions or +don't they? + Let me also point out that overturning preexisting +conditions protections would disproportionately harm racial and +ethnic minorities. And, Mr. Chairman, I seek unanimous consent +to enter a written Statement from the Asian and Pacific +Islander American Health Forum into the record. + Chairman Scott. Without objection. And I want to remind our +colleagues that pursuant to committee practice, materials must +be submitted to the committee clerk within 14 days following +the last day of the hearing, preferably in a Microsoft Word +format. The materials submitted must address the subject matter +of the hearing. And only a member of the committee or an +invited witness may submit the materials for inclusion in the +record. + Documents are limited to 50 pages. Documents longer than 50 +pages will be incorporated into the record by way of an +internet link, so that you must provide the committee clerk +with that in the timeframe, but recognize that years from now +that link may no longer work. + And I will give you a couple of seconds at the end. + Thank you. + Ms. Jayapal. Thank you, Mr. Chairman. And noted for the +future. + So let me start with my first question for Ms. Corlette. +Thank you for your testimony. In your professional opinion as a +research professor at the Center on Health Insurance Reforms, +let us go back a little bit, why did it take an act of Congress +to require insurance companies to insure people with +preexisting conditions? + Ms. Corlette. Well, before the ACA insurance companies, in +order to make money, the business strategy was to enroll as +many healthy people as you could, bring in their premiums, and +pay out as little as possible in claims. So, to do that they +engaged in what was called medical underwriting, which required +people when they applied for coverage to submit health forms. +They had lists of up to 400 different conditions that would +cause you to be excluded from coverage. But, essentially that +was the business strategy. + What the ACA tried to do was change the business strategy +away from risk avoidance to risk management. + Ms. Jayapal. Thank you. So, just to be frank, insurance +companies wouldn't cover people with preexisting conditions +because they are too expensive, correct? + Ms. Corlette. Yes. + Ms. Jayapal. OK. So, Ms. Corlette, you also said in your +testimony that the Affordable Care Act was enacted in part to +correct serious deficiencies in health insurance markets that +left millions uninsured and millions more with inadequate +coverage. The reality is that the profit-seeking motives of +insurance companies and big pharma are at odds with providing +comprehensive care for everyone in this country. Do you believe +that government should play a role in insuring that corporate +greed doesn't allow insurance companies to deny coverage to +people with preexisting conditions? + Ms. Corlette. I think absolutely government needs to play a +role, both in terms of financing, and I think it is important-- +you know, this committee is as aware as anybody else that +employer-sponsored coverage is the source of the biggest +subsidy in the Federal tax code. So critical role in terms of +financing, but also to set the rules of the road. So, to the +extent that we have private market actors on the provider side +or the payer side, that there are clear rules of the road to +protect people who need help, which is individuals, consumers, +small businesses. + Ms. Jayapal. So, thank you. In 2017--this is again a +question for you--Aetena's CEO was paid nearly $59 million, +Cigna's CEO took home almost $44 million, UnitedHealthcare's +CEO $27 million. So, our healthcare system is underwritten by +greed and health insurance companies and big pharma are +profiting off of sick Americans. Without the protections +ensured by the ACA, do you believe that insurance companies +would continue to guarantee coverage for people with +preexisting conditions? + Ms. Corlette. No, I think they would go back to the +business practices they were engaged in before the ACA was +passed. + Ms. Jayapal. Thank you. The Urban Institute estimates that +17 million people will lose coverage in the first year alone if +the Republican lawsuit stripping the ACA goes through. We have +waited long enough for corporate executives to do the right +thing, in my opinion. They simply aren't going to do so without +government intervention. And that is why we passed the ACA. + And, Mr. Chairman, that is why we must go further. +Ultimately, I believe we need to take the pure profit-seeking +motives out of our healthcare system and ensure that the No. 1 +thing we do is protect every American's right to have +healthcare. And so today we are united as Democrats in +protecting the ACA, making it clear that we stand with millions +of Americans who are at risk of losing coverage. But I am also +determined to put forward a bold new vision for Medicare for +all, something that the majority of all Americans support. As +Members of Congress, we are ready to listen to them and put +people over profits. + Thank you, Mr. Chairman, I yield back. + Chairman Scott. Thank you. Gentleman from Michigan, Mr. +Walberg. + Mr. Walberg. Thank you, Mr. Chairman. Protections for +individuals with preexisting conditions has been a consistent +area of agreement for both Republicans and Democrats. We have +to keep reiterating that. + I strongly believe that these protections need to remain in +place and I voted and co-sponsored legislation to safeguard +them and give peace of mind to patients, and that is a matter +of record. + I am disheartened with my friends on the other side of the +aisle's continued misinformation on our record on this issue. +There was no Trumpcare, nothing got to his desk. There was the +Affordable Health Care Act that dealt with all of the issues of +concern that the ACA brought up because it didn't work for many +people who did have a health care plan that they paid for, but +when they went to use it, so many of them, so many of them did +not have health care. So I hope that changes at some point in +time, the rhetoric that continues on. + This committee has jurisdiction over employer-sponsored +health insurance. I know there are some that believe we need to +move beyond the employer-sponsored coverage, however, the +employer sponsored system currently provides health insurance +for over 181 million Americans. So instead of forcing Americans +off their plans that they like, or in the cases of union +employees, forcing them to give up health plans that they +worked hard for and made salary sacrifices to negotiate, we +should explore ways to strengthen our employer sponsored +system, reduce costs, so more businesses can offer these good +benefits to their employees. + I constantly hear from small employers in Michigan who are +dealing with the cost and compliance burdens of providing +health insurance coverage to their employees. While some small +businesses are able to offer health coverage, many simply +cannot afford to do so. One option among others, which was +passed by this committee, is for small employers to band +together to provide economies of scale for purchasing health +insurance through an association health plan. + Ms. Turner, thank you for being here. As you know, in +August the Department of Labor issued a final rule to expand +access to AHPs. In your opinion, when finalized, will DOL's +rule help or hinder efforts to increase coverage for small +employers and their employees? + Ms. Turner. It absolutely will provide them an important +new option to negotiate benefits on behalf of their employees. +Talking with another H.R. director who has a work force of +primarily medium and lower income workers, he said what happens +is that as healthcare costs go up it eats up their wage +increases. So employees see their wages as flat, but part of +their compensation because too much of their compensation +package is going to health benefits. + Some employers are very creative, helping to provide +coordinated care for people that they have identified that have +the greatest healthcare needs. So I think employers play an +important role and I think association health plans also play +an important role, as well as the new health reimbursement +arrangement rule, which would allow employers who cannot afford +and do not have the resources to actually provide coverage to +give their employees a stipend to be able to purchase health +insurance on their own. We recommended they be able to combine +salaries from two spouses, for example. One spouse may be +offered health insurance at work, the other one can get a +stipend to help make that a family plan rather than just an +individual plan. + Mr. Walberg. The beauty of more flexibility, creativity, +and options that go on. + Ms. Turner. Yes. And also to recognize the competition out +there. + Mr. Walberg. Right. + Ms. Turner. Plans are competing, companies are competing, +everybody is trying to do the best job to get the best value. + Mr. Walberg. You mentioned in your testimony a study by Kev +Coleman, a former analyst at the insurance information website +HealthPocket. In his study, what type of plans did Mr. Coleman +find that AHPs were offering? And let me ask this as well, are +essential benefits covered in the plans that he discussed? + Ms. Turner. The study by Kev Coleman showed that these AHP +plans are offering benefits comparable to the largest employers +that have negotiated these benefits for years and that they are +not discriminating against patients with preexisting +conditions. Many of these employers may have someone on their +staff, maybe even a family member, that has a preexisting +condition. + Mr. Walberg. Or themselves. + Ms. Turner. Yes. And so they want those benefits and they +are really pressing the market to figure out how do you do that +in a price that they can afford to purchase that coverage. + Mr. Walberg. Thank you. I yield back. + Chairman Scott. Thank you. Mr. Morelle from New York. + Mr. Morelle. Yes, thank you, Mr. Chairman, for holding this +very important hearing, and thank you to the panelists for +being here and for answering the questions, particularly Mr. +Riedy. Thank you for your courage in being here and sharing +your story with us. + Back in 1993 I co-sponsored and helped pass a law in New +York that provided community rating for all New Yorkers that +were in small business, the individual marketplace, as well as +ending the practice of--well, beginning the practice of having +protections for preexisting conditions. Something I am very +proud of. So I took it as an article of faith that everywhere +was like that, and then I became chair of the insurance +committee about 15 years ago and during the time of the +implementation of the ACA. I learned a great deal about what +happens in the rest of the country. So this is very, very +helpful in terms of understanding all of this. + The first comment I would just make around coverage is we +use the word coverage as though it means the same thing to +everyone. The truth is, I remember as insurance chair, when +people would come to me and say I had out-of-network benefits +and it said out of network services were covered, yet it only +covered 25 percent of my bill and I have this huge balance that +I have to pay. You learn quickly that coverage doesn't mean +coverage, that it means different things to different people. +And cost avoidance is a big part of trying to provide coverage. + But I wanted to just talk a little bit about the definition +if I might. My daughter, Lauren, was diagnosed with triple +negative breast cancer just a few years ago and she passed away +about 17 months ago. I had never heard of triple negative +breast cancer, but it is part of the diagnosis. And when you +begin to look at treatment, you look at genetic panels and what +you can learn from the genome. And it turned out that in +Lauren's case while it wasn't passed on genetically, she did +have a mutation in one of her genes. + And so perhaps Ms. Corlette might be able to answer this, +is there a concern that genetic predispositions will be defined +more broadly as preexisting conditions in the way that some +insurers view this or some people view it? + Ms. Corlette. Well, there is a Federal law that was enacted +before the ACA, the acronym, is GINA, the Genetic Information +Nondiscrimination Act, that does prohibit insurance companies +from discriminating against people based purely on genetic +information. + Mr. Morelle. And does that include then predispositions +based on other things that would affect chronic conditions? + Ms. Corlette. With respect to the preexisting conditions +that we are talking about today, most insurance companies +require you actually be diagnosed with a specific condition +before it would be underwritten. Although I will say for short- +term plans, you know, they will look at your medical history +and even if you were not given a formal diagnosis they might +say that you had the condition, you know, the cancer cell was +in your body before you enrolled and might disenroll you +because of that. + Mr. Morelle. Yes, because it is certainly hard to tell when +it manifests itself and-- + Ms. Corlette. Exactly. + Mr. Morelle [continuing]. when it actually becomes disease +state. Also to my colleague, Mr. Courtney, mentioned as he +showed the pamphlet, in the description had obesity, which that +would be a preexisting condition presumably? + Ms. Corlette. Yes. Yes. + Mr. Morelle. And that would be the case even if you had not +exhibited or manifested any disease because of that condition, +is that correct? + Ms. Corlette. Correct. + Mr. Morelle. And obviously that is not genetic in nature, +but that is effectively underwriting which could lead +ultimately to preexisting conditions? + Ms. Corlette. Right. + Mr. Morelle. And I did want to just mention coverage too +because when you have community rating, and we don't even do an +adjustment in New York for community rating, it is all the +same. So that you have as you get older--as I am finding you +have more medical conditions as you get older. Young, healthy +people, obviously we want in the pools, and adverse selection +often leads people to avoid coverage until they have a reason +for it. But the larger the pool and the more that you +essentially flatten the experience of the larger pool is really +what insurance is all about. The avoidance of that with some of +the plans that have either high deductibles or that in a sense +sequesters the better risks is actually what causes the case of +either uninsured or high premiums. Is that not right? + Ms. Corlette. That is exactly right. You said it better +than I ever could. + Mr. Morelle. And that is my real concern here, Mr. +Chairman, members, is that as we talk about coverage, as I +said, it is not all the same, and you could be left with +significant balance billing for procedures where you thought +you had coverage, and this notion of sort of shifting risk to +other groups of less well people is essentially what I +understand the Administration policy to be. + Would you care to comment on that? + Ms. Corlette. Yes. I mean with respect to association +health plans, short-term plans, it is really about shifting the +risk from young, healthy people to older and sicker people. So, +it is sort of rearranging the deck chairs without addressing +some of the underlying issues about cost. Which is they are +real. We have a cost problem in this country. But just creating +new winners and losers is I don't believe the answer. + Mr. Morelle. Very good. Thank you. I yield back my time. + Chairman Scott. Thank you. The gentleman from Alabama, Mr. +Byrne. + Mr. Byrne. Thank you, Mr. Chairman. I appreciate you +holding this hearing. + Ms. Turner, I am sort of just the facts type person, and I +didn't get here until I was elected in 2013, so I am having to +go back and sort of make sure I understand how we got where we +are. + When Congress passed Medicaid and Medicare, embedded in +those programs was protection for people with preexisting +conditions. I think that is correct. And when they created some +other public programs, like TRICARE, they did the same thing. +And then I think I was told that when HIPAA was passed in 1996, +bipartisan bill, that we provided similar protection to people +that are in-group plans, employer-provided plans. Have I got +that right? + Ms. Turner. Absolutely. + Mr. Byrne. So I asked my staff to go back and look at the +most recent numbers we could get, which was 2017. Forty-nine +percent of the people in America are under an employer provided +plan. When you add up all the people on the public plans, like +Medicare and Medicaid, it is another 36 percent. So if I am +doing my math right, since at least 1996, 85 percent of the +people in America have had protections on preexisting +conditions as a result of bipartisan acts of the U.S. Congress. +Have I got that right? + Ms. Turner. Yes. + Mr. Byrne. OK. So that is another 15 percent and every one +of those people in the 15 percent is important. I do not think +any of us can gain say that, but sometimes we start talking +about this, we forget that 85 percent of the people in America +have got the protections that they need. So when we look at +what happened in the Affordable Care Act--and I was not here +when it was passed, so I was not a part of that debate--I have +actually talked to people in my district who were in that 15 +percent. In fact, the very moment I was running for Congress is +when those notices went out to people, who were told by the +President of the United States that if they liked their health +care plan they could keep it, they actually came up to me at a +high school football game where I am passing out pamphlets, and +showed me the notice they got from their insurance company that +said we are canceling your health care plan. But here is our +new one for you, and the cost was a multiple of what they were +used to paying. And these people, while they were working +people, they could not afford it. And ACA did not provide those +type people with the sort of help they need financially to do +it. So I have met those people across my district who now are +uninsured because they can't pay their premiums. + So let me just ask you, are there individuals, including +individuals with preexisting conditions, that the ACA might +have actually materially hurt? + Ms. Turner. There are people who say that the coverage that +they had before, even in the individual market, was better than +the coverage they have now because it is more affordable. Some +of them are facing deductibles of $10,000. And they say that I +might as well not be insured because I can't meet that +deductible. + Another friend who had a liver transplant needs significant +anti rejection medications and he says that a health savings +account actually is beneficial to him because he knows what his +out-of-pockets costs are going to be, he can pay that on a tax +free basis, and his catastrophic coverage actually was much +better because it allowed him to wee any doctor without so many +restrictions. + So, yes, there are people who preferred the coverage they +had before, but I absolutely agree with you that preserving the +preexisting condition protections is vital. And also not +frightening people to think that they might lose it. I had a +friend write to me saying that she was worried if the court +case were to be successful that she would lose her preexisting +condition protection and Medicare. And there is no reason for +her to be so frightened. + Mr. Byrne. No, there have been scare tactics out there like +that. It is unfortunate because even on Medicare you have got +older people and they have got lots of other things that they +are thinking about, and we don't need to be scaring them, we +need to be helping them. + I have talked to many Members of Congress since I have been +here. I have not met a single person in either party that +doesn't want to protect people that have preexisting +conditions. The question is how do you do it? What is the +smartest way to do it? What is the most cost-effective way to +do it? But when you get up and tell the people of the United +States, if you like your healthcare plan, you can keep it, and +then they get a notice that says no, I can't keep it, and the +substitute is something I can't afford, you have materially +hurt people in the United States. And everybody in this +Congress, Democrat or Republican, we should all want to work +together to make sure we help those people, because those are +the good, hardworking people in America who depend on us to +look after them. + I appreciate your testimony. And I yield back the balance +of my time. + Chairman Scott. Thank you. The gentleman from California, +Mr. Harder. + Mr. Harder. Thank you, Mr. Chairman, and thank you to all +of our witnesses for being here on such an important issue. + Protecting folks with preexisting conditions is the entire +reason I ran for this office. On my district in the California +Central Valley this is my highest priority. Over 100,000 people +in our district have health insurance only thanks to the +Affordable Care Act. And those 100,000 folks were at risk of +losing their coverage if the Affordable Care Act was repealed, +and it was only after that vote a year and a half ago, almost 2 +years ago now, that I decided to get on in and see what I could +do to fix that. And I think the reality is, is in a district +like ours, where nearly 50 percent of our individuals have a +condition that qualifies as a preexisting condition, this +affects every single human being, every person in my community +has a loved one who would be affected if the Affordable Care +Act was threatened. Every single person, including me. In my +case it is my little brother David. He was born 10 weeks +premature, less than 2 pounds when he was first born, spent the +first 2 years of his life in and out of a hospital, came out +with a healthcare bill 104 pages long. And because of that he +would be without insurance until he is 65 and on Medicare if we +did not have protections for folks with preexisting conditions. + And, Mr. Riedy, I really was so touched to hear your story. +I think your voice gives power to millions of folks. I think we +need to be humanizing these statistics. And so when folks think +about what life is really like with a preexisting condition, +they are thinking about people like my little brother, they are +thinking about people like you, and all of us, because the +reality is each one of us has a loved one who would be affected +by these changes. + And in your testimony you mentioned you had a cost of +medical treatment $450,000 in 2018. Is that correct? + Mr. Riedy. That is correct. That was just for the cost of +medicines. + Mr. Harder. One year, one year. And I think that, you know, +in a district like ours, where we have a high rate of +unemployment, we have a lot of folks that have real financial +stress, there is a lot of folks that could be impacted by that. + I am very interested, based on your own experiences, Mr. +Riedy, how do the annual lifetime caps affect patients with +costly medical conditions? + Mr. Riedy. So with the passing of the ACA and the ban on +lifetime caps, it has--and annual caps, it has allowed me +personally, and others with preexisting conditions, to have a +better frame of mind to be able to focus on our health versus +if I go and see this doctor, or I get sick and I have to go +into the hospital or I have to have some costly procedure, what +is that going to do, how close is that going to get me toward +that cap, and then potentially if I get to that cap, what +happens then. So not only are you dealing with having to fight +to stay alive or have to focus on treatment regimens that take +3 to 4 hours a day in my case, you are also then focusing on +the mental aspect of this also and trying to focus on if I get +to this point am I going to have to make decisions basically +that affect my care and my family's wellbeing versus +essentially dying or not being able to access that care which +then will shorten my life and others. + Mr. Harder. What do you would believe would happen to +people like yourself and the people you advocate for if the +Affordable Care Act was undermined by the court in the Texas +case? + Mr. Riedy. You know, I worry if the court case is upheld, I +worry that insurers will institute lifetime and annual caps +again, that they will reinstitute the ability potentially for +me to be denied coverage simply because I was born with a +genetic disease and have a preexisting condition, and that I +will lose the comfort knowing that no matter where I work or +what happens to me that I can continue to be there for my +family and focus on what needs to happen versus--to take care +of myself versus what the cost of that medicine is that my +doctor prescribed, or not even being able to go and see +especially--the highly specialized care that I need to take +care of my lungs and by body. + Mr. Harder. Thank you for your powerful testimony and for +putting a face on what this really looks like. I think there +are so many of us affected, nearly 50 percent of my district, +and of many others. And we talk about millions of Americans, we +talk about the 100,000 people in our community that would be +without insurance if the Affordable Care Act were repealed and +if it were undermined by some of these efforts of litigation, +but I think the most important thing that we need to be +considering is really understanding the day to day lives of +folks who are living through these challenges today and +understanding how those lives would be so different if we had +not passed the Affordable Care Act. + Thank you so much for your powerful testimony today. + Mr. Chairman, I yield back my time. + Chairman Scott. Thank you. The gentleman from Georgia, Mr. +Allen. + Mr. Allen. Thank you, Mr. Chairman, and thank you for +having this hearing today. It is very enlightening. Obviously, +you know, I have some preexisting conditions, I have family +members that have preexisting conditions, so we are all very, +very interested in how we go about making healthcare available +to all Americans. + The question and the big debate is how do we pay for it. +Obviously we have the resources in this country to provide-- +and, Mr. Riedy, thank you for your testimony--to provide +excellent medical care and hopefully a cure. We are all praying +for cures for Alzheimer's, for all types of issues that we are +dealing with in this country. And we are spending a lot of +money to try to find cures for those things. But in the +meantime, what is the best way to provide health care? + Now, the question is, does the government do it more +efficiently than the private sector? And I think, Ms. Turner, +is there any information, like for every dollar of taxes that +we pay, how much of that dollar gets back to take care of a +patient under the Affordable Care Act. + Ms. Turner. I have not seen--well, there is a medical loss +ratio, so we know that based upon the company's size that +either 20 or 15 percent of the money can only go to +administration, the rest has to go to medical care. + Mr. Allen. Right. + Ms. Turner. But I do think that it is important to look at +the approach that the American Health Care Act that the House +passed in 2017 took. It actually dedicated specific resources +to help people that have high health care costs--$123 billion. +A similar amount in a Senate bill that didn't make it through, +but that would have separately subsidized and provided extra +money for the people that have chronic healthcare conditions. +The ACA put them in the same market with everybody else and +that raised prices to the point that you are driving the +healthy people out. So there is a lot of evidence that if you +separately subsidize those with the highest cost and the +highest risks, you can lower premiums for other, get more +people covered, and then focus on providing the coordinated +care that people with multiple health conditions actually need. + Mr. Allen. Exactly. And, you know, right now I think that +Health and Human Services has a budget of about $1.2 trillion, +the largest single piece of the Federal budget, and, you know, +out of that $1.2 trillion I am interested--of course my +background is the business world--and I am interested in +exactly how much of that $1.2 trillion is taking care of Mr. +Riedy. And I think we need to look at that and then we need to +look at what would it cost if we returned health care back to +the health professionals and we were able to, through programs +deal directly in our health providers, deal directly with our +health providers rather than got through HHS and these other +agencies that have these huge budgets. + And, frankly, as I understand it, our health care in this +country is much more expensive than compared to other +industrialized countries in the world. Is that correct? + Ms. Turner. That is correct. We are also the research +center for the planet. The great majority of new prescription +drugs, like the one that Mr. Riedy says is so valuable, are +developed in the United States. We pay a disproportionate share +both for the research and for the drugs, and also new medical +technologies and other innovations. + Mr. Allen. Right. So we are subsidizing health care across +the world? Would that be correct? + Ms. Turner. Well-- + Mr. Allen. How can we afford--we are $21 trillion in debt +and, of course, you know, I do not know who is going to be +paying my health care bills, but it is probably going to be one +of my grandchildren or great-grandchildren, but we have got to +solve this problem. We have the ability to take care--you know, +I tell folks back home, we have got plenty of money to take +care of folks, particularly those with preexisting conditions, +I just think it is all in Washington, and we need to get it out +in our States and our communities and make healthcare +affordable. + And with that I yield back. + Chairman Scott. Thank you. Dr. Schrier. + Dr. Schrier. Thank you, Mr. Chairman, and thank you to our +witnesses today. + I just want to say that I can't think of a more important +topic to bring up today as our first hearing because one thing +that I have heard about from all of my constituents is +healthcare, and that is their No. 1 issue. And I sit here today +not just as a Member of Congress, but also as a pediatrician, a +doctor who is taking care of patients for the last two decades, +and as a person with Type I diabetes. And so I really share a +kinship with people in my district and in this country with +preexisting conditions. + So, I can report to you first hand that my patients are +worried. They are worried that either they or their loved ones +will not be covered if they have a preexisting condition or +that they will be priced out of the market, as we have been +hearing a lot about, and they are worried even in these popular +employer-based health plans that their prices are also going up +and their deductibles are skyrocketing. + And so, you know, I came here to bring down costs and +protect my patients and make sure that no family goes bankrupt +because of medical expenses. And so, I hear about these +solutions, like these short-term health plans. And you can +imagine, as a pediatrician, that preventative care, essential +health benefits, and mental health care, well woman care, these +are all critical, and that is why they are essential health +benefits. + And I just want to clarify, Dr. Gupta, you have not had to +communicate anything for a while, so I thought I would give you +a chance. Can you just be--very clearly, are those services +covered under these short-term health plans? + Dr. Gupta. Thank you for that questions. Certainly they do +not have to be covered. I mean the idea of motherhood being a +sort of preexisting condition comes back after a decade again. +The idea well woman, well child preventative care, knowing that +we are going through an opioid epidemic today that we are +having a lot of adverse childhood experiences and a whole +generation is going to have to deal with as children and grow +up. And that will be the future of this country. None of those +things will be covered. Neither will be things like +vaccinations. Those will not be covered. Mental health +screenings, domestic violence screening will not be covered +potentially. Of course mammograms, pap smears, none of those +things have to be covered. + Dr. Schrier. Thank you. You are speaking my language. And +then just also to clarify, do patients know that these are not +covered when they buy these short-term less expensive health +plans that are proposed to be a solution to skyrocketing +medical costs? + Dr. Gupta. That will certainly be in fine print, as was +mentioned today. And I am sure that most of us are not going to +realize until you get sick and then that will be the time that +most patients will realize that they were not covered for those +services. + Dr. Schrier. And to read that fine print you would need +glasses like these. + OK, my next question is that I have seen in my own +practice, you know, the classic story, a girl with a terrible +rash whose mom brought her in and it had been weeks that they +had been trying to deal with this at home with all the powders +and creams and everything they possibly could. And when she +finally came to me it was a disaster, she needed antibiotics +and steroid creams. But she delayed care because of the cost of +care. She knew that because of her deductible it would cost her +a lot to come in and that she may as well try everything in the +kitchen cabinet at home. + And so when I think about these short-term plans and that +preventative care would not be covered--and I know how +important those well child checks are--I just would like your +opinion as to how many families will show up for that +critically important primary care and preventative care if +those are not provided for free. + Dr. Gupta. We know from studies that compared to the +insured population, uninsured individuals tend to delay their +care. That leads to lack of those preventative services, +ultimately poor outcomes, and more expensive outcomes, not just +from health but also for financial reasons. And what we saw +after ACA was the amount of uninsured childbearing women went +down from about 20 percent to 13 percent. So additional 5.5 +million women got the care for things like maternity care. So +those things are happening now that we will again walk back +several steps and we will end up the emergency rooms with +uncompensated care, at doctors' offices, while mostly in +primary care, where we already have shortages of tremendous +amount across the field. And those offices will once again be +seeing a lot of patients who do not have insurance and, like +you have, I often provide care for those without regard to the +level of insurance they have. + Dr. Schrier. Thank you, Dr. Gupta. And I yield back my +time. + Chairman Scott. Thank you. The Gentleman from Kentucky, Mr. +Comer. + Mr. Comer. Thank you, Mr. Chairman. And I would like to +talk about healthcare in Kentucky. Obamacare, or the Affordable +Care Act, however you want to pronounce it, in Kentucky was a +great deal for people who got free health care via Medicaid. +But it was a terrible deal for working Kentuckians who actually +have to pay for their health care premiums. In Kentucky, 30 +percent of the State is on Medicaid. That is pretty much free +health care. But the rest of Kentuckians in the State who are +working, struggling to pay health care premiums, they do not +have a very favorable opinion of the Affordable Care Act. + Ms. Turner, I would like to ask you a question addressing +the rising cost of health care, including premiums, +deductibles, and out-of-pocket expenses. This is a huge concern +for most Americans and it should be a concern for the +democrats. What options do you think policymakers should +consider when discussing how to lower the cost of health +insurance and provide a variety of affordable options, +especially for employers and workers? + Ms. Turner. I described in my testimony a plan that I have +helped to develop with a number of my policy colleagues, called +the health care choices plan. And it basically recognizes the +States have a lot more knowledge about their individual markets +and the needs of their citizens, and it is very difficult for +Washington to finely tune legislation enough to let them do +what they need to do. So we have recommended formula grants to +the States to let them figure out how do they make sure that +existing populations are supported. But they have the +flexibility to be able to get coverage not only for the +continued coverage for them, but to make sure that new people +can come into the market and afford coverage, and quality +coverage. + Mr. Comer. Mm-hmm. If there is one thing that I think all +of us would agree on in both parties is that everyone should be +protected with preexisting conditions in health care. No one +should be denied coverage based on their medical history. Given +that, and given current law, Ms. Turner, are any reforms needed +to ensure that individuals with preexisting conditions have +access to health coverage? + Ms. Turner. One of the things that several States have done +is request waivers to use some of the ACA money to more heavily +subsidize those with high risks to make sure they can have +access to care and coverage. I talked about Janet in my +testimony who is now under ACA coverage in Colorado, but it is +inferior coverage to the high-risk pool coverage she had +before. States can fine-tune that, high-risk pools, invisible +high-risk pools, reinsurance, to make sure those with the +highest healthcare costs are covered. Devote money to them, you +cannot only lower premiums for other but increase access for +the healthy people we need to come into the market. + Mr. Comer. In Kentucky, prior to passage of the Affordable +Care Act, we had a high-risk pool, called Kentucky Access, and +it was successful. But it was eliminated with the passage of +the Affordable Care Act. + Just to followup on that question, would you say there are +other factors that affect consumer access to health care? + Ms. Turner. Well, that is one of the reasons I believe +these short-term limited duration plans are so important, +because somebody may be, you know, in a bridge between--they +have just graduated from college, they had coverage then, they +don't have a job yet, they are older than 26. Somebody who is +near Medicare eligibility needs bridge coverage, somebody who +is starting a new business needs to--there are people who need +these temporary plans and that is another option. + Indiana had a great plan called the Health Indiana Plan, a +State-based plan. An account to make sure that people could get +the preventative care they need, but they also had major +medical coverage. There are a lot of other options, but I think +that the State creativity, working with healthcare providers, +is really valuable. + Mr. Comer. Thank you very much. Mr. Chairman, I yield back. + Chairman Scott. Thank you. The Gentlelady from Illinois, +Ms. Underwood. + Ms. Underwood. So, we have just heard from our colleagues, +Ms. Foxx and Mr. Comer, who mentioned how they support +protections for individuals with preexisting conditions. +However, congressional Republicans and the Trump Administration +have had relentless--attacked protections passed by the +Affordable Care Act. And so many of my colleagues here voted +more than 70 times to repeal parts of the ACA. Moreover, last +August the Administration finalized a rule that expands short- +term limited duration insurance, commonly known as junk plans. +Junk plans do not have to comply with key Federal laws that +protect patients and they can pose a serious risk to patients +with preexisting conditions. + Earlier today, along with Representative DeSaulnier, my +Democratic colleagues and I introduced my first legislation in +Congress to overturn the Trump Administration's rule expanding +junk plans. Insurers should never have the option to +discriminate against patients with preexisting conditions. + So, Dr. Gupta, can you tell us more about why they are +called junk plans and what kinds of consumer protections can +junk plans exclude? + Dr. Gupta. Well, thank you. I think part of the--what is +important is not just the preexisting conditions protections, +but also the affordability as well as the accessibility in +terms of essential health benefits. So, none of this is covered +or required to be covered in these short-term plans, or also as +you termed them, junk plans. There are States that have taken a +proactive lead, like California, Oregon, New York, New Jersey, +who have actually worked to prohibit those plans in the way +that they are today. And, obviously, other States will have to +do more. Because what that does basically is sells people out +there who may not be suspecting a bill of goods that they have +no idea about. So, unless they read the fine print, when in so +many ways stepping back to about a decade ago, and people when +they find that they need the help that they need, they are not +going to be able to get it because the preventative care, as +well as a number of those essential health benefits, including +maternity care, will not be covered. + For example, prior to the ACA only 11 States required +maternity care in individual plans, and only 13 percent of the +insurers' individual plans covered maternity care. + Ms. Underwood. That is why patients' groups, including the +March of Dimes, the American Cancer Society, the American Heart +Association are opposing the junk plan rule. + Mr. Chairman, at this time I would like to ask unanimous +consent to enter a letter from those patient groups opposing +the rule into the record. + Chairman Scott. Without objection. + Ms. Underwood. Thank you. Dr. Gupta, what effects can junk +plans have on patient access to care, particularly patients +with preexisting conditions? + Dr. Gupta. Ultimately it will cost their lives or their +bank account, or both. The challenge with that is when somebody +needs the help, early help to be able to detect cancer, like +breast cancer, colon cancer, or be immunized for important +conditions that could be communicable--we are seeing outbreaks +of measles, for example--those could get worse. And people we +diagnose much later in their stage and then they will not be +able to be covered by those because of the preexisting +conditions clause missing, and therefore they will be--again, +will lose life and it will cost us a lot more. It is just the +most--the least effective way of administering healthcare. + Ms. Underwood. In fact, an analysis by the Los Angeles +Times found that not a single group, not a single group +representing patients, physicians, nurses, or hospitals +supports the junk plan rule. And 90 percent of the comments +from the public on this rule were either critical or opposed +the rule outright. + So, Ms. Corlette, are you concerned that public opinion on +junk plans was disregarded when the rule was written? What +needs to be done to ensure the needs of patients with +preexisting conditions are truly represented in this debate? + Ms. Corlette. Well, certainly with respect to the comments +on the short-term plan rule, it would suggest that the +Administration's mind was made up about what they wanted to do +before the rule was finalized and the public comments did not +make much of a difference there. + I do think there is a real concern that a lot of people who +are healthy before they sign up for these plans, have an +unexpected medical event, and are left on the hook for +thousands, tens of thousands of dollars in unpaid medical +bills. + Of course, for those who have preexisting conditions, they +couldn't buy these plans even if they wanted to. They would +have to buy in the ACA market, but the ACA market will be more +expensive. CBO has said it will be about 3 percent surcharge on +premiums as a result of these plans. + Ms. Underwood. Thank you, Mr. Chairman, and thank you to +all the witnesses for being here. + I yield back. + Chairman Scott. OK, thank you. The gentleman from Texas, +Mr. Wright. + Mr. Wright. Thank you, Mr. Chairman. + Chairman Scott. Thank you. + Mr. Wright. I want to thank all of you all for being here +today. Mr. Riedy, God bless you and your family. I think it +speaks to your character and your determination that you are +even here today participating. So thank you. + Ms. Turner, I think you would agree that, you know, we +should never have laws on the books that are unconstitutional, +and when the Supreme Court made its decision on the ACA, Chief +Justice Roberts, of course, his opinion was that it was +Constitutional by virtue of being a tax. I thought that was a +very slender thread, but that is the opinion. If you take that +thread away, then it follows that the law is unconstitutional. +And as a Texas Congressman I am terribly proud of my State +attorney general for leading the effort in this lawsuit. +Because, again, if the reason it was determined that it was +unconstitutional was that it is a tax and you take that away, +doesn't it follow that it is no longer Constitutional? + What is your opinion, Ms. Turner? + Ms. Turner. Well, this is going to go through the Courts to +determine whether or not the fact that the Congress did in fact +zero out the tax penalty for individual insurance does +invalidate the law, but I think the important thing is that we +have seen since then all of the efforts by you and others in +Congress to repeal and replace the law. So I think we have seen +that there are definitely places that improvement is needed and +to try to find a way to replace the coverage that people are +relying on, but to allow markets to work better so that healthy +people are not being driven out. + Mr. Wright. Yes, ma'am. And the key word there is replace. +I think the assumption that if ACA had not passed or if it had +been ruled unconstitutional, that nothing would have happened, +that there would have been no improvements in healthcare, is a +completely false narrative, just as if it were to go away +tomorrow we are not going to revert back to the status quo of +2009 because there was always, even in 2009--I don't know if +you were part of crafting or helping either side on that, I was +here then. I was the chief of staff for the ranking Republican +on Energy and Commerce Committee. I sat in some of those +meetings, saw the markup. There was always Republican +alternatives that included coverage for preexisting conditions, +even going back to 2009. + So this narrative that we keep hearing that Republicans are +somehow opposed to that or don't want it, is patently and +demonstrably false, and it needs to stop because it is not +true. + My last question is this, it has to do with the idea that +is being advanced by the other side, and we heard it earlier +today, about Medicare for all. Well, Medicare-for-all is +Medicare for none. Would you agree with that? Can you speak to +it? + Ms. Turner. It certainly would not be the Medicare that +seniors know now. + Mr. Wright. If we go to socialized medicine, where it is +all run by the government, then doesn't Medicare cease to +exist? + Ms. Turner. As I mentioned in my testimony, my colleague, +Doug Badger, has done some research looking at these cross +subsidies from the employer-based system with 170-some billion +people participating. They pay a higher rate to physicians and +hospitals that allow Medicare and Medicaid to save taxpayer +money and to pay a lower rate. But if those reimbursement rates +went across the board, 40 percent of physicians and hospitals +would find that they couldn't even keep their doors open. + So we need the employer-based system. + Mr. Wright. Absolutely. + Ms. Turner. And the private sector, not only for its +innovation but for the money that it provides to support +existing public programs. + Mr. Wright. Right. Thank you very much. Thank you, Mr. +Chairman. + Chairman Scott. Thank you. The gentlelady from Georgia, Ms. +McBath. + Ms. McBath. Thank you, Mr. Chairman. And I do want to thank +you for holding this hearing today. And I would like to thank +the witnesses who are here to discuss the importance of +protecting access to healthcare for all Americans. + This is an issue that is deeply personal to me. I myself, +like millions of Americans, live with a preexisting condition. +As a two-time breast cancer survivor, I understand what it is +like to have your life turned upside down by this very +diagnosis. I was first diagnosed with stage 1 breast cancer in +2010. And after completing treatment my cancer returned again +in 2012. My cancer was detected because of a routine mammogram. +I will never forget the way that I felt when I first heard my +doctor say the words stage 1 breast cancer. + For each of the two cancer diagnoses that I have received I +underwent surgery through a procedure called a lumpectomy to +remove the remaining cancer. And I received radiation treatment +and drugs thereafter. I did it all while raising my family and +working full-time. And I can tell you I was terrified. Despite +being lucky and having good health insurance through my job, I +was still worried about my financial security. I was concerned +about making it to radiation treatments, sometimes every single +day for weeks, and then back to work and then back home to +raise my son, Jordan. It was exhausting, both physically and +emotionally. But I had to do it, just like millions of +Americans out there who share a similar story to mine. + I truly do not know what I would have done or what would +have happened if I had lost that health insurance coverage. And +I am happy to say today that I am cancer-free. But, Mr. +Chairman, not everyone is as lucky as I am. And I am worried +for Americans and for those in my State of Georgia who might +not detect their cancer or chronic health condition early on, +when it is most easily treatable. + The Centers for Disease Control and Prevention states that +preventing diseases is critical to helping Americans live +longer, healthier lives and keeping healthcare costs down. It +is so important that Americans have access to the preventive +services that are an integral part of the Affordable Care Act. +These include screenings for certain cancers, screenings for +Type 2 diabetes, and other critical health services. And I am +worried about their future and their financial security. + We here in congress, we have a responsibility to protect +people. That is what we must do. + Ms. Corlette, could you talk a little bit more about how +the ACA protects patients and has created greater access to +preventive services, like breast cancer screenings or high +blood pressure screenings? Particularly how the ACA cost- +sharing provisions impacts and also ensures Americans have +access to these types of services? + Ms. Corlette. Absolutely. Thank you for the question. So, +the Affordable Care Act requires insurers both in the +individual market and in the employer market to cover a set of +evidence-based preventive services without any cost-sharing for +the enrollee. And that includes many of the services that you +mentioned in your Statement, but also vaccines, contraception, +tobacco cessation counseling, a range of services that not only +prevent disease but help keep people healthy over the long- +term. Those services can also help diagnose issues that people +have and help get them early treatment in order to get a better +outcome at the end of the day. + So, if the ACA were overturned or this decision in the +district court in Texas is upheld, insurance companies would no +longer have to provide that protection and people would face +cost-sharing. And we know, and Dr. Gupta mentioned, that if +people do face co-insurance or cost-sharing for those services, +they tend not to get them or they delay them. + Ms. McBath. Thank you. And my followup question is how +could the Texas litigation impact American's access and +affordability of these lifesaving services? + Ms. Corlette. If the Texas decision is upheld millions of +people will lose their insurance, about 17 million in the first +year and up to 32 million by 2026. It is well documented that +people without insurance delay, forego care. Before the ACA +about 22,000 people died each year simply for not having +insurance. + For people with job-based coverage, they lose access to +critical protections, like the lifetime and annual limits that +Mr. Riedy discussed, the protection against excessive out-of- +pocket costs--ACA has a cap on that every year--as well as the +preventive services and essential health benefits that you +mentioned. + Ms. McBath. Thank you. Thank you. + Chairman Scott. The gentleman from South Dakota, Mr. +Johnson. + Mr. Johnson. Thank you, Mr. Chairman. Mr. Riedy, you spoke +so eloquently about your family. Are any members of your family +with you here today? + Mr. Riedy. Yes, my father and mother and my wife are +sitting behind me. + Mr. Johnson. I kind of suspected that was the case. And, of +course, you were facing us during your testimony, and so I just +want to take a minute to tell you, because you couldn't know, +their faces were filled with an incredible pride during your +testimony. And, of course, you should feel good because you did +a good job. You should also feel very good because they clearly +are very proud of you. + Mr. Riedy. Thank you. + Mr. Johnson. Almost every member of the Committee that has +spoken has done a nice job raising their voice in support of +protections for people with preexisting conditions. Of course, +I want to raise my voice to echo theirs. Critically important +and I am glad we are having this conversation. + I also like how the panelists all in different ways have +called forth this important connection between employer-based +health coverage and some of these preexisting condition issues. + I was a little concerned, Ms. Turner, in your testimony you +talked about how 65 percent of employers offered health +insurance in 2001, you mentioned that number had come down in +recent years. I assume affordability is a key driver. Are there +others that are maybe not as intuitive to me? + Ms. Turner. It is primarily affordability, and also because +there are fewer carriers now offering coverage in the +individual and small group markets. But one point that I think +is so important about when employers do offer coverage, they +have an incentive. They were offering coverage for preventive +care before the ACA because they know it works. It is so much +better to detect breast cancer at stage one than at stage four. +So helping their employees stay healthy, making sure that they +have access to preventive care, and being able to access the +diagnostics that they need early on for their coverage. So I +think that employer coverage brings particular value to our +health sector without the mandates. They know this is important +because it works. + Mr. Johnson. So I just want to make sure that I can square +the math here. The number of employers how are offering this +type of benefit has gone down. A number of people have talked +about the how the number of people receiving that type of +benefit has gone up. Is that just macRoeconomic trends, large +employers getting larger, and smaller businesses being the ones +more likely to drop this type of benefit? + Ms. Turner. I could look further into the research, but +based upon everything I have read since the ACA, the cost of +compliance in providing health coverage to employees is +significant. So it is not only the cost of the coverage, but +also compliance. And if a company is hitting near that 50 +employee threshold where the employer mandate triggers, they +often will sometimes put workers on part-time, they will scale +back their staff, to avoid having to trigger that employer +mandate. + So I think in some ways the employer mandate has actually +worked against smaller employers offering coverage. And without +it and with more flexibility I think we would see more +participation. + Mr. Johnson. This is an area of concern, and I suspect it +is an area of concern for everybody on the Committee, +regardless of party or region, because so many people, from Mr. +Riedy to others, have talked about how well I had an employer- +based coverage, or I had job-based coverage. It is clearly a +really important leg of this stool about how we make sure +Americans are covered, how they can get the healthcare service +they need. + Are there things that we can do to strengthen employer- +based coverage? Because the trends you are talking about we +should not feel good about in this country right now. + Ms. Turner. What employers want most is flexibility to meet +the needs of their employees without having to charge so much +that health insurance eats up their employees' pay increases. +So they are looking for affordability, they want more +competitors, they want more options rather than having to meet +such specific benefit requirements to really allow them to-- +there may be other benefits that their employees value more +than the essential health benefits list. So giving them more +flexibility to meet their employee needs and keep costs down +would increase participation. + Mr. Johnson. Thank you very much. Well, Mr. Chairman, I +just think this is a critical area for further study by the +Committee. And, of course, I appreciate the time and I yield +back. + Chairman Scott. Thank you. Gentlelady from Connecticut, Ms. +Hayes. + Ms. Hayes. Thank you, Mr. Chairman, and thank you to all of +the people who have come to share your testimony today. I +really appreciate it on this very critical issue. + Before I begin my questioning, I cannot underscore what my +colleague, Ms. Underwood, said before she left, that while we +hear everyone talk about protecting preexisting conditions our +Republican colleagues voted more than 70 times to either roll +back or repeal the Affordable Care Act, which really undergirds +those protections. + My questions this afternoon are for Dr. Gupta. In your +testimony you talked about how the Affordable Care Act has +improved the lives of millions of Americans, particularly women +and children. And this was strengthened by those 10 essential +health benefits that we all know about. Of those benefits, we +have mental health and substance abuse treatment. Do you think +that those are important benefits to protect? + Dr. Gupta. Thank you for the question. Absolutely. I think +one of the things we have yet to appreciate is the increase in +tens of millions of people across this country who are +suffering now from substance use disorder that may not have +been the case even a decade ago. And a lot of the--when we look +at the data, access issues, fear of being fired from their +employer are some of the reasons that people do not seek care. +So, it is a big stigma issue as well. For women, things like +breastfeeding supplies, very simple things like a breast pump +and not having to cost share on those things, are another one +of those things that we should be working to protect, in +addition to the maternity care benefits. + Ms. Hayes. Thank you. Because I know we are talking a lot +about preexisting conditions and our conversations are centered +around genetic conditions or health-related diseases. So I am +happy to hear that you recognize that addiction is also +something that really further exasperates those conditions. It +is undeniable that we are in a crisis with opioid addiction. In +my own home State of Connecticut we have had significant +increases. Over the past 6 years our numbers have tripled. In +2017 my State marked a grim milestone of over 1,000 opioid- +related deaths. And in June of last year we were on track to +surpass that. In the district that I represent three of the top +ten towns are the highest opioid deaths. + This is no stranger to me. I grew up in a family that +struggled with addiction. In my own hometown 45 people died +last year as a result of opioid-related deaths. + Does the current opioid crisis make the need for mental +health and substance use disorder coverage more important? + Dr. Gupta. Absolutely. And, again, when we talk about +employer-based coverage, here is the real problem on the +ground. When I am seeing patients at a charity clinic who have +substance use disorders they are unable to have gainful +employment because of their addiction issues, which need to be +treated in the first place. And that allows them to actually +gain and have meaningful employment to begin with. So, I think +it is very important for us to make sure that we have systems +in place that allow the treatment and access to treatment for, +you know, one of the biggest crises to face our generation +today. + Ms. Hayes. I appreciate you viewing this as a crisis and +talking about treatment and coverage and healthcare, as opposed +to a criminal action, as we heard last week from our friends +over at Purdue Pharma, who talked about people who were +addicted to opioids as, ``reckless criminals''. + During your time at the Department of Health and Human +Services in Virginia you led several important initiatives to +address the opioid crisis in your State. Could you tell us what +impact the Affordable Care Act had on access to treatment for +substance abuse disorder and families, not just the individual, +but I am the daughter of an addict, so how families were +impacted by the protections provided by the Affordable Care +Act. + Dr. Gupta. Absolutely. In a State like West Virginia, which +is not any different from a number of States that are having to +deal with this crisis firsthand on the ground, we found that +having access to treatment, being able to expand those +treatments and make that available--a part of which was +Medicaid expansion. West Virginia was one of the first States +that--we worked very hard to ensure Medicaid expansion. Allowed +a number of people to enter the treatment spectrum and we found +that the access to mental health treatment, access to the +medications, being able to be able to transport it and being +paid for being able to transport for treatment, are some of +those factors that help us remove the stigma of addiction and +help us move forward in that. And it is very important that we +provide--reduce all the barriers to treatment when it comes to +a stigmatizing disease, such as addiction. + Ms. Hayes. Thank you for your time. Mr. Chair, I yield +back. + Chairman Scott. Thank you. The gentleman from Pennsylvania, +Mr. Meuser. + Mr. Meuser. Thank you, Mr. Chairman, thank you Dr. Foxx, +thank you to all testifying today. + Ms. Turner, I am Dan Meuser, Pennsylvania's 9th +congressional district. And I appreciate you taking the time +here, and all of you. I believe every American should have +access to high-quality, affordable health care, regardless of +health status, including preexisting conditions. Given current +law, are there any reforms that you would feel, Ms. Turner, +that are needed to ensure that individuals with preexisting +conditions do in fact continue to have access to health care +coverage? + Ms. Turner. I don't think there is one particular answer, +Congressman. I think they need a myriad of options. I think +giving States the option to recreate their high-risk pools +would be helpful to make sure people who have preexisting +conditions have a place to go if their health insurance becomes +so expensive. As Senator Bryce Reeves' constituent described, +$4,000 a month premiums or deductibles that are $10,000. They +need other options. And I think States also could do things +like the Healthy Indiana Program, an account-based plan that +allows people resources to access primary care, but knowing +that they have major medical coverage as well. + But I think the crucial issue is addressing cost and giving +people more options, more flexibility, and giving companies the +option to provide coverage that is more attractive, that +healthy people want to get in the market, so they are not +staying out of the market, putting more and more people who +have high health costs in the market and driving up premiums +for everyone. + Mr. Meuser. That is encouraging to hear. Now that we have +established that we are in agreement on preexisting conditions, +I would like to ask you your thoughts on the Affordable Care +Act's effect on association health plans. In Pennsylvania, for +instance, the Pennsylvania Farm Bureau had 12,000 members in an +association health plan and it worked very well, along with +other organizations. The Trump administration has issued a +final rule allowing for the use of AHPs, however, many +Governors, democrat Governors it so happens to be, across the +country, including in Pennsylvania, are blocking the formation +of AHPs. + Can you speak to the importance of the efforts to allow +AHPs and maybe comment technically as to why these efforts +would be blocked? + Ms. Turner. So far association health plans are available +in 13 States, about two-dozen plans in all. And some States are +considering invalidating or blocking these plans, which they +have full right to do, just as they are short-term limited +duration plans. But what they are doing is foreclosing options +for people who are otherwise likely to simply be uninsured. If +they don't have an affordable option their family cannot only +face bankruptcy, but not having access to that good high +quality care that private insurance brings. + So it is unfortunate if States take a view that because, I +don't know, the Trump administration rules that therefore they +should be opposed, because they are providing options for +people who are desperate for coverage. + Mr. Meuser. Yes. OK. That is unfortunate. Thank you. + Medicare Advantage. I have people coming into my office and +throughout my district talking about, speaking about how +terrific Medicare Advantage programs are, how relatively +affordable they are versus other Medicare plans. And, as a +matter of fact, the Medicare Advantage plans have decreased, +reduced in cost by 6 percent this past year when other plans on +average are going up 12 percent. So would you say that this is +a successful example of private sector innovation? And could +you offer any other insight on the effectiveness of Medicare +Advantage. + Ms. Turner. They were created, as you know, in 2003 through +the Medicare Modernization Act and went into effect in 2006. +And there was no real significant promotion of Medicare +Advantage plans. It was offered as an option for private +coverage to seniors, so they didn't have to be in something of +a Swiss cheese of a program with a fee-for-service Medicare. +They have been hugely popular. I think almost half of seniors +now have individually selected on their own, without any +mandates, Medicare Advantage plans. And these plans compete +fiercely for seniors. They have to cover a basic level--not +basic but very generous level of benefits and many of the plans +offer much more comprehensive coverage than people can get in +traditional Medicare. And many of them also incorporate +prescription drug coverage. + I think that seniors see it is crucially important because +it also provides an environment for coordinated care, rather +than going from doctor to doctor and fee-for-service +traditional medicine Medicare. Maybe getting the same +prescription with different names from physicians and then +winding up in the hospital with drug toxicity, they have +somebody looking out for them and being able to really +coordinate and help manage their care. + Very, very beneficial. And, of course, these are private +plans within Medicare. + Mr. Meuser. OK. Do I have any more time, Mr. Chairman? + Chairman Scott. Not really. + Mr. Meuser. OK. Well, I yield the remainder of my time. + Chairman Scott. Thank you. I appreciate it. The gentlelady +from Florida, Secretary Shalala. + Ms. Shalala. Thank you very much, Mr. Chairman. I don't +want to add, a lot of my colleagues have asked the same +questions I would have asked. + I do want to point out that Medicare Advantage gets a lot +more money than traditional Medicare and therefore it is +expected to provide a lot more benefits. It also pays +dramatically for the kind of marketing that the private plans +want to do. So, we are paying with taxpayer money for Medicare +Advantage significantly. And most analysis has shown that we +are overpaying for Medicare Advantage given the benefits that +are provided. + I do have a couple of questions though. I want to ask Ms. +Corlette, we focused here on preexisting conditions, but would +coverage for preexisting conditions actually work very well if +we didn't have the other consumer protections? I mean we could +all agree on preexisting conditions, but if you don't take the +caps off, preexisting conditions are limited. And Mr. Riedy +would have a very difficult time with CF. + Ms. Corlette. Yes, absolutely. And, in fact, New York is a +great example of a State that had a number of preexisting +condition protections before the ACA was passed, but they had a +very expensive individual market because they didn't have the +other provisions that the ACA included, such as the subsidies +to support people up to 400 percent of the Federal poverty +level to buy insurance, as well as the individual mandate +penalty. + So, it is important to note that the ACA included not just +preexisting condition protections, but a number of provisions +that were more holistically designed to try to make coverage +accessible and affordable for people. All of those, of course, +have been at least preliminarily ruled to be invalid by the +Texas court. + Ms. Shalala. Thank you very much. And, Dr. Gupta, yesterday +the President said that he was going to invest some money in +HIV drugs. And I want to ask you about that, because it is very +important in my district. We have the highest incidence per +capita, and therefore I am very supportive of any investment in +HIV. But those investments don't work without a comprehensive +plan around them. And could you talk a little about that? + Dr. Gupta. Absolutely. Thank you for that question. So as +opposed to the 1980's, where we had a challenge of diagnosing +HIV, figuring out how to treat it, and make it a condition. +People were dying on the streets because of that. Now, we have +a challenge of finding those individuals who may not know that +they have HIV. So, screening--that is why we have moved to what +we call universal screening and you really have to opt out of +it, otherwise most of us need to get screened. The idea behind +that is most people that may have HIV do not know they have +HIV. And if they can be caught early and put in treatment it +becomes a chronic condition you can live with. You don't have +to die because of the complications now. + When you start to remove the other legs of that stool, in +terms of essential health benefits, then obviously those people +are going to not want to be screened for the HIV. The diagnosis +will not occur and then they will not be treated. As a result +they will continue to transmit the disease and we will result +in having more cases than fewer cases and our conquest to +eliminate HIV from the United States will not happen anytime +soon. + Ms. Shalala. Thank you very much. And, Ms. Turner, if I +could ask a quick question about the flexibility you are +talking about. Would it be OK with you if a State was willing +to develop a plan that continued caps, had covered preexisting +conditions but continued caps? Because, you know, private +insurance is a mixed bag in this country. I have got half a +million people in my own district that are covered by private +insurance, but some of it is underinsurance because it has high +deductibles. And how much flexibility would you give the States +so that we would really recognize it as insurance and +comprehensive insurance? Would you continue some of these +consumer protections that we are talking about? + Ms. Turner. I think that it is important to recognize that +State officials have to answer to the same constituents when +they are making changes, health policy changes that Federal +officials do. And so that needs to be a conversation with their +voters, and to make sure that they are answering the +constituents' needs for affordable, quality coverage, but doing +so in a way that may give them more flexibility. + Some States in Medicaid, as you know, and I am sure under +your Secretaryship some of the waivers were approved to give +States like Oregon, for example, a lot of flexibility within +its Medicaid program and what benefits were covered. So I think +States can better fine-tune the mandates than a Washington +mandate. The Affordable Care Act has been changed already +either by administrative order or by acts of Congress 70 times. +So, I think needing to give the States the flexibility to +answer the needs of their constituents and know that their +constituents actually can be better heard at the State level, I +think is important. + Ms. Shalala. I should point out that the Oregon simply took +the same package. It actually didn't mix up the package of +benefits very much. I am asking you specifically about caps and +about preexisting conditions. Do you think that States ought to +be able and the other consumer protections ought to be able to +waive those consumer protections and would it actually be +comprehensive insurance at the end of the day if they had +flexibility on those consumer protections including preexisting +conditions? + Ms. Turner. We see with States that are saying they don't +want short-term limited duration plans, California and offered +in their States, Pennsylvania, restrictions on association +health plans. If States feel that those consumer protections +are important, I believe that they will keep them and if they +feel that there needs to be some flexibility along with +consumer awareness and transparency, then I think States should +have the option of figuring out what works best for their +constituents. + Ms. Shalala. So you wouldn't favor ERISA protections for-- +and overrule States--using ERISA protections? + Ms. Turner. I think that right now we basically have under +HIPAA we have the protections that allow people to go from +their employer plan-- + Ms. Shalala. Right. + Ms. Turner [continuing]. to another employer plan and +maintain that continuity of coverage and not be discriminated +against. So those protections are already on the books and +because of the community rating within employer plans, people +are protected to make sure that their health status does not +affect their premium costs. + Ms. Shalala. I yield. + Chairman Scott. Thank you. Gentleman from Wisconsin, Mr. +Grothman. + Mr. Grothman. OK, thank you. Moving now, Ms. Turner, and +one more time, I think you've answered this, but it seems to me +the Republicans, the Democrats are all favored, in favor of +protecting coverage for preexisting conditions. Can you just +one more time tell us, we have said it so many times but not as +many times as the ads we have saying otherwise running against +us in election. Under current law, are workers with preexisting +conditions allowed to be charged more, denied coverage based on +their condition? + Ms. Turner. I'm sorry, repeat. + Mr. Grothman. Under current law, are people allowed to be +charged more, denied coverage based on their conditions? + Ms. Turner. No, Congressman. + Mr. Grothman. OK. So that is the current law right now. +Good. Now I will give you some other general questions. I am +from Wisconsin. In 2018 last year, Scott Walker worked with the +Trump administration and CMS to approve a 1332 State innovation +waiver, which caused our premiums to drop. Are you familiar +with that situation? + Ms. Turner. Yes, I am, sir. + Mr. Grothman. Could you talk about what we did in +Wisconsin? + Ms. Turner. I mentioned actually in my testimony some of +them, some of the impact that these plans have had and of +course I can't find this chart when I'm looking for it. But +they have been able to basically repurpose existing ACA money +to help increase access to coverage or to improve access to +coverage for people with chronic conditions, preexisting +conditions, and therefore lower premiums in their general +market. + So a number of States have--Wisconsin is often taking the +lead in health policy innovations and waivers and I think that +this is an important one to move forward with. + Mr. Grothman. And at least I am told that premiums dropped +a little over 4 percent, is that your? + Ms. Turner. Premiums dropped and enrollment increased as a +direct consequence. + Mr. Grothman. Good. And in the past, before this type of +thing, we saw incredible increases in premiums and open +enrollment falling. Is that--we saw that in Wisconsin. Is that +your nationwide? + Ms. Turner. Because the premiums were so much higher-- + Mr. Grothman. Right. As the premiums--a lot of people just +throw in the towel. + Ms. Turner. People just can't afford it and they also--we +talk about a high deductible. The deductibles are so high and +the ACA plans that if people are not eligible for cost-sharing +reduction subsidies they basically say they might as well not +be insured because they can't afford to pay the first $10,000 +every year out of pocket before coverage kicks in. + Mr. Grothman. I am glad you mentioned association plans. My +experience with health care in general, when you take a group, +not a Statewide group because it is hard for the State to +duplicate it, but when you take a business with a 1,000 +employees or something, a lot of those innovative businesses +were doing a very good job. One of the things they did is +employer-based clinics which saved tremendous amount of money +for a variety of reasons. Is there any way that you can see +that sort of thing can be duplicated through something like +Obamacare or is this the type of innovation that is why we want +the vast majority of Americans hopefully still insured through +their employer? + Ms. Turner. Well, the Affordable Care Act did allow some +innovation incentives for people to do--not association health +plans, I'm blanking on the name of the creative coordinated +care plans within Medicare. And because the rules that were +written around the Affordable Care Act were so strict, even +plans like the Mayo Clinic and Cleveland Clinic and others that +had been--Geisinger, that had been very successful in managed, +coordinated care, couldn't make it work. + So I do think that flexibility is really important and +trusting employers--some employers have said for example that +they feel it is worth flying their employee to another State +and family members to get care at a center of excellence, of +cardiac care, cancer care. So they really do try to innovate to +get the best value and the best quality care. + Mr. Grothman. It is another thing. I did mention employer- +based clinics but these centers of value, flying people to +other States because an employer has the ability to hire +somebody and do a good job. Now I know there are a lot of +people who always feel that setting up another big Federal +bureaucracy is going to work after this seems to have failed +like 120,000 times in a row, but what you are telling me is a +way that the private insurance plans and for individual +companies and hopefully to be duplicated by associated plans, +they are able to find ways to reduce premiums and reduce costs +that really as a practical matter are not being duplicated with +a government bureaucracy. + Ms. Turner. That is correct. + Mr. Grothman. Thank you. + Chairman Scott. Thank you. The gentleman from Michigan, Mr. +Levin. + Mr. Levin. Thank you, Mr. Chairman. I would like to dig in +a little more deeply to the Texas v. United States case and I +have a question to start for Ms. Corlette. In a departure from +long standing precedent of defending Federal law against +constitutional challenges, the Trump Administration's +Department of Justice filed a brief last year requesting that +the court strike down several provisions of the ACA in the +Texas case. Among the provisions that the administration argues +should be overturned include guaranteed issue, community +rating, discrimination based on health status and preexisting +conditions exclusions. + Last week, President Trump told the New York Times that he +is optimistic that the ongoing Texas lawsuit will terminate the +Affordable Care Act. Would you say that the Justice +Department's decision not to defend the ACA is consistent with +Republican promises to protect patients with preexisting +conditions? + Ms. Corlette. Well, I would say that the Justice +Department's provision--position if it prevails would strike +down the protections that the ACA provides for people with +preexisting conditions. So no, it's not consistent. + Mr. Levin. And how does this, his statement reflect the +Administration's approach to this issue? + Ms. Corlette. I-- + Mr. Levin. Of preexisting conditions that we are here to +talk about. + Ms. Corlette. I have, yes. I have a little trouble divining +exactly what the Administration's position is given that there +do seem to be differences between what President Trump has said +and what the Justice Department position is so I am not sure I +can comment. + Mr. Levin. And what they are actually doing. So you pointed +out in your testimony that Republicans never have come up with +a proposal to replace the ACA yet they continue with their +efforts to unravel it, the most recent example being the Texas +lawsuit. + During the last Congress when we were debating the +Republican bill to repeal the ACA, Republicans put proposed +segmenting the population and dumping sick patients into high +risk pools. The CBO had the following assessment of this +proposal: ``Less healthy people would face extremely high +premium. Over time it would become more difficult for less +healthy people, including people with preexisting medical +conditions in those States to purchase insurance because their +premiums would continue to increase rapidly.'' + One of our witnesses, Ms. Turner, has put forth a similar +proposal this morning or early this afternoon. Ms. Corlette, +how do risk--high-risk pools stack up as an alternative to the +coverage provided through the ACA? + Ms. Corlette. Sure. Well, we have a history of high-risk +pools. Before the ACA there were about 35 States that had high- +risk pools and they varied. They were different, but I can tell +you that for people who were in high-risk pools, the premiums +could be as much as two times the standard rate. They often had +preexisting condition exclusions so the condition that got you +denied coverage in the individual market you didn't get covered +in the high-risk pool for up to a year. You had annual and +lifetime limits quite often, high deductibles and often many of +these high-risk pools limited enrollment. Even still, they +operated at a loss so they needed to be subsidized by the +government. + Mr. Levin. OK, thank you. I have a question for Mr. Riedy. +In your testimony, you described the enormous cost of your +medical treatments, totaling nearly $450,000 last year. Prior +to the ACA plans in the both the individual and employer market +were permitted to impose annual and lifetime limits on care and +many of them did, including more than 90 percent of the plans +in the individual market. You better than most people can speak +to the real-world impact of these limits. Based on your +personal experience, how do annual or lifetime limits on +coverage impact patients with high-cost conditions? + Mr. Riedy. Thank you for the question. Annual and lifetime +caps for me personally if they were allowed to exist again +would cause a severe financial burden on my family. Not just +from the cost of having to pay for the care that I receive, but +also from the impact that if I do reach that cap, what happens +next? Do I have to pay for them out of pocket? And if I do then +those costs can be unmanageable. + As you mentioned my care last year just for the medicines +was $450,0000. That is a lot of money to take and so the +impacts of those caps, having them now provide peace of mind. +They also know that I can continue to receive the highly +specialized care and that I have access to that coverage that +allows me to get that care. + Mr. Levin. I can't thank you enough for coming and sharing +your story with us and with the American people. And just in a +note of solidarity, I like the gentlewoman from Georgia who +spoke earlier, I am a two-time cancer survivor but also Mary +and I have four kids. The two oldest both have Crohn's disease +and have for 14 years and we would have gone bankrupt multiple +times over just trying to pay for their medications if they +weren't covered and because of, you know, caps. Lifetime, we +would have blown by lifetime caps already so I really thank you +for sharing your story. I yield back, Mr. Chairman. + Chairman Scott. Thank you. The gentleman from Kansas, Mr. +Watkins. + Mr. Watkins. Thank you, Mr. Chairman. My question is for +Ms. Turner. Ma'am, I represent Kansas and in Kansas, Kansans +with preexisting conditions face a number of challenges and +hardships. And I am glad that a lot of Democrats and +Republicans agree that Americans with preexisting conditions +should and have been for years been protected, for decades +actually. And so in that of course even before the Affordable +Care Act so unfortunately since its passage, the ACA continues +to be problematic. Premiums continue to rise and the answer I +believe is not to double down on ACA but and seek a one size +fits all government-run health care regime. + Therefore, Ms. Turner, since the passage of Obamacare, can +you speak to the lack of actual affordability for the vast +majority of Americans? Also the rate of continued premium +increases because of the law? + Ms. Turner. Premiums in the exchange markets have about +doubled on average since the law went into--since the exchanges +took effect in 2014. That is much higher than in the regular +market and certainly before that. And a consequence of that is +that it's driving more and more healthy people out of the +market. + The ACA as you know forces young people to pay a +disproportionally high amount for their coverage because of the +three-to-one age rating in the exchanges. And so we are +losing--if young people are not eligible for their parent's +coverage and trying to afford premiums on their own, they're +paying a disproportionate amount for people who are older and +sicker and therefore they're dropping out as well. So I think +it is crucial if we really want to increase access to health +coverage that we figure out a way to get cost down and to +attract the healthy people into the market. + Senator Reeve's constituent in Virginia, he doesn't want to +drop out of health insurance market but he can't afford $4,000 +a month for premiums and having no choices of coverage. Some +people need more choices. They need to be able to have more +flexibility with benefits to protect their family and they need +some of these bridge plans like association health plans and +short-term limited duration plans. + Mr. Watkins. Thank you. I also want to touch on our +increasingly strong economy propelled by comprehensive tax cuts +and regulatory reform. In fact, CNBC recently noted that +January job reports just last week payroll surged by 304,000 +smashing estimates. Thanks to recent pro-growth Federal policy +changes, more and more Americans are finally finding good +paying jobs. Many of these jobs offer generous employer +sponsored healthcare. So all the employers simply know that +they can--that they have to be competitive to attract good HR. +So, Ms. Turner, can a strong jobs market spurred by pro-growth +policies lead to increased coverage rates nationally for +employees--employers with preexisting coverage? What are some +policies that can continue fueling work force participation? + Ms. Turner. You are absolutely right that employees highly +value the, their workplace coverage and the workplace--the H.R. +departments, especially for big companies work tirelessly to +try to negotiate the best benefits, the best drug formulary and +the access to the highest quality hospitals for their employees +to attract them so that they won't go to a competitor. And +there are how many, 2 million jobs, two and a half million jobs +that aren't filled now and employers can't even find the +workers to fill them. So being able to offer attractive, +affordable health coverage with the flexibility to meet the +needs of their workers, and having providers that are competing +for that business to get, to offer those lower costs, higher +value plans, I think is really a crucial part of a thriving +economy. + Mr. Watkins. Thank you, Ms. Turner. I yield back, Mr. +Chairman. + Chairman Scott. Thank you. The gentleman from Maryland, Mr. +Trone. + Mr. Trone. I thank you, Mr. Chairman. Ms. Corlette, 30 +years ago I started my business with my wife and two little +girls and I know firsthand starting a business can be scary +without the fear you are going to be able to afford healthcare +for yourself and your family. You mentioned prior to the ACA +people were often tied to jobs they'd have otherwise left but +simply because they needed to maintain healthcare, access to +affordable health insurance. Could you elaborate on what the +ACA's protections for patients with preexisting conditions has +meant for entrepreneurship, startups, small business creation? + Ms. Corlette. Sure. So, before the ACA, if you were leaving +a job-based plan, you were required to maintain what was called +COBRA coverage which was continuation coverage, but you had to +pay the full premium. And for most people that was +unaffordable. And so, people often had a lapse in coverage and +then if you had a preexisting condition it was almost +impossible to find an individual market plan to cover you and +your family. + With the ACA you can now if you have a business idea or +want to go out on your own and start a consultancy or invent +something, you can do so without having to worry that your +preexisting condition would cause you to be denied or have a +preexisting condition imposed on your--exclusion imposed on +your policy. + Mr. Trone. So, Dr. Gupta, the opioid epidemic as you spoke +about and you are from West Virginia. My district borders +western Maryland so we are right there together in the heart of +the opioid epidemic on I-81. I lost my nephew, age 24, to a +fentanyl overdose a couple years ago and so many folks in my +district have been adversely affected by this tragedy. + With the ACA, we closed a lot of gaps in coverage, +especially in the area of behavioral health. And I think that +is so important and it is all part and parcel of this disaster +substance disorders. If the ACA was gone, what do you see as +the human toll? + Dr. Gupta. Thank you for that question. Certainly we +understand, you know, States with border counties populations +don't treat those as States, they are one community within +those areas. So, it's very important for people to be able to +move across and not have to worry about what is the State +regulation in this State and the State regulation in that +State? ACA allows that consistency to happen State to State. +The mental health protections as well as the ability to get the +help that need and people would have so many other challenges +ongoing at the same time. ACA really allows that to happen and +I think that is the most important piece as we are combatting +this opioid crisis is to be able to not have any extra barriers +in terms of coverage and accessibility to care. As the good +treatments are existing and more come up, we have got to be +able to have the access to provide tens of millions of people +who are suffering and dying actually, tens of thousands per +year to be able to save them and get them back to work. + Mr. Trone. As we put together legislation on opioids to +address that, what do you see as a couple key points that +should be in that to address the mental health connectivity +which was so crucial and part and parcel of this at all times? + Dr. Gupta. I think it is very important for us to go back +to see what we did with HIV. We realized HIV was much more of a +social determinant aspect of this in the 80's and we put +together, you know, the Ryan White Care Act for example, that +not just took care of you as an individual, your medication, +but you--looked at your house and your access and all those +things. + So I think it is very important when you look at this +crisis, we are looking at housing, we are looking at access, +daycare, all of those tools that surround somebody who is +suffering from addiction to be able to be provided so that they +can get into treatment and then they can have a successful, +fair chance of recovery and back into employment. + So, it is a lot more than just pills or just counseling. +There is a societal response that we must have to this crisis +in order to address it and I think that is the part that we can +do more, not less. + Mr. Trone. OK, thank you. I yield the balance of my time. + Chairman Scott. Thank you. The gentleman from Indiana, Mr. +Fulcher. + Mr. Fulcher. Thank you, Mr. Chairman, and panelists. + Chairman Scott. Excuse me, Idaho. Excuse me. + Mr. Fulcher. Yes, it is a common mistake. Thank you. +Panelists take heart. I think the end is near. It is coming +close here OK and please forgive the lack of attendance by some +of us on the front end. I, for one, am still struggling with +the multiple committees as the same time. And so please know +that wasn't rudeness. + My question and I will probably address this to Ms. Turner +because I know some of this has been covered and I am going to +shorten things up because Mr. Watkins hit part of that. But in +our State of Idaho, 2012 I think it was we--I believe we were +the only State with Republican leadership in the House, the +Senate, and the Governor's office that embraced the State-based +exchange. And I was in the Senate leadership role at that time +and in hindsight it just hasn't worked out well for us. + Our insurance premiums across the board have averaged +somewhere between a 15 and a 27 percent per year increase. And +so as we speak right now, in our State, there is a lot of +things on the table. It is--that have been--that are being +discussed right now. Alternatives to try to figure out a better +path and I would just like to get your counsel, your input, on +some of those things and I will just list a few. But the +expansion of HSAs, medical memberships, medishare, charity +care. The expansion of insurance procurement across State lines +which in our State we can't do, high-risk pool reform. Those +types of things which are--they are more market-based and given +our history and our struggle with the status quo that there is, +your thoughts, your counsel on that type of an approach. + Ms. Turner. States do talk about the difficulty of figuring +out how to address the needs of their State but it's even more +than the State. It's sometimes at a county level. You have +rural counties who have very different problems then Cincinnati +and Canton and Cleveland. They've really need to have the +resources and the flexibility to meet the needs of those areas. + And I want to really reinforce what Dr. Gupta was saying +about the social determinants of health. We put so much money +just into health care when people may actually need other kinds +of supports to make their lives work better. And I believe that +Ohio is one of the States that has--is implementing work +requirements as well for Medicaid. And people who work with +these communities say that is a valuable thing to make sure +that people have someplace to go once they get through +rehabilitation treatment, to have a job, something to give +stability to their life. Help them with housing. + If States had more flexibility and I believe the Trump +Administration is working to do that. As we have said before, +Congress had repeatedly voted for money to dedicate money to +high-risk pools. Many States that were doing--the States that +were doing high-risk pools in the past were doing it all with +State money. With the ACA there is new money to put on the +table to make those risk pools work better so that you can +provide dedicated resources for them and more comprehensive +care for chronic conditions. + So care management for those high end patients, being able +to have more flexibility, to provide the kinds of benefits +structures that people actually want to purchase to protect +themselves and their families I think are really crucial. And +hopefully we can work with Ohio and other States in trying to +think about what some of those waiver options might be to +work--make it work better for your State. + Mr. Fulcher. Thank you. Mr. Chairman, a quick followup and +I will--thank you. Ms. Turner, in a few words because I am +going to yield my time here in just a second. But that makes +sense. But when it comes right down to it, should we be +focusing on solutions that come out of this room and out of +this building and out of the building next door or should be +focusing on more market--enabling market-based solutions to try +to improve our situation? + Ms. Turner. We see in Medicare advantage for example that +market-based solutions to provide more comprehensive care and I +believe it is really based upon a formula very close to what +traditional Medicare pays for Medicare advantage, can give +incentives to begin to find the same kinds of cost efficiencies +in the health sector that we see at other sectors of the +economy. + When you have so much of the time of health care providers +and administrators focused on following Washington's rules +rather than figuring out what is best for the patient, what is +best for our State that it really takes away time and energy +from solving the problem. + Mr. Fulcher. Thank you, panelists, Ms. Turner. Mr. +Chairman, I yield back. + Chairman Scott. Thank you. Gentlelady from Michigan, Ms. +Stevens. + Mr. Stevens. I would like to take a minute to thank our +panelists today. Ms. Corlette, your expertise and knowledge +was--is so welcome and we thank you for taking the time. + Mr. Riedy, thank you for your courage and your words of +wisdom and sharing your personal story. It was a delight to be +in this room with your family who was looking at you with very +proud eyes. You are one of the reasons why the ACA was so +critical and critical to every American taxpayer and American +worker and I admire you from the bottom of my heart. + And, Ms. Turner, I want to thank you for your eloquence and +answering a lot of questions today. And, Dr. Gupta, thank you +for being here. + As we are here examining threats to workers with +preexisting conditions, this topic could not be more critical +as our Ranking Member Foxx indicated. We have a healthy economy +and the health of our taxpayers and our workers is paramount. + And Dr. Gupta, I would like to take my questions to you and +your expertise which we are delighted to have in the room +today. In your testimony, you discussed the issue of high-risk +pregnancy and delivery and how women prior to the enactment of +the ACA often found that, you know, they reached their policy's +cap. They would reach their policy's cap on the amount of care +provided. They would find themselves exposed financially, +unsupported in the workplace, and generally pushed to a brink. +And so, I would like to ask you, what is the cost of high-risk +pregnancy and how likely are women to run up against these caps +in the absence of the ACA protections. + Dr. Gupta. Certainly, thank you for that question. March of +Dimes certainly is doing a lot of work around this because we +know that maternal mortality and morbidity amongst the 49 +developed countries in the world, we are number 49. We are +actually three times mortality of the next country in line +which is UK. So we are really in a bad shape right now. For--we +have women dying every single day. + The cost can be tremendous and when we look at the cost +really it is not just human lives lost, but we are talking +about one complicated pregnancy can cause that woman to lose +potentially her absolutely full annual lifetime limits. So, she +may not have coverage for the rest of the year and have to take +care of not just the baby but the rest of the family. + Same way we go back to the severe prematurity. One simple +birth with severe prematurity can land a child, an infant for +multiple months in a neonatal ICU. So, when the baby returns +home for the first time when there should be a cause for +celebration, it would then be a cause that the baby could meet +his or hers lifetime limits on care and not be insurable until +Medicare. And that's just a terrible thing to think about and +those are the challenges we are dealing with where we need to +be making progress to work in those maternity care deserts. + We have a third of the counties in this country or 1,000 +counties, 5 million women, 150,000 babies that are being born +what no obstetric care. And so that we are actually, you know, +talking about walking backwards. + Mr. Stevens. Well, and not only is this a cost to the +mother and the family, it is a cost to the employer as we, you +know, are talking about the workforce and our economy writ +large. And, Dr. Gupta, as you know, the Affordable Care Act +requires insurers to cover preventative health services without +cost-sharing and these obviously include family planning, well +women visits, screenings for domestic violence and other +crucial health services. + And I, just to back this out a minute, I would love for you +to just reflect on how pregnant women and other new members-- +mothers, excuse me, utilize these services and what impact +would overturning these provisions maybe through the Texas +litigation have on these women? + Dr. Gupta. So first of all, just the idea of preconception +care to be healthy in order to get pregnant is very important. +That would not happen. Then within prenatal care the notion of +having things like vitamin--folic acid and vitamins, which we +think is very basic, we recommend that all across the globe, +yet we can have women that can have, deliver and cause real +harm to the babies developing because of neural tube defects +and other things that are not being provided. Throughout the +prenatal care we know the amount of visits that happen with the +doctor's office and this following a standard of care leads to +better delivery, better care of not just the mother but also +the baby as a result, getting the family dyad back together, +the mom and baby. None of that would be possible if we were to +remove that. + And obviously one of the things that used to happen was the +only time you could get into Medicaid was if you were--if you +got pregnant and then it would be removed the coverage right +after. Now we have 60 days, up to 60 days coverage post-partum. +When we are dealing with challenges of post-partum depression, +suicide, post-partum hemorrhage, hypertension, eclampsia, heart +conditions, it's very critical for us to build on that coverage +post-partum up to a year because of the increasing maternal +mortality that is happening. + This is still the most dangerous place for a woman to have +birth in the developed world. And we need to be working again +not at removing that but actually developing more steps but at +this time, removal of ACA provisions will cost women and their +children not only just their jobs but potentially their lives. + Mr. Stevens. Yes. Well, Dr. Gupta, while you don't share my +gender, I appreciate you sharing the stories of women and +mothers and making that at the forefront of our minds today. +Thank you. + Chairman Scott. Thank you. The gentlelady from Nevada, Ms. +Lee. + Mr. Lee. Thank you. I wanted to first thank all of the +panelists today for your testimony and answering the questions. +And, Mr. Riedy, I wanted to speak directly to you. First of +all, CF has had a place in my family. My husband lost a cousin +about 30 years ago before groundbreaking technologies and +treatments were available. And more importantly, my sister, +Mary Lester, is a respiratory therapist at Keck Medical Center +at USC and dealing with adult cystic fibrosis. So, through her +years, through my years and I have experienced alongside her +many of the struggles that patients like you go through. So, +thank you very much for being here and your testimony. + I wanted to ask, in your testimony you pointed out that +you're fortunate to have comprehensive health coverage through +your wife's employer. If your wife were to change jobs, choose +to start a small business or possibly take time off for +education, you might end up in a situation where you would have +to change this coverage. And I wanted to know from you how do +the Affordable Care Acts protections for patients with +preexisting conditions provide peace of mind that you would +never be without coverage? + Mr. Riedy. Thank you for that question. Knowing that my +wife or I could switch employers and still be adequately +covered, it gives us peace of mind that allows us to be +flexible and explore new opportunities potentially that before +the ACA may not have existed. And without the ACA, you know, +there is always that fear that leaving a job if I went to +another one that I could still be denied insurance because of +my preexisting condition or if my wife changed jobs, you know, +would they deny me coverage because of my preexisting +condition. + Mr. Lee. And thank you. And to followup on that, what +impact would an adverse decision in Texas case have on your +wife's ability to change jobs? + Mr. Riedy. Well, if the ACA was--if the ruling stands, my +wife would have less of the opportunity to explore new +opportunities. She is a teacher so she is at a great place +right now but if she had to--if she wanted to do something +other than teach or switch employers there's still that fear +that we may be or I may be denied coverage or access to it. So, +it could lock her into where she is. + Mr. Lee. Lock her in. All right, thank you. One other +question. According to the Department of Health and Human +Services, the number of Americans with preexisting conditions +ranges from at least 23 percent, 61 million people to as many +as 133 million people. And prior to the Affordable Care Act +these Americans with preexisting conditions could be denied +coverage or charged an exorbitant premium to get coverage, +something that my parents had experience both having high blood +pressure at one point in their lives. + Some families have even declared bankruptcy from high +medical bills due to having a preexisting condition. Today, +however, insurance companies cannot discriminate against people +based on their medical history. + Mr. Riedy, without employer-sponsored health insurance or +insurance through your family prior to the Affordable Care Act, +do you believe you would have been able to attain affordable +health insurance? + Mr. Riedy. Before the ACA I would have likely been denied +coverage because of my preexisting condition without the access +to employer-sponsored health coverage. And the ACA provides me +with the opportunity to be adequately covered on the individual +market I'm currently in. Without them I don't know if that +would be possible. + Mr. Lee. Well, thank you so much for your testimony. I want +to say I texted my sister to tell her I was going to be +speaking with you today and she sent me this message back that +said please make sure we help people with cystic fibrosis +because these patient needs to have their medical needs met and +it is extremely expensive illness. She said they didn't cause +this disease, but they must fight it and so thank you for your +courage for being here. I appreciate it. + Chairman Scott. Thank you. The gentlelady from +Massachusetts, Ms. Trahan. + Ms. Trahan. Thank you. Thank you, Mr. Chairman, for having +this hearing and thank you, everyone, for hanging in for a long +hearing. Part of the challenge of being later in the program +and new here is so many of the thoughtful inquiries have +already been made but I do have a couple of questions. I am a +mother of two young girls, 8 and 4 as well as three grown +stepsons who have benefited from the ACA and being able to stay +on my health plan as they enter the workforce. + Before the ACA women were often charged more than men just +because of their gender and some couldn't even get coverage on +the individual market. For women of childbearing age, the +discrimination was particularly blatant, and the vast majority +of plans excluded maternity coverage of any kind. And I +appreciate my colleague from Michigan and her inquiry around +maternal care. + Dr. Gupta, I am wondering if you could just explain to us +what it was like for women to get health insurance coverage +before ACA and how many plans covered maternity coverage in the +individual market and what improvements have women and their +families seen since ACA? + Dr. Gupta. Certainly, thank you for that. We know that +prior to the ACA, only 11 States mandated the coverage of +maternity care. Only 13 percent of the individual health market +actually covered maternity care. We know that at that time +obviously the gender of being female was a preexisting +condition in effect. We also know that 47 percent of people who +tried, adults who try to get coverage with preexisting +condition were either denied, charged more or were precluded +from at least one condition. That's from the Commonwealth Fund +Study. So, we know that this was a big problem. + Since then, March of Dimes did a study in 2015 and found +that between 2013 and 2015 the uninsured coverage for +childbearing age women went down from about 20 million to 13 +million, I'm sorry 20 percent to 13 percent. That means that +another 5 and a half million of childbearing age gained +coverage. Not only that, the unmet needs actually went down by +10 percent points of those women. So clearly that has been a +big gain. + I would say when we talk about preexisting conditions, +health inequities are the first cause of preexisting +conditions. And when I talk about maternal mortality, a black +woman in this country is more likely to die--three to four +times more than a white woman. So, we still have for healthcare +institutions across and healthcare systems across the country, +today, race is a preexisting condition and we need to continue +to work on that and I think that is a critical piece that I +must bring up as well. + Ms. Trahan. Thank you. Thank you, Dr. Gupta. and, Ms. +Corlette, to borrow a phrase that is going around a lot, the +dignity of work is something that means a lot of me. And I am +the daughter of a union ironworker. My mom worked multiple +part-time jobs while raising my sisters and me. I am constantly +thinking about how are we going to support work and labor as it +transitions to the future and what the future of work actually +looks like? + We talk a lot about our economy and adding more jobs but +those don't always translate into employer-sponsored plans. So, +a recent Department of Labor survey found that 10 percent of +the workforce are categorized as either independent contractors +or self-employed. This represents a growing segment of the +workforce, in fact more than half of all ACA marketplace +enrollees are small business owners, self-employed individuals +or small business employees. + I am wondering if you have looked at any additional +research on the impact of the Texas lawsuit or even just the 70 +plus ACA repeal attempts would have on the future of work? And +also, if we have time, can you discuss the impact of removing +preexisting condition protections for gig economy workers, +independent contractors specifically? + Ms. Corlette. Sure. Thank you. It's a great question. So, +for folks who do have job-based coverage, there are a couple of +things to be concerned about if the Texas court decision +stands. One of course is that people could lose--with chronic +or high-cost health needs could lose some of the protections +that Mr. Riedy has spoken so eloquently about. The other issue +of course is job lock, and this is a phenomenon that was well- +documented before the ACA where folks sort of hung onto their +jobs and their job-based coverage because of the uncertainty of +the individual market. And they may have had a great business +idea or been a terrific entrepreneur but did not pursue that +because of their need to maintain job-based coverage. + Ms. Trahan. Great. Thank you. Thank you, Mr. Chairman, I +yield back. + Chairman Scott. Thank you. The gentlelady from North +Carolina, Dr. Adams. + Ms. Adams. Thank you, Mr. Chairman and thank you all very +much for your testimony and for sitting out with us, we +appreciate that very much. Mr. Riedy, thank you so much for +sharing your story. + Mr. Chairman, I would like to enter into the record first +from the--some organizations that have commented regarding the +preexisting conditions and the GOP plan. First, the American +Cancer Society Action Network who says that these protections +are hollow if patients and survivors can't afford insurance. +From the American HealthCare Association, the plan would do +just the opposite and not serve the health needs of all +Americans. And then they also say that the greatest achievement +of the ACA is protecting those with preexisting conditions. The +National Disabilities Rights Network says that GOP plan permits +discrimination against people with disabilities in the +insurance market for preexisting conditions and I would like to +enter this into the record, Mr. Chairman. + Thank you. Let me just say as I have listened to you, all +of you I thought about Dr. Martin Luther King, Jr., who talked +about healthcare and inequities and who said that ``of all the +forms of inequality, injustice in healthcare is the most +shocking and most inhumane'' and indeed it is. I do want to +just mention the impact that ACA has had on communities of +color, in particular the protections of those with preexisting +conditions. + I am a diabetic and that's an illness that was considered, +is considered a preexisting condition. It is very prevalent in +my family. I had a sister who suffered with sickle cell, from +sickle cell anemia, a preexisting condition who passed away +before she was 27. African-Americans are 80 percent more likely +than Whites to have been diagnosed with diabetes. About 365 +African Americans suffer with sickle cell anemia. Latin--Latino +Americans have the highest rates of cervical cancer and Asian +women are at the highest risk of osteoporosis. + Simply put, the Affordable Care Act has saved lives and has +provided healthcare to millions who previously thought +affordable treatment was just a dream. Folks like me, families +that grew up who didn't have healthcare at all, no health +insurance, having to go to the emergency room to get our care. + Dr. Gupta just one or two questions. For those with +preexisting conditions or minority communities, how many more +people with chronic illnesses have been covered and have those +who suffer from chronic ailments seen improvements in their +conditions as a result? + Dr. Gupta. I can tell you that there has been a great +progress made in that and I will certainly get you the exact +numbers but the great progress made in that and the ability to +again, level the playing field in our pursuit to level the +playing field to get people to be covered. And we, I say that +because these conditions are a part and representative of your +socioeconomic condition. They're representative oftentimes of +the culture we come from and lots of other things. What we call +social determinants of health, education level. So being able +to provide the basic healthcare that has happened as part of +the health ACA has allowed our communities of color actually to +be--have one less thing to worry about. So that's one of the +things. + The other piece I will go back to, you know, as March of +Dimes we are focused on the health of moms and babies and +nowhere is it more evident, the disparities and health +inequities when we look at moms and babies. As I mentioned, +three times to four times more likely to die if you're a black +woman. Same way prematurely. Twice as likely to die if you're a +premature child who is African-American. So, these are the type +of things that we are fighting for and I think it is very +important to understand that this will take us many steps +backwards and we need to be moving forwards. + Ms. Adams. Great, thank you very much. Wanted to just, you +know, note that since the President assumed office we have seen +a constant attack against ACA. So much so that we are seeing a +reversal in quite a bit of the progress that we have made and +just wanted you to just briefly comment on how this reversal in +progress has impacted people of color specifically. + Dr. Gupta. I think what we are--once again will end up +happening, we will have individuals who will be dependent again +on emergency care and urgent care as a result of which +screenings will not happen, preventive visits will not happen. +As a result of which we will not have--be able to catch those +diseases early. It will be delayed, it will be more expensive +and it will cost more lives. As Ms. Corlette eloquently pointed +out a couple of times that we have clear data for ACA that when +people were uninsured there were about, over 20,000, 22,000 +people we know in this country were dying every year because of +the lack of insurance per say. We will go back to that. + Ms. Adams. Thank you very much. I yield back, Mr. Chairman. + Chairman Scott. Thank you. Gentlelady from Minnesota, Ms. +Omar. + Ms. Omar. Thank you, Chair. Thank you all for being here. +Thank you for having this really important, critical +conversation but sometimes frustrating conversation. And I say +frustrating because of two reasons. One, to see the disconnect +between what some of my colleagues would say in committee about +healthcare and what their votes say about where their +priorities and their values are, seems very, very frustrating +for me. + And the second is for us to have conversations about policy +that have real impact on humans but to not really think about +the humans that we are talking about in this discussion. So I +am one that sees healthcare as a human right and I want to take +some time for us to humanize this particular conversation +because, you know, there are--there are people who will talk +about the costs, they will talk about, you know, what struggles +corporations will have or companies will have or a small +businesses or all of these kind of things. But oftentimes we +don't talk about the kind of stresses and the traumas that +people like yourself, Mr. Riedy, have lived with as you not +only deal with getting the diagnosis and figuring out how you +go on with life, with the condition that could be a hindrance +to your day-to-day life or could, you know, maybe end your +life. + So, what I wanted to do was maybe have you walk us through +what it must have been like to go through the process to +receive those letters from insurance companies before the +passage of the ACA. + Mr. Riedy. Well, thank you for the question. And this was, +back in 2007 and to know--have spent 7 days in the hospital and +to know that--what the cost of that care is and then after that +I also spent 14 days at home on IV antibiotics at home which +required a home healthcare nurse who came every couple days to +draw blood and just check on the dressing and the IV and +everything. + But to receive information that describes the cost of your +care A, is a shock to see how much it actually costs. But then +to see how that is then compiled toward a limit of what an +insurance company or someone is willing to pay is worrisome and +scary because you know that without that care or access to-- +without access to the coverage that will give you that care, it +will be much harder for you to stand a chance. And not just for +me but for others with CF or with other preexisting conditions +that faced those same struggles. + It takes a toll not only on us as people but also on our +families and those that love us because it, it's not just me +that would sit and think about it. It's my wife, right. And my +kids are--at the time at 2007 they weren't alive yet. But now +if that was to happen again, that puts an unnecessary burden on +them as well. + And having the knowledge that there are no caps and not +having to receive those letters anymore allows us to focus on +our family and to continue to seek the best coverage and care +that allows - and medicines that are highly specialized to +target what the issues are with my disease and to help prolong +my life so that like I mentioned earlier I can see my children +grow up and go to college and not fear that I may have to make +a decision one day so that they can continue to grow and me not +have to have that coverage. + Ms. Omar. Thank you. I see an immorality in the way that we +are creating policy without taking in the actual impact that it +has on the people's lives. We take a constitutional oath to +protect the safety and the wellbeing of the people that we +serve. So, thank you so much for sharing your story and I will +tell you that you have people here in Congress who will make +sure to constantly center that. So, thank you. I yield back. + Chairman Scott. Thank you. And I recognize myself now for +questions and the vote has been called so these are going to be +some quick questions. Appreciate some quick answers. + Ms. Corlette, you mentioned the New York situation where +they covered--they guaranteed issue notwithstanding the +preexisting condition and when the Affordable Care Act came in, +is it true that the cost for individual insurance dropped more +than 50 percent? + Ms. Corlette. Yes. It's true. + Chairman Scott. The effect of the Texas case, is it true +that if the case is upheld there will be no protection, +national protection against--for preexisting conditions? + Ms. Corlette. The ACA protections will be stuck down, yes. + Chairman Scott. Now we have heard that if it is +unconstitutional the court would provide some transition time. +Is there any--you are a lawyer, is there any guarantee that +there would be a transition time if they call it +unconstitutional? + Ms. Corlette. There is no such guarantee. + Chairman Scott. Now the repeal and replace, are you +familiar with the American HealthCare Act that passed the +House? + Ms. Corlette. I do remember it, yes. + Chairman Scott. OK. Is it true that if that had passed 23 +million fewer people would have insurance, costs would go up +about 20 percent the first year, and there would be fewer +consumer protections? + Ms. Corlette. I don't remember the exact numbers but that +sounds like what I remember, yes. + Chairman Scott. And we have heard a citation in the bill +that protects people with preexisting conditions but what +wasn't read was an ability for States to waive that protection, +so if you are unlucky enough to be in the wrong State that you +could have no protection against preexisting conditions. Is +that right? + Ms. Corlette. Right. + Chairman Scott. 11 million people who have, who got +coverage through Medicaid expansion would they lose their +coverage? + Ms. Corlette. Yes. + Chairman Scott. And the 10 essential benefits including +prescription drugs, mental health, maternal and newborn care, +preventive care, would those evaporate if the bill, if the +law--if the ruling is upheld? + Ms. Corlette. Yes. + Chairman Scott. And we have heard about essential benefits +and Dr. Gupta has been very articulate on that. If maternal +and--maternity care were optional, who would buy it? + Ms. Corlette. Well, who would offer it is the first +question? Insurance companies generally would not offer it. And +if they did, it would typically be as what is called a rider +and the cost would be exorbitant. + Chairman Scott. Because the only people that would buy it +would be those who expect to have a baby in the next year. + Ms. Corlette. Right. + Chairman Scott. And the cost would be not insurance but +essentially prepaid maternity care. + Ms. Corlette. That's exactly right. + Chairman Scott. And that is why it would be unaffordable. +Now on the association plans, as I understand it you can get a +healthy group, young healthy men and who would pay less. The +arithmetic therefore says everybody left behind would pay more. +Is that right? + Ms. Corlette. That's correct. + Chairman Scott. Now the navigators which you mentioned are +community-based organizations that help consumers sign up for +coverage. Language recently published by the Centers of +Medicaid and Medicare--Medicare and Medicaid--states that +priority will be granted and funding organizations that promote +``coverage options in addition to marketplace plans such as +association health plans, short term limited duration +insurance.'' Is that consistent with the original purpose of +the navigators? + Ms. Corlette. No. Navigators are supposed to help people +enroll in marketplace coverage. + Chairman Scott. The--you know what has happened to the rate +of bankruptcy because of medical bills as a result of the +Affordable Care Act? + Ms. Corlette. I don't have that data at my fingertips, but +it has gone down. + Chairman Scott. And can you say another word about job lock +and why the Affordable Care Act gives people, particularly +entrepreneurs the opportunity to switch jobs? + Ms. Corlette. Sure. So, for people who have a preexisting +condition themselves or somebody in their family who has a +health condition, economists documented this phenomenon called +job lock which prior to the ACA led a lot of people to stay +with job-based coverage even if that job was not optimally +deploying their skills or talents. + Since the ACA if you are an entrepreneur or you want to +start your own business, you can do so without worrying about +coverage for your preexisting condition and if you are at least +initially not earning much income, you can qualify for +subsidies or even Medicaid. + Chairman Scott. Thank you. I would like to thank our +witnesses for their testimony. I now recognize the +distinguished ranking member for closing comments. + Mrs. Foxx. Thank you, Mr. Chairman, and I want to thank our +witnesses also for being here. I particularly appreciate the +opportunity that this hearing has given for Republicans to set +the record straight on our position on preexisting conditions. + I believe most every member spoke to it but we know that +every member believes in coverage for preexisting conditions +both those of us who were here to vote for the replace bill and +the other, and the numerous replacement bills that we have +offered. + There is so much to say to correct the record here that +there is not enough time. Perhaps I will submit some things for +the record but I want to point out that if the court rules the +ACA illegal, it would not repeal ERISA. It would not repeal +HIPAA. There are safeguards in both of those pieces of +legislation for preexisting conditions. Some of our witnesses +have been extremely careful in how they have answered those +questions and I appreciate that because they have been very +careful not to completely mislead people about that situation. +Contrary to what has been said about the work of Republicans, +we have made provisions in all our proposals and past +legislation that protects people with preexisting conditions. +And I think it is important we continue to say that. + The Affordable Care Act was built on lies. If you like your +insurance, you can keep your insurance. If you like your +doctor, you can keep your doctor. All of those things were said +and they--or costs will be lowered. Those were not true. The +ACA ordered people into a one-size-fits-all plan which +increased costs dramatically and we know that. What America-- +what Republicans have done is to offer Americans freedom and +choice. And what we should have been talking about today was +what the ACA has done to raise the costs of healthcare and make +it less affordable and less accessible. And with that again I +thank the witnesses and I yield back. + Chairman Scott. Thank you. Again, I want to thank the +witnesses and members for their participation. What we have +heard I think is a very valuable. The hearing has allowed us to +take stock of where we are, to examine the attacks on +preexisting conditions through unnecessary litigation, harmful +rules that have a negative impact on those with preexisting +conditions and I think we should try to improve and protect the +healthcare that we have now and not jeopardize it. + It is obvious that even the employer-based coverage with +the protection for preexisting condition, those with employer- +based coverage if we don't have the individuals covered, we +will have uncompensated cost-shifting so they will be paying +more if these, all off these other protections are repealed. If +there is no further business to come before the committee, the +hearing is now adjourned. + [Additional submissions by Ms. Adams follow:) + [GRAPHICS NOT AVAILABLE IN TIFF FORMAT] + + + [Whereupon, at 1:49 p.m., the committee was adjourned.] + + [all] +