diff --git "a/data/CHRG-116/CHRG-116hhrg35267.txt" "b/data/CHRG-116/CHRG-116hhrg35267.txt" new file mode 100644--- /dev/null +++ "b/data/CHRG-116/CHRG-116hhrg35267.txt" @@ -0,0 +1,3927 @@ + + - EXAMINING THREATS TO WORKERS WITH PREEXISTING CONDITIONS +
+[House Hearing, 116 Congress]
+[From the U.S. Government Publishing Office]
+
+
+                      EXAMINING THREATS TO WORKERS
+                      WITH PREEXISTING CONDITIONS
+
+=======================================================================
+
+                                HEARING
+
+                               BEFORE THE
+
+                         COMMITTEE ON EDUCATION
+                               AND LABOR
+                     U.S. HOUSE OF REPRESENTATIVES
+
+                     ONE HUNDRED SIXTEENTH CONGRESS
+
+                             FIRST SESSION
+
+                               __________
+
+            HEARING HELD IN WASHINGTON, DC, FEBRUARY 6, 2019
+
+                               __________
+
+                            Serial No. 116-1
+
+                               __________
+
+      Printed for the use of the Committee on Education and Labor
+      
+[GRAPHIC NOT AVAILABLE IN TIFF FORMAT] 
+
+
+
+           Available via the World Wide Web: www.govinfo.gov
+	                      or
+              Committee address: https://edlabor.house.gov
+              
+              
+                               __________
+                               
+
+                    U.S. GOVERNMENT PUBLISHING OFFICE                    
+35-267 PDF                  WASHINGTON : 2019                     
+          
+-----------------------------------------------------------------------------------
+For sale by the Superintendent of Documents, U.S. Government Publishing Office, 
+http://bookstore.gpo.gov. For more information, contact the GPO Customer Contact Center,
+U.S. Government Publishing Office. Phone 202-512-1800, or 866-512-1800 (toll-free).E-mail, 
+[email protected].                                         
+                 
+                    
+                    
+                    COMMITTEE ON EDUCATION AND LABOR
+
+             ROBERT C. ``BOBBY'' SCOTT, Virginia, Chairman
+
+Susan A. Davis, California           Virginia Foxx, North Carolina,
+Raul M. Grijalva, Arizona            Ranking Member
+Joe Courtney, Connecticut            David P. Roe, Tennessee
+Marcia L. Fudge, Ohio                Glenn Thompson, Pennsylvania
+Gregorio Kilili Camacho Sablan,      Tim Walberg, Michigan
+  Northern Mariana Islands           Brett Guthrie, Kentucky
+Frederica S. Wilson, Florida         Bradley Byrne, Alabama
+Suzanne Bonamici, Oregon             Glenn Grothman, Wisconsin
+Mark Takano, California              Elise M. Stefanik, New York
+Alma S. Adams, North Carolina        Rick W. Allen, Georgia
+Mark DeSaulnier, California          Francis Rooney, Florida
+Donald Norcross, New Jersey          Lloyd Smucker, Pennsylvania
+Pramila Jayapal, Washington          Jim Banks, Indiana
+Joseph D. Morelle, New York          Mark Walker, North Carolina
+Susan Wild, Pennsylvania             James Comer, Kentucky
+Josh Harder, California              Ben Cline, Virginia
+Lucy McBath, Georgia                 Russ Fulcher, Idaho
+Kim Schrier, Washington              Van Taylor, Texas
+Lauren Underwood, Illinois           Steve Watkins, Kansas
+Jahana Hayes, Connecticut            Ron Wright, Texas
+Donna E. Shalala, Florida            Daniel Meuser, Pennsylvania
+Andy Levin, Michigan*                William R. Timmons, IV, South 
+Ilhan Omar, Minnesota                    Carolina
+David J. Trone, Maryland             Dusty Johnson, South Dakota
+Haley M. Stevens, Michigan
+Susie Lee, Nevada
+Lori Trahan, Massachusetts
+Joaquin Castro, Texas
+* Vice-Chair
+
+                   Veronique Pluviose, Staff Director
+                 Brandon Renz, Minority Staff Director
+                                
+                                
+                                ------                                
+                            
+                            
+                            C O N T E N T S
+
+                              ----------                              
+                                                                   Page
+
+Hearing held on February 6, 2019.................................     1
+
+Statement of Members:
+    Scott, Hon. Robert C. ``Bobby'', Chairman, Committee on 
+      Education and Labor........................................     1
+        Prepared statement of....................................     4
+    Foxx, Hon. Virginia, Ranking Member, Committee on Education 
+      and Labor..................................................     5
+        Prepared statement of....................................     7
+
+Statement of Witnesses:
+    Corlette, Ms. Sabrina, Research Professor, Center on Health 
+      Insurance Reforms, Georgetown University Health Policy 
+      Institute..................................................     9
+        Prepared statement of....................................    11
+    Gupta, Dr. Rahul, Senior Vice President and Chief Medical and 
+      Health Officer, March of Dimes.............................    42
+        Prepared statement of....................................    44
+    Riedy, Mr. Chad, Resident, Alexandria, VA....................    23
+        Prepared statement of....................................    25
+    Turner, Ms. Grace-Marie, President, Galen Institute..........    30
+        Prepared statement of....................................    32
+
+Additional Submissions:
+    Adams, Hon. Alma S., a Representative in Congress from the 
+      State of North Carolina:
+        Article: House Health Bill Would Lead To Less Coverage, 
+          Higher Patient Costs...................................   108
+        Prepared statement from MomsRising.......................   110
+        Article: National Disability Rights Network Opposes 
+          American Health Care Act...............................   112
+    Jayapal, Hon. Pramila, a Representative in Congress from the 
+      State of Washington:
+        Prepared statement from Asian and Pacific Islander 
+          American Health Forum (APIAHF).........................   113
+    Underwood, Hon. Lauren, a Representative in Congress from the 
+      State of Illinois:
+        Article: Final Rule on Short-term Insurance plans will 
+          leave Patients With High costs, Less Coverage..........   118
+    Questions submitted for the record by:
+        Guthrie, Hon. Brett, a Representative in Congress from 
+          the State of Kentucky..................................   121
+        Smucker, Hon. Lloyd K., a Representative in Congress from 
+          the State of Pennsylvania..............................   121
+    Ms. Turner's response to questions submitted for the record..   122
+
+ 
+        EXAMINING THREATS TO WORKERS WITH PREEXISTING CONDITIONS
+
+                              ----------                              
+
+
+                      Wednesday, February 6, 2019
+
+                        House of Representatives
+
+                   Committee on Education and Labor,
+
+                            Washington, DC.
+
+                              ----------                              
+
+    The committee met, pursuant to notice, at 10:15 a.m., in 
+room 2175, Rayburn House Office Building. Hon. Robert C. 
+``Bobby'' Scott (chairman of the committee) presiding.
+    Present: Representatives Scott, Davis, Courtney, Sablan, 
+Bonamici, Takano, Adams, Norcross, Jayapal, Morelle, Harder, 
+McBath, Schrier, Underwood, Hayes, Shalala, Levin, Omar, Trone, 
+Stevens, Lee, Trahan, Castro, Foxx, Roe, Thompson, Walberg, 
+Guthrie, Byrne, Grothman, Stefanik, Allen, Smucker, Banks, 
+Walker, Comer, Cline, Fulcher, Taylor, Watkins, Wright, Meuser, 
+Timmons, and Johnson.
+    Staff present: Tylease Alli, Chief Clerk; Nekea Brown, 
+Deputy Clerk; Ilana Brunner, General Counsel; David Dailey, 
+Senior Counsel; Daniel Foster, Health and Labor Counsel; 
+Mishawn Freeman, Staff Assistant; Alison Hart, Professional 
+Staff; Carrie Hughes, Director of Health and Human Services; 
+Eli Hovland, Staff Assistant; Eunice Ikene, Labor Policy 
+Advisor; Ariel Jona, Staff Assistant; Kimberly Knackstedt, 
+Disability Policy Advisor; Stephanie Lalle, Deputy 
+Communications Director; Andre Lindsay, Staff Assistant; Max 
+Moore, Office Aide; Merrick Nelson, Digital Manager; Udochi 
+Onwubiko, Labor Policy Counsel; Veronique Pluviose, Staff 
+Director; Banyon Vassar, Deputy Director of Information 
+Technology; Joshua Weisz, Communications Director; Cyrus Artz, 
+Minority Parliamentarian; Marty Boughton, Minority Press 
+Secretary; Courtney Butcher, Minority Coalitions and Member 
+Services Coordinator; Rob Green, Minority Director of Workforce 
+Policy; John Martin, Minority Workforce Policy Counsel; Sarah 
+Martin, Minority Professional Staff Member; Hannah Matesic, 
+Minority Legislative Operations Manager; Kelley McNabb, 
+Minority Communications Director; Alexis Murray, Minority 
+Professional Staff Member; Brandon Renz, Minority Staff 
+Director; Ben Ridder, Minority Legislative Assistant; Meredith 
+Schellin, Minority Deputy Press Secretary and Digital Advisor; 
+Heather Wadyka, Minority Staff Assistant; and Lauren Williams, 
+Minority Professional Staff Member.
+    Chairman Scott. The Committee on Education and Labor will 
+come to order, and I want to welcome everyone to the hearing. I 
+note that a quorum is present. The Committee is meeting today 
+to hear testimony on examining threats to workers with 
+preexisting conditions.
+    Pursuant to committee rule 7(c) opening statements are 
+limited to the chair and the ranking member. This allows us to 
+hear from our witnesses a lot sooner and provides all members 
+with adequate time to ask questions.
+    I recognize myself now for the purpose of making an opening 
+Statement.
+    Today we are here to examine the threats to affordable 
+healthcare for workers with preexisting conditions. I want to 
+welcome our distinguished witnesses for agreeing to be here 
+today and to testify on an issue that affects roughly 133 
+million Americans across the country.
+    On March 23, 2010, President Barack Obama signed the 
+Patient Protection and Affordable Care Act into law. Over the 
+last 9 years, this historic legislation has improved the lives 
+of countless Americans by making insurance more affordable and 
+more accessible, while strengthening the quality of health 
+coverage and enacting lifesaving consumer protections.
+    The Affordable Care Act's success is even more remarkable 
+in the context of the persistent attempts to repeal and 
+sabotage the law. Since it was passed the House Republicans 
+called more than 70 votes to repeal all or parts of the ACA. 
+Those efforts were punctuated by the American Health Care Act, 
+a bill passed by House Republicans in 2017, which gutted 
+protections for patients with preexisting conditions. According 
+to the CBO, the repeal bill would have resulted in 23 million 
+fewer Americans with health coverage, would have raised 
+premiums by 20 percent the first year while providing less 
+comprehensive benefits, and would have jeopardized many of the 
+consumer protections found in the ACA.
+    The Trump Administration has taken an equally aggressive 
+approach to undermining the law. For example, the 
+Administration has expanded the use of junk plans that roll 
+back consumer protections, raise the costs for most consumers, 
+and have a troubling record of fraud and abuse.
+    On June 19, 2018, the Department of Labor finalized a rule 
+to expand association health plans. Under the rule, 
+associations can sell coverage to small businesses and self-
+employed individuals without meeting certain ACA standards that 
+would otherwise apply, such as: the requirement to cover 
+essential benefits, the prohibition against charging higher 
+premiums based on factors such as gender or occupation, and the 
+age rating limit, which prevents insurers from charging 
+unaffordable premiums to older people.
+    Extensive research has shown that association health plans 
+create a few winners and a lot of losers. A report published by 
+the Government Accountability Office in 2000 found that they 
+are likely to increase costs for most workers who are not in 
+association plans and make it harder for older, sicker workers 
+to get affordable care. The prevalence of fraud in these plans 
+is equally concerning. A 2004 Congressional Budget Office 
+report identified 144 ``unauthorized or bogus'' plans from 2000 
+to 2002. Those plans covered at least 15,000 employers and more 
+than 200,000 policyholders, and left unpaid medical bills over 
+$252 million.
+    On August 3, 2018, the Departments of Health and Human 
+Services, Labor, and Treasury jointly moved to expand the use 
+of short-term health plans. The Departments issued a final rule 
+to extend the allowable duration of short-term plans from 3 
+months to up to 12 months, with renewability up to 36 months. 
+Under the rule the short-term plans do not have include Federal 
+consumer protections, including protections for patients with 
+preexisting conditions. Because of the risk of confusion and 
+overall lack of consumer safeguards, not one single group 
+representing patients, physicians, nurses or hospitals voiced 
+support for the rule expanding the use of short-term plans.
+    The Administration's final and most dangerous attack on the 
+ACA is its unusual decision to side with a group of Republican 
+attorneys general in a lawsuit against the Federal Government 
+seeking to strike the ACA in court. So the Trump Administration 
+is effectively arguing that the ACA's consumer protections 
+should be invalidated, along with the rest of the law.
+    If this ultimately prevails, as it did in the district 
+court in Texas, the result would be catastrophic. All 
+Americans, whether insured through the ACA marketplace or 
+through their employers, would lose the consumer protections we 
+all take for granted, including elimination of lifetime and 
+annual caps. The prohibition on lifetime and annual coverage 
+limits, which protects workers from incurring unreasonable out-
+of-pocket expenses. Before the ACA, more than 90 percent of 
+non-group plans had annual or lifetime caps on coverage, and a 
+majority of the employer-provided plans imposed lifetime 
+limits.
+    Cost-sharing protections, the requirement that plans offer 
+to limit out-of-pocket costs to an affordable percentage of a 
+worker's income, elimination of preexisting health condition 
+exclusions, the requirement that all health plans cover 
+patients with preexisting conditions at the standard rate. Last 
+night I was pleased to hear the President's comment that he 
+wants to protect patients with preexisting conditions and end 
+the spread of AIDS. As I said, the actions of the 
+Administration have jeopardized those protections and people 
+with HIV or AIDS who would be excluded from coverage based on 
+preexisting conditions if those initiatives succeed. Preventive 
+services without cost-sharing, the protection that allows 
+workers and families to access vital preventive care without 
+paying out-of-pocket expenses. That protection would be 
+eliminated.
+    While I appreciate that my Republican colleagues are now 
+voicing support for many of these protections, their words have 
+not translated into actions. On January 9, Democrats voted on a 
+resolution to empower the House counsel to intervene in the 
+Texas case to defend the ACA and protect people with 
+preexisting conditions. Only three House Republicans voted to 
+support the resolution.
+    There many different views within the Democratic Party and 
+across the political spectrum regarding the best path forward 
+to further expand affordable care. But we must all commit, both 
+with our words and deeds, to maintaining the lifesaving 
+consumer protections enacted in the ACA and we must refuse to 
+go backward.
+    Until efforts to repeal and sabotage this historic 
+legislation cease, workers with preexisting conditions will be 
+at risk of losing access to the care they need to live healthy 
+and fulfilling lives.
+    I now recognize the distinguished ranking member for the 
+purpose of an opening statement.
+    [The statement of Chairman Scott follows:]
+
+    Prepared Statement of Hon. Robert C. ``Bobby'' Scott, Chairman, 
+                    Committee on Education and Labor
+
+    Today, we are here to examine the threats to affordable health care 
+for workers with pre-existing conditions. I want to welcome and thank 
+our distinguished witnesses for agreeing to be here and testify today 
+on an issue that effects roughly 133 million Americans across this 
+country.
+    On March 23, 2010, President Barack Obama signed the Patient 
+Protection and Affordable Care Act into law. Over the past 9 years, 
+this historic legislation has improved the lives of countless Americans 
+by making insurance more affordable and more accessible, while also 
+strengthening the quality of health coverage and enacting lifesaving 
+consumer protections.
+    Prior to the ACA, Federal law allowed insurers to deny people 
+coverage for certain pre-existing conditions, including recently 
+treated substance use disorder, pregnancy, and cancer. Prior to the 
+ACA, insurers in the individual market could exclude these individuals 
+from coverage, charge higher premiums, or put annual or lifetime caps 
+of health care coverage.
+    According to a 2007 Commonwealth Fund survey, 36 percent of adults 
+who attempted to purchase coverage in the individual market reported 
+being turned down or charged a higher price because of their medical 
+history. The ACA guaranteed access to affordable care for the roughly 
+133 million Americans with pre-existing conditions at the standard 
+rate.
+    By any objective measure, the Affordable Care Act has been a 
+success. The uninsured rate, which was 16.7 percent in 2009, fell to 
+just 8.8 percent in 2017.
+    The ACA's success is even more remarkable in the context of the 
+persistent attempts to repeal and sabotage the law. Since it was 
+passed, House Republicans have voted more than 70 times to repeal all 
+or parts of the ACA. Those efforts were punctuated by the American 
+Health Care Act, a bill passed by House Republicans in 2017, which 
+gutted protections for patients with pre-existing conditions. According 
+to the CBO, the repeal bill would have resulted in 23 million fewer 
+Americans with health coverage and would have raised premiums by 20 
+percent in the first year while providing less comprehensive benefits.
+    The Trump Administration has taken an equally aggressive approach 
+to undermining the law. For example, the Administration has expanded 
+the use of junk health plans that rollback consumer protections, raise 
+costs for all consumers, and have a troubling record of fraud and 
+abuse.
+    On June 19th, 2018, the Department of Labor finalized a rule to 
+expand association health plans. Under the rule, associations can sell 
+coverage to small businesses and self-employed individuals without 
+meeting certain ACA standards that would otherwise apply, such as: 1) 
+the requirement to cover essential health benefits; 2) the prohibition 
+against charging higher premiums based on factors such as gender or 
+occupation; and 3) the age rating limit, which prevents insurers from 
+charging unaffordable premiums to older people.
+    Extensive research has shown that association health plans create 
+winners and losers. A report published by the Government Accountability 
+Office in 2000, found that they are likely to increase costs to some 
+workers and make it harder for older, sicker workers to get affordable 
+care. The prevalence of fraud in these plans is equally concerning. A 
+2004 Congressional Budget Office identified 144 ``unauthorized or 
+bogus'' plans from 2000 to 2002, covering at least 15,000 employers and 
+more than 200,000 policyholders, leaving $252 million in unpaid medical 
+claims.
+    On August 3rd, 2018, the Departments of Health and Human Services, 
+Labor, and the Treasury jointly moved to expand the use of short-term 
+health plans. The Departments issued a final rule to extend the 
+allowable duration of short-term health plans from 3 months to up to 12 
+months, with plans renewable for up to 36 months. Under the rule, 
+short-term plans do not have include Federal consumer protections, 
+including protections for patients with pre-existing conditions.
+    Because of the risk of confusion and the overall lack of consumer 
+safeguards, not one single group representing patients, physicians, 
+nurses or hospitals voiced support for the rule expanding the use of 
+short-term plans.
+    The Administration's final and most dangerous attack on the ACA is 
+its unusual decision to side with a group of Republican Attorneys 
+General in a lawsuit against the Federal Government seeking to strike 
+down the law in court. Specifically, the Trump Administration is 
+arguing that the ACA's consumer protections should be invalidated.
+    If it ultimately prevails, as it did in a District Court in Texas, 
+the result would be catastrophic. All Americans, whether insured 
+through an ACA marketplace or through their employer, would lose the 
+consumer protections we all take for granted, including:
+    Elimination of Lifetime and Annual Caps: The prohibition on 
+lifetime and annual coverage limits, which protects workers from 
+incurring unreasonable out-of-pocket expenses. Before the ACA, more 
+than 90 percent of nongroup plans had annual or lifetime caps on 
+coverage, and a majority of employer-provided plans imposed lifetime 
+limits.
+    Cost-Sharing Protections: The requirement that plans limit out-of-
+pocket costs to an affordable percentage of a worker's income.
+    Elimination of Preexisting Health Condition Exclusions: The 
+requirement that all health plans cover patients' pre-existing 
+conditions.
+    Preventive Services without Cost-sharing: The protection that 
+allows workers and families to access vital preventive care without 
+paying out-of-pocket.
+    While I appreciate that my Republican colleagues are now voicing 
+support for many of these protections, their words have not translated 
+into actions. On January 9, House Democrats voted on a resolution to 
+empower the House counsel to intervene in the Texas case to defend the 
+ACA and protect people with pre-existing conditions. Only three House 
+Republicans votes to support the resolution.
+    There many different views both within the Democratic Party and 
+across the political spectrum regarding the best path forward to 
+further expand access to affordable care. But we must all commit both 
+with our words and our actions to maintaining the lifesaving consumer 
+protections enacted in the ACA and refusing to go backward.
+    Until efforts to repeal and sabotage this historic legislation 
+cease, workers with pre-existing conditions will be at risk of losing 
+access to the care they need to live healthy and fulfilling lives.
+    Thank you and I now yield to the Ranking Member, Dr. Foxx.
+                                 ______
+                                 
+    Mrs. Foxx. Thank you, Mr. Chairman. Americans with 
+preexisting conditions need health insurance. This is a fact 
+and a value that Congress and the President have affirmed 
+countless times. It is also the law. Insurance companies are 
+prohibited from denying or not renewing health coverage due to 
+a preexisting condition. Insurance companies are banned from 
+rescinding coverage based on a preexisting condition. Insurance 
+companies are banned from excluding benefits based on a 
+preexisting condition. Insurance companies are prevented from 
+raising premiums on individuals with preexisting conditions who 
+maintain continuous coverage.
+    So it is perplexing why Committee Democrats are even 
+holding this hearing. And by doing so, they are making it about 
+threats. Instead, this hearing should focus on how the strong 
+economy, with its extraordinary job growth, is increasing the 
+number of workers with employer-sponsored health coverage.
+    This committee's work on--employer-based health care 
+options dates back to when the cost of health care began to 
+rise several decades ago. The status quo was not sustainable, 
+then and in 2010, the tide took a radical turn for the worse 
+with the Affordable Care Act, which decimated options for 
+employers earnestly seeking to provide competitive benefits 
+packages to recruit and retain workers and sent individual 
+premium costs on an even faster upward trajectory. Workers paid 
+the price, employers paid the price.
+    But, after 8 years of Republican leadership in the House of 
+Representatives and the election of President Trump, the U.S. 
+economy and job markets are thriving. With consistent wage 
+growth and greater availability of highly competitive jobs, 
+smart employers are continuing to ensure that they offer 
+competitive benefits packages--including sponsored health care 
+plans--to recruit and retain workers. And their efforts are 
+working.
+    According to the Kaiser Family Foundation, 152 million 
+Americans--including many who have preexisting conditions--are 
+insured through plans offered by their employer. That is the 
+majority of the American work force and more than the 
+individual market, Medicare, or Medicaid. Since 2013, 7 million 
+more Americans have gained employer-sponsored health care 
+coverage, with 2.6 million gaining coverage since President 
+Trump took office. The plans employers offer are on average 
+higher quality and provide better value than what can be found 
+on the individual market.
+    In 2017, the average premium for individual and family 
+employer-sponsored coverage increased by a modest 3 and 5 
+percent respectively. In contrast, the average exchange 
+premium, Obamacare, went up by roughly 30 percent.
+    So, if we are going to have this hearing at all, we welcome 
+it as an opportunity to talk once more about the importance of 
+making sure American workers have more options, more 
+flexibility, and more freedom.
+    Last Congress, the Republican-led House of Representatives 
+passed the American Health Care Act. The legislation would 
+restore stability to the health care marketplace and deliver 
+lower costs to consumers. Ensuring protections for individuals 
+with preexisting conditions was a central piece of the bill. It 
+was Section 137 of the legislation stating: ``Nothing in this 
+Act shall be construed as permitting health insurance insurers 
+to limit access to health coverage for individuals with 
+preexisting conditions.'' So, people may have an opinion, but 
+they cannot argue with the facts. The facts are written in this 
+legislation--Section 137.
+    Republicans on this committee also led the passage of the 
+Small Business Health Fairness Act. That legislation would 
+empower small businesses to band together through association 
+health plans, AHPs, to negotiate for lower health insurance 
+costs on behalf of their employees. And last summer, the 
+Department of Labor finalized a rule expanding access to AHPs.
+    During the 115th Congress, House Republicans also passed 
+the Competitive Health Insurance Reform Act and the Committee-
+led Self Insurance Protection Act. What all of these bills have 
+in common is their goal to expand coverage, lower health care 
+costs for all Americans, and again, give freedom to Americans.
+    Committee Republicans welcome this opportunity once again 
+to assure Americans with preexisting conditions that their 
+coverage is protected.
+    House Republicans will continue to champion legislative 
+solutions to combat some of the most pressing problems facing 
+our healthcare system, including skyrocketing costs, the high 
+prices of certain drugs, the industry's lack of cost 
+transparency, and the looming threat of a single payer system. 
+These are the factors that pose the real threat to Americans 
+having options to work for them.
+    I yield back, Mr. Chairman.
+    [The statement of Mrs. Foxx follows:]
+
+Prepared Statement of Hon. Virginia Foxx, Ranking Member, Committee on 
+                          Education and Labor
+
+    Americans with pre-existing conditions need health insurance. This 
+is a fact, and a value that Congress and the President have affirmed 
+countless times. It's also the law. Insurance companies are prohibited 
+from denying or not renewing health coverage due to a pre-existing 
+condition. Insurance companies are banned from rescinding coverage 
+based on a pre-existing condition. Insurance companies are banned from 
+excluding benefits based on a pre-existing condition. Insurance 
+companies are prevented from raising premiums on individuals with pre-
+existing conditions who maintain continuous coverage.
+    So it's perplexing why Committee Democrats are even holding this 
+hearing, and by doing so they are trying to make it about threats. 
+Instead, this hearing should focus on how the strong economy with its 
+extraordinary job growth is increasing the number of workers with 
+employer-sponsored health coverage.
+    This committee's work on employer-based health care options dates 
+back to when the costs of health care began to rise several decades 
+ago. The status quo was not sustainable then, and in 2010 the tide took 
+a radical turn for the worse with the Affordable Care Act, which 
+decimated options for employers earnestly seeking to provide 
+competitive benefits packages to recruit and retain workers and sent 
+individual premium costs on an even faster upward trajectory.
+    Workers paid the price. Employers paid the price.
+    But, after 8 years of Republican leadership in the House of 
+Representatives, and the election of President Trump, the U.S. economy 
+and job markets are thriving. With consistent wage growth and greater 
+availability of highly competitive jobs, smart employers are continuing 
+to ensure that they offer competitive benefits packages including 
+sponsored health care plans to recruit and retain workers.
+    And their efforts are working. According to the Kaiser Family 
+Foundation,
+    152 million Americans--including many who have pre-existing 
+conditions--are insured through plans offered by their employer. That's 
+the majority of the American work force, and more than the individual 
+market, Medicare, or Medicaid.
+    Since 2013, 7 million more Americans have gained employer-sponsored 
+health care coverage, with 2.6 million gaining coverage since President 
+Trump took office. The plans employers offer are, on average, higher 
+quality and provide better value than what can be found on the 
+individual market.
+    In 2017, the average premium for individual and family employer-
+sponsored coverage increased by a modest 3 and 5 percent, respectively. 
+In contrast, the average Exchange premium Obamacare went up by roughly 
+30 percent.
+    So, if we are going to have this hearing at all, we welcome it as 
+an opportunity to talk once more about the importance of making sure 
+American workers have more options, more flexibility, and more freedom.
+    Last Congress, the Republican-led House of Representatives passed 
+the American Health Care Act. The legislation would restore stability 
+to the health care marketplace and deliver lower costs to consumers. 
+Ensuring protections for individuals with pre-existing conditions was a 
+central piece of the bill with Section 137 of the legislation stating: 
+``Nothing in this Act shall be construed as permitting health insurance 
+issuers to limit access to health coverage for individuals with 
+preexisting conditions.''
+    So, people may have an opinion, but they cannot argue with the 
+facts, and the facts are written in this legislation. Section 137.
+    Republicans on this committee also led the passage of the Small 
+Business
+    Health Fairness Act. That legislation would empower small 
+businesses to band together through association health plans (AHPs) to 
+negotiate for lower health insurance costs on behalf of their 
+employees, and last summer, the Department of Labor finalized a rule 
+expanding access to AHPs.
+    During the 115th Congress, House Republicans also passed the 
+Competitive Health Insurance Reform Act and the committee-led Self-
+Insurance Protection Act. What all of these bills have in common is 
+their goal to expand coverage, lower health care costs for all 
+Americans, and again, give freedom to Americans.
+    Committee Republicans welcome this opportunity once again to assure 
+Americans with pre-existing conditions that their coverage is 
+protected. House Republicans will continue to champion legislative 
+solutions to combat some of the most pressing problems facing our 
+health care system, including skyrocketing costs, the high prices of 
+certain drugs, the industry's lack of cost transparency, and the 
+looming threat of a single-payer system. These are the factors that 
+pose the real threat to Americans having options that work for them.
+                                 ______
+                                 
+    Chairman Scott. Thank you. Without objection, all the 
+members who wish to insert written statements to the record 
+should do so by submitting them to the committee clerk 
+electronically in Microsoft Word format by 5 p.m. February 19, 
+2019.
+    I will now introduce our witnesses.
+    Our first witness will be Sabrina Corlette, a research 
+professor at the Center on Health Insurance Reforms at 
+Georgetown University's McCourt School of Public Policy where 
+she directs research on private health insurance and market 
+research. Prior to joining Georgetown faculty she was the 
+director of health policy programs at the National Partnership 
+for Women and Families where she focused on insurance market 
+reform, benefit design, and the quality and affordability of 
+healthcare. She is a member of the Washington, DC Bar 
+Association.
+    Chad Riedy is 37 years old, has cystic fibrosis. He lives 
+in Alexandria, Virginia with his wife, Julie, and two sons. In 
+addition to volunteering for the Cystic Fibrosis Foundation he 
+has spent the last 13 year working in the real estate industry.
+    Grace-Marie Turner is president of Galen Institute, a 
+public policy research organization she founded in 1995 to 
+promote free market ideas for health reform. She has served as 
+a member of the Long-term Care Commission, the Medicaid 
+Commission, the National Advisory Board for the Agency for 
+Healthcare Research and Quality. Prior to founding the Galen 
+Institute she served as executive director for the National 
+Commission on Economic Growth and Tax Reform.
+    Dr. Rahul Gupta is the senior vice president and chief 
+medical and health officer for the March of Dimes. He is one of 
+the world's leading health experts. In his role Dr. Gupta 
+provides strategic oversight for the March of Dimes' medical 
+and public health efforts to improve healthcare for moms and 
+babies. Prior to joining the March of Dimes he served under two 
+Governors as West Virginia's health commissioner, and as the 
+chief health officer he led the State's opioid crisis response 
+efforts and several public health initiatives.
+    We appreciate all of the witnesses for being here today and 
+look forward to your testimony. Let me remind the witnesses 
+that we have read your written statements and they will appear 
+in full in the hearing record. Pursuant to committee rule 7(d), 
+the committee, and committee practice, each of you will be 
+asked to limit your oral presentation to a 5-minute summary of 
+your written Statement.
+    Let me remind the witnesses that pursuant to Title 18 of 
+the U.S. Code Section 1, it is illegal to knowingly and 
+willfully falsify a Statement, representation, writing 
+document, or material fact presented to Congress or otherwise 
+conceal or cover up a material fact.
+    Before you begin your testimony please remember to press 
+the button on your microphone in front of you so that it will 
+be turned on and the members can hear you. As you begin to 
+speak the light in front of you will turn green, after 4 
+minutes the light will turn yellow to signal you have 1 minute 
+remaining. When the light turns red we ask you to summarize and 
+end your testimony.
+    We will then let the entire panel make their presentations 
+before we move to member questions. When answering a question 
+please remember once again to turn your microphone on.
+    I will first recognize Ms. Corlette.
+
+ TESTIMONY OF SABRINA CORLETTE, RESEARCH PROFESSOR, CENTER ON 
+ HEALTH INSURANCE REFORMS, GEORGETOWN UNIVERSITY HEALTH POLICY 
+                           INSTITUTE
+
+    Ms. Corlette. Thank you, Mr. Chairman. Ranking Member Foxx, 
+members of this committee, it is really an honor to be here 
+with you today and to discuss the need for affordable, adequate 
+insurance coverage, particularly for those with preexisting 
+conditions.
+    In my testimony I will focus on some of the challenges 
+faced by people with preexisting conditions before the ACA was 
+enacted and how current threats to the ACA could have 
+disproportionately harmful effects on these individuals and 
+workers.
+    Before the ACA was enacted roughly 48 million people lacked 
+health insurance and an estimated 22,000 died prematurely each 
+year due to being uninsured. 60 percent of the uninsured 
+reported having problems with medical debt. The high number of 
+uninsured was costing providers an estimated $1,000 per person 
+in uncompensated care costs. The lack of affordable adequate 
+coverage also led to a phenomenon called ``job lock'', where 
+workers are reluctant to leave the guarantee of subsidized 
+employer-based coverage for the uncertainty of the individual 
+market. And for many people with health issues job-based 
+coverage could also be spotty or include barriers to enrolling.
+    Prior to the ACA, in most States, people seeking health 
+insurance could be denied a policy or charged more because of 
+their health status, age, or gender, or have the services 
+needed to treat their condition excluded from their benefit 
+package. Indeed, a 2011 GAO study found that insurance 
+companies denied applicants a policy close to 20 percent of the 
+time. Under the ACA these practices are prohibited.
+    Prior to the ACA coverage also could come with significant 
+gaps, such as for prescription drugs, mental health, and 
+substance use services and maternity care. Under the ACA 
+insurers must cover a basic set of essential benefits.
+    Extremely high deductibles and annual or lifetime limits on 
+benefits were also common before the ACA. The law protects 
+people from both by capping the annual amount paid out-of-
+pocket each year and prohibiting insurers from placing 
+arbitrary caps on coverage.
+    Members of this committee are aware that the ACA is now 
+under threat of being overturned due to pending litigation in 
+Federal court. If the plaintiffs' argument prevails it would be 
+tantamount to repealing the ACA without any public policy to 
+replace it. And this is a scenario that Congress rejected in 
+multiple votes in 2017. Congress rejected it because repealing 
+the ACA without replacing it would result in 32 million 
+Americans losing insurance, double premiums for people in the 
+individual insurance market, leave an estimated three-quarters 
+of the Nation's population in areas without any insurer, cause 
+a significant financial harm for hospitals and other providers 
+due to uncompensated care costs, cause the loss of an estimated 
+2.6 million jobs around the country, and importantly for this 
+committee, result in harm to people with job-based covered, 
+including the loss of coverage for preventative service without 
+cost-sharing, such as vaccines, well visits, and contraception, 
+the return to preexisting condition exclusions, young adults no 
+longer allowed to stay on their parents health plans, and 
+insecurity due to crippling out-of-pocket costs for people with 
+high cost conditions.
+    This Administration has also instituted regulatory changes 
+that have resulted in higher premiums for people in the 
+individual market. These include the decision to cut off a key 
+ACA subsidy, the dramatic reduction in outreach and consumer 
+enrollment assistance, and the introduction of junk insurance 
+policies that are permitted to discriminate against people with 
+preexisting conditions. The zeroing out of the mandate penalty 
+has also increased premiums.
+    While the bulk of the negative effects of these policies 
+are felt by people in the individual market, these negative 
+effects spill over into the job-based market. The ACA is by no 
+means perfect. Even its most ardent supporters argue that more 
+could be done to expand Medicaid and improve affordability for 
+middle class families. There are a range of policy options that 
+this committee and others can explore to strengthen the law's 
+foundation while also building on its remarkable achievements.
+    Thank you for providing this forum and I look forward to 
+the discussion.
+    [The statement of Ms. Corlette follows:]
+    [GRAPHICS NOT AVAILABLE IN TIFF FORMAT]
+
+    
+    Chairman Scott. Thank you. Mr. Riedy?
+
+    TESTIMONY OF CHAD RIEDY, RESIDENT, ALEXANDRIA, VIRGINIA
+
+    Mr. Riedy. Good morning. Thank you, Chairman Scott, Ranking 
+Member Foxx, and distinguished members of the committee for 
+inviting me to testify today.
+    I would also like to thank my wife, Julie, and my parents 
+for being here today and for their support.
+    My name is Chad Riedy and I have cystic fibrosis. I would 
+like to share my story of what living with CF is like and what 
+the protections in the ACA mean to me and millions of other 
+Americans living with chronic health conditions. CF is a rare 
+genetic disease that affects about 30,000 people in the U.S. 
+and causes a thick, sticky mucus to buildup in the airways 
+causing infections. There is no cure for CF.
+    When I was diagnosed in 1984 at 3 years old, my parents 
+were told that they should not expect me to live to age 12. 
+Today I sit here at 37. I have been married for 12 years and a 
+father of our 2 boys, Liam, who is 8, and Tate, who just turned 
+7.
+    Let me tell you what it is like to live with CF. Every day 
+I take 30 pills to help me breathe, digest food, and reduce 
+inflammation in my lungs. I also take inhaled medicines and use 
+a vest that shakes loose mucus in my lungs. Four times a year I 
+go through a lengthy evaluation process with a team of doctors 
+at Johns Hopkins. I do this to keep my lungs well enough to 
+keep me alive. But I will never have the lung capacity of any 
+of you sitting here today.
+    When I was 26 I got really sick for the first time. My wife 
+and I had just returned from our honeymoon when I started to 
+notice that I was having a hard time breathing performing 
+normal, routine activities, like walking up stairs or talking 
+on the phone. After a visit to my care team I was admitted 
+immediately to the hospital, where I stayed for 7 days 
+receiving intravenous antibiotics, chest physical therapy, and 
+other procedures to stabilize my health. While my healthcare 
+was covered under my employer-based insurance plan, when I 
+returned home I received constant reminders about how close I 
+was to hitting my lifetime and annual caps. Before the ACA 
+banned these practices I would stay awake wondering would I 
+exceed my limits or be denied coverage, then what, how would I 
+pay for these things?
+    The next time, in 2014, when I got very sick again, over 8 
+months my lung function, which had been stable for 7 years, 
+declined dramatically. I was so sick that not only was I 
+missing work, I could not walk 10 feet across our living room 
+floor without having to stop and catch my breath. I struggled 
+to carry my kids, who at the time were four and one. Things 
+progressed to the point where we started to have conversations 
+about needing a lung transplant just to stay alive. Thankfully, 
+because the ACA was in place, I could focus on making a strong 
+recovery instead of the financial hardships from all these 
+medical bills.
+    In January 2018 I started on a drug that has changed my 
+life called SYMDEKO. It treats the underlying cause of my CF, 
+not just the symptoms. It has brought more stability to my lung 
+function, but most importantly it has allowed me to be a better 
+husband, father, and friend. I no longer worry when carrying 
+laundry up a couple flights of steps from the basement. And 
+when my boys are tired and want a piggyback ride or need extra 
+love, daddy is there for them.
+    My treatments and care help me breathe a little easier and 
+stay healthy so that I can work to help provide for my family, 
+but they are expensive. In 2018 the total cost of all my 
+medicines was about $450,000. This does not include my care 
+team, visits to them, or other procedures. While we spend a lot 
+out of pocket, I am thankful that our insurance covers most of 
+these.
+    This is my story and there are so many more like it across 
+the country. For people battling rare and chronic disease, the 
+policies we are discussing today are a matter of life and 
+death. If the Judge's ruling against the ACA stands and 
+insurance companies are allowed to implement annual and 
+lifetime caps I would reach them in a matter of years and be on 
+the hook for unimaginable financial costs. In addition, the cap 
+on out-of-pocket sharing is vital for someone like me.
+    I am grateful that I have coverage that allows me to access 
+a great team of doctors and cutting-edge medicines that help me 
+fight this disease. Because of this I have hope, hope for a 
+future where I grow old with my wife, see my kids grow up, 
+graduate college, get married, and start families of their own.
+    I am not asking for you to take care of me, I do that 
+myself. I also understand that the ACA is not perfect, but the 
+protections it contains are critical to me and millions of 
+other Americans with preexisting conditions.
+    I thank the committee for giving me the opportunity to 
+share my story and I ask that you are to keep our hope alive as 
+you consider legislation this Congress.
+    Thank you.
+    [The statement of Mr. Riedy follows:]
+    [GRAPHICS NOT AVAILABLE IN TIFF FORMAT]
+
+    
+    Chairman Scott. Thank you, Mr. Riedy. Ms. Turner?
+
+  TESTIMONY OF GRACE-MARIE TURNER, PRESIDENT, GALEN INSTITUTE
+
+    Ms. Turner. Thank you, Chairman Scott, Ranking Member Foxx, 
+and members of the Committee for inviting me to testify today.
+    At the Galen Institute we focus on ways to ensure 
+affordable health coverage to all Americans, particularly 
+protection for the most vulnerable. I am really pleased to be 
+on the panel with Mr. Riedy, and thank you for so bravely 
+sharing your story. I am thankful for the health care system 
+that supports your care and for continued innovations so new 
+treatments can be available.
+    Today in my testimony I am going to discuss the centralrole 
+that the employer health insurance market plays in our health 
+sector, new opportunities to reduce costs and expand access to 
+coverage, and bipartisan support for preexisting condition 
+protections, and the need for further improvements.
+    Nine out of ten workers are employed in the U.S. by 
+companies that offer health insurance. These benefits are tax 
+free, both to workers and companies, a generous benefit but one 
+that leverages nearly $3 in private employer spending for every 
+$1 in Federal tax revenue losses. Employers and employees want 
+the best value for their health care dollar and often work very 
+hard to balance cost and quality.
+    Long before the ACA, employers offered preventative 
+services because they know that addressing health issues before 
+they become a crisis can lead to better outcomes and minimize 
+costs. These employers also play a vital role in supporting our 
+health sector. Physicians and hospitals are paid much less 
+under Medicare and Medicaid than under employer plans, and 
+because private insurance pays more, they provide the margins 
+that allow many hospitals and providers to stay in business. 
+Leading proposals to expand Medicare coverage to all Americans 
+would extend these public disbursement rates universally, 
+diminishing quality and access to care.
+    The Trump administration is offering several options 
+through its regulatory authority to help individuals and 
+employees with more affordable coverage. The Chairman mentioned 
+one of them, including association health plans. They allow 
+small firms to group together to get some of the same benefits 
+that large employers have. A Washington Post story just 
+reported on a new study showing that AHP benefits are 
+comparable to most workplace plans and plans are not 
+discriminating on patients with preexisting conditions. They 
+also have new flexibility under Section 1332 of the ACA to 
+lower costs through risk mitigation programs. They separately 
+subsidize patients with the highest cost, lowering premiums for 
+others, and leading to increased enrollment. In Alaska, 
+premiums for the lowest-cost bronze plan fell by 39 percent in 
+2018 and Maryland is seeing an even larger drop this year.
+    Putting the sickest people in the same pool with others 
+means that their premiums are higher. Virginia Senator Bryce 
+Reeves talked with one of his constituents recently who said he 
+makes a good living, provides for his family, but he said his 
+health insurance premiums are $4,000 a month. And he said that 
+is more than my mortgage, and really pleading for help. 
+Unfortunately, many healthy people are dropping out of the 
+market because costs are so high.
+    There is strong bipartisan support for preexisting 
+condition protections. The ACA assures people cannot be turned 
+down or have their policies canceled because of their health 
+status, and these protections are still in place. Legislation 
+passed by the House of Representatives maintained preexisting 
+condition protection. But they do not work for everyone. 
+Janet--did not use her last name--reported that she was 
+diagnosed in 1999 with Hepatitis C. She lives in Colorado and 
+applied for coverage in the State's high-risk pool. Her 
+premiums in 2010 were $275 a month. Then her liver failed. She 
+needed a transplant. The $600,000 bill was covered 100 percent 
+with only $2,500 out-of-pocket. Colorado's high-risk pools 
+closed when the ACA started in 2014. Her premiums rose to $450. 
+By 2018 they were $1,100 a month. The deductible was $6,300. 
+But her anti-rejection medications were not covered. She said 
+almost everything I needed was denied, which threw me into a 
+world of having to appeal to get the care I needed. She said 
+those of us who are self-employed and are not eligible for tax 
+credits wind up footing way too much of the bill. She said her 
+costs are $19,000 a year before insurance pays and she has to 
+pay extras for her medication. She keeps her insurance because 
+if something else happened, and her liver failed and she needed 
+another transplant, she said it would bankrupt my family.
+    I hope to work with you to achieve the goals of better 
+access to more affordable coverage and better protection with 
+those with preexisting conditions.
+    Thank you for the opportunity to testify today.
+    [The statement of Ms. Turner follows:]
+    [GRAPHICS NOT AVAILABLE IN TIFF FORMAT]
+
+    
+    Chairman Scott. Thank you. Dr. Gupta, before you start I 
+think I need to give full disclosure. I have been an active 
+member of the--volunteer for the March of Dimes for several 
+decades. So I appreciate your testimony.
+
+   TESTIMONY OF RAHUL GUPTA, SENIOR VICE PRESIDENT AND CHIEF 
+           MEDICAL AND HEALTH OFFICER, MARCH OF DIMES
+
+    Dr. Gupta. Thank you for being an active member, Mr. 
+Chairman, and thank you, along with Ranking Member Foxx and 
+members of the committee, for the opportunity to testify today.
+    My name is Rahul Gupta, I am the senior vice president and 
+chief medical and health officer at the March of Dimes. In 
+addition to my role representing the March of Dimes I also 
+bring perspective from my experience as a practicing physician 
+and as a former State health commissioner and a local health 
+officer.
+    As a primary care physician, it was not uncommon for me to 
+treat women who were struggling with high costs of employer-
+based health insurance or priced out of coverage altogether due 
+to their preexisting conditions. These women were in the 
+impossible condition of having to make choices between getting 
+the care they needed and affording their families' basic 
+necessities, such as food and prescription medications. 
+Preexisting conditions are common among Americans. Six in every 
+ten American adults in the U.S. has a chronic disease, and four 
+in ten have two or more.
+    Chronic conditions, such as high blood pressure, diabetes, 
+heart disease, and obesity can have tragic consequences for 
+women during pregnancy. Each day in the United States more than 
+two women die of pregnancy-related causes, and more than 50,000 
+have severe pregnancy complications. More American women are 
+dying of pregnancy-related complications than any other 
+developed country in the world, and it is not getting any 
+better.
+    As pregnancy or childbirth are also widely considered 
+preexisting conditions the prevalence of at least one 
+preexisting condition in this population is almost universal. 
+If conditions like preterm birth, birth defects, or neonatal 
+abstinence syndrome, are considered tens of millions of 
+children could be subject to insurance discrimination 
+throughout their lives. The Affordable Care Act contains a 
+range of provisions to help ensure comprehensive, meaningful, 
+and affordable coverage for women, children, and their 
+families. Amongst its most important popular provisions is the 
+requirement that health plans cover all individuals regardless 
+of preexisting conditions. The law ensures that all American 
+can obtain coverage without worrying that they will be subject 
+to discrimination, whether outright denial of coverage, or 
+carve-outs of the benefits they need the most.
+    It is difficult for me to overstate the importance of ACA's 
+requirements that all plans cover the 10 essential health 
+benefits, including maternity care.
+    The ACA has also addressed a range of issues related to 
+affordability of coverage. Cost has historically been and 
+remains one of the greatest barriers to care. If people are 
+unable to afford coverage, healthcare becomes all but 
+inaccessible. Under the ACA, policies sold on the individual 
+and small group markets are prohibited from charging women high 
+premiums. Health plans can no longer impose annual or lifetime 
+caps. In the case of maternal and childbirth and child health, 
+these caps could be financially devastating.
+    A woman, for example, with a high-risk pregnancy and 
+delivery could easily exceed an annual cap, leaving her unable 
+to obtain needed care for the rest of the year. Worse, a baby 
+born extremely preterm, who needs months of care in the 
+neonatal ICU, could exhaust a lifetime cap before even coming 
+home.
+    This triad of preexisting condition protections, essential 
+health benefits, and affordability provisions represent a 
+three-legged stool that supports access to comprehensive 
+quality and affordable coverage for all Americans. All three of 
+these legs must be maintained to protect and promote our 
+Nation's health, especially the health of women, children, and 
+families.
+    March of Dimes is deeply troubled by Texas v. U.S. This 
+lawsuit appears to have been undertaken as a legal exercise 
+divorced from any real appreciation of its ramification for 
+millions of Americans and their health and wellbeing. With the 
+recent decision of the Federal court judge to declare ACA 
+unconstitutional in its entirety, the plaintiffs appear to be 
+in a classic situation of the dog that caught the car. They 
+were caught off guard by their own victory and now are unsure 
+how to explain that they have argued for an action that will 
+cost millions of Americans their health coverage and 
+potentially even their lives.
+    In addition, we are deeply concerned about efforts by the 
+Administration to promote access to short-term, limited 
+duration insurance plans. These plans are not required to cover 
+essential health benefits, including maternity care, mental 
+health, and substance use treatment, and could again exclude or 
+charge patients more based on their preexisting conditions. 
+Whatever changes may be undertaken to our Nation's health laws 
+and systems, they must be made with the express goal of 
+improving access to coverage and care that is accessible, 
+comprehensive, and affordable.
+    In essence, this concept is no different than when I am 
+seeing a patient in my office. I endeavor to provide her with 
+the highest quality care in a compassionate manner, keeping in 
+mind that she should not have to sacrifice her next trip to the 
+grocery store in exchange. I sincerely hope that we can provide 
+the same guarantee to all Americans.
+    Thank you for holding this meeting, and I look forward to 
+any questions.
+    [The statement of Dr. Gupta follows:]
+    [GRAPHICS NOT AVAILABLE IN TIFF FORMAT]
+
+    
+    Chairman Scott. Thank you, thank you. And now we will have 
+our members ask questions. First, I am going to defer on my 
+side, and the gentleman from Connecticut, Mr. Courtney.
+    Mr. Courtney. Thank you, Mr. Chairman. And, again, I want 
+to applaud the fact that we are holding this hearing in this 
+committee. Back in 2009 and 2010, when the Affordable Care Act 
+was crafted with three different committees, it was our 
+committee which led the way in terms of preexisting conditions 
+and all the patient protections, because we have jurisdiction 
+over ERISA. So, again, we actually were the place where the law 
+was written that was, in my opinion, you know, one of the great 
+steps forward of our Nation in terms of social and civil 
+rights.
+    You know, again, Ms. Corlette talked about what the 
+landscape looked like back in 2009 and 2010. I brought along a 
+flyer that was being sold to a lot of businesses, which again, 
+brings back the bad old days. Again, it is a health plan where 
+it is touted as great news for people who buy their own health 
+insurance, a flexible health plan, affordable. However, if you 
+flip to the back, it had sort of in the smaller print the fact 
+that they may not be able to cover people who have ever had 
+treatment for the following, AIDS, alcohol or drug dependence, 
+cancer, COPD, connective tissue disorder, Crohn's disease, 
+diabetes, emphysema, heart attack or stroke, hepatitis, 
+inpatient emotional or mental illness, organ or tissue 
+transplant, or colitis. So if you are like an episode of 
+survivor and you are not in that category, however, you are 
+still not out of the woods yet because it also says that other 
+individuals who are obese, underweight, have undergone 
+diagnostic tests for a whole variety of different illnesses, as 
+well as expectant parents or children less than 2 months old 
+are also not going not be able to take advantage of that 
+policy. And, last, it says this list is not all inclusive. 
+Other conditions may apply.
+    So, I mean that is what health insurance looked like until 
+President Obama signed the Affordable Care Act in March 2010, 
+which once and for all abolished this whole type of medical 
+underwriting practice. And, again, it was also architecture 
+that was built around it to make that meaningful, such as 
+essential health benefits, the lifetime caps, which Mr. Riedy 
+so powerfully testified to, adjusted community rating so that 
+older people can't be charged more than three times a younger 
+individual.
+    So, again, regarding the Texas case, as Dr. Gupta said, I 
+mean there is absolutely no question that the Justice 
+Department, which participated with the plaintiffs and did not 
+defend the Department of Health and Human Services, if that 
+ruling were to stand, again, that would just take a wrecking 
+ball to the whole architecture, again, that was built. Is that 
+correct, Ms. Corlette?
+    Ms. Corlette. That is correct. For the plaintiff States, if 
+their position prevails the entire law would be invalidated.
+    Mr. Courtney. And in terms of some of the other changes 
+that they have made through the regulatory process, the 
+association health plans, which, again, on surface sounds 
+great, that small businesses can team together in different 
+sectors and go out and buy collectively. By the way, that was 
+totally legal prior to the Trump Administration's ruling and 
+there were about 600 association health plans across the 
+country. What the ruling really did was it basically allowed 
+those plans to avoid, again, a lot of these patient 
+protections, such as essential health benefits, which were 
+painstakingly designed with the Institute of Medicine in terms 
+of what is healthcare and what should health insurance be, and 
+lifetime caps, et cetera.
+    So, again, I just wonder if you could sort of focus on that 
+point, that the Administration, again, is in fact undermining 
+preexisting conditions and preexisting condition protections 
+with those types of regulatory actions.
+    Ms. Corlette. That is absolutely correct. Groups of 
+employers have always been able to join an association and 
+offer benefits if they choose to do so. What the Administration 
+is encouraging is arrangements that essentially are allowed to 
+cherry pick the healthiest and youngest employer groups out of 
+the regulated market and thereby gain a pricing advantage.
+    Mr. Courtney. And the short-term plans, Dr. Gupta, you 
+mentioned, again, it is the same story, that it is really a 
+device to avoid again the protections that were built into the 
+Affordable Care Act.
+    Dr. Gupta. That is very true. And along with that, the 
+other part of this is the medical loss ratio that was built 
+into the ACA and that is not subject to in the short-term 
+plans. So they can have as much as 50 percent medical loss 
+ratio and actually profit disproportionately out of--
+    Mr. Courtney. And the short-terms plans are really not that 
+short. Again, when the prior Administration allowed for a very 
+short, short-term plan, these now almost are basically going to 
+be sold for an entire year. Isn't that correct?
+    Dr. Gupta. Correct. They could be sold for about 364 days 
+and then renewable afterwards.
+    Mr. Courtney. So, I mean it is basically a whole new 
+product. And, again, we would see the bad old days in terms of, 
+you know, this type of laundry list of fine print where people 
+are going to have a rude awakening when they thought they had 
+insurance and in fact it was totally useless and meaningless.
+    I yield back.
+    Chairman Scott. Dr. Foxx.
+    Mrs. Foxx. Thank you, Mr. Chairman. Ms. Turner, people 
+living with preexisting conditions, such as cancer, diabetes, 
+or other illnesses face an incredibly difficult battle each and 
+every day. And, in particular, I commend Mr. Riedy for his 
+strength and courage to share his story with us today. People 
+should not worry about having their coverage denied because of 
+a medical condition when they should be focused on getting well 
+and managing their quality of life. That is why congressional 
+Republicans have voted time and time again to protect 
+preexisting condition protections.
+    Ms. Turner, are these protections under current law 
+sufficient to protect access to coverage for the most 
+vulnerable healthcare consumers, and do you agree that these 
+protections should be maintained?
+    Ms. Turner. The protections absolutely should be 
+maintained. But I do believe that we do have to address the 
+issue of cost because many people who need coverage are not 
+able to afford it and then are completely, completely exposed. 
+So I believe that the preexisting conditions that are in law 
+today and that the House of Representatives supported in the 
+American Health Care Act were important, will continue to be 
+important. I see the strong support, both in Congress and with 
+the American people, to maintain those protections.
+    Mrs. Foxx. Thank you, Ms. Turner. Because of policies 
+enacted by the previous House Republican majority and 
+regulatory actions taken the by Trump administration our 
+economy is thriving. As I mentioned, the economy added 304,000 
+jobs last month, almost double what economists were expecting. 
+As a result, the number of individuals with employer sponsored 
+coverage has grown by nearly 7 million since 2013, with 2.6 
+million gaining coverage since President Trump took office. How 
+does strong economic growth contribute to more workers gaining 
+health insurance from their employers?
+    Ms. Turner. Virtually all employers want to offer health 
+insurance to their employees, but many smaller businesses, in 
+particular, just can't afford it, both because of the 
+regulatory burdens as well as the cost. The Trump 
+administration is giving them some new options, both with 
+association health plans and with health reimbursement 
+arrangements. For those that have employer coverage, it is such 
+a valued benefit and employers and employees work together to 
+balance cost and quality and comprehensiveness of benefits. And 
+as a result, employer-sponsored health insurance is certainly 
+the most popular benefit offered by employers. And I am pleased 
+to say that is not only continuing but being enhanced by the 
+strong economy.
+    Mrs. Foxx. Thank you. Ms. Turner, when I travel around my 
+district in North Carolina, I hear stories from so many people 
+who struggle with the high and sometimes unpredictable costs 
+that they face when taking care of themselves and their 
+families. Out-of-control drug prices, surprise medical bills 
+are two topics that President Trump has recently identified as 
+places for reform and areas where I believe we can find 
+bipartisan agreement.
+    In addition to these issues, what other areas do you think 
+that Republicans and Democrats can move forward and work on 
+together to find a solution that benefits patients, workers, 
+and families?
+    Ms. Turner. I do work with a number of people in the policy 
+community and it is surprising to see how much agreement there 
+is on really trying to help people. I think we need to 
+strengthen the system for the most vulnerable. I was on a panel 
+yesterday--on Monday at the Academy of Health with several 
+people from center-left and we talked about the importance of 
+thinking of the whole person, of comprehensiveness of care, of 
+allowing people to not only have coverage for health care, but 
+housing support and food support and transportation support. 
+Thinking of the whole person I think is really crucial and 
+devolving more power and authority to the States and localities 
+that have the understanding of their markets and resources I 
+think is really crucial. But I also think addressing the cost 
+of health coverage is so important.
+    Between 2017 and 2018 we lost 2 million people in the 
+individual health insurance market. They dropped out because of 
+cost. So we have got to address the cost for people who want 
+health insurance, who currently are healthy, but know they need 
+protection. And we need to make sure that we are strengthening 
+the system for the most vulnerable.
+    Mrs. Foxx. Thank you, Ms. Turner. I yield back, Mr. 
+Chairman.
+    Chairman Scott. Thank you. The gentlelady from Oregon, Ms. 
+Bonamici.
+    Ms. Bonamici. Thank you, Mr. Chairman, and thank you to all 
+of our witnesses.
+    Last week there was a hearing in the Ways and Means 
+Committee here in the House about preexisting conditions and 
+one of the witnesses was the insurance commissioner from my 
+home State of Oregon, Andrew Stolfi. And he talked about how in 
+Oregon since the ACA we now have more than 3.7 million 
+Oregonians, which is about 94 percent of our population, with 
+health insurance coverage. And since the ACA that has been a 
+significant improvement, significantly reducing the number of 
+people without insurance. And before the ACA insurers had 
+offered limited coverage or excluded so many people who 
+applied. In fact, before the ACA the denial rate was about 30 
+percent, 30 percent of people who applied were denied. And in 
+Commissioner Stolfi's words, he said the ACA has helped change 
+all of this, pregnant mothers know they can get the care they 
+need and their babies need, children with developmental 
+disabilities can get all of the essential physician-recommended 
+physical, occupational, and behavioral therapy they need to 
+grow to their fullest potential.
+    So, the ACA is now protecting millions of people in Oregon 
+who have preexisting medical conditions. Lisa from Beaverton is 
+26 years old, she received a diagnosis when she was 23, stage 4 
+lymphoma. I am happy to report that her cancer is now in 
+remission and she is pursuing a master's degree, but she is 
+pretty worried, frankly, when she hears all the conversations 
+about repealing the ACA, this Texas lawsuit. She said ``I have 
+hopefully a lot of life ahead of me and it frustrates me that 
+my history of cancer could limit my access to healthcare.''
+    Mr. Riedy, thank you so much for sharing your story. I have 
+an advocate in the district I represent, Ella, a young woman 
+with CF, and she comes to the Capitol when she can to advocate 
+for more research and funding. And her family shares your 
+concern about lifetime caps.
+    How is the last couple of years--how have you personally 
+felt when you hear all these conversations about repealing the 
+Affordable Care Act? And when you hear about this lawsuit that 
+might repeal the Act?
+    Mr. Riedy. Thank you. It is scary to think, especially like 
+I testified earlier, with the cost of my care currently, having 
+caps or potentially being able to be denied coverage is a scary 
+thought. Knowing that there is access to drugs that are 
+changing my life and that there is more medicine coming down 
+the pike that will ultimately, I fully believe, one day cure 
+cystic fibrosis. But that will come at a cost. And it is hard 
+to think or sort of comprehend that those treatments may be 
+there and because of a lifetime cap or because of being denied 
+access, that I will not be able to get those medicines, or your 
+constituent's daughter would not be able to get those medicines 
+that could potentially save or prolong her life.
+    Ms. Bonamici. Thank you so much. And you made an excellent 
+point, that access does not mean affordability. And if there is 
+not the prohibition against discrimination for people with 
+preexisting conditions, if the companies are saying well, we 
+offer insurance to people with preexisting conditions, it just 
+costs a fortune, it is not meaningful access.
+    I have another question to Dr. Corlette. I have another 
+constituent, Diane, who is a small business owner and for a 
+long time she--she has a son with autism and a small business--
+for a long time she could not afford insurance before the ACA. 
+She almost lost her home and business during the financial 
+collapse. She went several years without coverage and she was 
+uninsurable because she had preexisting conditions.
+    So, she was not able to manage her arthritis, made it 
+difficult for her to work. So, under the ACA she was able to 
+get coverage, she could see a doctor, she eventually had hip 
+replacement surgery, she is now able to work, has rebuilt her 
+business. So, a really positive story largely because of that 
+access to marketplace coverage.
+    So, Professor Corlette, if the ACA protections we have 
+discussed are undermined, what might that mean for Diane and 
+other small business owners who do look to provide coverage for 
+themselves, their families, and their employees?
+    Ms. Corlette. Sure. So, if the ACA is invalidated in a 
+Texas court it will wipe away some of the protections that your 
+constituent has benefited from. So, for example, in the group 
+market, if she is buying as a small business owner she could--
+her employees could face what are called preexisting condition 
+exclusions where the insurance company excludes from your 
+benefit package those services that would actually treat your 
+condition, for which you actually need services, for up to a 
+year. The insurance company would not be required to cover 
+essential health benefits, which is a list of benefits that the 
+Institute of Medicine and others have said should be in a basic 
+benefit package, it could impose lifetime annual limits, there 
+may not be a cap on the annual amount that she or her employees 
+would pay out-of-pocket. So, there are a number of critical 
+protections that people in job-based coverage would lose.
+    Ms. Bonamici. Thank you very much and I see my time has 
+expired. I yield back. Thank you, Mr. Chairman.
+    Chairman Scott. Thank you. Dr. Roe.
+    Dr. Roe. Thank you, Mr. Chairman. And, Mr. Riedy, I want to 
+start with you.
+    First of all, the easiest vote I have made here in the U.S. 
+Congress was for the 21st Century Cures Act. To Dr. Collins, 
+Francis Collins, the director of the NIH, it is very easy for 
+me to vote to increase his budget to $39 billion. When I was a 
+medical student, the first pediatric rotation I had in Memphis 
+was St. Jude's Children's Hospital. Eighty percent of those 
+children died in 1969 when I rotated there, today 80 percent of 
+them live. If you have a rare condition, it is 100 percent for 
+you. So I think there is a cure out there in the way and I 
+think your future is very optimistic. And thank you for being 
+here today.
+    Look, we could all agree that we want to increase coverage 
+and access and lower costs. That is exactly what we wanted to 
+do with the ACA. Everyone can agree to that. And we agreed that 
+we wanted to discuss preexisting conditions. And I want to go 
+over very quickly, so everybody understands, that if you have 
+health-based insurance, which I provide in my office for my 
+employees, everyone--you cannot discriminate based on a 
+preexisting condition. No. 2, if you have Medicaid or Medicare, 
+you cannot discriminate versus on a preexisting condition. It 
+is only in the small group and individual market where this 
+occurred. And people feared if they lost their job and they 
+ended up in the small group or individual market that they 
+couldn't do that.
+    I have a bill that I am dropping today, a very simple bill. 
+It has one paragraph, it is three pages long, that essentially 
+provides ERISA coverage to the small group and individual 
+market. It treats them--me--as an individual--and I have been 
+on the individual market--exactly like a large corporation. And 
+that solves the problem and everyone in here--no matter what 
+the Court does--if the Court rules whatever they rule. If they 
+rule and it takes apart this, we have covered everybody and 
+treated each individual exactly the same as a big company. This 
+should be simple to do, it is one paragraph.
+    And let me also say, Dr. Gupta, to you, let me share some 
+experiences in Tennessee. We were promised the costs were going 
+to go down. Our costs went up 175 percent and we lowered the 
+number of plans out there that we could have. In my district, 
+where I live, three-fourths as many people paid the penalty as 
+actually get a subsidy. And what is happening in the real world 
+is with these out-of-pockets and co-pays, if the hospital were 
+our practice for 30 years, over 60 percent of the uncollectible 
+debt are people with the insurance, not without insurance, but 
+with insurance. And what happens is a patient will come to my 
+office and if they had a condition, one of the 10 essential 
+health benefits, they got their screening procedure done, that 
+was fine, that was ``free''. If I found anything wrong with 
+them and I had to send them down to the hospital for a test, 
+they then have to meet their out-of-pocket and co-pay, which 
+can be $3-4-5,000--and my family is $10,000. And so what 
+happens, the hospitals, the providers, end up eating that. That 
+is what his happening in the real world. Or people don't get 
+the second test that they need, and that is what we have to 
+look at.
+    I also want to say to you all that I have a preexisting 
+condition. I was treated 17-18 months ago for proState cancer. 
+So I am in that pool of preexisting conditions and I don't want 
+to be excluded either, nor do I want my patients excluded. And 
+that is why I think we should all support this bill right here.
+    And, Miss Turner, if you would, I would like for you to 
+comment a little bit about my suggestion, about just applying 
+these ERISA rules to me or to any individual out there.
+    Ms. Turner. As we said, employers so highly value their 
+employer coverage, and one of the reasons is because someone is 
+negotiating on their behalf for a quality health plan. And 
+health plans in the workplace are basically community rated. 
+You may have different plan options, but everybody is basically 
+paying the same amount for premiums. And HIPAA, of course, 
+protections say that if you have group coverage through an 
+employer and you move from one employer to another, that next 
+employer must cover you at the same rate. So you can't then be 
+basically underwritten. So there are a lot of existing 
+protections in law.
+    And I am very intrigued with your very creative legislation 
+to basically extend those protections. I think it is important 
+to note that if the Supreme Court--and I don't know anyone who 
+knows what the Supreme Court is going to do--were to strike 
+down the law, Congress is absolutely determined to fix it and 
+to maybe improve the ACA in the process.
+    Dr. Roe. I agree. And one of the things that I think is out 
+there in the group market, in the self insured market--and we 
+did this when I was on the City Commission in my hometown--is 
+you can have disease management--Dr. Gupta knows this very 
+well. And I have seen those cases where I have a friend of mine 
+who has a large company with 15,000 employees, had a 1 percent 
+increase in their premium per year for the last 5 years. And we 
+can do that in the small group and individual market if we work 
+together.
+    Mr. Chairman, thank you. I yield back.
+    Chairman Scott. Thank you. Gentleman from California, Mr. 
+Takano.
+    Mr. Takano. Thank you, Mr. Chairman. Let me begin by saying 
+that my home district in Riverside, California, we cut--the 
+Affordable Care Act enabled us to cut our uninsured rate by 
+more than half because of expanded Medicaid and because of 
+Covered California, which is the name of our exchange. I have 
+personally spoken to older people in my district who have not 
+reached Medicare age, but at an age when if there were no ACA 
+they would not get any cost-sharing subsidies and they could 
+not have afforded the insurance. They were very grateful that 
+they got the cost-sharing subsidies so that they could reduce 
+their exposure to a major medical incident.
+    So, the majority offers these really false solutions of 
+association plans and short-terms plans. Ms. Corlette, could 
+you--you know, I think these plans are really evasions around 
+minimum benefits. Is that correct?
+    Ms. Corlette. That is right. So short-term plans are exempt 
+from all of the Affordable Care Act rules, so they don't have 
+to enroll people who have health issues, they don't have to 
+cover the essential health benefits, and quite commonly with 
+these plans, if you do get diagnosed with something after you 
+enroll, they will do what is called post-claims underwriting 
+and drop you from the plan to avoid paying your medical bills. 
+So, if you do have an unexpected medical event or diagnosis, 
+you might find yourself uncovered.
+    The concern is that they will siphon away healthy people 
+from the Affordable Care Act marketplaces and result in higher 
+premiums for those who are not perfectly healthy and have to 
+buy one of these ACA plans.
+    Mr. Takano. So, the same for association plans, which were 
+available, but the way the Administration has structured them, 
+a similar sort of result.
+    Ms. Corlette. Association health plans are similar but not 
+exactly the same. They do have to comply with some of the ACA 
+rules, but not all. And so they can use essentially the rating 
+advantage they have, because they can charge higher rates based 
+on age and other factors to cherry pick healthier employer 
+groups from the ACA market.
+    Mr. Takano. And there goes, you know, any affordability 
+gain by the ACA. So, these are really ways to undermine the ACA 
+and to undermine by extension protections for people with 
+preexisting conditions, is that right?
+    Ms. Corlette. That is right. If you have a preexisting 
+condition or you simply want comprehensive coverage, like 
+maternity care or other things that you feel are important, you 
+would be buying in the ACA market, and if healthy people are 
+siphoned away the ACA market risk pool will be smaller and it 
+will be sicker, and insurers will price higher as a result.
+    Mr. Takano. So, I would say that attempts to undermine the 
+pools, undermine enrollment periods--so if we look at slashing 
+funding for outreach and enrollment activities, that means less 
+people enroll and makes these insurance pools less viable. That 
+is also hurting people with preexisting conditions.
+    Ms. Corlette. That is right. There is no question that 
+research shows that advertising, marketing, outreach, 
+education, consumer assistance, those all work to get healthy 
+people into the pool.
+    Mr. Takano. And this Administration has, you know, really 
+refused to spend the outreach to get people to sign up for 
+insurance, which then creates the premium dollar pool to make 
+insurance viable and actually keep the cost down.
+    Ms. Corlette. That is right. This Administration has 
+slashed outreach and marketing by about 80 percent. So it is 
+hard to bring healthy people in if they are not aware that the 
+coverage opportunity exists.
+    Mr. Takano. It was hard for me to square this President 
+wanting to protect people with preexisting conditions knowing 
+that his Administration intentionally did that.
+    So also shortening the enrollment period, making it less--
+giving people less time to enroll into these insurance plans 
+also has the same result.
+    Ms. Corlette. That is right. And a number of the State-
+based marketplaces that can choose their own open enrollment 
+periods have extended them to give people more time to enroll, 
+and that has been a successful strategy.
+    Mr. Takano. Well, and the Administration has also engaged 
+in undermining the stability of the markets through ending the 
+cost-sharing reduction payments for lower-income consumers. 
+Would prevent people from being able to buy insurance because 
+they don't have these subsidies.
+    Ms. Corlette. It is absolutely the case that the decision 
+by this Administration to cut the cost-sharing reduction 
+subsidy led to an increase in premiums in the individual market 
+significantly. I think 20 percent.
+    Mr. Takano. Well, this intentional undermining in at least 
+the three ways that I have spoken about, I mean certainly 
+reduces the viability of these healthcare exchanges and also 
+really makes meaningless any statement that this President 
+wants to protect people with preexisting conditions and their 
+ability to get insurance.
+    I yield back, Mr. Chairman.
+    Chairman Scott. Thank you. Gentleman from Pennsylvania, Mr. 
+Thompson.
+    Mr. Thompson. Chairman, thank you for hosting this hearing. 
+Incredibly important topic. As someone who practiced healthcare 
+for 28 years as a therapist, rehabilitation services manager, 
+licensed nursing home administrator, I mean this is an 
+important topic and preexisting conditions is a serious issue, 
+an incredibly important issue. I have been disappointed over 
+the past couple of years where, you know, with preexisting 
+conditions individuals living with preexisting conditions 
+obviously need confidence in their lives that they are going to 
+be able to purchase insurance that they need to cover that 
+condition, for treatment, rehabilitation. But quite frankly, 
+what I have been disappointed in is how--there are people with 
+preexisting conditions--need that health care professionals who 
+are compassionate and dedicated, they want to provide those 
+service, they want to access--they want those patients to be 
+able to access those services. Well, we have got a lot of 
+politicians that have been weaponizing preexisting conditions 
+for political purposes. And whenever we do that, you know, my 
+experience--I have only been here--this is my 11th year. I was 
+here in 2009-2010. It doesn't serve anyone well.
+    And so also my background, I used to get very frustrated 
+advocating for my patients, whether it was in a nursing home, 
+comprehensive inpatient, rehab, acute care, you know, going to 
+battle with insurance companies. The people with some of the 
+more chronic conditions are the ones that are facing those 
+lifetime benefits. So I certainly support those improvements.
+    But that said, let us--you know, I really want to clarify 
+here, Ms. Turner, you know, protections for individuals with 
+preexisting conditions has been a consistent area of agreement 
+for both Republicans and Democrats. You Stated that protections 
+for people with preexisting conditions are currently the law of 
+the land and under the American Health Care Act, passed by the 
+House last Congress, would the current law's legal protections 
+for individuals with preexisting conditions be retained?
+    Ms. Turner. If the Supreme Court were to invalidate the ACA 
+and find the individual mandate unconstitutional and non-
+severable, which I think is unlikely, but if it would, it would 
+certainly give several years of transition time before it went 
+into effect to give Congress ample time to figure out how to 
+back up these protections. And as you said, the Congress at 
+the--whoever has been in control of the Congress has been a 
+strong support of protection for preexisting conditions. Even 
+if people don't have them now, they think they could get them 
+in the future and they know someone has chronic conditions. So 
+those protections need to be in place, but they need to be in a 
+place in a way that actually allows the market to continue to 
+work and doesn't drive out the healthy people because the costs 
+are so high.
+    Mr. Thompson. I mean there are a lot of things that impact. 
+I think people getting into the pool, so to speak, that was 
+mentioned by my friend from California, but the folks that have 
+gotten out of the pool, I think there is a significant number 
+who have gotten out because of post ACA, the cost, the 
+escalating cost. And people with preexisting conditions that 
+have--that were pleased that they could get it, the insurance 
+but their costs have escalated. So we can't be complacent with 
+the law as it is now, whether--we have to take measures.
+    One final question for you, Ms. Turner. We constantly hear 
+about the challenges that small employers face when dealing 
+with costs and compliance burdens in providing health insurance 
+coverage to their employees. While some small businesses are 
+able to offer health coverage, many simply can't afford to do 
+so. And one option, among others, which was passed by this 
+committee, is for the small employers to band together to 
+provide economies of scale for purchasing health insurance 
+through association health plans.
+    Now, what are other alternatives that encourage and enable 
+employers, both small and large, to preserve and expand quality 
+health coverage for their employees?
+    Ms. Turner. Well, I do think it is important to focus on 
+association health plans because this recent study by a very 
+well respected analyst, Kev Coleman, said that he did not see 
+that the plans that these new association health plans, which 
+are offered in 13 States, just in the 7-months since the rule 
+was finalized, and offering more than two dozen plans, that 
+they really do provide an option for employers.
+    I have been in seminars with H.R. directors of Fortune 500 
+companies and talked with innumerable small businesses. They 
+want to negotiate benefits that their employees want and they 
+listen to their employees. And they are as comprehensive of 
+benefits as they can afford and offer that coverage. So I think 
+that it is important to give respect to the people purchasing 
+these policies, that they will find a way to make sure people 
+have coverage that is as good as they can afford, rather than 
+no coverage at all, which is where too many people are without 
+these options.
+    Mr. Thompson. Thank you, Ms. Turner. Thank you, Chairman.
+    Chairman Scott. Thank you. The gentlelady from Washington, 
+Ms. Jayapal.
+    Ms. Jayapal. Thank you, Mr. Chairman. On October 31 of last 
+year, conveniently just a few days before the midterm election, 
+President Trump tweeted, and I quote, ``Republicans will 
+protect people with preexisting conditions far better than 
+Democrats.'' That was a pretty big flip-flop given that the 
+President and Republicans in Congress, including many on this 
+very committee, spent most of last Congress voting to try to 
+kill the Affordable Care Act and its protections for 
+individuals with preexisting conditions. In fact, I think I am 
+right about this, the only Republican members of this committee 
+who did not vote for the horrible Trump Care bill last Congress 
+were the eight new members who had not yet been elected.
+    Now, this Administration is backing a lawsuit that could 
+strip coverage for more than 133 million Americans with 
+preexisting conditions with absolutely no plan to replace that 
+coverage. And if this ruling takes effect more than 17 million 
+people would lose coverage in the first year alone.
+    So, to my Republican colleagues, which one is it? Do the 
+American people deserve coverage for preexisting conditions or 
+don't they?
+    Let me also point out that overturning preexisting 
+conditions protections would disproportionately harm racial and 
+ethnic minorities. And, Mr. Chairman, I seek unanimous consent 
+to enter a written Statement from the Asian and Pacific 
+Islander American Health Forum into the record.
+    Chairman Scott. Without objection. And I want to remind our 
+colleagues that pursuant to committee practice, materials must 
+be submitted to the committee clerk within 14 days following 
+the last day of the hearing, preferably in a Microsoft Word 
+format. The materials submitted must address the subject matter 
+of the hearing. And only a member of the committee or an 
+invited witness may submit the materials for inclusion in the 
+record.
+    Documents are limited to 50 pages. Documents longer than 50 
+pages will be incorporated into the record by way of an 
+internet link, so that you must provide the committee clerk 
+with that in the timeframe, but recognize that years from now 
+that link may no longer work.
+    And I will give you a couple of seconds at the end.
+    Thank you.
+    Ms. Jayapal. Thank you, Mr. Chairman. And noted for the 
+future.
+    So let me start with my first question for Ms. Corlette. 
+Thank you for your testimony. In your professional opinion as a 
+research professor at the Center on Health Insurance Reforms, 
+let us go back a little bit, why did it take an act of Congress 
+to require insurance companies to insure people with 
+preexisting conditions?
+    Ms. Corlette. Well, before the ACA insurance companies, in 
+order to make money, the business strategy was to enroll as 
+many healthy people as you could, bring in their premiums, and 
+pay out as little as possible in claims. So, to do that they 
+engaged in what was called medical underwriting, which required 
+people when they applied for coverage to submit health forms. 
+They had lists of up to 400 different conditions that would 
+cause you to be excluded from coverage. But, essentially that 
+was the business strategy.
+    What the ACA tried to do was change the business strategy 
+away from risk avoidance to risk management.
+    Ms. Jayapal. Thank you. So, just to be frank, insurance 
+companies wouldn't cover people with preexisting conditions 
+because they are too expensive, correct?
+    Ms. Corlette. Yes.
+    Ms. Jayapal. OK. So, Ms. Corlette, you also said in your 
+testimony that the Affordable Care Act was enacted in part to 
+correct serious deficiencies in health insurance markets that 
+left millions uninsured and millions more with inadequate 
+coverage. The reality is that the profit-seeking motives of 
+insurance companies and big pharma are at odds with providing 
+comprehensive care for everyone in this country. Do you believe 
+that government should play a role in insuring that corporate 
+greed doesn't allow insurance companies to deny coverage to 
+people with preexisting conditions?
+    Ms. Corlette. I think absolutely government needs to play a 
+role, both in terms of financing, and I think it is important--
+you know, this committee is as aware as anybody else that 
+employer-sponsored coverage is the source of the biggest 
+subsidy in the Federal tax code. So critical role in terms of 
+financing, but also to set the rules of the road. So, to the 
+extent that we have private market actors on the provider side 
+or the payer side, that there are clear rules of the road to 
+protect people who need help, which is individuals, consumers, 
+small businesses.
+    Ms. Jayapal. So, thank you. In 2017--this is again a 
+question for you--Aetena's CEO was paid nearly $59 million, 
+Cigna's CEO took home almost $44 million, UnitedHealthcare's 
+CEO $27 million. So, our healthcare system is underwritten by 
+greed and health insurance companies and big pharma are 
+profiting off of sick Americans. Without the protections 
+ensured by the ACA, do you believe that insurance companies 
+would continue to guarantee coverage for people with 
+preexisting conditions?
+    Ms. Corlette. No, I think they would go back to the 
+business practices they were engaged in before the ACA was 
+passed.
+    Ms. Jayapal. Thank you. The Urban Institute estimates that 
+17 million people will lose coverage in the first year alone if 
+the Republican lawsuit stripping the ACA goes through. We have 
+waited long enough for corporate executives to do the right 
+thing, in my opinion. They simply aren't going to do so without 
+government intervention. And that is why we passed the ACA.
+    And, Mr. Chairman, that is why we must go further. 
+Ultimately, I believe we need to take the pure profit-seeking 
+motives out of our healthcare system and ensure that the No. 1 
+thing we do is protect every American's right to have 
+healthcare. And so today we are united as Democrats in 
+protecting the ACA, making it clear that we stand with millions 
+of Americans who are at risk of losing coverage. But I am also 
+determined to put forward a bold new vision for Medicare for 
+all, something that the majority of all Americans support. As 
+Members of Congress, we are ready to listen to them and put 
+people over profits.
+    Thank you, Mr. Chairman, I yield back.
+    Chairman Scott. Thank you. Gentleman from Michigan, Mr. 
+Walberg.
+    Mr. Walberg. Thank you, Mr. Chairman. Protections for 
+individuals with preexisting conditions has been a consistent 
+area of agreement for both Republicans and Democrats. We have 
+to keep reiterating that.
+    I strongly believe that these protections need to remain in 
+place and I voted and co-sponsored legislation to safeguard 
+them and give peace of mind to patients, and that is a matter 
+of record.
+    I am disheartened with my friends on the other side of the 
+aisle's continued misinformation on our record on this issue. 
+There was no Trumpcare, nothing got to his desk. There was the 
+Affordable Health Care Act that dealt with all of the issues of 
+concern that the ACA brought up because it didn't work for many 
+people who did have a health care plan that they paid for, but 
+when they went to use it, so many of them, so many of them did 
+not have health care. So I hope that changes at some point in 
+time, the rhetoric that continues on.
+    This committee has jurisdiction over employer-sponsored 
+health insurance. I know there are some that believe we need to 
+move beyond the employer-sponsored coverage, however, the 
+employer sponsored system currently provides health insurance 
+for over 181 million Americans. So instead of forcing Americans 
+off their plans that they like, or in the cases of union 
+employees, forcing them to give up health plans that they 
+worked hard for and made salary sacrifices to negotiate, we 
+should explore ways to strengthen our employer sponsored 
+system, reduce costs, so more businesses can offer these good 
+benefits to their employees.
+    I constantly hear from small employers in Michigan who are 
+dealing with the cost and compliance burdens of providing 
+health insurance coverage to their employees. While some small 
+businesses are able to offer health coverage, many simply 
+cannot afford to do so. One option among others, which was 
+passed by this committee, is for small employers to band 
+together to provide economies of scale for purchasing health 
+insurance through an association health plan.
+    Ms. Turner, thank you for being here. As you know, in 
+August the Department of Labor issued a final rule to expand 
+access to AHPs. In your opinion, when finalized, will DOL's 
+rule help or hinder efforts to increase coverage for small 
+employers and their employees?
+    Ms. Turner. It absolutely will provide them an important 
+new option to negotiate benefits on behalf of their employees. 
+Talking with another H.R. director who has a work force of 
+primarily medium and lower income workers, he said what happens 
+is that as healthcare costs go up it eats up their wage 
+increases. So employees see their wages as flat, but part of 
+their compensation because too much of their compensation 
+package is going to health benefits.
+    Some employers are very creative, helping to provide 
+coordinated care for people that they have identified that have 
+the greatest healthcare needs. So I think employers play an 
+important role and I think association health plans also play 
+an important role, as well as the new health reimbursement 
+arrangement rule, which would allow employers who cannot afford 
+and do not have the resources to actually provide coverage to 
+give their employees a stipend to be able to purchase health 
+insurance on their own. We recommended they be able to combine 
+salaries from two spouses, for example. One spouse may be 
+offered health insurance at work, the other one can get a 
+stipend to help make that a family plan rather than just an 
+individual plan.
+    Mr. Walberg. The beauty of more flexibility, creativity, 
+and options that go on.
+    Ms. Turner. Yes. And also to recognize the competition out 
+there.
+    Mr. Walberg. Right.
+    Ms. Turner. Plans are competing, companies are competing, 
+everybody is trying to do the best job to get the best value.
+    Mr. Walberg. You mentioned in your testimony a study by Kev 
+Coleman, a former analyst at the insurance information website 
+HealthPocket. In his study, what type of plans did Mr. Coleman 
+find that AHPs were offering? And let me ask this as well, are 
+essential benefits covered in the plans that he discussed?
+    Ms. Turner. The study by Kev Coleman showed that these AHP 
+plans are offering benefits comparable to the largest employers 
+that have negotiated these benefits for years and that they are 
+not discriminating against patients with preexisting 
+conditions. Many of these employers may have someone on their 
+staff, maybe even a family member, that has a preexisting 
+condition.
+    Mr. Walberg. Or themselves.
+    Ms. Turner. Yes. And so they want those benefits and they 
+are really pressing the market to figure out how do you do that 
+in a price that they can afford to purchase that coverage.
+    Mr. Walberg. Thank you. I yield back.
+    Chairman Scott. Thank you. Mr. Morelle from New York.
+    Mr. Morelle. Yes, thank you, Mr. Chairman, for holding this 
+very important hearing, and thank you to the panelists for 
+being here and for answering the questions, particularly Mr. 
+Riedy. Thank you for your courage in being here and sharing 
+your story with us.
+    Back in 1993 I co-sponsored and helped pass a law in New 
+York that provided community rating for all New Yorkers that 
+were in small business, the individual marketplace, as well as 
+ending the practice of--well, beginning the practice of having 
+protections for preexisting conditions. Something I am very 
+proud of. So I took it as an article of faith that everywhere 
+was like that, and then I became chair of the insurance 
+committee about 15 years ago and during the time of the 
+implementation of the ACA. I learned a great deal about what 
+happens in the rest of the country. So this is very, very 
+helpful in terms of understanding all of this.
+    The first comment I would just make around coverage is we 
+use the word coverage as though it means the same thing to 
+everyone. The truth is, I remember as insurance chair, when 
+people would come to me and say I had out-of-network benefits 
+and it said out of network services were covered, yet it only 
+covered 25 percent of my bill and I have this huge balance that 
+I have to pay. You learn quickly that coverage doesn't mean 
+coverage, that it means different things to different people. 
+And cost avoidance is a big part of trying to provide coverage.
+    But I wanted to just talk a little bit about the definition 
+if I might. My daughter, Lauren, was diagnosed with triple 
+negative breast cancer just a few years ago and she passed away 
+about 17 months ago. I had never heard of triple negative 
+breast cancer, but it is part of the diagnosis. And when you 
+begin to look at treatment, you look at genetic panels and what 
+you can learn from the genome. And it turned out that in 
+Lauren's case while it wasn't passed on genetically, she did 
+have a mutation in one of her genes.
+    And so perhaps Ms. Corlette might be able to answer this, 
+is there a concern that genetic predispositions will be defined 
+more broadly as preexisting conditions in the way that some 
+insurers view this or some people view it?
+    Ms. Corlette. Well, there is a Federal law that was enacted 
+before the ACA, the acronym, is GINA, the Genetic Information 
+Nondiscrimination Act, that does prohibit insurance companies 
+from discriminating against people based purely on genetic 
+information.
+    Mr. Morelle. And does that include then predispositions 
+based on other things that would affect chronic conditions?
+    Ms. Corlette. With respect to the preexisting conditions 
+that we are talking about today, most insurance companies 
+require you actually be diagnosed with a specific condition 
+before it would be underwritten. Although I will say for short-
+term plans, you know, they will look at your medical history 
+and even if you were not given a formal diagnosis they might 
+say that you had the condition, you know, the cancer cell was 
+in your body before you enrolled and might disenroll you 
+because of that.
+    Mr. Morelle. Yes, because it is certainly hard to tell when 
+it manifests itself and--
+    Ms. Corlette. Exactly.
+    Mr. Morelle [continuing]. when it actually becomes disease 
+state. Also to my colleague, Mr. Courtney, mentioned as he 
+showed the pamphlet, in the description had obesity, which that 
+would be a preexisting condition presumably?
+    Ms. Corlette. Yes. Yes.
+    Mr. Morelle. And that would be the case even if you had not 
+exhibited or manifested any disease because of that condition, 
+is that correct?
+    Ms. Corlette. Correct.
+    Mr. Morelle. And obviously that is not genetic in nature, 
+but that is effectively underwriting which could lead 
+ultimately to preexisting conditions?
+    Ms. Corlette. Right.
+    Mr. Morelle. And I did want to just mention coverage too 
+because when you have community rating, and we don't even do an 
+adjustment in New York for community rating, it is all the 
+same. So that you have as you get older--as I am finding you 
+have more medical conditions as you get older. Young, healthy 
+people, obviously we want in the pools, and adverse selection 
+often leads people to avoid coverage until they have a reason 
+for it. But the larger the pool and the more that you 
+essentially flatten the experience of the larger pool is really 
+what insurance is all about. The avoidance of that with some of 
+the plans that have either high deductibles or that in a sense 
+sequesters the better risks is actually what causes the case of 
+either uninsured or high premiums. Is that not right?
+    Ms. Corlette. That is exactly right. You said it better 
+than I ever could.
+    Mr. Morelle. And that is my real concern here, Mr. 
+Chairman, members, is that as we talk about coverage, as I 
+said, it is not all the same, and you could be left with 
+significant balance billing for procedures where you thought 
+you had coverage, and this notion of sort of shifting risk to 
+other groups of less well people is essentially what I 
+understand the Administration policy to be.
+    Would you care to comment on that?
+    Ms. Corlette. Yes. I mean with respect to association 
+health plans, short-term plans, it is really about shifting the 
+risk from young, healthy people to older and sicker people. So, 
+it is sort of rearranging the deck chairs without addressing 
+some of the underlying issues about cost. Which is they are 
+real. We have a cost problem in this country. But just creating 
+new winners and losers is I don't believe the answer.
+    Mr. Morelle. Very good. Thank you. I yield back my time.
+    Chairman Scott. Thank you. The gentleman from Alabama, Mr. 
+Byrne.
+    Mr. Byrne. Thank you, Mr. Chairman. I appreciate you 
+holding this hearing.
+    Ms. Turner, I am sort of just the facts type person, and I 
+didn't get here until I was elected in 2013, so I am having to 
+go back and sort of make sure I understand how we got where we 
+are.
+    When Congress passed Medicaid and Medicare, embedded in 
+those programs was protection for people with preexisting 
+conditions. I think that is correct. And when they created some 
+other public programs, like TRICARE, they did the same thing. 
+And then I think I was told that when HIPAA was passed in 1996, 
+bipartisan bill, that we provided similar protection to people 
+that are in-group plans, employer-provided plans. Have I got 
+that right?
+    Ms. Turner. Absolutely.
+    Mr. Byrne. So I asked my staff to go back and look at the 
+most recent numbers we could get, which was 2017. Forty-nine 
+percent of the people in America are under an employer provided 
+plan. When you add up all the people on the public plans, like 
+Medicare and Medicaid, it is another 36 percent. So if I am 
+doing my math right, since at least 1996, 85 percent of the 
+people in America have had protections on preexisting 
+conditions as a result of bipartisan acts of the U.S. Congress. 
+Have I got that right?
+    Ms. Turner. Yes.
+    Mr. Byrne. OK. So that is another 15 percent and every one 
+of those people in the 15 percent is important. I do not think 
+any of us can gain say that, but sometimes we start talking 
+about this, we forget that 85 percent of the people in America 
+have got the protections that they need. So when we look at 
+what happened in the Affordable Care Act--and I was not here 
+when it was passed, so I was not a part of that debate--I have 
+actually talked to people in my district who were in that 15 
+percent. In fact, the very moment I was running for Congress is 
+when those notices went out to people, who were told by the 
+President of the United States that if they liked their health 
+care plan they could keep it, they actually came up to me at a 
+high school football game where I am passing out pamphlets, and 
+showed me the notice they got from their insurance company that 
+said we are canceling your health care plan. But here is our 
+new one for you, and the cost was a multiple of what they were 
+used to paying. And these people, while they were working 
+people, they could not afford it. And ACA did not provide those 
+type people with the sort of help they need financially to do 
+it. So I have met those people across my district who now are 
+uninsured because they can't pay their premiums.
+    So let me just ask you, are there individuals, including 
+individuals with preexisting conditions, that the ACA might 
+have actually materially hurt?
+    Ms. Turner. There are people who say that the coverage that 
+they had before, even in the individual market, was better than 
+the coverage they have now because it is more affordable. Some 
+of them are facing deductibles of $10,000. And they say that I 
+might as well not be insured because I can't meet that 
+deductible.
+    Another friend who had a liver transplant needs significant 
+anti rejection medications and he says that a health savings 
+account actually is beneficial to him because he knows what his 
+out-of-pockets costs are going to be, he can pay that on a tax 
+free basis, and his catastrophic coverage actually was much 
+better because it allowed him to wee any doctor without so many 
+restrictions.
+    So, yes, there are people who preferred the coverage they 
+had before, but I absolutely agree with you that preserving the 
+preexisting condition protections is vital. And also not 
+frightening people to think that they might lose it. I had a 
+friend write to me saying that she was worried if the court 
+case were to be successful that she would lose her preexisting 
+condition protection and Medicare. And there is no reason for 
+her to be so frightened.
+    Mr. Byrne. No, there have been scare tactics out there like 
+that. It is unfortunate because even on Medicare you have got 
+older people and they have got lots of other things that they 
+are thinking about, and we don't need to be scaring them, we 
+need to be helping them.
+    I have talked to many Members of Congress since I have been 
+here. I have not met a single person in either party that 
+doesn't want to protect people that have preexisting 
+conditions. The question is how do you do it? What is the 
+smartest way to do it? What is the most cost-effective way to 
+do it? But when you get up and tell the people of the United 
+States, if you like your healthcare plan, you can keep it, and 
+then they get a notice that says no, I can't keep it, and the 
+substitute is something I can't afford, you have materially 
+hurt people in the United States. And everybody in this 
+Congress, Democrat or Republican, we should all want to work 
+together to make sure we help those people, because those are 
+the good, hardworking people in America who depend on us to 
+look after them.
+    I appreciate your testimony. And I yield back the balance 
+of my time.
+    Chairman Scott. Thank you. The gentleman from California, 
+Mr. Harder.
+    Mr. Harder. Thank you, Mr. Chairman, and thank you to all 
+of our witnesses for being here on such an important issue.
+    Protecting folks with preexisting conditions is the entire 
+reason I ran for this office. On my district in the California 
+Central Valley this is my highest priority. Over 100,000 people 
+in our district have health insurance only thanks to the 
+Affordable Care Act. And those 100,000 folks were at risk of 
+losing their coverage if the Affordable Care Act was repealed, 
+and it was only after that vote a year and a half ago, almost 2 
+years ago now, that I decided to get on in and see what I could 
+do to fix that. And I think the reality is, is in a district 
+like ours, where nearly 50 percent of our individuals have a 
+condition that qualifies as a preexisting condition, this 
+affects every single human being, every person in my community 
+has a loved one who would be affected if the Affordable Care 
+Act was threatened. Every single person, including me. In my 
+case it is my little brother David. He was born 10 weeks 
+premature, less than 2 pounds when he was first born, spent the 
+first 2 years of his life in and out of a hospital, came out 
+with a healthcare bill 104 pages long. And because of that he 
+would be without insurance until he is 65 and on Medicare if we 
+did not have protections for folks with preexisting conditions.
+    And, Mr. Riedy, I really was so touched to hear your story. 
+I think your voice gives power to millions of folks. I think we 
+need to be humanizing these statistics. And so when folks think 
+about what life is really like with a preexisting condition, 
+they are thinking about people like my little brother, they are 
+thinking about people like you, and all of us, because the 
+reality is each one of us has a loved one who would be affected 
+by these changes.
+    And in your testimony you mentioned you had a cost of 
+medical treatment $450,000 in 2018. Is that correct?
+    Mr. Riedy. That is correct. That was just for the cost of 
+medicines.
+    Mr. Harder. One year, one year. And I think that, you know, 
+in a district like ours, where we have a high rate of 
+unemployment, we have a lot of folks that have real financial 
+stress, there is a lot of folks that could be impacted by that.
+    I am very interested, based on your own experiences, Mr. 
+Riedy, how do the annual lifetime caps affect patients with 
+costly medical conditions?
+    Mr. Riedy. So with the passing of the ACA and the ban on 
+lifetime caps, it has--and annual caps, it has allowed me 
+personally, and others with preexisting conditions, to have a 
+better frame of mind to be able to focus on our health versus 
+if I go and see this doctor, or I get sick and I have to go 
+into the hospital or I have to have some costly procedure, what 
+is that going to do, how close is that going to get me toward 
+that cap, and then potentially if I get to that cap, what 
+happens then. So not only are you dealing with having to fight 
+to stay alive or have to focus on treatment regimens that take 
+3 to 4 hours a day in my case, you are also then focusing on 
+the mental aspect of this also and trying to focus on if I get 
+to this point am I going to have to make decisions basically 
+that affect my care and my family's wellbeing versus 
+essentially dying or not being able to access that care which 
+then will shorten my life and others.
+    Mr. Harder. What do you would believe would happen to 
+people like yourself and the people you advocate for if the 
+Affordable Care Act was undermined by the court in the Texas 
+case?
+    Mr. Riedy. You know, I worry if the court case is upheld, I 
+worry that insurers will institute lifetime and annual caps 
+again, that they will reinstitute the ability potentially for 
+me to be denied coverage simply because I was born with a 
+genetic disease and have a preexisting condition, and that I 
+will lose the comfort knowing that no matter where I work or 
+what happens to me that I can continue to be there for my 
+family and focus on what needs to happen versus--to take care 
+of myself versus what the cost of that medicine is that my 
+doctor prescribed, or not even being able to go and see 
+especially--the highly specialized care that I need to take 
+care of my lungs and by body.
+    Mr. Harder. Thank you for your powerful testimony and for 
+putting a face on what this really looks like. I think there 
+are so many of us affected, nearly 50 percent of my district, 
+and of many others. And we talk about millions of Americans, we 
+talk about the 100,000 people in our community that would be 
+without insurance if the Affordable Care Act were repealed and 
+if it were undermined by some of these efforts of litigation, 
+but I think the most important thing that we need to be 
+considering is really understanding the day to day lives of 
+folks who are living through these challenges today and 
+understanding how those lives would be so different if we had 
+not passed the Affordable Care Act.
+    Thank you so much for your powerful testimony today.
+    Mr. Chairman, I yield back my time.
+    Chairman Scott. Thank you. The gentleman from Georgia, Mr. 
+Allen.
+    Mr. Allen. Thank you, Mr. Chairman, and thank you for 
+having this hearing today. It is very enlightening. Obviously, 
+you know, I have some preexisting conditions, I have family 
+members that have preexisting conditions, so we are all very, 
+very interested in how we go about making healthcare available 
+to all Americans.
+    The question and the big debate is how do we pay for it. 
+Obviously we have the resources in this country to provide--
+and, Mr. Riedy, thank you for your testimony--to provide 
+excellent medical care and hopefully a cure. We are all praying 
+for cures for Alzheimer's, for all types of issues that we are 
+dealing with in this country. And we are spending a lot of 
+money to try to find cures for those things. But in the 
+meantime, what is the best way to provide health care?
+    Now, the question is, does the government do it more 
+efficiently than the private sector? And I think, Ms. Turner, 
+is there any information, like for every dollar of taxes that 
+we pay, how much of that dollar gets back to take care of a 
+patient under the Affordable Care Act.
+    Ms. Turner. I have not seen--well, there is a medical loss 
+ratio, so we know that based upon the company's size that 
+either 20 or 15 percent of the money can only go to 
+administration, the rest has to go to medical care.
+    Mr. Allen. Right.
+    Ms. Turner. But I do think that it is important to look at 
+the approach that the American Health Care Act that the House 
+passed in 2017 took. It actually dedicated specific resources 
+to help people that have high health care costs--$123 billion. 
+A similar amount in a Senate bill that didn't make it through, 
+but that would have separately subsidized and provided extra 
+money for the people that have chronic healthcare conditions. 
+The ACA put them in the same market with everybody else and 
+that raised prices to the point that you are driving the 
+healthy people out. So there is a lot of evidence that if you 
+separately subsidize those with the highest cost and the 
+highest risks, you can lower premiums for other, get more 
+people covered, and then focus on providing the coordinated 
+care that people with multiple health conditions actually need.
+    Mr. Allen. Exactly. And, you know, right now I think that 
+Health and Human Services has a budget of about $1.2 trillion, 
+the largest single piece of the Federal budget, and, you know, 
+out of that $1.2 trillion I am interested--of course my 
+background is the business world--and I am interested in 
+exactly how much of that $1.2 trillion is taking care of Mr. 
+Riedy. And I think we need to look at that and then we need to 
+look at what would it cost if we returned health care back to 
+the health professionals and we were able to, through programs 
+deal directly in our health providers, deal directly with our 
+health providers rather than got through HHS and these other 
+agencies that have these huge budgets.
+    And, frankly, as I understand it, our health care in this 
+country is much more expensive than compared to other 
+industrialized countries in the world. Is that correct?
+    Ms. Turner. That is correct. We are also the research 
+center for the planet. The great majority of new prescription 
+drugs, like the one that Mr. Riedy says is so valuable, are 
+developed in the United States. We pay a disproportionate share 
+both for the research and for the drugs, and also new medical 
+technologies and other innovations.
+    Mr. Allen. Right. So we are subsidizing health care across 
+the world? Would that be correct?
+    Ms. Turner. Well--
+    Mr. Allen. How can we afford--we are $21 trillion in debt 
+and, of course, you know, I do not know who is going to be 
+paying my health care bills, but it is probably going to be one 
+of my grandchildren or great-grandchildren, but we have got to 
+solve this problem. We have the ability to take care--you know, 
+I tell folks back home, we have got plenty of money to take 
+care of folks, particularly those with preexisting conditions, 
+I just think it is all in Washington, and we need to get it out 
+in our States and our communities and make healthcare 
+affordable.
+    And with that I yield back.
+    Chairman Scott. Thank you. Dr. Schrier.
+    Dr. Schrier. Thank you, Mr. Chairman, and thank you to our 
+witnesses today.
+    I just want to say that I can't think of a more important 
+topic to bring up today as our first hearing because one thing 
+that I have heard about from all of my constituents is 
+healthcare, and that is their No. 1 issue. And I sit here today 
+not just as a Member of Congress, but also as a pediatrician, a 
+doctor who is taking care of patients for the last two decades, 
+and as a person with Type I diabetes. And so I really share a 
+kinship with people in my district and in this country with 
+preexisting conditions.
+    So, I can report to you first hand that my patients are 
+worried. They are worried that either they or their loved ones 
+will not be covered if they have a preexisting condition or 
+that they will be priced out of the market, as we have been 
+hearing a lot about, and they are worried even in these popular 
+employer-based health plans that their prices are also going up 
+and their deductibles are skyrocketing.
+    And so, you know, I came here to bring down costs and 
+protect my patients and make sure that no family goes bankrupt 
+because of medical expenses. And so, I hear about these 
+solutions, like these short-term health plans. And you can 
+imagine, as a pediatrician, that preventative care, essential 
+health benefits, and mental health care, well woman care, these 
+are all critical, and that is why they are essential health 
+benefits.
+    And I just want to clarify, Dr. Gupta, you have not had to 
+communicate anything for a while, so I thought I would give you 
+a chance. Can you just be--very clearly, are those services 
+covered under these short-term health plans?
+    Dr. Gupta. Thank you for that questions. Certainly they do 
+not have to be covered. I mean the idea of motherhood being a 
+sort of preexisting condition comes back after a decade again. 
+The idea well woman, well child preventative care, knowing that 
+we are going through an opioid epidemic today that we are 
+having a lot of adverse childhood experiences and a whole 
+generation is going to have to deal with as children and grow 
+up. And that will be the future of this country. None of those 
+things will be covered. Neither will be things like 
+vaccinations. Those will not be covered. Mental health 
+screenings, domestic violence screening will not be covered 
+potentially. Of course mammograms, pap smears, none of those 
+things have to be covered.
+    Dr. Schrier. Thank you. You are speaking my language. And 
+then just also to clarify, do patients know that these are not 
+covered when they buy these short-term less expensive health 
+plans that are proposed to be a solution to skyrocketing 
+medical costs?
+    Dr. Gupta. That will certainly be in fine print, as was 
+mentioned today. And I am sure that most of us are not going to 
+realize until you get sick and then that will be the time that 
+most patients will realize that they were not covered for those 
+services.
+    Dr. Schrier. And to read that fine print you would need 
+glasses like these.
+    OK, my next question is that I have seen in my own 
+practice, you know, the classic story, a girl with a terrible 
+rash whose mom brought her in and it had been weeks that they 
+had been trying to deal with this at home with all the powders 
+and creams and everything they possibly could. And when she 
+finally came to me it was a disaster, she needed antibiotics 
+and steroid creams. But she delayed care because of the cost of 
+care. She knew that because of her deductible it would cost her 
+a lot to come in and that she may as well try everything in the 
+kitchen cabinet at home.
+    And so when I think about these short-term plans and that 
+preventative care would not be covered--and I know how 
+important those well child checks are--I just would like your 
+opinion as to how many families will show up for that 
+critically important primary care and preventative care if 
+those are not provided for free.
+    Dr. Gupta. We know from studies that compared to the 
+insured population, uninsured individuals tend to delay their 
+care. That leads to lack of those preventative services, 
+ultimately poor outcomes, and more expensive outcomes, not just 
+from health but also for financial reasons. And what we saw 
+after ACA was the amount of uninsured childbearing women went 
+down from about 20 percent to 13 percent. So additional 5.5 
+million women got the care for things like maternity care. So 
+those things are happening now that we will again walk back 
+several steps and we will end up the emergency rooms with 
+uncompensated care, at doctors' offices, while mostly in 
+primary care, where we already have shortages of tremendous 
+amount across the field. And those offices will once again be 
+seeing a lot of patients who do not have insurance and, like 
+you have, I often provide care for those without regard to the 
+level of insurance they have.
+    Dr. Schrier. Thank you, Dr. Gupta. And I yield back my 
+time.
+    Chairman Scott. Thank you. The Gentleman from Kentucky, Mr. 
+Comer.
+    Mr. Comer. Thank you, Mr. Chairman. And I would like to 
+talk about healthcare in Kentucky. Obamacare, or the Affordable 
+Care Act, however you want to pronounce it, in Kentucky was a 
+great deal for people who got free health care via Medicaid. 
+But it was a terrible deal for working Kentuckians who actually 
+have to pay for their health care premiums. In Kentucky, 30 
+percent of the State is on Medicaid. That is pretty much free 
+health care. But the rest of Kentuckians in the State who are 
+working, struggling to pay health care premiums, they do not 
+have a very favorable opinion of the Affordable Care Act.
+    Ms. Turner, I would like to ask you a question addressing 
+the rising cost of health care, including premiums, 
+deductibles, and out-of-pocket expenses. This is a huge concern 
+for most Americans and it should be a concern for the 
+democrats. What options do you think policymakers should 
+consider when discussing how to lower the cost of health 
+insurance and provide a variety of affordable options, 
+especially for employers and workers?
+    Ms. Turner. I described in my testimony a plan that I have 
+helped to develop with a number of my policy colleagues, called 
+the health care choices plan. And it basically recognizes the 
+States have a lot more knowledge about their individual markets 
+and the needs of their citizens, and it is very difficult for 
+Washington to finely tune legislation enough to let them do 
+what they need to do. So we have recommended formula grants to 
+the States to let them figure out how do they make sure that 
+existing populations are supported. But they have the 
+flexibility to be able to get coverage not only for the 
+continued coverage for them, but to make sure that new people 
+can come into the market and afford coverage, and quality 
+coverage.
+    Mr. Comer. Mm-hmm. If there is one thing that I think all 
+of us would agree on in both parties is that everyone should be 
+protected with preexisting conditions in health care. No one 
+should be denied coverage based on their medical history. Given 
+that, and given current law, Ms. Turner, are any reforms needed 
+to ensure that individuals with preexisting conditions have 
+access to health coverage?
+    Ms. Turner. One of the things that several States have done 
+is request waivers to use some of the ACA money to more heavily 
+subsidize those with high risks to make sure they can have 
+access to care and coverage. I talked about Janet in my 
+testimony who is now under ACA coverage in Colorado, but it is 
+inferior coverage to the high-risk pool coverage she had 
+before. States can fine-tune that, high-risk pools, invisible 
+high-risk pools, reinsurance, to make sure those with the 
+highest healthcare costs are covered. Devote money to them, you 
+cannot only lower premiums for other but increase access for 
+the healthy people we need to come into the market.
+    Mr. Comer. In Kentucky, prior to passage of the Affordable 
+Care Act, we had a high-risk pool, called Kentucky Access, and 
+it was successful. But it was eliminated with the passage of 
+the Affordable Care Act.
+    Just to followup on that question, would you say there are 
+other factors that affect consumer access to health care?
+    Ms. Turner. Well, that is one of the reasons I believe 
+these short-term limited duration plans are so important, 
+because somebody may be, you know, in a bridge between--they 
+have just graduated from college, they had coverage then, they 
+don't have a job yet, they are older than 26. Somebody who is 
+near Medicare eligibility needs bridge coverage, somebody who 
+is starting a new business needs to--there are people who need 
+these temporary plans and that is another option.
+    Indiana had a great plan called the Health Indiana Plan, a 
+State-based plan. An account to make sure that people could get 
+the preventative care they need, but they also had major 
+medical coverage. There are a lot of other options, but I think 
+that the State creativity, working with healthcare providers, 
+is really valuable.
+    Mr. Comer. Thank you very much. Mr. Chairman, I yield back.
+    Chairman Scott. Thank you. The Gentlelady from Illinois, 
+Ms. Underwood.
+    Ms. Underwood. So, we have just heard from our colleagues, 
+Ms. Foxx and Mr. Comer, who mentioned how they support 
+protections for individuals with preexisting conditions. 
+However, congressional Republicans and the Trump Administration 
+have had relentless--attacked protections passed by the 
+Affordable Care Act. And so many of my colleagues here voted 
+more than 70 times to repeal parts of the ACA. Moreover, last 
+August the Administration finalized a rule that expands short-
+term limited duration insurance, commonly known as junk plans. 
+Junk plans do not have to comply with key Federal laws that 
+protect patients and they can pose a serious risk to patients 
+with preexisting conditions.
+    Earlier today, along with Representative DeSaulnier, my 
+Democratic colleagues and I introduced my first legislation in 
+Congress to overturn the Trump Administration's rule expanding 
+junk plans. Insurers should never have the option to 
+discriminate against patients with preexisting conditions.
+    So, Dr. Gupta, can you tell us more about why they are 
+called junk plans and what kinds of consumer protections can 
+junk plans exclude?
+    Dr. Gupta. Well, thank you. I think part of the--what is 
+important is not just the preexisting conditions protections, 
+but also the affordability as well as the accessibility in 
+terms of essential health benefits. So, none of this is covered 
+or required to be covered in these short-term plans, or also as 
+you termed them, junk plans. There are States that have taken a 
+proactive lead, like California, Oregon, New York, New Jersey, 
+who have actually worked to prohibit those plans in the way 
+that they are today. And, obviously, other States will have to 
+do more. Because what that does basically is sells people out 
+there who may not be suspecting a bill of goods that they have 
+no idea about. So, unless they read the fine print, when in so 
+many ways stepping back to about a decade ago, and people when 
+they find that they need the help that they need, they are not 
+going to be able to get it because the preventative care, as 
+well as a number of those essential health benefits, including 
+maternity care, will not be covered.
+    For example, prior to the ACA only 11 States required 
+maternity care in individual plans, and only 13 percent of the 
+insurers' individual plans covered maternity care.
+    Ms. Underwood. That is why patients' groups, including the 
+March of Dimes, the American Cancer Society, the American Heart 
+Association are opposing the junk plan rule.
+    Mr. Chairman, at this time I would like to ask unanimous 
+consent to enter a letter from those patient groups opposing 
+the rule into the record.
+    Chairman Scott. Without objection.
+    Ms. Underwood. Thank you. Dr. Gupta, what effects can junk 
+plans have on patient access to care, particularly patients 
+with preexisting conditions?
+    Dr. Gupta. Ultimately it will cost their lives or their 
+bank account, or both. The challenge with that is when somebody 
+needs the help, early help to be able to detect cancer, like 
+breast cancer, colon cancer, or be immunized for important 
+conditions that could be communicable--we are seeing outbreaks 
+of measles, for example--those could get worse. And people we 
+diagnose much later in their stage and then they will not be 
+able to be covered by those because of the preexisting 
+conditions clause missing, and therefore they will be--again, 
+will lose life and it will cost us a lot more. It is just the 
+most--the least effective way of administering healthcare.
+    Ms. Underwood. In fact, an analysis by the Los Angeles 
+Times found that not a single group, not a single group 
+representing patients, physicians, nurses, or hospitals 
+supports the junk plan rule. And 90 percent of the comments 
+from the public on this rule were either critical or opposed 
+the rule outright.
+    So, Ms. Corlette, are you concerned that public opinion on 
+junk plans was disregarded when the rule was written? What 
+needs to be done to ensure the needs of patients with 
+preexisting conditions are truly represented in this debate?
+    Ms. Corlette. Well, certainly with respect to the comments 
+on the short-term plan rule, it would suggest that the 
+Administration's mind was made up about what they wanted to do 
+before the rule was finalized and the public comments did not 
+make much of a difference there.
+    I do think there is a real concern that a lot of people who 
+are healthy before they sign up for these plans, have an 
+unexpected medical event, and are left on the hook for 
+thousands, tens of thousands of dollars in unpaid medical 
+bills.
+    Of course, for those who have preexisting conditions, they 
+couldn't buy these plans even if they wanted to. They would 
+have to buy in the ACA market, but the ACA market will be more 
+expensive. CBO has said it will be about 3 percent surcharge on 
+premiums as a result of these plans.
+    Ms. Underwood. Thank you, Mr. Chairman, and thank you to 
+all the witnesses for being here.
+    I yield back.
+    Chairman Scott. OK, thank you. The gentleman from Texas, 
+Mr. Wright.
+    Mr. Wright. Thank you, Mr. Chairman.
+    Chairman Scott. Thank you.
+    Mr. Wright. I want to thank all of you all for being here 
+today. Mr. Riedy, God bless you and your family. I think it 
+speaks to your character and your determination that you are 
+even here today participating. So thank you.
+    Ms. Turner, I think you would agree that, you know, we 
+should never have laws on the books that are unconstitutional, 
+and when the Supreme Court made its decision on the ACA, Chief 
+Justice Roberts, of course, his opinion was that it was 
+Constitutional by virtue of being a tax. I thought that was a 
+very slender thread, but that is the opinion. If you take that 
+thread away, then it follows that the law is unconstitutional. 
+And as a Texas Congressman I am terribly proud of my State 
+attorney general for leading the effort in this lawsuit. 
+Because, again, if the reason it was determined that it was 
+unconstitutional was that it is a tax and you take that away, 
+doesn't it follow that it is no longer Constitutional?
+    What is your opinion, Ms. Turner?
+    Ms. Turner. Well, this is going to go through the Courts to 
+determine whether or not the fact that the Congress did in fact 
+zero out the tax penalty for individual insurance does 
+invalidate the law, but I think the important thing is that we 
+have seen since then all of the efforts by you and others in 
+Congress to repeal and replace the law. So I think we have seen 
+that there are definitely places that improvement is needed and 
+to try to find a way to replace the coverage that people are 
+relying on, but to allow markets to work better so that healthy 
+people are not being driven out.
+    Mr. Wright. Yes, ma'am. And the key word there is replace. 
+I think the assumption that if ACA had not passed or if it had 
+been ruled unconstitutional, that nothing would have happened, 
+that there would have been no improvements in healthcare, is a 
+completely false narrative, just as if it were to go away 
+tomorrow we are not going to revert back to the status quo of 
+2009 because there was always, even in 2009--I don't know if 
+you were part of crafting or helping either side on that, I was 
+here then. I was the chief of staff for the ranking Republican 
+on Energy and Commerce Committee. I sat in some of those 
+meetings, saw the markup. There was always Republican 
+alternatives that included coverage for preexisting conditions, 
+even going back to 2009.
+    So this narrative that we keep hearing that Republicans are 
+somehow opposed to that or don't want it, is patently and 
+demonstrably false, and it needs to stop because it is not 
+true.
+    My last question is this, it has to do with the idea that 
+is being advanced by the other side, and we heard it earlier 
+today, about Medicare for all. Well, Medicare-for-all is 
+Medicare for none. Would you agree with that? Can you speak to 
+it?
+    Ms. Turner. It certainly would not be the Medicare that 
+seniors know now.
+    Mr. Wright. If we go to socialized medicine, where it is 
+all run by the government, then doesn't Medicare cease to 
+exist?
+    Ms. Turner. As I mentioned in my testimony, my colleague, 
+Doug Badger, has done some research looking at these cross 
+subsidies from the employer-based system with 170-some billion 
+people participating. They pay a higher rate to physicians and 
+hospitals that allow Medicare and Medicaid to save taxpayer 
+money and to pay a lower rate. But if those reimbursement rates 
+went across the board, 40 percent of physicians and hospitals 
+would find that they couldn't even keep their doors open.
+    So we need the employer-based system.
+    Mr. Wright. Absolutely.
+    Ms. Turner. And the private sector, not only for its 
+innovation but for the money that it provides to support 
+existing public programs.
+    Mr. Wright. Right. Thank you very much. Thank you, Mr. 
+Chairman.
+    Chairman Scott. Thank you. The gentlelady from Georgia, Ms. 
+McBath.
+    Ms. McBath. Thank you, Mr. Chairman. And I do want to thank 
+you for holding this hearing today. And I would like to thank 
+the witnesses who are here to discuss the importance of 
+protecting access to healthcare for all Americans.
+    This is an issue that is deeply personal to me. I myself, 
+like millions of Americans, live with a preexisting condition. 
+As a two-time breast cancer survivor, I understand what it is 
+like to have your life turned upside down by this very 
+diagnosis. I was first diagnosed with stage 1 breast cancer in 
+2010. And after completing treatment my cancer returned again 
+in 2012. My cancer was detected because of a routine mammogram. 
+I will never forget the way that I felt when I first heard my 
+doctor say the words stage 1 breast cancer.
+    For each of the two cancer diagnoses that I have received I 
+underwent surgery through a procedure called a lumpectomy to 
+remove the remaining cancer. And I received radiation treatment 
+and drugs thereafter. I did it all while raising my family and 
+working full-time. And I can tell you I was terrified. Despite 
+being lucky and having good health insurance through my job, I 
+was still worried about my financial security. I was concerned 
+about making it to radiation treatments, sometimes every single 
+day for weeks, and then back to work and then back home to 
+raise my son, Jordan. It was exhausting, both physically and 
+emotionally. But I had to do it, just like millions of 
+Americans out there who share a similar story to mine.
+    I truly do not know what I would have done or what would 
+have happened if I had lost that health insurance coverage. And 
+I am happy to say today that I am cancer-free. But, Mr. 
+Chairman, not everyone is as lucky as I am. And I am worried 
+for Americans and for those in my State of Georgia who might 
+not detect their cancer or chronic health condition early on, 
+when it is most easily treatable.
+    The Centers for Disease Control and Prevention states that 
+preventing diseases is critical to helping Americans live 
+longer, healthier lives and keeping healthcare costs down. It 
+is so important that Americans have access to the preventive 
+services that are an integral part of the Affordable Care Act. 
+These include screenings for certain cancers, screenings for 
+Type 2 diabetes, and other critical health services. And I am 
+worried about their future and their financial security.
+    We here in congress, we have a responsibility to protect 
+people. That is what we must do.
+    Ms. Corlette, could you talk a little bit more about how 
+the ACA protects patients and has created greater access to 
+preventive services, like breast cancer screenings or high 
+blood pressure screenings? Particularly how the ACA cost-
+sharing provisions impacts and also ensures Americans have 
+access to these types of services?
+    Ms. Corlette. Absolutely. Thank you for the question. So, 
+the Affordable Care Act requires insurers both in the 
+individual market and in the employer market to cover a set of 
+evidence-based preventive services without any cost-sharing for 
+the enrollee. And that includes many of the services that you 
+mentioned in your Statement, but also vaccines, contraception, 
+tobacco cessation counseling, a range of services that not only 
+prevent disease but help keep people healthy over the long-
+term. Those services can also help diagnose issues that people 
+have and help get them early treatment in order to get a better 
+outcome at the end of the day.
+    So, if the ACA were overturned or this decision in the 
+district court in Texas is upheld, insurance companies would no 
+longer have to provide that protection and people would face 
+cost-sharing. And we know, and Dr. Gupta mentioned, that if 
+people do face co-insurance or cost-sharing for those services, 
+they tend not to get them or they delay them.
+    Ms. McBath. Thank you. And my followup question is how 
+could the Texas litigation impact American's access and 
+affordability of these lifesaving services?
+    Ms. Corlette. If the Texas decision is upheld millions of 
+people will lose their insurance, about 17 million in the first 
+year and up to 32 million by 2026. It is well documented that 
+people without insurance delay, forego care. Before the ACA 
+about 22,000 people died each year simply for not having 
+insurance.
+    For people with job-based coverage, they lose access to 
+critical protections, like the lifetime and annual limits that 
+Mr. Riedy discussed, the protection against excessive out-of-
+pocket costs--ACA has a cap on that every year--as well as the 
+preventive services and essential health benefits that you 
+mentioned.
+    Ms. McBath. Thank you. Thank you.
+    Chairman Scott. The gentleman from South Dakota, Mr. 
+Johnson.
+    Mr. Johnson. Thank you, Mr. Chairman. Mr. Riedy, you spoke 
+so eloquently about your family. Are any members of your family 
+with you here today?
+    Mr. Riedy. Yes, my father and mother and my wife are 
+sitting behind me.
+    Mr. Johnson. I kind of suspected that was the case. And, of 
+course, you were facing us during your testimony, and so I just 
+want to take a minute to tell you, because you couldn't know, 
+their faces were filled with an incredible pride during your 
+testimony. And, of course, you should feel good because you did 
+a good job. You should also feel very good because they clearly 
+are very proud of you.
+    Mr. Riedy. Thank you.
+    Mr. Johnson. Almost every member of the Committee that has 
+spoken has done a nice job raising their voice in support of 
+protections for people with preexisting conditions. Of course, 
+I want to raise my voice to echo theirs. Critically important 
+and I am glad we are having this conversation.
+    I also like how the panelists all in different ways have 
+called forth this important connection between employer-based 
+health coverage and some of these preexisting condition issues.
+    I was a little concerned, Ms. Turner, in your testimony you 
+talked about how 65 percent of employers offered health 
+insurance in 2001, you mentioned that number had come down in 
+recent years. I assume affordability is a key driver. Are there 
+others that are maybe not as intuitive to me?
+    Ms. Turner. It is primarily affordability, and also because 
+there are fewer carriers now offering coverage in the 
+individual and small group markets. But one point that I think 
+is so important about when employers do offer coverage, they 
+have an incentive. They were offering coverage for preventive 
+care before the ACA because they know it works. It is so much 
+better to detect breast cancer at stage one than at stage four. 
+So helping their employees stay healthy, making sure that they 
+have access to preventive care, and being able to access the 
+diagnostics that they need early on for their coverage. So I 
+think that employer coverage brings particular value to our 
+health sector without the mandates. They know this is important 
+because it works.
+    Mr. Johnson. So I just want to make sure that I can square 
+the math here. The number of employers how are offering this 
+type of benefit has gone down. A number of people have talked 
+about the how the number of people receiving that type of 
+benefit has gone up. Is that just macRoeconomic trends, large 
+employers getting larger, and smaller businesses being the ones 
+more likely to drop this type of benefit?
+    Ms. Turner. I could look further into the research, but 
+based upon everything I have read since the ACA, the cost of 
+compliance in providing health coverage to employees is 
+significant. So it is not only the cost of the coverage, but 
+also compliance. And if a company is hitting near that 50 
+employee threshold where the employer mandate triggers, they 
+often will sometimes put workers on part-time, they will scale 
+back their staff, to avoid having to trigger that employer 
+mandate.
+    So I think in some ways the employer mandate has actually 
+worked against smaller employers offering coverage. And without 
+it and with more flexibility I think we would see more 
+participation.
+    Mr. Johnson. This is an area of concern, and I suspect it 
+is an area of concern for everybody on the Committee, 
+regardless of party or region, because so many people, from Mr. 
+Riedy to others, have talked about how well I had an employer-
+based coverage, or I had job-based coverage. It is clearly a 
+really important leg of this stool about how we make sure 
+Americans are covered, how they can get the healthcare service 
+they need.
+    Are there things that we can do to strengthen employer-
+based coverage? Because the trends you are talking about we 
+should not feel good about in this country right now.
+    Ms. Turner. What employers want most is flexibility to meet 
+the needs of their employees without having to charge so much 
+that health insurance eats up their employees' pay increases. 
+So they are looking for affordability, they want more 
+competitors, they want more options rather than having to meet 
+such specific benefit requirements to really allow them to--
+there may be other benefits that their employees value more 
+than the essential health benefits list. So giving them more 
+flexibility to meet their employee needs and keep costs down 
+would increase participation.
+    Mr. Johnson. Thank you very much. Well, Mr. Chairman, I 
+just think this is a critical area for further study by the 
+Committee. And, of course, I appreciate the time and I yield 
+back.
+    Chairman Scott. Thank you. Gentlelady from Connecticut, Ms. 
+Hayes.
+    Ms. Hayes. Thank you, Mr. Chairman, and thank you to all of 
+the people who have come to share your testimony today. I 
+really appreciate it on this very critical issue.
+    Before I begin my questioning, I cannot underscore what my 
+colleague, Ms. Underwood, said before she left, that while we 
+hear everyone talk about protecting preexisting conditions our 
+Republican colleagues voted more than 70 times to either roll 
+back or repeal the Affordable Care Act, which really undergirds 
+those protections.
+    My questions this afternoon are for Dr. Gupta. In your 
+testimony you talked about how the Affordable Care Act has 
+improved the lives of millions of Americans, particularly women 
+and children. And this was strengthened by those 10 essential 
+health benefits that we all know about. Of those benefits, we 
+have mental health and substance abuse treatment. Do you think 
+that those are important benefits to protect?
+    Dr. Gupta. Thank you for the question. Absolutely. I think 
+one of the things we have yet to appreciate is the increase in 
+tens of millions of people across this country who are 
+suffering now from substance use disorder that may not have 
+been the case even a decade ago. And a lot of the--when we look 
+at the data, access issues, fear of being fired from their 
+employer are some of the reasons that people do not seek care. 
+So, it is a big stigma issue as well. For women, things like 
+breastfeeding supplies, very simple things like a breast pump 
+and not having to cost share on those things, are another one 
+of those things that we should be working to protect, in 
+addition to the maternity care benefits.
+    Ms. Hayes. Thank you. Because I know we are talking a lot 
+about preexisting conditions and our conversations are centered 
+around genetic conditions or health-related diseases. So I am 
+happy to hear that you recognize that addiction is also 
+something that really further exasperates those conditions. It 
+is undeniable that we are in a crisis with opioid addiction. In 
+my own home State of Connecticut we have had significant 
+increases. Over the past 6 years our numbers have tripled. In 
+2017 my State marked a grim milestone of over 1,000 opioid-
+related deaths. And in June of last year we were on track to 
+surpass that. In the district that I represent three of the top 
+ten towns are the highest opioid deaths.
+    This is no stranger to me. I grew up in a family that 
+struggled with addiction. In my own hometown 45 people died 
+last year as a result of opioid-related deaths.
+    Does the current opioid crisis make the need for mental 
+health and substance use disorder coverage more important?
+    Dr. Gupta. Absolutely. And, again, when we talk about 
+employer-based coverage, here is the real problem on the 
+ground. When I am seeing patients at a charity clinic who have 
+substance use disorders they are unable to have gainful 
+employment because of their addiction issues, which need to be 
+treated in the first place. And that allows them to actually 
+gain and have meaningful employment to begin with. So, I think 
+it is very important for us to make sure that we have systems 
+in place that allow the treatment and access to treatment for, 
+you know, one of the biggest crises to face our generation 
+today.
+    Ms. Hayes. I appreciate you viewing this as a crisis and 
+talking about treatment and coverage and healthcare, as opposed 
+to a criminal action, as we heard last week from our friends 
+over at Purdue Pharma, who talked about people who were 
+addicted to opioids as, ``reckless criminals''.
+    During your time at the Department of Health and Human 
+Services in Virginia you led several important initiatives to 
+address the opioid crisis in your State. Could you tell us what 
+impact the Affordable Care Act had on access to treatment for 
+substance abuse disorder and families, not just the individual, 
+but I am the daughter of an addict, so how families were 
+impacted by the protections provided by the Affordable Care 
+Act.
+    Dr. Gupta. Absolutely. In a State like West Virginia, which 
+is not any different from a number of States that are having to 
+deal with this crisis firsthand on the ground, we found that 
+having access to treatment, being able to expand those 
+treatments and make that available--a part of which was 
+Medicaid expansion. West Virginia was one of the first States 
+that--we worked very hard to ensure Medicaid expansion. Allowed 
+a number of people to enter the treatment spectrum and we found 
+that the access to mental health treatment, access to the 
+medications, being able to be able to transport it and being 
+paid for being able to transport for treatment, are some of 
+those factors that help us remove the stigma of addiction and 
+help us move forward in that. And it is very important that we 
+provide--reduce all the barriers to treatment when it comes to 
+a stigmatizing disease, such as addiction.
+    Ms. Hayes. Thank you for your time. Mr. Chair, I yield 
+back.
+    Chairman Scott. Thank you. The gentleman from Pennsylvania, 
+Mr. Meuser.
+    Mr. Meuser. Thank you, Mr. Chairman, thank you Dr. Foxx, 
+thank you to all testifying today.
+    Ms. Turner, I am Dan Meuser, Pennsylvania's 9th 
+congressional district. And I appreciate you taking the time 
+here, and all of you. I believe every American should have 
+access to high-quality, affordable health care, regardless of 
+health status, including preexisting conditions. Given current 
+law, are there any reforms that you would feel, Ms. Turner, 
+that are needed to ensure that individuals with preexisting 
+conditions do in fact continue to have access to health care 
+coverage?
+    Ms. Turner. I don't think there is one particular answer, 
+Congressman. I think they need a myriad of options. I think 
+giving States the option to recreate their high-risk pools 
+would be helpful to make sure people who have preexisting 
+conditions have a place to go if their health insurance becomes 
+so expensive. As Senator Bryce Reeves' constituent described, 
+$4,000 a month premiums or deductibles that are $10,000. They 
+need other options. And I think States also could do things 
+like the Healthy Indiana Program, an account-based plan that 
+allows people resources to access primary care, but knowing 
+that they have major medical coverage as well.
+    But I think the crucial issue is addressing cost and giving 
+people more options, more flexibility, and giving companies the 
+option to provide coverage that is more attractive, that 
+healthy people want to get in the market, so they are not 
+staying out of the market, putting more and more people who 
+have high health costs in the market and driving up premiums 
+for everyone.
+    Mr. Meuser. That is encouraging to hear. Now that we have 
+established that we are in agreement on preexisting conditions, 
+I would like to ask you your thoughts on the Affordable Care 
+Act's effect on association health plans. In Pennsylvania, for 
+instance, the Pennsylvania Farm Bureau had 12,000 members in an 
+association health plan and it worked very well, along with 
+other organizations. The Trump administration has issued a 
+final rule allowing for the use of AHPs, however, many 
+Governors, democrat Governors it so happens to be, across the 
+country, including in Pennsylvania, are blocking the formation 
+of AHPs.
+    Can you speak to the importance of the efforts to allow 
+AHPs and maybe comment technically as to why these efforts 
+would be blocked?
+    Ms. Turner. So far association health plans are available 
+in 13 States, about two-dozen plans in all. And some States are 
+considering invalidating or blocking these plans, which they 
+have full right to do, just as they are short-term limited 
+duration plans. But what they are doing is foreclosing options 
+for people who are otherwise likely to simply be uninsured. If 
+they don't have an affordable option their family cannot only 
+face bankruptcy, but not having access to that good high 
+quality care that private insurance brings.
+    So it is unfortunate if States take a view that because, I 
+don't know, the Trump administration rules that therefore they 
+should be opposed, because they are providing options for 
+people who are desperate for coverage.
+    Mr. Meuser. Yes. OK. That is unfortunate. Thank you.
+    Medicare Advantage. I have people coming into my office and 
+throughout my district talking about, speaking about how 
+terrific Medicare Advantage programs are, how relatively 
+affordable they are versus other Medicare plans. And, as a 
+matter of fact, the Medicare Advantage plans have decreased, 
+reduced in cost by 6 percent this past year when other plans on 
+average are going up 12 percent. So would you say that this is 
+a successful example of private sector innovation? And could 
+you offer any other insight on the effectiveness of Medicare 
+Advantage.
+    Ms. Turner. They were created, as you know, in 2003 through 
+the Medicare Modernization Act and went into effect in 2006. 
+And there was no real significant promotion of Medicare 
+Advantage plans. It was offered as an option for private 
+coverage to seniors, so they didn't have to be in something of 
+a Swiss cheese of a program with a fee-for-service Medicare. 
+They have been hugely popular. I think almost half of seniors 
+now have individually selected on their own, without any 
+mandates, Medicare Advantage plans. And these plans compete 
+fiercely for seniors. They have to cover a basic level--not 
+basic but very generous level of benefits and many of the plans 
+offer much more comprehensive coverage than people can get in 
+traditional Medicare. And many of them also incorporate 
+prescription drug coverage.
+    I think that seniors see it is crucially important because 
+it also provides an environment for coordinated care, rather 
+than going from doctor to doctor and fee-for-service 
+traditional medicine Medicare. Maybe getting the same 
+prescription with different names from physicians and then 
+winding up in the hospital with drug toxicity, they have 
+somebody looking out for them and being able to really 
+coordinate and help manage their care.
+    Very, very beneficial. And, of course, these are private 
+plans within Medicare.
+    Mr. Meuser. OK. Do I have any more time, Mr. Chairman?
+    Chairman Scott. Not really.
+    Mr. Meuser. OK. Well, I yield the remainder of my time.
+    Chairman Scott. Thank you. I appreciate it. The gentlelady 
+from Florida, Secretary Shalala.
+    Ms. Shalala. Thank you very much, Mr. Chairman. I don't 
+want to add, a lot of my colleagues have asked the same 
+questions I would have asked.
+    I do want to point out that Medicare Advantage gets a lot 
+more money than traditional Medicare and therefore it is 
+expected to provide a lot more benefits. It also pays 
+dramatically for the kind of marketing that the private plans 
+want to do. So, we are paying with taxpayer money for Medicare 
+Advantage significantly. And most analysis has shown that we 
+are overpaying for Medicare Advantage given the benefits that 
+are provided.
+    I do have a couple of questions though. I want to ask Ms. 
+Corlette, we focused here on preexisting conditions, but would 
+coverage for preexisting conditions actually work very well if 
+we didn't have the other consumer protections? I mean we could 
+all agree on preexisting conditions, but if you don't take the 
+caps off, preexisting conditions are limited. And Mr. Riedy 
+would have a very difficult time with CF.
+    Ms. Corlette. Yes, absolutely. And, in fact, New York is a 
+great example of a State that had a number of preexisting 
+condition protections before the ACA was passed, but they had a 
+very expensive individual market because they didn't have the 
+other provisions that the ACA included, such as the subsidies 
+to support people up to 400 percent of the Federal poverty 
+level to buy insurance, as well as the individual mandate 
+penalty.
+    So, it is important to note that the ACA included not just 
+preexisting condition protections, but a number of provisions 
+that were more holistically designed to try to make coverage 
+accessible and affordable for people. All of those, of course, 
+have been at least preliminarily ruled to be invalid by the 
+Texas court.
+    Ms. Shalala. Thank you very much. And, Dr. Gupta, yesterday 
+the President said that he was going to invest some money in 
+HIV drugs. And I want to ask you about that, because it is very 
+important in my district. We have the highest incidence per 
+capita, and therefore I am very supportive of any investment in 
+HIV. But those investments don't work without a comprehensive 
+plan around them. And could you talk a little about that?
+    Dr. Gupta. Absolutely. Thank you for that question. So as 
+opposed to the 1980's, where we had a challenge of diagnosing 
+HIV, figuring out how to treat it, and make it a condition. 
+People were dying on the streets because of that. Now, we have 
+a challenge of finding those individuals who may not know that 
+they have HIV. So, screening--that is why we have moved to what 
+we call universal screening and you really have to opt out of 
+it, otherwise most of us need to get screened. The idea behind 
+that is most people that may have HIV do not know they have 
+HIV. And if they can be caught early and put in treatment it 
+becomes a chronic condition you can live with. You don't have 
+to die because of the complications now.
+    When you start to remove the other legs of that stool, in 
+terms of essential health benefits, then obviously those people 
+are going to not want to be screened for the HIV. The diagnosis 
+will not occur and then they will not be treated. As a result 
+they will continue to transmit the disease and we will result 
+in having more cases than fewer cases and our conquest to 
+eliminate HIV from the United States will not happen anytime 
+soon.
+    Ms. Shalala. Thank you very much. And, Ms. Turner, if I 
+could ask a quick question about the flexibility you are 
+talking about. Would it be OK with you if a State was willing 
+to develop a plan that continued caps, had covered preexisting 
+conditions but continued caps? Because, you know, private 
+insurance is a mixed bag in this country. I have got half a 
+million people in my own district that are covered by private 
+insurance, but some of it is underinsurance because it has high 
+deductibles. And how much flexibility would you give the States 
+so that we would really recognize it as insurance and 
+comprehensive insurance? Would you continue some of these 
+consumer protections that we are talking about?
+    Ms. Turner. I think that it is important to recognize that 
+State officials have to answer to the same constituents when 
+they are making changes, health policy changes that Federal 
+officials do. And so that needs to be a conversation with their 
+voters, and to make sure that they are answering the 
+constituents' needs for affordable, quality coverage, but doing 
+so in a way that may give them more flexibility.
+    Some States in Medicaid, as you know, and I am sure under 
+your Secretaryship some of the waivers were approved to give 
+States like Oregon, for example, a lot of flexibility within 
+its Medicaid program and what benefits were covered. So I think 
+States can better fine-tune the mandates than a Washington 
+mandate. The Affordable Care Act has been changed already 
+either by administrative order or by acts of Congress 70 times. 
+So, I think needing to give the States the flexibility to 
+answer the needs of their constituents and know that their 
+constituents actually can be better heard at the State level, I 
+think is important.
+    Ms. Shalala. I should point out that the Oregon simply took 
+the same package. It actually didn't mix up the package of 
+benefits very much. I am asking you specifically about caps and 
+about preexisting conditions. Do you think that States ought to 
+be able and the other consumer protections ought to be able to 
+waive those consumer protections and would it actually be 
+comprehensive insurance at the end of the day if they had 
+flexibility on those consumer protections including preexisting 
+conditions?
+    Ms. Turner. We see with States that are saying they don't 
+want short-term limited duration plans, California and offered 
+in their States, Pennsylvania, restrictions on association 
+health plans. If States feel that those consumer protections 
+are important, I believe that they will keep them and if they 
+feel that there needs to be some flexibility along with 
+consumer awareness and transparency, then I think States should 
+have the option of figuring out what works best for their 
+constituents.
+    Ms. Shalala. So you wouldn't favor ERISA protections for--
+and overrule States--using ERISA protections?
+    Ms. Turner. I think that right now we basically have under 
+HIPAA we have the protections that allow people to go from 
+their employer plan--
+    Ms. Shalala. Right.
+    Ms. Turner [continuing]. to another employer plan and 
+maintain that continuity of coverage and not be discriminated 
+against. So those protections are already on the books and 
+because of the community rating within employer plans, people 
+are protected to make sure that their health status does not 
+affect their premium costs.
+    Ms. Shalala. I yield.
+    Chairman Scott. Thank you. Gentleman from Wisconsin, Mr. 
+Grothman.
+    Mr. Grothman. OK, thank you. Moving now, Ms. Turner, and 
+one more time, I think you've answered this, but it seems to me 
+the Republicans, the Democrats are all favored, in favor of 
+protecting coverage for preexisting conditions. Can you just 
+one more time tell us, we have said it so many times but not as 
+many times as the ads we have saying otherwise running against 
+us in election. Under current law, are workers with preexisting 
+conditions allowed to be charged more, denied coverage based on 
+their condition?
+    Ms. Turner. I'm sorry, repeat.
+    Mr. Grothman. Under current law, are people allowed to be 
+charged more, denied coverage based on their conditions?
+    Ms. Turner. No, Congressman.
+    Mr. Grothman. OK. So that is the current law right now. 
+Good. Now I will give you some other general questions. I am 
+from Wisconsin. In 2018 last year, Scott Walker worked with the 
+Trump administration and CMS to approve a 1332 State innovation 
+waiver, which caused our premiums to drop. Are you familiar 
+with that situation?
+    Ms. Turner. Yes, I am, sir.
+    Mr. Grothman. Could you talk about what we did in 
+Wisconsin?
+    Ms. Turner. I mentioned actually in my testimony some of 
+them, some of the impact that these plans have had and of 
+course I can't find this chart when I'm looking for it. But 
+they have been able to basically repurpose existing ACA money 
+to help increase access to coverage or to improve access to 
+coverage for people with chronic conditions, preexisting 
+conditions, and therefore lower premiums in their general 
+market.
+    So a number of States have--Wisconsin is often taking the 
+lead in health policy innovations and waivers and I think that 
+this is an important one to move forward with.
+    Mr. Grothman. And at least I am told that premiums dropped 
+a little over 4 percent, is that your?
+    Ms. Turner. Premiums dropped and enrollment increased as a 
+direct consequence.
+    Mr. Grothman. Good. And in the past, before this type of 
+thing, we saw incredible increases in premiums and open 
+enrollment falling. Is that--we saw that in Wisconsin. Is that 
+your nationwide?
+    Ms. Turner. Because the premiums were so much higher--
+    Mr. Grothman. Right. As the premiums--a lot of people just 
+throw in the towel.
+    Ms. Turner. People just can't afford it and they also--we 
+talk about a high deductible. The deductibles are so high and 
+the ACA plans that if people are not eligible for cost-sharing 
+reduction subsidies they basically say they might as well not 
+be insured because they can't afford to pay the first $10,000 
+every year out of pocket before coverage kicks in.
+    Mr. Grothman. I am glad you mentioned association plans. My 
+experience with health care in general, when you take a group, 
+not a Statewide group because it is hard for the State to 
+duplicate it, but when you take a business with a 1,000 
+employees or something, a lot of those innovative businesses 
+were doing a very good job. One of the things they did is 
+employer-based clinics which saved tremendous amount of money 
+for a variety of reasons. Is there any way that you can see 
+that sort of thing can be duplicated through something like 
+Obamacare or is this the type of innovation that is why we want 
+the vast majority of Americans hopefully still insured through 
+their employer?
+    Ms. Turner. Well, the Affordable Care Act did allow some 
+innovation incentives for people to do--not association health 
+plans, I'm blanking on the name of the creative coordinated 
+care plans within Medicare. And because the rules that were 
+written around the Affordable Care Act were so strict, even 
+plans like the Mayo Clinic and Cleveland Clinic and others that 
+had been--Geisinger, that had been very successful in managed, 
+coordinated care, couldn't make it work.
+    So I do think that flexibility is really important and 
+trusting employers--some employers have said for example that 
+they feel it is worth flying their employee to another State 
+and family members to get care at a center of excellence, of 
+cardiac care, cancer care. So they really do try to innovate to 
+get the best value and the best quality care.
+    Mr. Grothman. It is another thing. I did mention employer-
+based clinics but these centers of value, flying people to 
+other States because an employer has the ability to hire 
+somebody and do a good job. Now I know there are a lot of 
+people who always feel that setting up another big Federal 
+bureaucracy is going to work after this seems to have failed 
+like 120,000 times in a row, but what you are telling me is a 
+way that the private insurance plans and for individual 
+companies and hopefully to be duplicated by associated plans, 
+they are able to find ways to reduce premiums and reduce costs 
+that really as a practical matter are not being duplicated with 
+a government bureaucracy.
+    Ms. Turner. That is correct.
+    Mr. Grothman. Thank you.
+    Chairman Scott. Thank you. The gentleman from Michigan, Mr. 
+Levin.
+    Mr. Levin. Thank you, Mr. Chairman. I would like to dig in 
+a little more deeply to the Texas v. United States case and I 
+have a question to start for Ms. Corlette. In a departure from 
+long standing precedent of defending Federal law against 
+constitutional challenges, the Trump Administration's 
+Department of Justice filed a brief last year requesting that 
+the court strike down several provisions of the ACA in the 
+Texas case. Among the provisions that the administration argues 
+should be overturned include guaranteed issue, community 
+rating, discrimination based on health status and preexisting 
+conditions exclusions.
+    Last week, President Trump told the New York Times that he 
+is optimistic that the ongoing Texas lawsuit will terminate the 
+Affordable Care Act. Would you say that the Justice 
+Department's decision not to defend the ACA is consistent with 
+Republican promises to protect patients with preexisting 
+conditions?
+    Ms. Corlette. Well, I would say that the Justice 
+Department's provision--position if it prevails would strike 
+down the protections that the ACA provides for people with 
+preexisting conditions. So no, it's not consistent.
+    Mr. Levin. And how does this, his statement reflect the 
+Administration's approach to this issue?
+    Ms. Corlette. I--
+    Mr. Levin. Of preexisting conditions that we are here to 
+talk about.
+    Ms. Corlette. I have, yes. I have a little trouble divining 
+exactly what the Administration's position is given that there 
+do seem to be differences between what President Trump has said 
+and what the Justice Department position is so I am not sure I 
+can comment.
+    Mr. Levin. And what they are actually doing. So you pointed 
+out in your testimony that Republicans never have come up with 
+a proposal to replace the ACA yet they continue with their 
+efforts to unravel it, the most recent example being the Texas 
+lawsuit.
+    During the last Congress when we were debating the 
+Republican bill to repeal the ACA, Republicans put proposed 
+segmenting the population and dumping sick patients into high 
+risk pools. The CBO had the following assessment of this 
+proposal: ``Less healthy people would face extremely high 
+premium. Over time it would become more difficult for less 
+healthy people, including people with preexisting medical 
+conditions in those States to purchase insurance because their 
+premiums would continue to increase rapidly.''
+    One of our witnesses, Ms. Turner, has put forth a similar 
+proposal this morning or early this afternoon. Ms. Corlette, 
+how do risk--high-risk pools stack up as an alternative to the 
+coverage provided through the ACA?
+    Ms. Corlette. Sure. Well, we have a history of high-risk 
+pools. Before the ACA there were about 35 States that had high-
+risk pools and they varied. They were different, but I can tell 
+you that for people who were in high-risk pools, the premiums 
+could be as much as two times the standard rate. They often had 
+preexisting condition exclusions so the condition that got you 
+denied coverage in the individual market you didn't get covered 
+in the high-risk pool for up to a year. You had annual and 
+lifetime limits quite often, high deductibles and often many of 
+these high-risk pools limited enrollment. Even still, they 
+operated at a loss so they needed to be subsidized by the 
+government.
+    Mr. Levin. OK, thank you. I have a question for Mr. Riedy. 
+In your testimony, you described the enormous cost of your 
+medical treatments, totaling nearly $450,000 last year. Prior 
+to the ACA plans in the both the individual and employer market 
+were permitted to impose annual and lifetime limits on care and 
+many of them did, including more than 90 percent of the plans 
+in the individual market. You better than most people can speak 
+to the real-world impact of these limits. Based on your 
+personal experience, how do annual or lifetime limits on 
+coverage impact patients with high-cost conditions?
+    Mr. Riedy. Thank you for the question. Annual and lifetime 
+caps for me personally if they were allowed to exist again 
+would cause a severe financial burden on my family. Not just 
+from the cost of having to pay for the care that I receive, but 
+also from the impact that if I do reach that cap, what happens 
+next? Do I have to pay for them out of pocket? And if I do then 
+those costs can be unmanageable.
+    As you mentioned my care last year just for the medicines 
+was $450,0000. That is a lot of money to take and so the 
+impacts of those caps, having them now provide peace of mind. 
+They also know that I can continue to receive the highly 
+specialized care and that I have access to that coverage that 
+allows me to get that care.
+    Mr. Levin. I can't thank you enough for coming and sharing 
+your story with us and with the American people. And just in a 
+note of solidarity, I like the gentlewoman from Georgia who 
+spoke earlier, I am a two-time cancer survivor but also Mary 
+and I have four kids. The two oldest both have Crohn's disease 
+and have for 14 years and we would have gone bankrupt multiple 
+times over just trying to pay for their medications if they 
+weren't covered and because of, you know, caps. Lifetime, we 
+would have blown by lifetime caps already so I really thank you 
+for sharing your story. I yield back, Mr. Chairman.
+    Chairman Scott. Thank you. The gentleman from Kansas, Mr. 
+Watkins.
+    Mr. Watkins. Thank you, Mr. Chairman. My question is for 
+Ms. Turner. Ma'am, I represent Kansas and in Kansas, Kansans 
+with preexisting conditions face a number of challenges and 
+hardships. And I am glad that a lot of Democrats and 
+Republicans agree that Americans with preexisting conditions 
+should and have been for years been protected, for decades 
+actually. And so in that of course even before the Affordable 
+Care Act so unfortunately since its passage, the ACA continues 
+to be problematic. Premiums continue to rise and the answer I 
+believe is not to double down on ACA but and seek a one size 
+fits all government-run health care regime.
+    Therefore, Ms. Turner, since the passage of Obamacare, can 
+you speak to the lack of actual affordability for the vast 
+majority of Americans? Also the rate of continued premium 
+increases because of the law?
+    Ms. Turner. Premiums in the exchange markets have about 
+doubled on average since the law went into--since the exchanges 
+took effect in 2014. That is much higher than in the regular 
+market and certainly before that. And a consequence of that is 
+that it's driving more and more healthy people out of the 
+market.
+    The ACA as you know forces young people to pay a 
+disproportionally high amount for their coverage because of the 
+three-to-one age rating in the exchanges. And so we are 
+losing--if young people are not eligible for their parent's 
+coverage and trying to afford premiums on their own, they're 
+paying a disproportionate amount for people who are older and 
+sicker and therefore they're dropping out as well. So I think 
+it is crucial if we really want to increase access to health 
+coverage that we figure out a way to get cost down and to 
+attract the healthy people into the market.
+    Senator Reeve's constituent in Virginia, he doesn't want to 
+drop out of health insurance market but he can't afford $4,000 
+a month for premiums and having no choices of coverage. Some 
+people need more choices. They need to be able to have more 
+flexibility with benefits to protect their family and they need 
+some of these bridge plans like association health plans and 
+short-term limited duration plans.
+    Mr. Watkins. Thank you. I also want to touch on our 
+increasingly strong economy propelled by comprehensive tax cuts 
+and regulatory reform. In fact, CNBC recently noted that 
+January job reports just last week payroll surged by 304,000 
+smashing estimates. Thanks to recent pro-growth Federal policy 
+changes, more and more Americans are finally finding good 
+paying jobs. Many of these jobs offer generous employer 
+sponsored healthcare. So all the employers simply know that 
+they can--that they have to be competitive to attract good HR. 
+So, Ms. Turner, can a strong jobs market spurred by pro-growth 
+policies lead to increased coverage rates nationally for 
+employees--employers with preexisting coverage? What are some 
+policies that can continue fueling work force participation?
+    Ms. Turner. You are absolutely right that employees highly 
+value the, their workplace coverage and the workplace--the H.R. 
+departments, especially for big companies work tirelessly to 
+try to negotiate the best benefits, the best drug formulary and 
+the access to the highest quality hospitals for their employees 
+to attract them so that they won't go to a competitor. And 
+there are how many, 2 million jobs, two and a half million jobs 
+that aren't filled now and employers can't even find the 
+workers to fill them. So being able to offer attractive, 
+affordable health coverage with the flexibility to meet the 
+needs of their workers, and having providers that are competing 
+for that business to get, to offer those lower costs, higher 
+value plans, I think is really a crucial part of a thriving 
+economy.
+    Mr. Watkins. Thank you, Ms. Turner. I yield back, Mr. 
+Chairman.
+    Chairman Scott. Thank you. The gentleman from Maryland, Mr. 
+Trone.
+    Mr. Trone. I thank you, Mr. Chairman. Ms. Corlette, 30 
+years ago I started my business with my wife and two little 
+girls and I know firsthand starting a business can be scary 
+without the fear you are going to be able to afford healthcare 
+for yourself and your family. You mentioned prior to the ACA 
+people were often tied to jobs they'd have otherwise left but 
+simply because they needed to maintain healthcare, access to 
+affordable health insurance. Could you elaborate on what the 
+ACA's protections for patients with preexisting conditions has 
+meant for entrepreneurship, startups, small business creation?
+    Ms. Corlette. Sure. So, before the ACA, if you were leaving 
+a job-based plan, you were required to maintain what was called 
+COBRA coverage which was continuation coverage, but you had to 
+pay the full premium. And for most people that was 
+unaffordable. And so, people often had a lapse in coverage and 
+then if you had a preexisting condition it was almost 
+impossible to find an individual market plan to cover you and 
+your family.
+    With the ACA you can now if you have a business idea or 
+want to go out on your own and start a consultancy or invent 
+something, you can do so without having to worry that your 
+preexisting condition would cause you to be denied or have a 
+preexisting condition imposed on your--exclusion imposed on 
+your policy.
+    Mr. Trone. So, Dr. Gupta, the opioid epidemic as you spoke 
+about and you are from West Virginia. My district borders 
+western Maryland so we are right there together in the heart of 
+the opioid epidemic on I-81. I lost my nephew, age 24, to a 
+fentanyl overdose a couple years ago and so many folks in my 
+district have been adversely affected by this tragedy.
+    With the ACA, we closed a lot of gaps in coverage, 
+especially in the area of behavioral health. And I think that 
+is so important and it is all part and parcel of this disaster 
+substance disorders. If the ACA was gone, what do you see as 
+the human toll?
+    Dr. Gupta. Thank you for that question. Certainly we 
+understand, you know, States with border counties populations 
+don't treat those as States, they are one community within 
+those areas. So, it's very important for people to be able to 
+move across and not have to worry about what is the State 
+regulation in this State and the State regulation in that 
+State? ACA allows that consistency to happen State to State. 
+The mental health protections as well as the ability to get the 
+help that need and people would have so many other challenges 
+ongoing at the same time. ACA really allows that to happen and 
+I think that is the most important piece as we are combatting 
+this opioid crisis is to be able to not have any extra barriers 
+in terms of coverage and accessibility to care. As the good 
+treatments are existing and more come up, we have got to be 
+able to have the access to provide tens of millions of people 
+who are suffering and dying actually, tens of thousands per 
+year to be able to save them and get them back to work.
+    Mr. Trone. As we put together legislation on opioids to 
+address that, what do you see as a couple key points that 
+should be in that to address the mental health connectivity 
+which was so crucial and part and parcel of this at all times?
+    Dr. Gupta. I think it is very important for us to go back 
+to see what we did with HIV. We realized HIV was much more of a 
+social determinant aspect of this in the 80's and we put 
+together, you know, the Ryan White Care Act for example, that 
+not just took care of you as an individual, your medication, 
+but you--looked at your house and your access and all those 
+things.
+    So I think it is very important when you look at this 
+crisis, we are looking at housing, we are looking at access, 
+daycare, all of those tools that surround somebody who is 
+suffering from addiction to be able to be provided so that they 
+can get into treatment and then they can have a successful, 
+fair chance of recovery and back into employment.
+    So, it is a lot more than just pills or just counseling. 
+There is a societal response that we must have to this crisis 
+in order to address it and I think that is the part that we can 
+do more, not less.
+    Mr. Trone. OK, thank you. I yield the balance of my time.
+    Chairman Scott. Thank you. The gentleman from Indiana, Mr. 
+Fulcher.
+    Mr. Fulcher. Thank you, Mr. Chairman, and panelists.
+    Chairman Scott. Excuse me, Idaho. Excuse me.
+    Mr. Fulcher. Yes, it is a common mistake. Thank you. 
+Panelists take heart. I think the end is near. It is coming 
+close here OK and please forgive the lack of attendance by some 
+of us on the front end. I, for one, am still struggling with 
+the multiple committees as the same time. And so please know 
+that wasn't rudeness.
+    My question and I will probably address this to Ms. Turner 
+because I know some of this has been covered and I am going to 
+shorten things up because Mr. Watkins hit part of that. But in 
+our State of Idaho, 2012 I think it was we--I believe we were 
+the only State with Republican leadership in the House, the 
+Senate, and the Governor's office that embraced the State-based 
+exchange. And I was in the Senate leadership role at that time 
+and in hindsight it just hasn't worked out well for us.
+    Our insurance premiums across the board have averaged 
+somewhere between a 15 and a 27 percent per year increase. And 
+so as we speak right now, in our State, there is a lot of 
+things on the table. It is--that have been--that are being 
+discussed right now. Alternatives to try to figure out a better 
+path and I would just like to get your counsel, your input, on 
+some of those things and I will just list a few. But the 
+expansion of HSAs, medical memberships, medishare, charity 
+care. The expansion of insurance procurement across State lines 
+which in our State we can't do, high-risk pool reform. Those 
+types of things which are--they are more market-based and given 
+our history and our struggle with the status quo that there is, 
+your thoughts, your counsel on that type of an approach.
+    Ms. Turner. States do talk about the difficulty of figuring 
+out how to address the needs of their State but it's even more 
+than the State. It's sometimes at a county level. You have 
+rural counties who have very different problems then Cincinnati 
+and Canton and Cleveland. They've really need to have the 
+resources and the flexibility to meet the needs of those areas.
+    And I want to really reinforce what Dr. Gupta was saying 
+about the social determinants of health. We put so much money 
+just into health care when people may actually need other kinds 
+of supports to make their lives work better. And I believe that 
+Ohio is one of the States that has--is implementing work 
+requirements as well for Medicaid. And people who work with 
+these communities say that is a valuable thing to make sure 
+that people have someplace to go once they get through 
+rehabilitation treatment, to have a job, something to give 
+stability to their life. Help them with housing.
+    If States had more flexibility and I believe the Trump 
+Administration is working to do that. As we have said before, 
+Congress had repeatedly voted for money to dedicate money to 
+high-risk pools. Many States that were doing--the States that 
+were doing high-risk pools in the past were doing it all with 
+State money. With the ACA there is new money to put on the 
+table to make those risk pools work better so that you can 
+provide dedicated resources for them and more comprehensive 
+care for chronic conditions.
+    So care management for those high end patients, being able 
+to have more flexibility, to provide the kinds of benefits 
+structures that people actually want to purchase to protect 
+themselves and their families I think are really crucial. And 
+hopefully we can work with Ohio and other States in trying to 
+think about what some of those waiver options might be to 
+work--make it work better for your State.
+    Mr. Fulcher. Thank you. Mr. Chairman, a quick followup and 
+I will--thank you. Ms. Turner, in a few words because I am 
+going to yield my time here in just a second. But that makes 
+sense. But when it comes right down to it, should we be 
+focusing on solutions that come out of this room and out of 
+this building and out of the building next door or should be 
+focusing on more market--enabling market-based solutions to try 
+to improve our situation?
+    Ms. Turner. We see in Medicare advantage for example that 
+market-based solutions to provide more comprehensive care and I 
+believe it is really based upon a formula very close to what 
+traditional Medicare pays for Medicare advantage, can give 
+incentives to begin to find the same kinds of cost efficiencies 
+in the health sector that we see at other sectors of the 
+economy.
+    When you have so much of the time of health care providers 
+and administrators focused on following Washington's rules 
+rather than figuring out what is best for the patient, what is 
+best for our State that it really takes away time and energy 
+from solving the problem.
+    Mr. Fulcher. Thank you, panelists, Ms. Turner. Mr. 
+Chairman, I yield back.
+    Chairman Scott. Thank you. Gentlelady from Michigan, Ms. 
+Stevens.
+    Mr. Stevens. I would like to take a minute to thank our 
+panelists today. Ms. Corlette, your expertise and knowledge 
+was--is so welcome and we thank you for taking the time.
+    Mr. Riedy, thank you for your courage and your words of 
+wisdom and sharing your personal story. It was a delight to be 
+in this room with your family who was looking at you with very 
+proud eyes. You are one of the reasons why the ACA was so 
+critical and critical to every American taxpayer and American 
+worker and I admire you from the bottom of my heart.
+    And, Ms. Turner, I want to thank you for your eloquence and 
+answering a lot of questions today. And, Dr. Gupta, thank you 
+for being here.
+    As we are here examining threats to workers with 
+preexisting conditions, this topic could not be more critical 
+as our Ranking Member Foxx indicated. We have a healthy economy 
+and the health of our taxpayers and our workers is paramount.
+    And Dr. Gupta, I would like to take my questions to you and 
+your expertise which we are delighted to have in the room 
+today. In your testimony, you discussed the issue of high-risk 
+pregnancy and delivery and how women prior to the enactment of 
+the ACA often found that, you know, they reached their policy's 
+cap. They would reach their policy's cap on the amount of care 
+provided. They would find themselves exposed financially, 
+unsupported in the workplace, and generally pushed to a brink. 
+And so, I would like to ask you, what is the cost of high-risk 
+pregnancy and how likely are women to run up against these caps 
+in the absence of the ACA protections.
+    Dr. Gupta. Certainly, thank you for that question. March of 
+Dimes certainly is doing a lot of work around this because we 
+know that maternal mortality and morbidity amongst the 49 
+developed countries in the world, we are number 49. We are 
+actually three times mortality of the next country in line 
+which is UK. So we are really in a bad shape right now. For--we 
+have women dying every single day.
+    The cost can be tremendous and when we look at the cost 
+really it is not just human lives lost, but we are talking 
+about one complicated pregnancy can cause that woman to lose 
+potentially her absolutely full annual lifetime limits. So, she 
+may not have coverage for the rest of the year and have to take 
+care of not just the baby but the rest of the family.
+    Same way we go back to the severe prematurity. One simple 
+birth with severe prematurity can land a child, an infant for 
+multiple months in a neonatal ICU. So, when the baby returns 
+home for the first time when there should be a cause for 
+celebration, it would then be a cause that the baby could meet 
+his or hers lifetime limits on care and not be insurable until 
+Medicare. And that's just a terrible thing to think about and 
+those are the challenges we are dealing with where we need to 
+be making progress to work in those maternity care deserts.
+    We have a third of the counties in this country or 1,000 
+counties, 5 million women, 150,000 babies that are being born 
+what no obstetric care. And so that we are actually, you know, 
+talking about walking backwards.
+    Mr. Stevens. Well, and not only is this a cost to the 
+mother and the family, it is a cost to the employer as we, you 
+know, are talking about the workforce and our economy writ 
+large. And, Dr. Gupta, as you know, the Affordable Care Act 
+requires insurers to cover preventative health services without 
+cost-sharing and these obviously include family planning, well 
+women visits, screenings for domestic violence and other 
+crucial health services.
+    And I, just to back this out a minute, I would love for you 
+to just reflect on how pregnant women and other new members--
+mothers, excuse me, utilize these services and what impact 
+would overturning these provisions maybe through the Texas 
+litigation have on these women?
+    Dr. Gupta. So first of all, just the idea of preconception 
+care to be healthy in order to get pregnant is very important. 
+That would not happen. Then within prenatal care the notion of 
+having things like vitamin--folic acid and vitamins, which we 
+think is very basic, we recommend that all across the globe, 
+yet we can have women that can have, deliver and cause real 
+harm to the babies developing because of neural tube defects 
+and other things that are not being provided. Throughout the 
+prenatal care we know the amount of visits that happen with the 
+doctor's office and this following a standard of care leads to 
+better delivery, better care of not just the mother but also 
+the baby as a result, getting the family dyad back together, 
+the mom and baby. None of that would be possible if we were to 
+remove that.
+    And obviously one of the things that used to happen was the 
+only time you could get into Medicaid was if you were--if you 
+got pregnant and then it would be removed the coverage right 
+after. Now we have 60 days, up to 60 days coverage post-partum. 
+When we are dealing with challenges of post-partum depression, 
+suicide, post-partum hemorrhage, hypertension, eclampsia, heart 
+conditions, it's very critical for us to build on that coverage 
+post-partum up to a year because of the increasing maternal 
+mortality that is happening.
+    This is still the most dangerous place for a woman to have 
+birth in the developed world. And we need to be working again 
+not at removing that but actually developing more steps but at 
+this time, removal of ACA provisions will cost women and their 
+children not only just their jobs but potentially their lives.
+    Mr. Stevens. Yes. Well, Dr. Gupta, while you don't share my 
+gender, I appreciate you sharing the stories of women and 
+mothers and making that at the forefront of our minds today. 
+Thank you.
+    Chairman Scott. Thank you. The gentlelady from Nevada, Ms. 
+Lee.
+    Mr. Lee. Thank you. I wanted to first thank all of the 
+panelists today for your testimony and answering the questions. 
+And, Mr. Riedy, I wanted to speak directly to you. First of 
+all, CF has had a place in my family. My husband lost a cousin 
+about 30 years ago before groundbreaking technologies and 
+treatments were available. And more importantly, my sister, 
+Mary Lester, is a respiratory therapist at Keck Medical Center 
+at USC and dealing with adult cystic fibrosis. So, through her 
+years, through my years and I have experienced alongside her 
+many of the struggles that patients like you go through. So, 
+thank you very much for being here and your testimony.
+    I wanted to ask, in your testimony you pointed out that 
+you're fortunate to have comprehensive health coverage through 
+your wife's employer. If your wife were to change jobs, choose 
+to start a small business or possibly take time off for 
+education, you might end up in a situation where you would have 
+to change this coverage. And I wanted to know from you how do 
+the Affordable Care Acts protections for patients with 
+preexisting conditions provide peace of mind that you would 
+never be without coverage?
+    Mr. Riedy. Thank you for that question. Knowing that my 
+wife or I could switch employers and still be adequately 
+covered, it gives us peace of mind that allows us to be 
+flexible and explore new opportunities potentially that before 
+the ACA may not have existed. And without the ACA, you know, 
+there is always that fear that leaving a job if I went to 
+another one that I could still be denied insurance because of 
+my preexisting condition or if my wife changed jobs, you know, 
+would they deny me coverage because of my preexisting 
+condition.
+    Mr. Lee. And thank you. And to followup on that, what 
+impact would an adverse decision in Texas case have on your 
+wife's ability to change jobs?
+    Mr. Riedy. Well, if the ACA was--if the ruling stands, my 
+wife would have less of the opportunity to explore new 
+opportunities. She is a teacher so she is at a great place 
+right now but if she had to--if she wanted to do something 
+other than teach or switch employers there's still that fear 
+that we may be or I may be denied coverage or access to it. So, 
+it could lock her into where she is.
+    Mr. Lee. Lock her in. All right, thank you. One other 
+question. According to the Department of Health and Human 
+Services, the number of Americans with preexisting conditions 
+ranges from at least 23 percent, 61 million people to as many 
+as 133 million people. And prior to the Affordable Care Act 
+these Americans with preexisting conditions could be denied 
+coverage or charged an exorbitant premium to get coverage, 
+something that my parents had experience both having high blood 
+pressure at one point in their lives.
+    Some families have even declared bankruptcy from high 
+medical bills due to having a preexisting condition. Today, 
+however, insurance companies cannot discriminate against people 
+based on their medical history.
+    Mr. Riedy, without employer-sponsored health insurance or 
+insurance through your family prior to the Affordable Care Act, 
+do you believe you would have been able to attain affordable 
+health insurance?
+    Mr. Riedy. Before the ACA I would have likely been denied 
+coverage because of my preexisting condition without the access 
+to employer-sponsored health coverage. And the ACA provides me 
+with the opportunity to be adequately covered on the individual 
+market I'm currently in. Without them I don't know if that 
+would be possible.
+    Mr. Lee. Well, thank you so much for your testimony. I want 
+to say I texted my sister to tell her I was going to be 
+speaking with you today and she sent me this message back that 
+said please make sure we help people with cystic fibrosis 
+because these patient needs to have their medical needs met and 
+it is extremely expensive illness. She said they didn't cause 
+this disease, but they must fight it and so thank you for your 
+courage for being here. I appreciate it.
+    Chairman Scott. Thank you. The gentlelady from 
+Massachusetts, Ms. Trahan.
+    Ms. Trahan. Thank you. Thank you, Mr. Chairman, for having 
+this hearing and thank you, everyone, for hanging in for a long 
+hearing. Part of the challenge of being later in the program 
+and new here is so many of the thoughtful inquiries have 
+already been made but I do have a couple of questions. I am a 
+mother of two young girls, 8 and 4 as well as three grown 
+stepsons who have benefited from the ACA and being able to stay 
+on my health plan as they enter the workforce.
+    Before the ACA women were often charged more than men just 
+because of their gender and some couldn't even get coverage on 
+the individual market. For women of childbearing age, the 
+discrimination was particularly blatant, and the vast majority 
+of plans excluded maternity coverage of any kind. And I 
+appreciate my colleague from Michigan and her inquiry around 
+maternal care.
+    Dr. Gupta, I am wondering if you could just explain to us 
+what it was like for women to get health insurance coverage 
+before ACA and how many plans covered maternity coverage in the 
+individual market and what improvements have women and their 
+families seen since ACA?
+    Dr. Gupta. Certainly, thank you for that. We know that 
+prior to the ACA, only 11 States mandated the coverage of 
+maternity care. Only 13 percent of the individual health market 
+actually covered maternity care. We know that at that time 
+obviously the gender of being female was a preexisting 
+condition in effect. We also know that 47 percent of people who 
+tried, adults who try to get coverage with preexisting 
+condition were either denied, charged more or were precluded 
+from at least one condition. That's from the Commonwealth Fund 
+Study. So, we know that this was a big problem.
+    Since then, March of Dimes did a study in 2015 and found 
+that between 2013 and 2015 the uninsured coverage for 
+childbearing age women went down from about 20 million to 13 
+million, I'm sorry 20 percent to 13 percent. That means that 
+another 5 and a half million of childbearing age gained 
+coverage. Not only that, the unmet needs actually went down by 
+10 percent points of those women. So clearly that has been a 
+big gain.
+    I would say when we talk about preexisting conditions, 
+health inequities are the first cause of preexisting 
+conditions. And when I talk about maternal mortality, a black 
+woman in this country is more likely to die--three to four 
+times more than a white woman. So, we still have for healthcare 
+institutions across and healthcare systems across the country, 
+today, race is a preexisting condition and we need to continue 
+to work on that and I think that is a critical piece that I 
+must bring up as well.
+    Ms. Trahan. Thank you. Thank you, Dr. Gupta. and, Ms. 
+Corlette, to borrow a phrase that is going around a lot, the 
+dignity of work is something that means a lot of me. And I am 
+the daughter of a union ironworker. My mom worked multiple 
+part-time jobs while raising my sisters and me. I am constantly 
+thinking about how are we going to support work and labor as it 
+transitions to the future and what the future of work actually 
+looks like?
+    We talk a lot about our economy and adding more jobs but 
+those don't always translate into employer-sponsored plans. So, 
+a recent Department of Labor survey found that 10 percent of 
+the workforce are categorized as either independent contractors 
+or self-employed. This represents a growing segment of the 
+workforce, in fact more than half of all ACA marketplace 
+enrollees are small business owners, self-employed individuals 
+or small business employees.
+    I am wondering if you have looked at any additional 
+research on the impact of the Texas lawsuit or even just the 70 
+plus ACA repeal attempts would have on the future of work? And 
+also, if we have time, can you discuss the impact of removing 
+preexisting condition protections for gig economy workers, 
+independent contractors specifically?
+    Ms. Corlette. Sure. Thank you. It's a great question. So, 
+for folks who do have job-based coverage, there are a couple of 
+things to be concerned about if the Texas court decision 
+stands. One of course is that people could lose--with chronic 
+or high-cost health needs could lose some of the protections 
+that Mr. Riedy has spoken so eloquently about. The other issue 
+of course is job lock, and this is a phenomenon that was well-
+documented before the ACA where folks sort of hung onto their 
+jobs and their job-based coverage because of the uncertainty of 
+the individual market. And they may have had a great business 
+idea or been a terrific entrepreneur but did not pursue that 
+because of their need to maintain job-based coverage.
+    Ms. Trahan. Great. Thank you. Thank you, Mr. Chairman, I 
+yield back.
+    Chairman Scott. Thank you. The gentlelady from North 
+Carolina, Dr. Adams.
+    Ms. Adams. Thank you, Mr. Chairman and thank you all very 
+much for your testimony and for sitting out with us, we 
+appreciate that very much. Mr. Riedy, thank you so much for 
+sharing your story.
+    Mr. Chairman, I would like to enter into the record first 
+from the--some organizations that have commented regarding the 
+preexisting conditions and the GOP plan. First, the American 
+Cancer Society Action Network who says that these protections 
+are hollow if patients and survivors can't afford insurance. 
+From the American HealthCare Association, the plan would do 
+just the opposite and not serve the health needs of all 
+Americans. And then they also say that the greatest achievement 
+of the ACA is protecting those with preexisting conditions. The 
+National Disabilities Rights Network says that GOP plan permits 
+discrimination against people with disabilities in the 
+insurance market for preexisting conditions and I would like to 
+enter this into the record, Mr. Chairman.
+    Thank you. Let me just say as I have listened to you, all 
+of you I thought about Dr. Martin Luther King, Jr., who talked 
+about healthcare and inequities and who said that ``of all the 
+forms of inequality, injustice in healthcare is the most 
+shocking and most inhumane'' and indeed it is. I do want to 
+just mention the impact that ACA has had on communities of 
+color, in particular the protections of those with preexisting 
+conditions.
+    I am a diabetic and that's an illness that was considered, 
+is considered a preexisting condition. It is very prevalent in 
+my family. I had a sister who suffered with sickle cell, from 
+sickle cell anemia, a preexisting condition who passed away 
+before she was 27. African-Americans are 80 percent more likely 
+than Whites to have been diagnosed with diabetes. About 365 
+African Americans suffer with sickle cell anemia. Latin--Latino 
+Americans have the highest rates of cervical cancer and Asian 
+women are at the highest risk of osteoporosis.
+    Simply put, the Affordable Care Act has saved lives and has 
+provided healthcare to millions who previously thought 
+affordable treatment was just a dream. Folks like me, families 
+that grew up who didn't have healthcare at all, no health 
+insurance, having to go to the emergency room to get our care.
+    Dr. Gupta just one or two questions. For those with 
+preexisting conditions or minority communities, how many more 
+people with chronic illnesses have been covered and have those 
+who suffer from chronic ailments seen improvements in their 
+conditions as a result?
+    Dr. Gupta. I can tell you that there has been a great 
+progress made in that and I will certainly get you the exact 
+numbers but the great progress made in that and the ability to 
+again, level the playing field in our pursuit to level the 
+playing field to get people to be covered. And we, I say that 
+because these conditions are a part and representative of your 
+socioeconomic condition. They're representative oftentimes of 
+the culture we come from and lots of other things. What we call 
+social determinants of health, education level. So being able 
+to provide the basic healthcare that has happened as part of 
+the health ACA has allowed our communities of color actually to 
+be--have one less thing to worry about. So that's one of the 
+things.
+    The other piece I will go back to, you know, as March of 
+Dimes we are focused on the health of moms and babies and 
+nowhere is it more evident, the disparities and health 
+inequities when we look at moms and babies. As I mentioned, 
+three times to four times more likely to die if you're a black 
+woman. Same way prematurely. Twice as likely to die if you're a 
+premature child who is African-American. So, these are the type 
+of things that we are fighting for and I think it is very 
+important to understand that this will take us many steps 
+backwards and we need to be moving forwards.
+    Ms. Adams. Great, thank you very much. Wanted to just, you 
+know, note that since the President assumed office we have seen 
+a constant attack against ACA. So much so that we are seeing a 
+reversal in quite a bit of the progress that we have made and 
+just wanted you to just briefly comment on how this reversal in 
+progress has impacted people of color specifically.
+    Dr. Gupta. I think what we are--once again will end up 
+happening, we will have individuals who will be dependent again 
+on emergency care and urgent care as a result of which 
+screenings will not happen, preventive visits will not happen. 
+As a result of which we will not have--be able to catch those 
+diseases early. It will be delayed, it will be more expensive 
+and it will cost more lives. As Ms. Corlette eloquently pointed 
+out a couple of times that we have clear data for ACA that when 
+people were uninsured there were about, over 20,000, 22,000 
+people we know in this country were dying every year because of 
+the lack of insurance per say. We will go back to that.
+    Ms. Adams. Thank you very much. I yield back, Mr. Chairman.
+    Chairman Scott. Thank you. Gentlelady from Minnesota, Ms. 
+Omar.
+    Ms. Omar. Thank you, Chair. Thank you all for being here. 
+Thank you for having this really important, critical 
+conversation but sometimes frustrating conversation. And I say 
+frustrating because of two reasons. One, to see the disconnect 
+between what some of my colleagues would say in committee about 
+healthcare and what their votes say about where their 
+priorities and their values are, seems very, very frustrating 
+for me.
+    And the second is for us to have conversations about policy 
+that have real impact on humans but to not really think about 
+the humans that we are talking about in this discussion. So I 
+am one that sees healthcare as a human right and I want to take 
+some time for us to humanize this particular conversation 
+because, you know, there are--there are people who will talk 
+about the costs, they will talk about, you know, what struggles 
+corporations will have or companies will have or a small 
+businesses or all of these kind of things. But oftentimes we 
+don't talk about the kind of stresses and the traumas that 
+people like yourself, Mr. Riedy, have lived with as you not 
+only deal with getting the diagnosis and figuring out how you 
+go on with life, with the condition that could be a hindrance 
+to your day-to-day life or could, you know, maybe end your 
+life.
+    So, what I wanted to do was maybe have you walk us through 
+what it must have been like to go through the process to 
+receive those letters from insurance companies before the 
+passage of the ACA.
+    Mr. Riedy. Well, thank you for the question. And this was, 
+back in 2007 and to know--have spent 7 days in the hospital and 
+to know that--what the cost of that care is and then after that 
+I also spent 14 days at home on IV antibiotics at home which 
+required a home healthcare nurse who came every couple days to 
+draw blood and just check on the dressing and the IV and 
+everything.
+    But to receive information that describes the cost of your 
+care A, is a shock to see how much it actually costs. But then 
+to see how that is then compiled toward a limit of what an 
+insurance company or someone is willing to pay is worrisome and 
+scary because you know that without that care or access to--
+without access to the coverage that will give you that care, it 
+will be much harder for you to stand a chance. And not just for 
+me but for others with CF or with other preexisting conditions 
+that faced those same struggles.
+    It takes a toll not only on us as people but also on our 
+families and those that love us because it, it's not just me 
+that would sit and think about it. It's my wife, right. And my 
+kids are--at the time at 2007 they weren't alive yet. But now 
+if that was to happen again, that puts an unnecessary burden on 
+them as well.
+    And having the knowledge that there are no caps and not 
+having to receive those letters anymore allows us to focus on 
+our family and to continue to seek the best coverage and care 
+that allows - and medicines that are highly specialized to 
+target what the issues are with my disease and to help prolong 
+my life so that like I mentioned earlier I can see my children 
+grow up and go to college and not fear that I may have to make 
+a decision one day so that they can continue to grow and me not 
+have to have that coverage.
+    Ms. Omar. Thank you. I see an immorality in the way that we 
+are creating policy without taking in the actual impact that it 
+has on the people's lives. We take a constitutional oath to 
+protect the safety and the wellbeing of the people that we 
+serve. So, thank you so much for sharing your story and I will 
+tell you that you have people here in Congress who will make 
+sure to constantly center that. So, thank you. I yield back.
+    Chairman Scott. Thank you. And I recognize myself now for 
+questions and the vote has been called so these are going to be 
+some quick questions. Appreciate some quick answers.
+    Ms. Corlette, you mentioned the New York situation where 
+they covered--they guaranteed issue notwithstanding the 
+preexisting condition and when the Affordable Care Act came in, 
+is it true that the cost for individual insurance dropped more 
+than 50 percent?
+    Ms. Corlette. Yes. It's true.
+    Chairman Scott. The effect of the Texas case, is it true 
+that if the case is upheld there will be no protection, 
+national protection against--for preexisting conditions?
+    Ms. Corlette. The ACA protections will be stuck down, yes.
+    Chairman Scott. Now we have heard that if it is 
+unconstitutional the court would provide some transition time. 
+Is there any--you are a lawyer, is there any guarantee that 
+there would be a transition time if they call it 
+unconstitutional?
+    Ms. Corlette. There is no such guarantee.
+    Chairman Scott. Now the repeal and replace, are you 
+familiar with the American HealthCare Act that passed the 
+House?
+    Ms. Corlette. I do remember it, yes.
+    Chairman Scott. OK. Is it true that if that had passed 23 
+million fewer people would have insurance, costs would go up 
+about 20 percent the first year, and there would be fewer 
+consumer protections?
+    Ms. Corlette. I don't remember the exact numbers but that 
+sounds like what I remember, yes.
+    Chairman Scott. And we have heard a citation in the bill 
+that protects people with preexisting conditions but what 
+wasn't read was an ability for States to waive that protection, 
+so if you are unlucky enough to be in the wrong State that you 
+could have no protection against preexisting conditions. Is 
+that right?
+    Ms. Corlette. Right.
+    Chairman Scott. 11 million people who have, who got 
+coverage through Medicaid expansion would they lose their 
+coverage?
+    Ms. Corlette. Yes.
+    Chairman Scott. And the 10 essential benefits including 
+prescription drugs, mental health, maternal and newborn care, 
+preventive care, would those evaporate if the bill, if the 
+law--if the ruling is upheld?
+    Ms. Corlette. Yes.
+    Chairman Scott. And we have heard about essential benefits 
+and Dr. Gupta has been very articulate on that. If maternal 
+and--maternity care were optional, who would buy it?
+    Ms. Corlette. Well, who would offer it is the first 
+question? Insurance companies generally would not offer it. And 
+if they did, it would typically be as what is called a rider 
+and the cost would be exorbitant.
+    Chairman Scott. Because the only people that would buy it 
+would be those who expect to have a baby in the next year.
+    Ms. Corlette. Right.
+    Chairman Scott. And the cost would be not insurance but 
+essentially prepaid maternity care.
+    Ms. Corlette. That's exactly right.
+    Chairman Scott. And that is why it would be unaffordable. 
+Now on the association plans, as I understand it you can get a 
+healthy group, young healthy men and who would pay less. The 
+arithmetic therefore says everybody left behind would pay more. 
+Is that right?
+    Ms. Corlette. That's correct.
+    Chairman Scott. Now the navigators which you mentioned are 
+community-based organizations that help consumers sign up for 
+coverage. Language recently published by the Centers of 
+Medicaid and Medicare--Medicare and Medicaid--states that 
+priority will be granted and funding organizations that promote 
+``coverage options in addition to marketplace plans such as 
+association health plans, short term limited duration 
+insurance.'' Is that consistent with the original purpose of 
+the navigators?
+    Ms. Corlette. No. Navigators are supposed to help people 
+enroll in marketplace coverage.
+    Chairman Scott. The--you know what has happened to the rate 
+of bankruptcy because of medical bills as a result of the 
+Affordable Care Act?
+    Ms. Corlette. I don't have that data at my fingertips, but 
+it has gone down.
+    Chairman Scott. And can you say another word about job lock 
+and why the Affordable Care Act gives people, particularly 
+entrepreneurs the opportunity to switch jobs?
+    Ms. Corlette. Sure. So, for people who have a preexisting 
+condition themselves or somebody in their family who has a 
+health condition, economists documented this phenomenon called 
+job lock which prior to the ACA led a lot of people to stay 
+with job-based coverage even if that job was not optimally 
+deploying their skills or talents.
+    Since the ACA if you are an entrepreneur or you want to 
+start your own business, you can do so without worrying about 
+coverage for your preexisting condition and if you are at least 
+initially not earning much income, you can qualify for 
+subsidies or even Medicaid.
+    Chairman Scott. Thank you. I would like to thank our 
+witnesses for their testimony. I now recognize the 
+distinguished ranking member for closing comments.
+    Mrs. Foxx. Thank you, Mr. Chairman, and I want to thank our 
+witnesses also for being here. I particularly appreciate the 
+opportunity that this hearing has given for Republicans to set 
+the record straight on our position on preexisting conditions.
+    I believe most every member spoke to it but we know that 
+every member believes in coverage for preexisting conditions 
+both those of us who were here to vote for the replace bill and 
+the other, and the numerous replacement bills that we have 
+offered.
+    There is so much to say to correct the record here that 
+there is not enough time. Perhaps I will submit some things for 
+the record but I want to point out that if the court rules the 
+ACA illegal, it would not repeal ERISA. It would not repeal 
+HIPAA. There are safeguards in both of those pieces of 
+legislation for preexisting conditions. Some of our witnesses 
+have been extremely careful in how they have answered those 
+questions and I appreciate that because they have been very 
+careful not to completely mislead people about that situation. 
+Contrary to what has been said about the work of Republicans, 
+we have made provisions in all our proposals and past 
+legislation that protects people with preexisting conditions. 
+And I think it is important we continue to say that.
+    The Affordable Care Act was built on lies. If you like your 
+insurance, you can keep your insurance. If you like your 
+doctor, you can keep your doctor. All of those things were said 
+and they--or costs will be lowered. Those were not true. The 
+ACA ordered people into a one-size-fits-all plan which 
+increased costs dramatically and we know that. What America--
+what Republicans have done is to offer Americans freedom and 
+choice. And what we should have been talking about today was 
+what the ACA has done to raise the costs of healthcare and make 
+it less affordable and less accessible. And with that again I 
+thank the witnesses and I yield back.
+    Chairman Scott. Thank you. Again, I want to thank the 
+witnesses and members for their participation. What we have 
+heard I think is a very valuable. The hearing has allowed us to 
+take stock of where we are, to examine the attacks on 
+preexisting conditions through unnecessary litigation, harmful 
+rules that have a negative impact on those with preexisting 
+conditions and I think we should try to improve and protect the 
+healthcare that we have now and not jeopardize it.
+    It is obvious that even the employer-based coverage with 
+the protection for preexisting condition, those with employer-
+based coverage if we don't have the individuals covered, we 
+will have uncompensated cost-shifting so they will be paying 
+more if these, all off these other protections are repealed. If 
+there is no further business to come before the committee, the 
+hearing is now adjourned.
+    [Additional submissions by Ms. Adams follow:)
+    [GRAPHICS NOT AVAILABLE IN TIFF FORMAT]
+
+
+    [Whereupon, at 1:49 p.m., the committee was adjourned.]
+
+                                 [all]
+