text: 70,0,1271501734045761537,864540407383937024,Dr. Estelle Smith 🌟 (she/her),"The new @CaringBridge Planner is a great way to coordinate support during health crises & our new @acmtochi paper explores design implications for features like this. Pre-print here: <LINK> Results spoilers below! Thread 1/6 <LINK> Results Spoiler #1: Friends and family of patients don't always align with patients/caregivers on what types of instrumental support they are interested in providing. However, tools like the Planner can possibly help to re-align these user groups. 2/6 Results Spoiler #2: Emotional and instrumental support are important to CaringBridge users. However, we found that *prayer support* is the most important support category to these users. This suggests a significantly understudied design opportunity in online communities. 3/6 Results Spoiler #3: People generally have more trust in their closest social connections to provide instrumental support than more distant acquaintances or businesses. (No surprise there!) 4/6 Results Spoiler #4: People generally trust traditional businesses more than sharing economy apps to help out during health crises. But in some cases, their trust in app-based businesses like @lyft @uber or @gofundme is greater than their trust in taxi services or banks. 5/6 I'm looking forward to tweeting out a full blog post once the paper has been officially published, but here's a first peek at the pre-print! :) <LINK> 👀 Thanks for reading! 6/6 @andrewmiller @CaringBridge @acmtochi That's great to hear @andrewmiller. Will keep an eye out for your upcoming work! Support coordination is challenging, but there are important opportunities for tech to make it a little easier. It's certainly a big focus at CaringBridge right now, as the new Planner shows.",https://arxiv.org/abs/2005.11884,"Online Health Communities (OHCs) are known to provide substantial emotional and informational support to patients and family caregivers facing life-threatening diagnoses like cancer and other illnesses, injuries, or chronic conditions. Yet little work explores how OHCs facilitate other vital forms of social support, especially instrumental support. We partner with CaringBridge.org---a prominent OHC for journaling about health crises---to complete a two-phase study focused on instrumental support. Phase one involves a content analysis of 641 CaringBridge updates. Phase two is a survey of 991 CaringBridge users. Results show that patients and family caregivers diverge from their support networks in their preferences for specific instrumental support types. Furthermore, ``prayer support'' emerged as the most prominent support category across both phases. We discuss design implications to accommodate divergent preferences and to expand the instrumental support network. We also discuss the need for future work to empower family caregivers and to support spirituality. ","""I Cannot Do All of This Alone"": Exploring Instrumental and Prayer