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(f) Maximum amount
The Secretary may not make a grant to any school under this section in an amount that exceeds— (1) $50,000 for any fiscal year; or (2) a total of $100,000. (g) Application
(1) In general
To seek a grant under this section, a school of medicine shall submit an application at such time, in such manner, and containing such information as the Secretary may require.
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(2) Contents
At a minimum, an application submitted under paragraph (1) shall include the following: (A) A description of the following: (i) The expertise in nutrition of the school’s course directors and faculty members. (ii) The objectives of the program to be carried out with the grant. (iii) The projected impact of the program to be carried out with the grant. (iv) Any barriers to development or implementation of innovative curricula on nutrition at the school of medicine. (v) Strategies for overcoming each such barrier.
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(vi) The school’s ability to sustain innovative curricula adopted and implemented with the grant beyond the term of the grant. (B) A budget proposal for expending funds under the grant. (C) Letters of support for the application from the dean, and the associate dean for education, of the school of medicine. (h) Report
Not later than the end of the 2-year period described in subsection (e) for a grant, the school of medicine receiving the grant shall submit a report to the Secretary.
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Such report shall include a description of the innovative curricula on nutrition developed by the school and the results achieved through the use of such curricula. (i) Dissemination
Not later than 1 year after the end of the 2-year period described in subsection (e) for all grants awarded under this section, the Secretary shall— (1) prepare a consolidated report on the innovative curricula on nutrition developed by grantees under this section and the results achieved through the use of such curricula; and (2) disseminate such report to schools of medicine.
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(j) Definition
In this section, the term accredited means accredited by the Liaison Committee on Medical Education. (k) Authorization of appropriations
(1) In general
To carry out this section, there is authorized to be appropriated $4,500,000 for the period of fiscal years 2005 through 2006. (2) Administration
Of the amounts authorized to be appropriated under this section, the Secretary may use not more than $500,000 for costs associated with administration of this section.. 775.
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Grants for medical school nutrition programs
(a) Authorization
The Secretary may award grants to accredited schools of medicine to integrate innovative curricula on nutrition into medical education. (b) Focus
The Secretary shall ensure that innovative curricula on nutrition developed and implemented under this section focus on preventive health measures, including the following: (1) Education on the causes, treatment, and prevention of obesity. (2) Office education and counseling to ensure appropriate diet for mostly healthy people. (3) Prevention and treatment of common nutritional deficiencies. (4) Appropriate and inappropriate use of herbs and supplements.
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(5) Office recognition and treatment of common eating disorders. (6) Identification of special dietary needs, eating disorders, and appropriate routes of referral for medical nutrition therapy.
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(c) Use of funds
The Secretary may not make a grant under subsection (a) unless the school of medicine involved agrees to expend the grant— (1) to develop innovative curricula on nutrition in accordance with subsection (d); (2) to integrate such curricula, to the maximum extent possible, into each year of a student’s medical education at the school, including with respect to preclinical and clinical training; and (3) to evaluate the results achieved with such curricula.
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(d) Multidisciplinary planning committee
(1) Establishment
A school of medicine receiving a grant under this section shall establish a multidisciplinary planning committee to develop the innovative curricula on nutrition to be integrated into the school’s medical education.
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(2) Membership
The members of a multidisciplinary planning committee under this subsection— (A) shall include individuals who will be responsible for implementing the proposed curricular changes within the fields and disciplines of the school’s medical education program; and (B) should include representatives of fields and disciplines outside of the school’s medical education program, such as nursing, nutrition, and public health. (e) Duration
Each grant under this section shall be for a period of 2 years.
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(f) Maximum amount
The Secretary may not make a grant to any school under this section in an amount that exceeds— (1) $50,000 for any fiscal year; or (2) a total of $100,000. (g) Application
(1) In general
To seek a grant under this section, a school of medicine shall submit an application at such time, in such manner, and containing such information as the Secretary may require.
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(2) Contents
At a minimum, an application submitted under paragraph (1) shall include the following: (A) A description of the following: (i) The expertise in nutrition of the school’s course directors and faculty members. (ii) The objectives of the program to be carried out with the grant. (iii) The projected impact of the program to be carried out with the grant. (iv) Any barriers to development or implementation of innovative curricula on nutrition at the school of medicine. (v) Strategies for overcoming each such barrier.
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(vi) The school’s ability to sustain innovative curricula adopted and implemented with the grant beyond the term of the grant. (B) A budget proposal for expending funds under the grant. (C) Letters of support for the application from the dean, and the associate dean for education, of the school of medicine. (h) Report
Not later than the end of the 2-year period described in subsection (e) for a grant, the school of medicine receiving the grant shall submit a report to the Secretary.
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Such report shall include a description of the innovative curricula on nutrition developed by the school and the results achieved through the use of such curricula. (i) Dissemination
Not later than 1 year after the end of the 2-year period described in subsection (e) for all grants awarded under this section, the Secretary shall— (1) prepare a consolidated report on the innovative curricula on nutrition developed by grantees under this section and the results achieved through the use of such curricula; and (2) disseminate such report to schools of medicine.
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(j) Definition
In this section, the term accredited means accredited by the Liaison Committee on Medical Education. (k) Authorization of appropriations
(1) In general
To carry out this section, there is authorized to be appropriated $4,500,000 for the period of fiscal years 2005 through 2006. (2) Administration
Of the amounts authorized to be appropriated under this section, the Secretary may use not more than $500,000 for costs associated with administration of this section.
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1. Short title
This Act may be cited as the Mailing Support to Troops Act of 2004. 2. Free mailing privileges
Chapter 34 of title 39, United States Code, is amended by adding at the end the following: 3407.
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Free postage for personal correspondence and parcels sent by family members to members of the Armed Forces of the United States serving in Iraq or Afghanistan
(a) In general
Any mail matter to which this section applies may be mailed free of postage if such mail matter— (1) is addressed to an individual who— (A) is a member of the Armed Forces of the United States on active duty (as defined in section 101 of title 10); and (B) (i) is serving in Iraq or Afghanistan;
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or (ii) is hospitalized at a facility under the jurisdiction of the Armed Forces of the United States as a result of a disease or injury incurred as a result of service in Iraq or Afghanistan; and (2) is sent— (A) by a family member (as defined in section 411h of title 37) of the individual referred to in paragraph (1); and (B) from within an area served by a United States post office.
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(b) Applicability
The free mailing privilege made available by this section— (1) shall apply with respect to— (A) letter mail or sound- or video-recorded communications having the character of personal correspondence; and (B) parcels not exceeding the maximum size allowed by the Postal Service and the Department of Defense for parcels sent to members of the Armed Forces serving in Iraq or Afghanistan; and (2) shall not apply with respect to mail matter that contains any advertising.
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(c) Rate of postage
Any mail matter mailed under this section shall be mailed at the equivalent rate of postage which assures that such mail matter will be sent by the most economical means practicable. (d) Marking
All mail matter mailed under this section shall bear, in the upper right-hand corner of the address area, the words Free Matter for Member of the Armed Forces of the United States or words to that effect specified by the Postal Service.
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(e) Regulations
Not later than 30 days after the date of the enactment of this section, the Postal Service shall, in consultation with the Secretary of Defense, prescribe any regulations necessary to carry out this section. (f) Duration
The free mailing privilege made available by this section shall apply with respect to mail matter sent during the 1-year period beginning on the date on which the regulations under subsection (e) take effect.. 3407.
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Free postage for personal correspondence and parcels sent by family members to members of the Armed Forces of the United States serving in Iraq or Afghanistan
(a) In general
Any mail matter to which this section applies may be mailed free of postage if such mail matter— (1) is addressed to an individual who— (A) is a member of the Armed Forces of the United States on active duty (as defined in section 101 of title 10); and (B) (i) is serving in Iraq or Afghanistan;
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or (ii) is hospitalized at a facility under the jurisdiction of the Armed Forces of the United States as a result of a disease or injury incurred as a result of service in Iraq or Afghanistan; and (2) is sent— (A) by a family member (as defined in section 411h of title 37) of the individual referred to in paragraph (1); and (B) from within an area served by a United States post office.
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(b) Applicability
The free mailing privilege made available by this section— (1) shall apply with respect to— (A) letter mail or sound- or video-recorded communications having the character of personal correspondence; and (B) parcels not exceeding the maximum size allowed by the Postal Service and the Department of Defense for parcels sent to members of the Armed Forces serving in Iraq or Afghanistan; and (2) shall not apply with respect to mail matter that contains any advertising.
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(c) Rate of postage
Any mail matter mailed under this section shall be mailed at the equivalent rate of postage which assures that such mail matter will be sent by the most economical means practicable. (d) Marking
All mail matter mailed under this section shall bear, in the upper right-hand corner of the address area, the words Free Matter for Member of the Armed Forces of the United States or words to that effect specified by the Postal Service.
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(e) Regulations
Not later than 30 days after the date of the enactment of this section, the Postal Service shall, in consultation with the Secretary of Defense, prescribe any regulations necessary to carry out this section. (f) Duration
The free mailing privilege made available by this section shall apply with respect to mail matter sent during the 1-year period beginning on the date on which the regulations under subsection (e) take effect. 3.
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Funding
(a) In general
Sections 2401(c) and 3627 of title 39, United States Code, are amended by striking 3406 and inserting 3407. (b) Air transportation
(1) In general
Section 2401 of title 39, United States Code, is amended by redesignating subsections (d) through (g) as subsections (e) through (h), respectively,
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and by inserting after subsection (c) the following: (d) There are authorized to be appropriated to the Postal Service each year a sum determined by the Postal Service to be equal to the expenses incurred by the Postal Service in providing air transportation for mail sent to members of the Armed Forces of the United States free of postage under section 3407, not including the expense of air transportation that is provided by the Postal Service at the same postage rate or charge for mail which is not addressed to an Armed Forces post office. (2) Amendment to prevent duplicative funding
Section 3401(e) of title 39,
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United States Code, is amended— (A) by striking transportation or (2) and inserting transportation, (2) ; and (B) by striking office. and inserting office, or (3) for which amounts are authorized to be appropriated to the Postal Service under section 2401(d).. 4. Technical and conforming amendments
(a) Annual budget
Section 2009 of title 39, United States Code, is amended in the next to last sentence by striking (b) and (c) and inserting (b), (c), and (d).
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(b) Comprehensive plan references
Sections 2803(a) and 2804(a) of title 39, United States Code, are amended by striking 2401(g) and inserting 2401(f). (c) Chapter analysis
The analysis for chapter 34 of title 39, United States Code, is amended by adding at the end the following: 3407. Free postage for personal correspondence and parcels sent by family members to members of the Armed Forces of the United States serving in Iraq or Afghanistan.
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1. Binding arbitration for Gila River Indian Community Reservation contracts
(a) Amendments
Subsection (f) of the first section of the Act entitled An Act to authorize the leasing of restricted Indian lands for public, religious, educational, recreational, residential, business, and other purposes requiring the grant of long-term leases , approved August 9, 1955, (69 Stat. 539; 25 U.S.C.
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415(f)) is amended— (1) in the first sentence— (A) by striking Any lease and all that follows through affecting land and inserting Any contract, including a lease, affecting land ; and (B) by striking such lease or contract and inserting such contract ; and (2) in the second sentence, by striking Such leases or contracts entered into pursuant to such Acts and inserting Such contracts.
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(b) Effective date
The amendments made by this section shall take effect as if included in An Act to amend the Act entitled An Act to authorize the leasing of restricted Indian lands for public, religious, educational, recreational, residential, business, and other purposes requiring the grant of long-term leases , approved August 9, 1955, to provide for binding arbitration clauses in leases and contracts related to reservation lands of the Gila River Indian Community , approved January 23, 2002 (Public Law 107–159).
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1. Short title; Findings
(a) Short title
This Act may be cited as the Bennett Freeze Rehabilitation Act of 2004. (b) Findings
The Congress finds that— (1) the Navajo Nation is the largest Indian reservation in the United States; (2) the Bennett Freeze, named after former Bureau of Indian Affairs Commissioner Robert Bennett, was administratively issued in 1966 to restrict the Navajo tribe from constructing and repairing their dwellings on land that was subject to a land dispute with the Hopi Tribe; (3) the Bennett Freeze has affected 1,500,
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000 acres of land, approximately 9 percent of the total acreage of the Navajo Nation, covering 10 Navajo Nation chapters and affecting nearly 8,000 people; (4) only 3 percent of the families affected by the Bennett Freeze have electricity and only 10 percent have running water; (5) since 1966, the population has increased by approximately 65 percent in the Bennett Freeze area, forcing several generations of families to live together in dwellings that have been declared unfit for human habitation; (6) members of the medical community confirm that overcrowding and the absence of running water, refrigeration,
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and adequate sewage disposal adversely impact the mental and physical health of Navajos residing in the Bennett Freeze area; (7) the Bennett Freeze has halted essential construction, including power line extensions, waterline extensions, road improvements, and community facilities improvements; (8) when the Bennett Freeze was temporarily lifted in 1992, an ambitious $20,000,000 construction plan for new dwellings was proposed that would have improved living conditions and increased the economic viability of the Bennett Freeze area, however, the plan did not become a reality because a Federal judge reinstated the freeze;
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(9) the Navajo Nation and the Hopi Tribe have since been involved in settlement negotiations to lift the Bennett Freeze; and (10) the Bennett Freeze is a gross violation of treaty obligations to the Navajo Nation. 2. Authorization of use of Navajo-Hopi Settlement Act
Section 12 of Public Law 93–531 ( 16 U.S.C.
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640d–11 ) is amended— (1) by redesignating subsection (f) as subsection (g); and (2) by inserting after subsection (e), the following new subsection: (f) The Commissioner may carry out a rehabilitation program to redress the effects of Federal development restrictions in the western portion of the Navajo Reservation. This program shall be limited to housing construction and renovation, infrastructure improvements, and economic development initiatives. There are authorized to be appropriated such sums as are necessary to carry out the program under this subsection.. 3.
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Repeal of the Bennett Freeze
Upon the approval by the Secretary of the Interior of an agreement between the Navajo Nation and the Hopi Tribe settling the land dispute over the lands subject to the Bennett Freeze, section 10(f) of Public Law 93–531 ( 25 U.S.C. 640d–9(f) ) is repealed.
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1. Vaughn Gross Post Office Building
(a) Designation
The facility of the United States Postal Service located at 8135 Forest Lane in Dallas, Texas, shall be known and designated as the Vaughn Gross Post Office Building. (b) References
Any reference in a law, map, regulation, document, paper, or other record of the United States to the facility referred to in subsection (a) shall be deemed to be a reference to the Vaughn Gross Post Office Building.
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1. Requirement for videotape recordings of interrogations and other pertinent interactions among detainees or prisoners in the custody of or under the effective control of the United States and members of the armed forces of the United States, intelligence operatives of the United States, and contractors of the United States
(a) In general
In accordance with the Geneva Conventions of 1949, the International Covenant on Civil and Political Rights, the Convention Against Torture and Other Cruel, Inhuman, or Degrading Treatment or Punishment, and prohibitions against any cruel, unusual, and inhumane treatment or punishment under the Fifth, Eighth,
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and Fourteenth Amendments to the Constitution of the United States, the President shall take such actions as are necessary to ensure that any interrogations and other pertinent interactions between an individual who is a detainee or prisoner in the custody or under the effective control of the armed forces of the United States pursuant to an interrogation, or other pertinent interaction, for the purpose of gathering intelligence and a member of the armed forces of the United States, an intelligence operative of the United States, or a contractor of the United States, is videotaped.
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(b) Classification of information
The President shall provide for the appropriate classification, to protect United States national security and the privacy of detainees or prisoners held by the United States, of videotapes referred to in subsection (a). Videotapes shall be made available, under seal if appropriate, to both prosecution and defense to the extent they are material to any military or civilian criminal proceeding. 2.
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Unfettered access prisoners and detainees of the United States to ensure independent monitoring and transparent investigations
The President shall take such actions as are necessary to ensure that representatives of the following organizations are immediately granted unfettered access to detainees or prisoners in the custody or under the effective control of the armed forces of the United States: (1) The International Federation of the International Committee of the Red Cross and the Red Crescent. (2) The United Nations High Commissioner for Human Rights. (3) The United Nations Special Rapporteur on Torture. 3.
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Guidelines for videotape recordings
(a) Development of guidelines
The Judge Advocate General (as defined in section 801(1) of title 10, United States Code, (Article I of the Uniform Code of Military Justice)) shall develop guidelines designed to ensure that the videotaping required under section 1 is sufficiently expansive to prevent any abuse of detainees and prisoners referred to in paragraph (1) and violations of law binding on the United States, including treaties specified in section 1(a).
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(b) 30-day deadline for submittal to Congress
Not later than 30 days after the date of the enactment of this Act, the Judge Advocate General shall submit to Congress a report containing the guidelines developed under subsection (a).
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1. Short title
This Act may be cited as the Newborn Screening Saves Lives Act of 2004. 2. Findings
Congress finds the following: (1) Currently, it is possible to test for at least 30 disorders through newborn screening. (2) There is a lack of uniform newborn screening throughout the United States. While a newborn with a debilitating condition may receive screening, early detection, and treatment in one location, in another location the condition may go undetected and result in catastrophic consequences.
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(3) Each year more than 4,000,000 babies are screened to detect conditions that may threaten their long-term health. (4) There are more than 2,000 babies born every year in the United States with detectable and treatable disorders that go unscreened through newborn screening. 3. Amendment to Public Health Service Act
Part Q of title III of the Public Health Service Act ( 42 U.S.C. 280h et seq. ) is amended by adding at the end the following: 399AA.
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Newborn screening
(a) Authorization of grant programs
(1) Grants to assist health care professionals
From funds appropriated under subsection (h), the Secretary, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (referred to in this section as the Associate Administrator ) and in consultation with the Advisory Committee on Heritable Disorders in Newborns and Children (referred to in this section as the Advisory Committee ), shall award grants to eligible entities to enable such entities to assist in providing health care professionals and State health department laboratory personnel with— (A) education in newborn screening;
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and (B) training in— (i) relevant and new technologies in newborn screening; and (ii) congenital, genetic, and metabolic disorders. (2) Grants to assist families
From funds appropriated under subsection (h), the Secretary, acting through the Associate Administrator and in consultation with the Advisory Committee, shall award grants to eligible entities to enable such entities to develop and deliver educational programs about newborn screening to parents, families, and patient advocacy and support groups.
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(3) Grants for newborn screening followup
From funds appropriated under subsection (h), the Secretary, acting through the Associate Administrator and in consultation with the Advisory Committee, shall award grants to eligible entities to enable such entities to establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders. (b) Application
An eligible entity that desires to receive a grant under this section shall submit an application to the Secretary at such time, in such manner, and accompanied by such information as the Secretary may require.
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(c) Selection of grant recipients
(1) In general
Not later than 120 days after receiving an application under subsection (b), the Secretary, after considering the approval factors under paragraph (2), shall determine whether to award the eligible entity a grant under this section.
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(2) Approval factors
(A) Requirements for approval
An application submitted under subsection (b) may not be approved by the Secretary unless the application contains assurances that the eligible entity— (i) will use grant funds only for the purposes specified in the approved application and in accordance with the requirements of this section; and (ii) will establish such fiscal control and fund accounting procedures as may be necessary to assure proper disbursement and accounting of Federal funds paid to the eligible entity under the grant.
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(B) Existing programs
Prior to awarding a grant under this section, the Secretary shall— (i) conduct an assessment of existing educational resources and training programs and coordinated systems of followup care with respect to newborn screening; and (ii) take all necessary steps to minimize the duplication of the resources and programs described in clause (i). (d) Coordination
The Secretary shall take all necessary steps to coordinate programs funded with grants received under this section.
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(e) Use of grant funds
(1) Grants to assist health care professionals
An eligible entity that receives a grant under subsection (a)(1) may use the grant funds to work with appropriate medical schools, nursing schools, schools of public health, internal education programs in State agencies, nongovernmental organizations, and professional organizations and societies to develop and deliver education and training programs that include— (A) continuing medical education programs for health care professionals and State health department laboratory personnel in newborn screening; (B) education, technical assistance, and training on new discoveries in newborn screening and the use of any related technology;
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(C) models to evaluate what a newborn should be screened for and when and where that screening should take place; (D) models to evaluate the prevalence of, and assess and communicate the risks of, newborn disorders, including the prevalence and risk of certain newborn disorders based on family history; (E) models to communicate effectively with parents and families about— (i) the process and benefits of newborn screening; (ii) how to use information gathered from newborn screening; (iii) the meaning of screening results, including the rate of false positives; (iv) the right of refusal of newborn screening;
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and (v) the potential need for followup care after newborns are screened; (F) information and resources on coordinated systems of followup care after newborns are screened; (G) information on the disorders for which States require and offer newborn screening and options for newborn screening relating to conditions in addition to such disorders; (H) information on supplemental newborn screening that the States do not require and offer but that parents may want; and (I) other items to carry out the purpose described in subsection (a)(1) as determined appropriate by the Secretary.
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(2) Grants to assist families
An eligible entity that receives a grant under subsection (a)(2) may use the grant funds to develop and deliver to parents, families, and patient advocacy and support groups, educational programs about newborn screening that include information on— (A) what is newborn screening; (B) how newborn screening is performed; (C) who performs newborn screening; (D) where newborn screening is performed; (E) the disorders for which the State requires newborns to be screened; (F) different options for newborn screening for disorders other than those included by the State in the mandated newborn screening program;
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(G) the meaning of various screening results including the rate of false positives; (H) the prevalence and risk of newborn disorders, including the increased risk of disorders that may stem from family history; (I) coordinated systems of followup care after newborns are screened; and (J) other items to carry out the purpose described in subsection (a)(2) as determined appropriate by the Secretary. (3) Grants for quality newborn screening followup
An eligible entity that receives a grant under subsection (a)(3) shall use the grant funds to— (A) expand on existing procedures and systems,
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where appropriate and available, for the timely reporting of newborn screening results to individuals, families, primary care physicians, and subspecialists in congenital, genetic, and metabolic disorders; (B) coordinate ongoing followup treatment with individuals, families, primary care physicians, and subspecialists in congenital, genetic, and metabolic disorders after a newborn receives an indication of the presence of a disorder on a screening test; (C) ensure the seamless integration of confirmatory testing, tertiary care medical services, comprehensive genetic services including genetic counseling,
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and information about access to developing therapies by participation in approved clinical trials involving the primary health care of the infant; (D) analyze data, if appropriate and available, collected from newborn screenings to identify populations at risk for disorders affecting newborns, examine and respond to health concerns, recognize and address relevant environmental, behavioral, socioeconomic, demographic, and other relevant risk factors; and (E) carry out such other activities as the Secretary may determine necessary. (f) Reports to Congress
(1) In general
Subject to paragraph (2),
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the Secretary shall submit to the appropriate committees of Congress reports— (A) evaluating the effectiveness and the impact of the grants awarded under this section— (i) in promoting newborn screening— (I) education and resources for families; and (II) education, resources, and training for health care professionals; (ii) on the successful diagnosis and treatment of congenital, genetic, and metabolic disorders; and (iii) on the continued development of coordinated systems of followup care after newborns are screened; (B) describing and evaluating the effectiveness of the activities carried out with grant funds received under this section;
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and (C) that include recommendations for Federal actions to support— (i) education and training in newborn screening; and (ii) followup care after newborns are screened. (2) Timing of reports
The Secretary shall submit— (A) an interim report that includes the information described in paragraph (1), not later than 30 months after the date on which the first grant funds are awarded under this section; and (B) a subsequent report that includes the information described in paragraph (1), not later than 60 months after the date on which the first grant funds are awarded under this section.
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(g) Definition of eligible entity
In this section, the term eligible entity means— (1) a State or a political subdivision of a State; (2) a consortium of 2 or more States or political subdivisions of States; (3) a territory; (4) an Indian tribe or a hospital or outpatient health care facility of the Indian Health Service; or (5) a nongovernmental organization with appropriate expertise in newborn screening, as determined by the Secretary.
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(h) Authorization of appropriations
There are authorized to be appropriated to carry out this section— (1) $15,000,000 for fiscal year 2005; and (2) such sums as may be necessary for each of fiscal years 2006 through 2009.. 399AA. Newborn screening
(a) Authorization of grant programs
(1) Grants to assist health care professionals
From funds appropriated under subsection (h), the Secretary,
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acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (referred to in this section as the Associate Administrator ) and in consultation with the Advisory Committee on Heritable Disorders in Newborns and Children (referred to in this section as the Advisory Committee ), shall award grants to eligible entities to enable such entities to assist in providing health care professionals and State health department laboratory personnel with— (A) education in newborn screening; and (B) training in— (i) relevant and new technologies in newborn screening; and (ii) congenital, genetic, and metabolic disorders.
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(2) Grants to assist families
From funds appropriated under subsection (h), the Secretary, acting through the Associate Administrator and in consultation with the Advisory Committee, shall award grants to eligible entities to enable such entities to develop and deliver educational programs about newborn screening to parents, families, and patient advocacy and support groups.
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(3) Grants for newborn screening followup
From funds appropriated under subsection (h), the Secretary, acting through the Associate Administrator and in consultation with the Advisory Committee, shall award grants to eligible entities to enable such entities to establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders. (b) Application
An eligible entity that desires to receive a grant under this section shall submit an application to the Secretary at such time, in such manner, and accompanied by such information as the Secretary may require.
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(c) Selection of grant recipients
(1) In general
Not later than 120 days after receiving an application under subsection (b), the Secretary, after considering the approval factors under paragraph (2), shall determine whether to award the eligible entity a grant under this section.
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(2) Approval factors
(A) Requirements for approval
An application submitted under subsection (b) may not be approved by the Secretary unless the application contains assurances that the eligible entity— (i) will use grant funds only for the purposes specified in the approved application and in accordance with the requirements of this section; and (ii) will establish such fiscal control and fund accounting procedures as may be necessary to assure proper disbursement and accounting of Federal funds paid to the eligible entity under the grant.
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(B) Existing programs
Prior to awarding a grant under this section, the Secretary shall— (i) conduct an assessment of existing educational resources and training programs and coordinated systems of followup care with respect to newborn screening; and (ii) take all necessary steps to minimize the duplication of the resources and programs described in clause (i). (d) Coordination
The Secretary shall take all necessary steps to coordinate programs funded with grants received under this section.
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(e) Use of grant funds
(1) Grants to assist health care professionals
An eligible entity that receives a grant under subsection (a)(1) may use the grant funds to work with appropriate medical schools, nursing schools, schools of public health, internal education programs in State agencies, nongovernmental organizations, and professional organizations and societies to develop and deliver education and training programs that include— (A) continuing medical education programs for health care professionals and State health department laboratory personnel in newborn screening; (B) education, technical assistance, and training on new discoveries in newborn screening and the use of any related technology;
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(C) models to evaluate what a newborn should be screened for and when and where that screening should take place; (D) models to evaluate the prevalence of, and assess and communicate the risks of, newborn disorders, including the prevalence and risk of certain newborn disorders based on family history; (E) models to communicate effectively with parents and families about— (i) the process and benefits of newborn screening; (ii) how to use information gathered from newborn screening; (iii) the meaning of screening results, including the rate of false positives; (iv) the right of refusal of newborn screening;
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and (v) the potential need for followup care after newborns are screened; (F) information and resources on coordinated systems of followup care after newborns are screened; (G) information on the disorders for which States require and offer newborn screening and options for newborn screening relating to conditions in addition to such disorders; (H) information on supplemental newborn screening that the States do not require and offer but that parents may want; and (I) other items to carry out the purpose described in subsection (a)(1) as determined appropriate by the Secretary.
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(2) Grants to assist families
An eligible entity that receives a grant under subsection (a)(2) may use the grant funds to develop and deliver to parents, families, and patient advocacy and support groups, educational programs about newborn screening that include information on— (A) what is newborn screening; (B) how newborn screening is performed; (C) who performs newborn screening; (D) where newborn screening is performed; (E) the disorders for which the State requires newborns to be screened; (F) different options for newborn screening for disorders other than those included by the State in the mandated newborn screening program;
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(G) the meaning of various screening results including the rate of false positives; (H) the prevalence and risk of newborn disorders, including the increased risk of disorders that may stem from family history; (I) coordinated systems of followup care after newborns are screened; and (J) other items to carry out the purpose described in subsection (a)(2) as determined appropriate by the Secretary. (3) Grants for quality newborn screening followup
An eligible entity that receives a grant under subsection (a)(3) shall use the grant funds to— (A) expand on existing procedures and systems,
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where appropriate and available, for the timely reporting of newborn screening results to individuals, families, primary care physicians, and subspecialists in congenital, genetic, and metabolic disorders; (B) coordinate ongoing followup treatment with individuals, families, primary care physicians, and subspecialists in congenital, genetic, and metabolic disorders after a newborn receives an indication of the presence of a disorder on a screening test; (C) ensure the seamless integration of confirmatory testing, tertiary care medical services, comprehensive genetic services including genetic counseling,
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and information about access to developing therapies by participation in approved clinical trials involving the primary health care of the infant; (D) analyze data, if appropriate and available, collected from newborn screenings to identify populations at risk for disorders affecting newborns, examine and respond to health concerns, recognize and address relevant environmental, behavioral, socioeconomic, demographic, and other relevant risk factors; and (E) carry out such other activities as the Secretary may determine necessary. (f) Reports to Congress
(1) In general
Subject to paragraph (2),
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the Secretary shall submit to the appropriate committees of Congress reports— (A) evaluating the effectiveness and the impact of the grants awarded under this section— (i) in promoting newborn screening— (I) education and resources for families; and (II) education, resources, and training for health care professionals; (ii) on the successful diagnosis and treatment of congenital, genetic, and metabolic disorders; and (iii) on the continued development of coordinated systems of followup care after newborns are screened; (B) describing and evaluating the effectiveness of the activities carried out with grant funds received under this section;
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and (C) that include recommendations for Federal actions to support— (i) education and training in newborn screening; and (ii) followup care after newborns are screened. (2) Timing of reports
The Secretary shall submit— (A) an interim report that includes the information described in paragraph (1), not later than 30 months after the date on which the first grant funds are awarded under this section; and (B) a subsequent report that includes the information described in paragraph (1), not later than 60 months after the date on which the first grant funds are awarded under this section.
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(g) Definition of eligible entity
In this section, the term eligible entity means— (1) a State or a political subdivision of a State; (2) a consortium of 2 or more States or political subdivisions of States; (3) a territory; (4) an Indian tribe or a hospital or outpatient health care facility of the Indian Health Service; or (5) a nongovernmental organization with appropriate expertise in newborn screening, as determined by the Secretary.
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(h) Authorization of appropriations
There are authorized to be appropriated to carry out this section— (1) $15,000,000 for fiscal year 2005; and (2) such sums as may be necessary for each of fiscal years 2006 through 2009.
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1. Short title
This Act may be cited as the Relief for Life-Saving Blood Donors Act of 2004. 2. Findings
The Congress finds that— (1) each year over 4.5 million Americans need a life-saving blood transfusion, and the daily demand for blood is 38,000 units; (2) the Mayo Clinic reports that about 25 percent of all Americans will need a blood transfusion at least once in their life; (3) the Mayo Clinic also reports that only 5 percent of eligible Americans (about 8.
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8 million people) donate blood every year; (4) according to the American Association of Blood Banks, the average donor is a college-educated white male, between the ages of 30 and 50, who is married and has an above-average income; (5) these average statistics are currently evolving to reflect increasing blood donations from women and minority groups; (6) persons 69 years and older account for 10 percent of the population but need 50 percent of whole blood and red blood cell transfusions; (7) many blood banks have found that it is safe for seniors to donate blood;
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(8) the National Blood Data Resource Center reports that seasonal and regional blood supply shortages are not uncommon, and a shortage of red blood cells may occur if transfusion demands continue to rise and collection efforts cannot keep up the pace; (9) a major national trauma, such as an outbreak of disease, a natural disaster, or a terrorist attack, could dramatically affect the blood supply; (10) a single blood donation can help as many as three people; (11) blood cannot be manufactured and can only come as a gift from people;
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and (12) the American Red Cross and other blood-donation organizations urge people to give blood three times a year. 3.
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Sense of Congress
It is the sense of Congress that— (1) all Americans should donate blood three times a year, as per the recommendation of the American Red Cross, as this simple task saves millions of lives each year; (2) blood donation is as valuable as other donations, such as organs, tissue, and bone marrow, and blood donors should be applauded for their commitment; (3) employers should allow workers to take time off of work, without a loss of pay or time, to donate blood; and (4) employees should be encouraged to participate in employer-sponsored blood drives. 4.
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Deduction for blood and plasma donation
(a) In general
Part VII of subchapter B of chapter 1 of the Internal Revenue Code of 1986 (relating to additional itemized deductions for individuals) is amended by redesignating section 224 as section 225 and by inserting after section 223 the following new section: 224. Blood and plasma donation
(a) Deduction allowed
In the case of an individual, there shall be allowed as a deduction for the taxable year an amount equal to $50 multiplied by the number of times during such year the taxpayer makes a qualified blood donation.
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(b) Limitation
The amount allowed as a deduction under subsection (a) for a taxable year shall not exceed $150 ($300 in the case of a joint return). (c) Qualified blood donation
For purposes of this section, the term qualified blood donation means the donation of blood or plasma at a blood bank center or blood-collection institution which is recognized by the Secretary (in consultation with the Secretary of Health and Human Services) and which provides receipts for each donation.
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(b) Deduction allowed whether or not individual itemizes other deductions
Subsection (a) of section 62 of such Code is amended by inserting after paragraph (19) the following new paragraph: (20) Blood and plasma donation
The deduction allowed by section 224. (c) Clerical amendment
The table of sections for part VII of subchapter B of chapter 1 of such Code is amended by striking the last item and inserting the following new items: Sec. 224. Blood and plasma donation Sec. 225. Cross reference.
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(d) Effective date
The amendments made by this section shall apply to taxable years beginning after the date of the enactment of this Act. 224. Blood and plasma donation
(a) Deduction allowed
In the case of an individual, there shall be allowed as a deduction for the taxable year an amount equal to $50 multiplied by the number of times during such year the taxpayer makes a qualified blood donation. (b) Limitation
The amount allowed as a deduction under subsection (a) for a taxable year shall not exceed $150 ($300 in the case of a joint return).
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(c) Qualified blood donation
For purposes of this section, the term qualified blood donation means the donation of blood or plasma at a blood bank center or blood-collection institution which is recognized by the Secretary (in consultation with the Secretary of Health and Human Services) and which provides receipts for each donation.
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1. Linda White-Epps Post Office
(a) Designation
The facility of the United States Postal Service located at 40 Putnam Avenue in Hamden, Connecticut, shall be known and designated as the Linda White-Epps Post Office. (b) References
Any reference in a law, map, regulation, document, paper, or other record of the United States to the facility referred to in subsection (a) shall be deemed to be a reference to the Linda White-Epps Post Office.
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1. Increase in amount
Section 8111(a) of title 5, United States Code, is amended— (1) by striking $1,500 and inserting $4,000 ; and (2) by adding at the end the following: The additional sum allowable under this subsection shall be increased, beginning October 1, 2006, and biennially thereafter, by the percentage increase in the Consumer Price Index for All Urban Consumers (United States city average) during the 2-year period ending 2 months before the date of the increase..
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1. Suspension of duty on 2-[[3,3´-Dichloro-4´-[[1-[[(2,4-dimethylphenyl)amino]carbonyl]-2-oxopropyl]azo][1,1´-biphenyl]-4-yl]azo]-3-oxo-N-(o-tolyl)butyramide
(a) In general
Subchapter II of chapter 99 of the Harmonized Tariff Schedule of the United States is amended by inserting in numerical sequence the following new heading: 9902.35.
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14 2-[[3,3´-Dichloro-4´-[[1-[[(2,4-dimethylphenyl)amino]carbonyl]-2-oxopropyl]azo][1,1´-biphenyl]-4-yl]azo]-3-oxo-N-(o-tolyl)butyramide (CAS No.
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78952–72–4) (provided for in subheading 3204.17.60) Free No change No change On or before 12/31/2007 (b) Effective date
The amendment made by subsection (a) applies to articles entered, or withdrawn from warehouse for consumption, on or after the 15th day after the date of the enactment of this Act.
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1. Prohibiting States From Denying Voter Registration or Voting by Certain Veterans Convicted of Felonies
(a) In General
Section 303(a) of the Help America Vote Act of 2002 ( 42 U.S.C. 15483(a) ) is amended by adding at the end the following new paragraph: (6) Prohibiting states from denying registration or voting by certain veterans convicted of felonies
(A) In general
No State may prohibit any individual who is a veteran from registering to vote for any election for public office, or from voting in any election for public office,
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on the grounds that the individual has been convicted of a felony if (at the time the individual seeks to register to vote or vote) the individual is no longer in the custody of, or subject to supervision by, the State or the Federal government as a result of the individual’s conviction.
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(B) Veteran defined
For purposes of this paragraph, the term veteran means a person who served in the active military, naval, or air service and who was discharged or released therefrom under conditions other than dishonorable (as described in section 101(2) of title 38, United States Code).. (b) Mandatory Application of 2004 Effective Date
Section 303(d)(1)(B) of such Act ( 42 U.S.C.
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