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Robert Gross|Scarlett L. Bellamy|Jennifer Chapman|Xiaoyan Han|Jacqueline O’Duor|Steven C. Palmer|Peter S. Houts|James C. Coyne|Brian L. Strom
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Managed Problem Solving for Antiretroviral Therapy Adherence
| 2,013 | null |
adherence antiretroviral therapy critical successful treatment human immunodeficiency virus hiv interventions demonstrated improve adherence virologic outcomes sought determine whether intervention derived problem solving theory managed problem solving maps would improve antiretroviral outcomeswe conducted randomized investigator blind trial maps compared usual care hiv1 infected individuals 3 hiv clinics philadelphia pennsylvania eligible patients plasma hiv1 viral loads greater 1000 copiesml initiating changing therapy managed problem solving consists 4 inperson 12 telephonebased meetings trained interventionist monthly followup calls year primary outcome medication adherence measured using electronic monitors summarized fraction doses taken quarterly 1 year secondary outcome undetectable hiv viral load 1 year assessed 218 eligibility 190 eligible 180 enrolled 91 randomized maps 89 usual care fiftysix participants lost followup 33 maps group 23 usual care groupin primary intentiontotreat analyses odds higher adherence category 178 95 ci107296 times greater maps usual care secondary analyses odds undetectable viral load 148 95 ci 094231 times greater maps usual care astreated analyses effect maps stronger outcomes neither difference prior treatment status change effect timemanaged problem solving effective antiretroviral adherence intervention first year new regimen equally effective improving adherence treatment experienced nave patients lose effect time implementation maps strongly considered resources availableclinicaltrialsgov identifier nct00130273
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https://doi.org/10.4103/0019-5359.48455
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Giulia Martelli|R. Antonucci|Alphonsina Mukurasi|Henry Zepherine|Christiana Nöstlinger
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Adherence to antiretroviral treatment among children and adolescents in Tanzania: Comparison between pill count and viral load outcomes in a rural context of Mwanza region
| 2,019 |
Instituut voor Tropische Geneeskunde|Instituut voor Tropische Geneeskunde
|
adherence antiretroviral treatment key challenge paediatric hiv care among children adolescents living hiv lower levels adherence reported compared adults individual caregiver health servicesrelated sociocultural factors shown impact outcomes study objectives assess adherence paediatric population rural tanzania comparing two measurement methods investigate association virologic suppression demographic clinical drug familyrelated factorsthis crosssectional study conducted among children adolescents enrolled bukumbi hiv care treatment clinic misungwi district mwanza region north tanzania hiv prevalence 72 adherence measured viral load pill count kappa statistics assessed level agreement methods bivariate multivariable analyses identified factors independently associated virologic suppressionn 72 participants n 49 children n 23 adolescents median age eight years enrolled 625 653 individuals presented optimal adherence according viral load pill count respectively among 40 viral load results diverged pill count method multivariable analysis living outside misungwi district cd4 counts 500l significantly associated optimal adherencechildren adolescents living hiv mwanza show high rates suboptimal adherence poor agreement pill count viral load results raises concerns interpretation measurements clinical practice
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https://doi.org/10.1186/1752-4458-5-4
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Tatiana Makhinova|Jamie C. Barner|Katherine Richards|Karen L. Rascati
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Asthma Controller Medication Adherence, Risk of Exacerbation, and Use of Rescue Agents Among Texas Medicaid Patients with Persistent Asthma
| 2,015 |
The University of Texas at Austin
|
adherence asthma longterm controller medications one key drivers improve asthma management among patients persistent asthma suboptimal use controller medications found associated frequent use oral corticosteroids ocs studies exist regarding relationship adherence controller therapy use shortacting beta2agonists sabas better understanding association adherence asthma controller agents use reliever medications help health care providers decision makers enhance asthma managementto determine relationship asthma controller adherence risk exacerbation requiring ocs use asthma rescue agentstexas medicaid claims data january 1 2008 august 31 2011 retrospectively analyzed continuously enrolled patients aged 563 years primary diagnosis asthma icd9cm code 493 4 prescription claims asthma medication 1 year persistent asthma included index date date first asthma controller prescription patients followed 1 year primary outcome variables saba dichotomous less 6 vs 6 ocs continuous use primary independent variable adherence proportion days covered pdc asthma longterm controller medications covariates included demographics nonstudy medication utilization multivariate logistic linear regression analyses employed address study objectivethe study sample n 32172 aged 150 145 years adherence controller therapy 322 197 mean number saba claims 37 31 patients 15 claims 732 whereas 194 6 saba claims mean number ocs claims 10 14 adherent pdc 50 patients 967 1967 95 ci 18262120 likely 6 saba claims compared nonadherent pdc less 50 patients p less 0001 ocs use adherent patients 011 fewer claims compared nonadherent patients p less 0001 importantly patients 6 saba claims 07 ocs claims compared patients less 6 claims saba p less 0001 odds 6 saba claims higher concurrent dual therapy users older age males african americans higher number nonstudy medications p less 0001 dual therapy users younger age hispanic ethnicity higher number nonstudy medications associated increase ocs use p less 0005adherence longterm controller medications suboptimal among patients asthma adherent patients fewer ocs claims indicating adherence controller therapy critical preventing asthma exacerbations requiring ocs use although positive relationship adherence longterm controller medication saba use increased saba use served predictor increased ocs use indicates poor asthma control health care providers aware ocs saba use among patients adherent nonadherent asthma controller medications
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https://doi.org/10.2147/ahmt.s68344
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Carol E. Golin|Honghu Liu|Ron D. Hays|Loren G. Miller|Christopher Beck|Jeanette Ickovics|Andrew H. Kaplan|Neil S. Wenger
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A prospective study of predictors of adherence to combination antiretroviral medication
| 2,002 |
University of North Carolina at Chapel Hill|University of California, Los Angeles|University of California, Los Angeles|UCLA Medical Center|Harbor–UCLA Medical Center|UCLA Medical Center|Harbor–UCLA Medical Center|Yale University|University of North Carolina at Chapel Hill|Black AIDS Institute
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adherence complex antiretroviral therapy art critical hiv treatment difficult achieve development interventions improve adherence requires detailed information regarding barriers adherence however short followup inadequate adherence measures hampered determinations sought assess predictors longterm 1 year adherence newly initiated combination art using accurate objective adherence measurea prospective cohort study 140 hivinfected patients county hospital hiv clinic year following initiation new highly active art regimenwe measured adherence every 4 weeks computing composite score electronic medication bottle caps pill count selfreport evaluated patient demographic biomedical psychosocial characteristics features regimen relationship ones hiv provider predictors adherence 48 weeks average subjects took 71 prescribed doses 95 patients achieving suboptimal 95 adherence multivariate analyses africanamerican ethnicity lower income education alcohol use higher dose frequency fewer adherence aids eg pillboxes timers independently associated worse adherence adjusting demographic clinical factors actively using drugs took 59 doses versus 72 nonusers drinking alcohol took 66 doses versus 74 nondrinkers patients antiretroviral doses per day adhered less well participants using adherence aids took 68 doses versus 76 upper quartile number adherence aids usednearly patients adherence levels suboptimal demonstrating critical need programs assist patients medication taking interventions assess treat substance abuse incorporate adherence aids may particularly helpful warrant study
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https://doi.org/10.1016/j.jadohealth.2017.07.024
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José M. Castellano|Ginés Sanz|José L. Peñalvo|Sameer Bansilal|Antonio Fernández?Ortíz|Luz Álvarez|Luis A. Guzmán|Juan Carlos Linares|Fernando Flores García|Fabiana D’Aniello|Joan Albert Arnáiz|Sara Varea|Felipe Martínez|Alberto Lorenzatti|Iñaki Arratibel Imaz|Luis María Sánchez-Gómez|Maria Carla Roncaglioni|Marta Baviera|Sidney C. Smith|Kathryn A. Taubert|Stuart Pocock|Carlos Brotons|Michael E. Farkouh|Valentín Fuster
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A Polypill Strategy to Improve Adherence
| 2,014 |
Spanish National Centre for Cardiovascular Research|Icahn School of Medicine at Mount Sinai|Spanish National Centre for Cardiovascular Research|Spanish National Centre for Cardiovascular Research|Icahn School of Medicine at Mount Sinai|Spanish National Centre for Cardiovascular Research|Hospital Clínico San Carlos|Spanish National Centre for Cardiovascular Research|Ferrer Grupo (Spain)|Ferrer Grupo (Spain)|Fundació Clínic per a la Recerca Biomèdica|Fundació Clínic per a la Recerca Biomèdica|Instituto Médico DAMIC|Instituto Médico DAMIC|Instituto de Salud Carlos III|Instituto de Salud Carlos III|Mario Negri Institute for Pharmacological Research|Mario Negri Institute for Pharmacological Research|World Heart Federation|World Heart Federation
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adherence evidencebased cardiovascular cv medications acute myocardial infarction mi low first 6 months use fixeddose combinations fdc shown improve treatment adherence risk factor control however previous randomized trial analyzed impact polypill strategy adherence postmi patientsthe crosssectional focus fixeddose combination drug secondary cardiovascular prevention study phase 1 aimed elucidate factors interfere appropriate adherence cv medications secondary prevention acute mi additionally 695 patients phase 1 randomized controlled trial phase 2 test effect polypill containing aspirin 100 mg simvastatin 40 mg ramipril 25 5 10 mg compared 3 drugs given separately adherence blood pressure lowdensity lipoprotein cholesterol well safety tolerability period 9 months followupin phase 1 5country cohort 2118 patients analyzed patients randomized either polypill 3 drugs separately phase 2 primary endpoint adherence treatment measured final visit selfreported moriskygreen questionnaire maq pill count patients meet criteria adherence inperson visit considered adherentin phase 1 overall cv medication adherence defined maq score 20 455 multivariable regression model risk nonadherent maq 20 associated younger age depression complex medication regimen poorer health insurance coverage lower level social support consistent findings across countries phase 2 polypill group showed improved adherence compared group receiving separate medications 9 months followup 508 versus 41 p 0019 intentiontotreat population 657 versus 557 p 0012 per protocol population using primary endpoint attending final visit maq 20 high pill count 80 110 combined assess adherence adherence also higher fdc group measured maq alone 68 vs 59 p 0049 treatment difference found followup mean systolic blood pressure 1296 mm hg vs 1286 mm hg mean lowdensity lipoprotein cholesterol levels 899 mgdl vs 917 mgdl serious adverse events 23 vs 21 death 1 03 groupfor secondary prevention following acute mi younger age depression complex drug treatment plan associated lower medication adherence meanwhile adherence increased patients higher insurance coverage levels social support compared 3 drugs given separately use polypill strategy met primary endpoint adherence secondary prevention following acute mi fixed dose combination drug polypill secondary cardiovascular prevention focus nct01321255
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https://doi.org/10.1371/journal.pone.0113621
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Ingrid T. Katz|Annemarie E Ryu|Afiachukwu Onuegbu|Christina Psaros|Sheri D. Weiser|David R. Bangsberg|Alexander C. Tsai
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Impact of HIV?related stigma on treatment adherence: systematic review and meta?synthesis
| 2,013 |
Center for Global Health|Massachusetts General Hospital|Harvard University|Brigham and Women's Hospital|Harvard College Observatory|Harvard University|Harvard University|Massachusetts General Hospital|San Francisco General Hospital|Center for Global Health|Harvard University|Mbarara University of Science and Technology|Massachusetts General Hospital|Massachusetts General Hospital|Center for Global Health|Harvard University
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adherence hiv antiretroviral therapy art critical determinant hiv1 rna viral suppression health outcomes generally accepted hivrelated stigma correlated factors may undermine art adherence relationship art adherence well established therefore undertook review systematically assess relationship hivrelated stigma art adherencewe searched nine electronic databases published unpublished literature language restrictions first screened titles abstracts studies potentially contained data art adherence reviewed full text studies identify articles reported data relationship art adherence either hivrelated stigma serostatus disclosure used method metasynthesis summarize findings qualitative studiesour search protocol yielded 14854 initial records eliminating duplicates screening titles abstracts retrieved full text 960 journal articles dissertations unpublished conference abstracts review included 75 studies conducted among 26715 hivpositive persons living 32 countries worldwide less representation work eastern europe central asia among 34 qualitative studies metasynthesis identified five distinct thirdorder labels inductive process categorized themes organized conceptual model spanning intrapersonal interpersonal structural levels hivrelated stigma undermined art adherence compromising general psychological processes adaptive coping social support also identified psychological processes specific hivpositive persons driven predominant stigmatizing attitudes undermined adherence internalized stigma concealment adaptive coping social support critical determinants participants ability overcome structural economic barriers associated poverty order successfully adhere art among 41 quantitative studies 24 33 crosssectional studies 71 reported positive finding hiv stigma art nonadherence 6 7 longitudinal studies 86 reported null finding pearsons 277 p0005we found hivrelated stigma compromised participants abilities successfully adhere art interventions reduce stigma target multiple levels influence intrapersonal interpersonal structural order maximum effectiveness improving art adherence
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https://doi.org/10.1023/a:1007047306063
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Mallory O. Johnson|Torsten B. Neilands|Samantha E. Dilworth|Stephen F. Morin|Robert H. Remien|Margaret A. Chesney
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The Role of Self-Efficacy in HIV Treatment Adherence: Validation of the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES)
| 2,007 |
San Francisco AIDS Foundation|San Francisco AIDS Foundation|San Francisco AIDS Foundation|San Francisco AIDS Foundation|New York Psychoanalytic Society and Institute|Columbia University|University of California, San Francisco
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adherence hiv treatment including adherence antiretroviral art medication regimens paramount management hiv selfefficacy treatment adherence identified important correlate medication adherence treatment hiv medical conditions paper describes validation hiv treatment adherence selfefficacy scale hivases two samples hiv adults art factor analyses support subscales measuring adherence integration eigenvalue612 adherence perseverance eigenvalue116 accounting 61 variance scale items hivases demonstrates robust internal consistency rhos90 3month rs70 15month rs40 testretest reliability concurrent validity analyses revealed relationships psychosocial measures art adherence clinical status healthcare utilization findings support use hivases provide guidance investigation adherence selfefficacy context treatment hiv diseases
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https://doi.org/10.1186/s12889-020-08468-0
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Allison Milner|Marissa Shields|Tania King
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The Influence of Masculine Norms and Mental Health on Health Literacy Among Men: Evidence From the Ten to Men Study
| 2,019 |
University of Melbourne|University of Melbourne|University of Melbourne
|
adherence masculine norms selfreliance thought predict lower health literacy additionally males poor mental health may low health literacy using two waves ten men cohort current study examined whether masculinity depressive symptomology explained three aspects health literacy among menthree subscales health literacy questionnaire used outcomes ability find good health information ability actively engage healthcare providers feeling understood supported healthcare providers exposures masculine norms measured conformity masculine norms inventory cmni22 depressive symptoms measured patient health questionnaire phq controlled confounders relationship exposure outcome ordinary least squares regression used assess cmni depressive symptoms measured wave 1 health literacy measured wave 2across three health literacy scales increased global conformity masculine norms associated decrease health literacy moderatetosevere depressive symptoms likewise associated decrease health literacy three scales effects particularly strong ability engage healthcare providers coef 154 95 ci 184 124 p value 001the results article highlight conformity masculine norms depressive symptoms may predictors health literacy among men results study suggest need health literacy media campaigns address complexities gendered helpseeking behaviorsnot applicable
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https://doi.org/10.1371/journal.pone.0202107
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Job F M van Boven|Dermot Ryan|Michelle N. Eakin|Giorgio Walter Canonica|Aji Barot|Juliet Foster
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Enhancing Respiratory Medication Adherence: The Role of Health Care Professionals and Cost-Effectiveness Considerations
| 2,016 |
University of Groningen|University Medical Center Groningen|University of Edinburgh|Johns Hopkins University|Johns Hopkins Medicine|Ospedale Policlinico San Martino|University of Genoa|Woolcock Institute of Medical Research|University of Sydney
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adherence medication comprises multiphased temporal process involving 1 initiation prescribed therapy 2 implementation prescribed 3 subsequent persistence medication adherence remains suboptimal patients longterm respiratory conditions asthma chronic obstructive pulmonary disease copd interventions shown effectively improve treatment initiation implementation persistence delivered health care professional level system level demonstration costeffectiveness interventions necessary ensure widespread use review summarizes health care professionals intervene improve medication adherence patients asthma copd provides examples effective primary care interventions illustrates challenges optimal implementation arising costeffectiveness modeling improving adherence shown economically viable treatment option patients asthma copd differences health economics pertaining condition setting affect whether intervention considered costeffective targeting adherence interventions patients greatest gain tailoring individual patient needs may help optimize costeffectiveness ratios improve probability positive reimbursement decisions systemwide implementation resultant health benefits
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https://doi.org/10.1080/10810730.2019.1639858
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Connie Mah Trinacty|Alyce S. Adams|Stephen B. Soumerai|Fang Zhang|James B. Meigs|John D. Piette|Dennis Ross?Degnan
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Racial differences in long-term adherence to oral antidiabetic drug therapy: a longitudinal cohort study
| 2,009 |
Harvard Pilgrim Health Care|Harvard University|Kaiser Permanente|Harvard Pilgrim Health Care|Harvard University|Harvard Pilgrim Health Care|Harvard University|Harvard Pilgrim Health Care|Harvard University|Massachusetts General Hospital|Harvard University|VA Center for Clinical Management Research|University of Michigan–Ann Arbor|Harvard Pilgrim Health Care|Harvard University
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adherence oral antidiabetic medications often suboptimal adherence differences may contribute health disparities black diabetes patients including higher microvascular event rates greater complicationrelated disability earlier mortalityin longitudinal retrospective cohort study used 10 years patientlevel claims electronic medical record data 11199212312001 assess differences short longterm adherence oral antidiabetic medication among 1906 newly diagnosed adults diabetes 26 black 74 white managed care setting members prescription drug coverage four main outcome measures included 1 time diabetes diagnosis first prescription oral antidiabetic medication 2 primary adherence time first prescription prescription fill 3 time discontinuation oral antidiabetic medication first prescription 4 longterm adherence amount dispensed versus amount prescribed 24month followup first oral antidiabetic medication prescriptionblack patients likely whites initiate oral therapy fill first prescription experienced higher rates medication discontinuation hr 18 95 ci 12 27 less adherent time blackwhite differences increased first six months therapy stabilized thereafter patients initiated sulfonylureas significant blackwhite differences adherence levels constant throughout followup patients initiated metformin therapyracial differences adherence oral antidiabetic drug therapy persist even equal access medication early continued emphasis adherence initiation therapy may reduce persistent racial differences medication use clinical outcomes
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https://doi.org/10.2196/jmir.5.4.e25
|
Mariusz Duplaga
|
The Roles of Health and e-Health Literacy, Conspiracy Beliefs and Political Sympathy in the Adherence to Preventive Measures Recommended during the Pandemic
| 2,022 |
Jagiellonian University
|
adherence preventive measures utmost importance limiting spreading coronavirus many predictors adopting preventive behaviors analyzed different countries covid19 pandemic objectives studys main aim assess roles health hl ehealth literacy ehl conspiracy beliefs political sympathy religious practices adherence covid19 preventive measures adjusting sociodemographic factors analysis based data obtained survey conducted among 2410 adult internet users poland october 2020 survey performed computerassisted webbased interviewing technique survey data analyzed uni multivariable linear regression models multivariable regression model revealed adjusting sociodemographic variables preventive measures score pms significantly associated hl b 004 p 0001 ehl b 003 p 0001 covid19related conspiracy beliefs score c19cbs b 024 p 0001 also significant statistical relationship pms political sympathies religious practices hl ehl key factors eligible modification appropriate interventions showing positive effects compliance preventive measures conspiracy beliefs political sympathy religious beliefs independently associated adherence
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https://doi.org/10.18502/ijph.v50i3.5584
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Meei?Shiow Lu|Haiou Xia|Jianying Ma|Ying Lin|Xian Zhang|Yi Shen|Marilyn Hravnak
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Relationship between adherence to secondary prevention and health literacy, self-efficacy and disease knowledge among patients with coronary artery disease in China
| 2,019 |
Fudan University|Fudan University|Zhongshan Hospital|Fudan University|Zhongshan Hospital|Fudan University|Zhongshan Hospital|Fudan University|Huashan Hospital|Fudan University|University of Pittsburgh
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adherence secondary prevention indispensable part management patients coronary artery disease finding patient factors affecting adherence behaviours important improving treatment effect limiting disease progressionto examine association health literacy selfefficacy disease knowledge adherence secondary coronary artery disease prevention patients chinain crosssectional study 598 patients coronary artery disease enrolled two tertiary hospitals china hospitalisation receiving percutaneous coronary intervention patientreported data collected demographics health literacy selfefficacy disease knowledge adherence secondary coronary artery disease prevention medicationtaking hearthealthy lifestyle exercise reducingeliminating alcohol intake smoking low salt fat diet stress reduction chisquared tests regression analyses performedthe proportions recalled selfreport adherence medicationtaking hearthealthy lifestyle immediately prior coronary artery disease hospitalisation 847 532 respectively logistic regression health literacy selfefficacy disease knowledge significantly associated nonadherence secondary coronary artery disease prevention limited health literacy demonstrated 161fold odds nonadherence hearthealthy lifestyle score increase selfefficacy disease knowledge 098fold odds 105fold odds nonadherence hearthealthy lifestyleadherence medicationtaking relatively good chinese patients prior coronary artery disease hospitalisation adherence hearthealthy lifestyle behaviours improved health literacy selfefficacy disease knowledge taken account intervening improve secondary coronary artery disease prevention
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https://doi.org/10.1097/00007435-200209000-00002
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Nemat Azizi|Mahmood Karimy|Vahid Naseri Salahshour
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Determinants of adherence to tuberculosis treatment in Iranian patients: Application of health belief model
| 2,018 |
Saveh University of Medical Sciences|Saveh University of Medical Sciences|Arak University of Medical Sciences
|
adherence tb treatment important issue tb control key health consequences identification factors associated adherence also important objective study identify factors associated adherence tuberculosis treatment using health belief model hbmoverall 297 tb patients recruited study using census method patients completed 40question survey form anonymously questionnaire developed based health belief model data collection carried interviews questionnaires well observing medical records medical cards used medical performance checkliststhe participants comprised 159 men 138 women average age 568 years range 1972 years results showed variables perceived threat benefits barriers selfefficacy accounted 42 variance therapeutic adherence strongest predictor adherence found selfefficacyhbm appears suitable model predicting therapeutic adherence tb patients results emphasize centrality selfefficacy treatment adherence health educators consider developing programs motivate patients adhere treatment
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https://doi.org/10.24953/turkjped.2021.1264
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S Anuradha|Anant Joshi|Madhubala Negi|Neeraj Nischal|K Rajeshwari|Richa Dewan
|
Factors Influencing Adherence to ART
| 2,012 |
Maulana Azad Medical College|Maulana Azad Medical College|Maulana Azad Medical College|Maulana Azad Medical College|Maulana Azad Medical College|Maulana Azad Medical College
|
adherence therapy central success antiretroviral treatment art availability free art national program india cost art longer primary determinant adherence study evaluated adherence factors influencing among patients receiving free art public health art center indiathe adherence influences among 250 hivpositive patients first line art least 3 months art center maulana azad medical college lok nayak hospital new delhi india analyzed adherence assessed patients self report using adult aids clinical trial group actg questionnaire counter checked pharmacy records association various parameters affecting adherence levels analyzed using spss package epiinfo softwareof 250 patients 242 968 optimum adherence 95 8 32 nonadherent cd4 counts p 005 high level belief among patients patients knowledge importance adherence p 004 sound mental health positively influencing adherence main barriers adherence poor mental health negative psychological states patients 0001 presence adverse reactions art also resulted poorer adherencethe modifiable factors strongly associated good adherence rates higher current cd4 counts patients beliefs art positive mental health factors targeted simple practical interventions improve maintain high adherence levels
|
https://doi.org/10.1186/s12889-017-4280-1
|
Matthias Döring
|
How-to Bureaucracy: A Concept of Citizens’ Administrative Literacy
| 2,021 |
University of Southern Denmark
|
administrative literacy capacity obtain process understand basic information services public organizations needed make appropriate decisions citizens competencies necessary successful interactions public administration remain widely neglected resource administrative burden resulting citizenstate interactions may impact citizens differently depending available resources cope research fields health literacy suggests concepts influence variety outcomes individual society article develops concept administrative literacy provide new approaches various fields public administration management research
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https://doi.org/10.1016/s2214-109x(19)30526-1
|
Elise R. Carrotte|Alyce M. Vella|Megan S C Lim
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Predictors of “Liking” Three Types of Health and Fitness-Related Content on Social Media: A Cross-Sectional Study
| 2,015 |
Burnet Institute|Burnet Institute|Monash University|Burnet Institute
|
adolescence young adulthood key periods developing norms related health behaviors body image social media influence norms social media saturated content related dieting fitness health health fitnessrelated social media content received significant media attention often containing objectifying inaccurate health messages limited research identified problematic features content including stigmatizing language around weight portraying guiltrelated messages regarding food praising thinness however research identified liking following ie consuming contentthis exploratory study aimed identify demographics mental health substance userelated behaviors predicted consuming 3 types health fitnessrelated social media contentweight lossfitness motivation pages ie fitspiration detoxcleanse pages dietfitness plan pagesamong young social media usersparticipants n1001 age median 2106 iqr 17642464 female 7231001 7223 completed crosssectional 112question online survey aimed social media users aged 1529 years residing victoria australia logistic regression used determine characteristics predicted consuming 3 types health fitnessrelated social media contenta total 378 3776 participants reported consuming least 1 3 types health fitnessrelated social media content 308 3077 fitspiration pages 145 1449 detox pages 235 2348 dietfitness plan pages health fitnessrelated social media content consumers 857 324378 identified female 448 324723 female participants consumed least 1 type health fitnessrelated social media content predictors consuming least one type health fitnessrelated social media content univariable analysis included female gender 35 95 ci 2549 p001 aged 1517 years 30 95 ci 2240 p001 residing outside major city 20 95 ci 1429 p001 posthigh school education 22 95 ci 1729 p001 born australia 20 95 ci 1232 p006 selfreported eating disorder 24 95 ci 1539 p001 victim bullying 17 ci 1323 p001 misusing detoxlaxative teas diet pills 46 95 ci 2876 p001 never using illegal drugs 16 95 ci 1220 p001 engaging risky single occasion drinking weekly basis 20 95 ci 1330 p003consumers health fitnessrelated social media content predominantly teenaged girls need ensure social media content portrays responsible health messages research role fitspiration pages detox pages dietfitness plan pages influencing body image health behaviors
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https://doi.org/10.1186/s12981-018-0205-z
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Kayla Cripps|Brett Zyromski
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Adolescents’ Psychological Well-Being and Perceived Parental Involvement: Implications for Parental Involvement in Middle Schools
| 2,009 |
Southern Illinois University Carbondale|Southern Illinois University Carbondale
|
adolescence critical period development previous research suggests parent involvement school directly impacts student success however different types parental involvement efforts middle school personnel educate parents effective practices received scant attention literature level type parental involvement perceived adolescents correlated adolescent psychological wellbeing perceived parental involvement positively negatively affects adolescents sense psychological wellbeing especially selfesteem selfevaluation peer relationships parenting style greatly influences childrens development well authoritativedemocratic parenting style influences middle school children leading positive developmental outcomes positive adolescent selfevaluations higher levels adolescent selfesteem adjustment also positively influencing levels intrinsic motivation learning article reviews research related adolescents perceptions parental involvement b parenting style related higher levels psychological wellbeing c impact assorted parenting styles adolescent psychological wellbeing concludes implications middle school systems middle school counselors families parents community members
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https://doi.org/10.1016/j.socscimed.2013.07.032
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Dougal Hargreaves|Marc N. Elliott|Russell Viner|Tracy K. Richmond|Mark A. Schuster
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Unmet Health Care Need in US Adolescents and Adult Health Outcomes
| 2,015 |
University College London|RAND Corporation|University College London|Boston Children's Hospital|Harvard University
|
adolescence formative period health care services unique opportunity influence later health outcomes unmet health care need adolescence known associated poor contemporaneous health outcomes unknown whether predicts poor adult health outcomeswe used nationally representative data 14 800 subjects participated wave mean age 159 years 19941995 wave iv mean age 296 years 2008 national longitudinal study adolescent adult health logistic regression models used estimate association unmet health care need adolescence 5 selfreported measures adult health fairpoor general health functional impairment time workschool depressive symptoms suicidal ideation models adjusted baseline health insurance category age gender raceethnicity household income parental educationunmet health care need reported 192 adolescents predicted worse adult health fairpoor general health adjusted odds ratio aor 127 95 confidence interval ci 100160 functional impairment aor 152 95 ci 123187 depressive symptoms aor 136 95 ci 113164 suicidal ideation aor 130 95 ci 103168 significant association unmet health care need time workschool aor 113 95 ci 093136 cost barriers accounted 148 unmet health care need reason unmet need significantly related likelihood poor adult health outcomesreported unmet health care need adolescence common independent predictor poor adult health strategies reduce unmet adolescent need address health engagement care quality well cost barriers accessing services
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https://doi.org/10.23860/jmle-2-2-1
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Raghavendra Rao|Alessia Lena|N. Sreekumaran Nair|Veena Kamath|Asha Kamath
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Effectiveness of reproductive health education among rural adolescent girls: A school based intervention study in Udupi Taluk, Karnataka
| 2,008 |
Kasturba Medical College, Manipal
|
adolescence important sensitive period ones life 1 according world health organization expert committee adolescence defined period 10 19 years second decade lifeto determine effectiveness educational intervention program knowledge reproductive health among adolescent girlsthis educational intervention study carried period one year total 791 rural girls age group 1619 years randomly selected coastal villages udupi district karnatakaadolescent girls educated regarding reproductive health awareness levels evaluated immediately following interventiondata tabulated analyzed using spss version 110 windows findings described terms proportions percentages chi square test used test effect interventiona significant increase overall knowledge intervention 144 68 p 001 observed regarding contraception knowledge regarding ovulation first sign pregnancy fertilization improved 372 95 ci 352 392 p 0001 knowledge regarding importance diet pregnancy improved 66 95 following interventionthis study clearly showed educational intervention program bring desirable change knowledge among adolescent girls regarding reproductive health
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https://doi.org/10.2174/1570159x16666180813153806
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Claire Kelly|Johanna Mithen|Julie A Fischer|Betty A. Kitchener|Anthony F. Jorm|Adrian J. Lowe|Chris Scanlan
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Youth mental health first aid: a description of the program and an initial evaluation
| 2,011 |
Orygen Youth Health|University of Melbourne|University of Melbourne|Orygen Youth Health|University of Melbourne|Orygen Youth Health|University of Melbourne|Orygen Youth Health|University of Melbourne|University of Melbourne|Orygen Youth Health|University of Melbourne
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adolescence peak age onset mental illness half people ever mental illness experiencing first episode prior 18 years age early onset mental illness significant predictor future episodes however adolescents young adults less likely population whole either seek receive treatment mental illness knowledge attitudes adults adolescents life may affect whether help sought quickly 2007 youth mental health first aid program launched australia aim teach adults work care adolescents skills needed recognise early signs mental illness identify potential mental healthrelated crises assist adolescents get help need early possible paper provides description program initial evaluation outline future directions program evaluated two ways first uncontrolled trial 246 adult members australian public completed questionnaires immediately attending 14 hour course one month later six months later outcome measures recognition schizophrenia depression intention offer confidence offering assistance stigmatising attitudes knowledge adolescent mental health problems also mental health first aid action plan second method evaluation track uptake program including number instructors trained across australia deliver course number courses delivered uptake ymhfa program countries uncontrolled trial found improvements recognition schizophrenia confidence offering help stigmatising attitudes knowledge adolescent mental health problems application mental health first aid action plan results maintained followup first 3 years program total 318 instructors trained deliver course instructors delivered courses 10686 people across states territories australia program also spread canada singapore england spread hong kong sweden china near future initial evaluation suggests youth mental health first aid course improves participants knowledge attitudes helping behaviour program spread successfully nationally internationally actrn12609000033246
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https://doi.org/10.1542/peds.2014-0395
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Dana K. Voelker|Justine J. Reel|Christy Greenleaf
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Weight status and body image perceptions in adolescents: current perspectives
| 2,015 |
University of North Carolina Wilmington|Wilmington College|West Virginia University|University of Wisconsin–Milwaukee
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adolescence represents pivotal stage development positive negative body image many influences exist teen years including transitions eg puberty affect ones body shape weight status appearance weight status exists along spectrum obese ie ones body weight 95th percentile age gender underweight salient influences body image include media target adolescents peers help shape beliefs perceived body ideal internalization pressures conform socially prescribed body ideals help explain associations weight status body image concepts fat talk weightrelated bullying adolescence greatly contribute overemphasis body weight appearance well development negative body perceptions dissatisfaction surrounding specific body parts article provides overview significance adolescent development shaping body image relationship body image adolescent weight status consequences negative body image adolescence ie disordered eating eating disorders dysfunctional exercise practical implications promoting healthy weight status positive body image among adolescents discussed
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https://doi.org/10.1037/a0018982
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Simon Rice|Rosemary Purcell|Patrick D. McGorry
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Adolescent and Young Adult Male Mental Health: Transforming System Failures Into Proactive Models of Engagement
| 2,018 |
University of Melbourne|Orygen Youth Health|University of Melbourne|Orygen Youth Health|University of Melbourne|Orygen Youth Health
|
adolescent young adult men poorly indicators mental health evidenced elevated rates suicide conduct disorder substance use interpersonal violence relative female peers data global health burden clearly demonstrate young men markedly distinct health risk profile young women underscoring different prevention intervention needs evidence indicates boys disconnect healthcare services adolescence marking beginning progression healthcare disengagement associated barriers care including presenting services differently experiencing inadequate poorly attuned clinical response needing overcome pervasive societal attitudes selfstigma access available services review synthesizes key themes related mental ill health adolescent boys young adult men key social determinants discussed including mental health literacy selfstigma shame masculinity nosology diagnosis service acceptability call made focused development policy theory evaluation targeted interventions population including gendersynchronized service model reform training staff including ehealth domain progress expected yield significant social economic benefits including reduction mental ill health interpersonal violence displayed adolescent boys young adult men
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https://doi.org/10.1177/0022219409359345
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Megan S. Dunbar|Mi?Suk Kang Dufour|Barrot H. Lambdin|Imelda Mudekunye-Mahaka|Definate Nhamo|Nancy Padian
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The SHAZ! Project: Results from a Pilot Randomized Trial of a Structural Intervention to Prevent HIV among Adolescent Women in Zimbabwe
| 2,014 |
Pangaea Global AIDS Foundation|San Francisco AIDS Foundation|University of California, San Francisco|Pangaea Global AIDS Foundation|Zimbabwe AIDS Network|Zimbabwe AIDS Network
|
adolescent females zimbabwe high risk hiv acquisition shaping health adolescents zimbabwe shaz randomized controlled trial combined intervention package including lifeskills health education vocational training microgrants social supports compared lifeskills health education alone shaz originally envisioned larger effectiveness trial however intervention scaled back due contextual economic conditions country time shaz enrolled 315 participants randomly assigned study arm within blocks 50 participants 158 intervention 157 control intervention arm participants showed statistically significant differences control arm participants several outcomes two years follow including reduced food insecurity ior 083 vs cor 068 p002 income ior 205 vs cor 167 p 002 additionally within intervention arm lower risk transactional sex ior 064 95 ci 050 083 higher likelihood using condom current partner ior 179 95 ci 123 262 time compared baseline also evidence fewer unintended pregnancies among intervention participants hr 061 95 ci 037 101 although relationship achieved marginal statistical significance several important challenges study included coordination vocational training programs political economic instability area time study difficulty creating true standard care control arm overall results shaz study suggest important potential hiv prevention intervention packages include vocational training microgrants lessons economic livelihoods interventions adolescent females work needed refine intervention model test impact intervention scale biological outcomesclinicaltrialsgov nct02034214
|
https://doi.org/10.1007/s11145-012-9401-8
|
Lorraine Gutiérrez|Hyun Joo Oh|Mary Rogers Gillmore
|
Toward an Understanding of (Em)Power(Ment) for HIV/AIDS Prevention with Adolescent Women
| 2,000 |
University of Michigan–Ann Arbor|Georgia State University|University of Washington
|
adolescent females particularly urban lowincome youth color particular risk hiv infection article uses empowerment perspective consider degree intrapersonal interpersonal power dynamics heterosexual relations impact condom use among highrisk youth participants study 333 african american european american urban youth ages 1419 years heterosexually active measures focused interpersonal intrapersonal factors thought associated condom use model useful predicting condom use among women least useful predicting condom use among male participants implications empowerment theory future research discussed
|
https://doi.org/10.1186/1471-2458-9-214
|
Karen Austrian|Erica Soler?Hampejsek|Jere R. Behrman|Jean Digitale|Natalie Hachonda|Maximillian Bweupe|Paul C. Hewett
|
The impact of the Adolescent Girls Empowerment Program (AGEP) on short and long term social, economic, education and fertility outcomes: a cluster randomized controlled trial in Zambia
| 2,020 |
British Council|University of Pennsylvania|University of California, San Francisco|National HIV/AIDS/STI/TB Council|Ministry of Health|Population Council
|
adolescent girls zambia face risks vulnerabilities challenge healthy development young women early marriage childbearing sexual genderbased violence unintended pregnancy hiv adolescent girls empowerment program agep designed address challenges building girls social health economic assets short term improving sexual behavior early marriage pregnancy education longer term twoyear intervention included weekly mentorled girls group meetings health life skills financial education additional intervention components included health voucher redeemable general wellness reproductive health services adolescentfriendly savings accounta clusterrandomizedcontrolled trial longitudinal observations evaluated impact agep key indicators immediately two years program end baseline data collected nevermarried adolescent girls 120 intervention clusters 3515 girls 40 control clusters 1146 girls two four years later intenttotreat analysis assessed impact agep girls social health economic assets sexual behaviors education fertility outcomes treatmentonthetreated analysis using twostage instrumental variables regression also conducted assess program impact participatedthe intervention modest positive impacts sexual reproductive health knowledge two four years financial literacy two years savings behavior two four years selfefficacy four years transactional sex two four years effect agep primary education fertility outcomes norms regarding gender equity acceptability intimate partner violence hiv knowledgealthough intervention led sustained change small number individual outcomes overall intervention lead girls acquiring comprehensive set social health economic assets change educational fertility outcomes important explore additional interventions may needed vulnerable girls particularly address household economic conditions additional attention given social economic environment girls livingisrctn29322231 trial registration date march 04 2016 retrospectively registered
|
https://doi.org/10.2196/jmir.1148
|
Samikshya Poudel|Nawaraj Upadhaya|Resham Bahadur Khatri|Pramesh Raj Ghimire
|
Trends and factors associated with pregnancies among adolescent women in Nepal: Pooled analysis of Nepal Demographic and Health Surveys (2006, 2011 and 2016)
| 2,018 |
University of Queensland|Western Sydney University
|
adolescent pregnancy significant cost mother newborn family society despite enormous health social impact adolescent pregnancy dearth nationally representative studies factors associated adolescent pregnancies nepal therefore study aimed examine trends factors associated adolescent pregnancies nepal using pooled data three nationally representative demographic surveysdata study derived recent three consecutive 2006 2011 2016 nepal demographic health surveys ndhs total 7788 adolescent women aged 1519 years included analysis trends multivariable logistic regression analysis performed examine factors associated adolescent pregnancyover study period 20062016 rate adolescent pregnancy 173 95 confidence interval ci 159 188 per 1000 women aged 1519 years adolescent pregnancy significantly higher among woman middle household wealth index adjusted odds ratio aor 219 95 confidence interval ci 165 291 poor household wealth index aor 237 95 ci 176 321 similarly dalit aor 187 95 ci 150 234 madhesi aor 167 95 ci 132 211 unemployed aor 128 95 ci 109 150 women higher odds adolescent pregnancies contrast adolescent pregnancy significantly lower among educated women aor 060 95 ci 048 074 women access media exposure public health issues aor 075 95 ci 064 088access media exposure public health issues effective efforts reduce adolescent pregnancy women low maternal education low wealth index unemployed ethnic groups dalits madeshi needs targeted designing implementing policies programs
|
https://doi.org/10.1016/j.gerinurse.2010.03.005
|
Stephanie Peña-Alves|Kathryn Greene|Anne E. Ray|Shannon D. Glenn|Michael L. Hecht|Smita C. Banerjee
|
“Choose Today, Live Tomorrow”: A Content Analysis of Anti-Substance Use Messages Produced by Adolescents
| 2,019 |
Rutgers, The State University of New Jersey|Rutgers, The State University of New Jersey|Rutgers, The State University of New Jersey|Rutgers, The State University of New Jersey|Real Prevention (United States)|Memorial Sloan Kettering Cancer Center
|
adolescentproduced antisubstance use messaging increasingly popular effective prevention strategy however little known content messages production elements adolescents use bring content life article present content analysis 95 antisubstance use messages developed 4h club members across nine us states part participation media literacy program real media posters videos contentanalyzed target substance prevention goal message form message content persuasion strategies production elements results content analysis revealed combustible tobacco smoking popular target substance sample among choices alcohol marijuana ecigarettes chewing tobacco youth developed messages goal preventing substance use rather stopping current use slogans used majority messages nearly messages took informational form rather narrative statistical form persuasion strategies covered curriculum including fun group unexpected style endorsement scantily used finally results showed production value high sample reflected extensive use color variety fonts font sizes implications future media literacy interventions research discussed
|
https://doi.org/10.1146/annurev-publhealth-031816-044628
|
Derek L. Hansen|Holly A. Derry|Paul Resnick|Caroline R. Richardson
|
Adolescents Searching for Health Information on the Internet: An Observational Study
| 2,003 |
University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|HealthMedia (United States)|University of Michigan–Ann Arbor|Ann Arbor VA Medical Center|University of Michigan–Ann Arbor|Health Services Research & Development
|
adolescents access health information internet partly function ability search find answers healthrelated questions adolescents may unique health computer literacy needs although many surveys interviews focus groups utilized understand informationseeking informationretrieval behavior adolescents looking health information online unable locate observations individual adolescents conducted contextthis study designed understand adolescents search health information using internet implications may access health informationa convenience sample 12 students age 1217 years 1 middle school 2 high schools southeast michigan provided 6 healthrelated questions asked look answers using internet researchers recorded 68 specific searches using software captured screen images well synchronized audio recordings recordings reviewed later specific search techniques strategies coded qualitative review verbal communication also performedout 68 observed searches 47 69 successful adolescent found correct useful answer health question majority sites students attempted access retrieved directly search engine results 77 search engines recommended links 10 small percentage directly accessed 5 linked another site 7 majority 83 followed links search engine results came first 9 results incorrect spelling 30 132 search terms number pages visited within site ranging 115 overall search strategy eg using search engine versus directly accessing site important determinants success qualitative analysis revealed participants used trialanderror approach formulate search strings scanned pages randomly instead systematically consider source content searching health informationthis study provides useful snapshot current adolescent searching patterns results implications constructing realistic simulations adolescent search behavior improving distribution usefulness web sites health information relevant adolescents enhancing educators knowledge specific pitfalls students likely encounter
|
https://doi.org/10.1186/s12939-016-0296-x
|
Alireza Jafari|Seyedeh Belin Tavakoly Sany|Nooshin Peyman
|
The Status of Health Literacy in Students Aged 6 to 18 Old Years: A Systematic Review Study
| 2,021 |
Gonabad University of Medical Sciences|Mashhad University of Medical Sciences|Mashhad University of Medical Sciences
|
adolescents children core target population health literacy hl studies practice limited knowledge regarding hl skills abilities help young people children making health decisions study aimed evaluate status hl ongoing school studentsliterature searching performed using nine databases web science pubmed scopus google scholar iranmedex magiran scientific information database without restriction time january 2019 database searches supplemented reference hand searches gray literature crosssectional experimental studies focuses validated measures hl ongoing students includedthis systematic review identified 17 studies 199714 samples specifically studied ongoing school students aged 618 years students mothers moderate level hl four dimensions menstrual health physical activity breast selftest iron deficiency anemia high level hl terms nutrition relationship hl health outcomes health promotion behaviors selfefficacy selfmutilating behaviors selfcare abilities statistically significant hl status related parents education level socioeconomic determinants culture family income environmental contextual factors age groups mediadigital communication channelsthis review identified seven main determinates significantly affect hl status target group systematic review shows ongoing school students inadequate level hl skills hl strategies potential impact improving students health behaviors life quality
|
https://doi.org/10.1097/md.0000000000010110
|
Ralph J. DiClemente|Gina M. Wingood|Catlainn Sionéan|Richard A. Crosby|Kathy Harrington|Susan L. Davies|Edward W. Hook|M. Kim Oh
|
Association of Adolescents’ History of Sexually Transmitted Disease (STD) and Their Current High-Risk Behavior and STD Status
| 2,002 |
Emory University|Emory University|Centers for Disease Control and Prevention|Emory University|Emory University|University of Alabama|University of Alabama
|
adolescents high risk sexually transmitted disease stdhiv infection one vulnerable subgroup african american females association adolescents previous experience std recent sexual risk behaviors illdefinedthe goal examine associations adolescents selfreported history std diagnosis current sexual risk behaviors prevention knowledge attitudes std infection statusthis crosssectional survey recruitment sites lowincome neighborhoods birmingham alabama characterized high rates unemployment substance abuse violence stds participants sexually active adolescent females n 522 14 18 years age information std history current sexual behaviors within 30 days assessment collected facetoface interviews less sensitive topics std prevention knowledge attitudes condom use perceived barriers condom use addressed via selfadministered survey dna amplification vaginal swab specimens provided adolescents performed determine current std status outcomes associated past std diagnosis determined means logistic regression calculate adjusted odds ratios aors presence observed covariatestwentysix percent adolescents reported ever std diagnosed although past std diagnosis associated increased std prevention knowledge associated increased motivation use condoms compared adolescents never std adolescents history diagnosed std likely report using condom recent intercourse aor 254 95 ci 164393 00001 recent unprotected vaginal intercourse aor 179 95 ci 115279 0010 inconsistent condom use aor 227 95 ci 146351 0001 sexual intercourse drinking alcohol aor 209 95 ci 133328 0001 unprotected intercourse multiple partners aor 329 95 ci 109989 0034 past std diagnosis associated increased risk current biologically confirmed gonorrhea trichomoniasis aor 248 95 ci 109523 0030 aor 205 95 ci 118359 0011 respectively past std diagnosis significantly associated increased risk current biologically confirmed chlamydia aor 078 95 ci 045137 038among sample female adolescents past std diagnosis indicator current highrisk sexual activity increased risk two common stds gonorrhea trichomoniasis although adolescents may gain factual knowledge experience std diagnosed applying knowledge current sexual behaviors thus adolescents remain risk subsequent std infection therefore findings suggest need intensify clinicbased prevention efforts directed toward adolescents history stds strategy reducing stdassociated risk behaviors consequently likelihood new std infections
|
https://doi.org/10.1016/j.jpainsymman.2018.06.007
|
Dilara Ceylan|Feyza Nur Akan Çelen|Seçil Özkan|Zehra Aycan
|
Promoting adolescent health: health literacy, self-efficacy and internet use
| 2,022 |
Office of Adolescent Health
|
adolescents mostly considered healthy population however failure acquire positive health behaviors period makes vulnerable poor health outcomes longterm chronic disorders health literacy one influential parameters promoting adolescent health study aimed determine level promoters health literacy adolescents emphasize importance internet use evaluate relationship selfefficacy health literacya total 756 adolescents aged 15 18 years attending two high schools socioeconomically different districts ankara turkey included crosssectional study survey consisting descriptive questions health literacy survey general selfefficacy scale used collect data p 005 considered statistically significantamong adolescents participated study level health literacy inadequatelimited 561 sufficient 301 excellent 138 statistically significant correlation found health literacy general selfefficacy levels r 412 p 0001 also statistically significant difference health literacy groups terms education level adolescents mothers internet use frequency selfefficacy level multivariate logistic regression analysis revealed participants whose mothers received primary school education formal education using internet regularly search health information internet poor selfefficacy levels likely inadequate level health literacy odds ratio or26 95 confidence interval ci1449 or55 95 ci12251 or17 95 ci1129 or37 95 ci26 52 respectivelyin study concluded adolescents health literacy general selfefficacy levels related furthermore health literacy level adolescents associated internet use maternal education status
|
https://doi.org/10.1111/jgs.16129
|
Paul C. Hewett|Karen Austrian|Erica Soler?Hampejsek|Jere R. Behrman|Fiammetta Bozzani|Natalie A. Jackson-Hachonda
|
Cluster randomized evaluation of Adolescent Girls Empowerment Programme (AGEP): study protocol
| 2,017 |
Population Council|British Council|Population Council|University of Pennsylvania|London School of Hygiene & Tropical Medicine|National HIV/AIDS/STI/TB Council
|
adolescents less developed countries zambia often face multifaceted challenges achieving successful transitions adolescence early adulthood literature noted need introduce interventions period particularly adolescent girls perspective investments significant economic social health returns society adolescent girls empowerment programme agep intervention designed catalyst change adolescent girls family community agep multisectoral intervention targeting 10000 vulnerable adolescent girls ages 1019 rural urban areas four ten provinces zambia core agep mentorled weekly girls group meetings 20 30 adolescent girls participating two years three curricula sexual reproductive health lifeskills financial literacy nutrition guided meetings engaging participatory pedagogical approach used two additional program components health voucher bank account offered girls provide direct mechanisms improve access health financial services embedded within agep rigorous multiarm randomised cluster trial randomization different combinations programme arms study powered assess impact across set key longerterm outcomes including early marriage first birth contraceptive use educational attainment acquisition hiv hsv2 baseline behavioural surveys biological specimen collection initiated 2013 impact evaluated immediately program ended 2015 evaluated two additional years followup 2017 primary analysis intenttotreat qualitative data collected 2013 2015 2017 inform programme implementation quantitative findings economic evaluation evaluate incremental costeffectiveness component intervention agep program embedded evaluation provide detailed information regarding interventions adolescent girls developing country settings provide rich information data source adolescent girls related findings inform policymakers health professionals donors stakeholders isrctn29322231 march 04 2016 retrospectively registered
|
https://doi.org/10.1016/j.jpainsymman.2018.05.016
|
Webster Mavhu|Nicola Willis|Juliet Mufuka|Sarah Bernays|Maureen Tshuma|Collin Mangenah|Hendramoorthy Maheswaran|Walter Mangezi|Tsitsi Apollo|Ricardo Araya|Helen A. Weiss|Frances M. Cowan
|
Effect of a differentiated service delivery model on virological failure in adolescents with HIV in Zimbabwe (Zvandiri): a cluster-randomised controlled trial
| 2,020 |
Liverpool School of Tropical Medicine|Centre for Sexual Health and HIV AIDS Research|Centre for Sexual Health and HIV AIDS Research|London School of Hygiene & Tropical Medicine|University of Sydney|Centre for Sexual Health and HIV AIDS Research|Centre for Sexual Health and HIV AIDS Research|University of Liverpool|University of Zimbabwe|Ministry of Health and Child Welfare|King's College London|London School of Hygiene & Tropical Medicine|Liverpool School of Tropical Medicine|Centre for Sexual Health and HIV AIDS Research
|
adolescents living hiv face challenges wellbeing antiretroviral therapy adherence poor treatment outcomes aimed evaluate peerled differentiated service delivery intervention hiv clinical psychosocial outcomes among adolescents hiv zimbabwe16 public primary care facilities clusters two rural districts zimbabwe bindura shamva randomly assigned 11 provide enhanced hiv care support zvandiri intervention group standard hiv care control group adolescents aged 1319 years hiv eligible clinics least 20 adolescents preart art registers geographically separated least 10 km minimise contamination adolescents eligible inclusion living hiv registered hiv care one trial clinics either starting already art exclusion criteria physically unwell attend clinic bedridden psychotic unable give informed assent consent adolescents hiv clinics received adherence support adult counsellors intervention clinics adolescents hiv assigned community adolescent treatment supporter attended monthly support group received text messages calls home visits clinicbased counselling implementation intensity differentiated according adolescents hiv vulnerability reassessed every 3 months caregivers invited support group primary outcome proportion adolescents died viral load least 1000 copies per l 96 weeks indepth qualitative data collected analysed thematically trial registered pan african clinical trial registry number pactr201609001767322between aug 15 2016 march 31 2017 500 adolescents hiv enrolled four excluded group assignment owing testing hiv negative remaining 496 adolescents 212 recruited zvandiri intervention sites 284 control sites enrolment median age 15 years iqr 1417 52 adolescents female 81 orphans 47 viral load least 1000 copies per l 479 97 primary outcome data endline including 28 died 96 weeks 52 25 209 adolescents zvandiri intervention group 97 36 270 adolescents control group hiv viral load least 1000 copies per l died adjusted prevalence ratio 058 95 ci 036094 p003 qualitative data suggested multiple intervention components acted synergistically improve relational context adolescents hiv live supporting improved adherence adverse events judged related study procedures severe adverse events 28 deaths 17 zvandiri intervention group 11 control group 57 admissions hospital 20 zvandiri intervention group 37 control grouppeersupported communitybased differentiated service delivery substantially improve hiv virological suppression adolescents hiv scaled reduce high rates morbidity mortalitypositive action adolescents program viiv healthcare
|
https://doi.org/10.1186/s13063-015-1055-9
|
Kolab Chhim|Gitau Mburu|Sovannary Tuot|Ratana Sopha|Vohith Khol|Pheak Chhoun|Siyan Yi
|
Factors associated with viral non-suppression among adolescents living with HIV in Cambodia: a cross-sectional study
| 2,018 |
Lancaster University|National Center for HIV/AIDS, Dermatology and STD|National University Health System|National University of Singapore
|
adolescents living hiv antiretroviral therapy art worse treatment adherence viral suppression mortality rates compared adults study investigated factors associated viral nonsuppression among adolescents living hiv cambodiaa crosssectional study conducted august 2016 among 328 adolescents living hiv aged 1517 years randomly selected 11 art clinics capital city phnom penh 10 provinces clinical immunological data including cd4 count viral load obtained medical records art clinics adolescents categorized achieved viral suppression latest viral load count 1000 ribonucleic acid rna copiesml multivariate logistic regression analysis performed identify factors independently associated viral nonsuppressionthe mean age participants 159 years sd 08 485 female median duration art 86 interquartile range 60106 years total 768 participants achieved viral suppression adjustment covariates likelihood viral nonsuppression remained significantly lower among adolescents olderaged 17 aor 046 95 ci 021098 art 9 years aor 035 95 ci 019064 recent cd4 count 672 aor 047 95 ci 026086 relative main daily caregiver aor 037 95 ci 017080 believe cure aids aor 040 95 ci 021075 compared reference group likelihood viral nonsuppression also remained significantly higher among adolescents first viral load 628 rna copiesml aor 181 95 ci 105408 among receiving hiv care treatment adult clinic aor 295 95 ci 156559the proportion adolescents living hiv viral suppression study relatively high 768 falls short global target 90 programs targeting younger adolescents adolescents transition pediatric adult care range interventions including psychosocial support treatment literacy could improve viral suppression outcomes
|
https://doi.org/10.1001/jamainternmed.2013.180
|
Ross E. O’Hara|Frederick X. Gibbons|Zhigang Li|Meg Gerrard|James D. Sargent
|
Specificity of early movie effects on adolescent sexual behavior and alcohol use
| 2,013 |
Dartmouth College|Dartmouth College|Dartmouth College|Dartmouth College|Dartmouth College
|
adolescents movie sex exposure mse movie alcohol exposure mae shown influence later sexual behavior drinking respectively study date however tested whether effects generalize across behaviors study examined concurrent influences early ie age 16 mse mae subsequent risky sex alcohol use among national sample 1228 us adolescents participants reported health behaviors movie viewing six times 2003 2009 telephone interviews beach method used create populationbased estimate participants mse mae entered structural equation model sem predict lifetime risky sex past month alcohol use ages 1821 men women mae predicted alcohol use mediated age initiation heavy episodic drinking hed age sexual debut mae also predicted risky sex via age sexual debut among men mse indirectly predicted risky sex alcohol use findings indicated early exposure risk content movies specific general effects later risktaking gender differences evident men mse stronger predictor mae women mae predicted later risk behavior results implications future media research prevention programs adolescent sex alcohol use movie ratings guide parents decisions movies appropriate children
|
https://doi.org/10.1001/jamainternmed.2018.4657
|
Katie Dredger|Daniel Woods|Crystal L. Beach|Victoria Sagstetter
|
Engage Me: Using New Literacies to Create Third Space Classrooms that Engage Student Writers
| 2,010 |
Virginia Tech|Virginia Tech|Virginia Tech|Virginia Tech
|
adolescents use wide variety literacy practices daily livespreservice teachers study looked ways motivate students write asking inschool outofschool writing practicesthis survey shows gap motivates students write school write schoolthe results suggest english teachers forge third space outofschool literacy practices integrated curriculumthis survey provides insights improving writing pedagogy regards students expressed desire communicate express involved
|
https://doi.org/10.1177/0269216315586659
|
Melina A. Throuvala|Mark D. Griffiths|Mike Rennoldson|Daria J. Kuss
|
School-based Prevention for Adolescent Internet Addiction: Prevention is the Key. A Systematic Literature Review
| 2,019 |
Nottingham Trent University|Nottingham Trent University|Nottingham Trent University|Nottingham Trent University
|
adolescents media use represents normative need information communication recreation functionality yet problematic internet use increased given arguably alarming prevalence rates worldwide increasingly problematic use gaming social media need integration prevention efforts appears timely aim systematic literature review identify schoolbased prevention programmes protocols internet addiction targeting adolescents within school context examine programmes effectiveness ii highlight strengths limitations best practices inform design new initiatives capitalizing studies recommendations findings reviewed studies date presented mixed outcomes need empirical evidence current review identified following needs addressed future designs define clinical status internet addiction ia precisely ii use current psychometrically robust assessment tools measurement effectiveness based recent empirical developments iii reconsider main outcome internet time reduction appears problematic iv build methodologically sound evidencebased prevention programmes v focus skill enhancement use protective harmreducing factors vi include ia one risk behaviours multirisk behaviour interventions appear crucial factors addressing future research designs formulation new prevention initiatives validated findings could inform promising strategies ia gaming prevention public policy education
|
https://doi.org/10.2196/humanfactors.3842
|
H. Shonna Yin|Benard P. Dreyer|Donna C. Ugboaja|Dayana C. Sanchez|Ian M. Paul|Hannah A. Moreira|L. F. Rodríguez|Alan L. Mendelsohn
|
Unit of Measurement Used and Parent Medication Dosing Errors
| 2,014 |
Bellevue Hospital Center|New York University|Bellevue Hospital Center|New York University|Bellevue Hospital Center|New York University|Bellevue Hospital Center|New York University|Pennsylvania State University|Bellevue Hospital Center|New York University|Woodhull Medical and Mental Health Center|New York University|Bellevue Hospital Center|New York University
|
adopting milliliter preferred unit measurement suggested strategy improve clarity medication instructions teaspoon tablespoon units may inadvertently endorse nonstandard kitchen spoon use examined association unit used parent medication errors whether nonstandard instruments mediate relationshipcrosssectional analysis baseline data larger study provider communication medication errors english spanishspeaking parents n 287 whose children prescribed liquid medications 2 emergency departments enrolled medication error defined error knowledge prescribed dose error observed dose measurement compared intended prescribed dose 20 deviation threshold error multiple logistic regression performed adjusting parent age language country raceethnicity socioeconomic status education health literacy short test functional health literacy adults child age chronic disease sitemedication errors common 394 parents made error measurement intended dose 411 made error prescribed dose furthermore 167 used nonstandard instrument compared parents used milliliteronly parents used teaspoon tablespoon units twice odds making error intended 425 vs 276 p 02 adjusted odds ratio23 95 confidence interval 1244 prescribed 451 vs 314 p 04 adjusted odds ratio19 95 confidence interval 10335 dose associations greater parents low health literacy nonenglish speakers nonstandard instrument use partially mediated teaspoon tablespoonassociated measurement errorsfindings support milliliteronly standard reduce medication errors
|
https://doi.org/10.1161/circheartfailure.119.006058
|
Frances L. Lynch|Ruth H. Striegel?Moore|John F. Dickerson|Nancy Perrin|Lynn DeBar|G. Terence Wilson|Helena C. Kraemer
|
Cost-effectiveness of guided self-help treatment for recurrent binge eating.
| 2,010 |
Kaiser Permanente Center for Health Research|Wesleyan University|Kaiser Permanente Center for Health Research|Kaiser Permanente Center for Health Research|Kaiser Permanente Center for Health Research|Rutgers, The State University of New Jersey|Stanford University
|
adoption effective treatments recurrent bingeeating disorders depends balance costs benefits using data recent randomized controlled trial conducted incremental costeffectiveness analysis cea cognitivebehavioral therapy guided selfhelp intervention cbtgsh treat recurrent binge eating compared treatment usual tauparticipants 123 adult members hmo mean age 372 years 919 female 967 nonhispanic white met criteria eating disorders involving binge eating measured eating disorder examination c g fairburn z cooper 1993 participants randomized either treatment usual tau tau plus cbtgsh clinical outcomes bingefree days qualityadjusted life years qalys total societal cost estimated using costs patients health plan related costscompared receiving tau received tau plus cbtgsh experienced 252 bingefree days lower total societal costs 427 12 months following intervention incremental cea ratio 2023 per bingefree day 26847 per qaly lower costs tau plus cbtgsh group due reduced use tau services group resulting lower net costs tau plus cbt group despite additional cost cbtgshfindings support cbtgsh dissemination recurrent bingeeating treatment
|
https://doi.org/10.1111/j.1467-7687.2008.00675.x
|
Daryl F. Mellard|Emily C. Fall|Kari L. Woods
|
A Path Analysis of Reading Comprehension for Adults With Low Literacy
| 2,010 |
University of Kansas|University of Kansas|University of Kansas
|
adult literacy interventions often rely models reading validated children adult populations broad range reading abilities models fully satisfy need intervention research development adults low literacy thus authors hypothesized model representing relationship reading component skills would predictive reading comprehension adult population low literacy beneficial adult literacy researchers using data 174 adults participating adult basic education secondary education programs authors performed path analysis component skills contribution reading comprehension findings clear existing reading models describe population implications discussed terms instructional curricular interventions
|
https://doi.org/10.1371/journal.pone.0224593
|
Daphne Greenberg|Justin C. Wise|Jan C. Frijters|Robin D. Morris|Laura D. Fredrick|Victoria Rodrigo|Ryan Hall
|
Persisters and nonpersisters: Identifying the characteristics of who stays and who leaves from adult literacy interventions
| 2,012 |
Georgia State University|Oglethorpe University|Brock University|Georgia State University|Georgia State University|Georgia State University|Georgia State University
|
adult literacy programs characterized high attrition rates rigorous exploration student persistence adult reading classes lacking study attempt understand profiles adults completed reading classes compared group adults made midpoint group adults make midpoint students offered 100 h instruction 395 students attended first day class 198 completed program results indicated english language status age reading related skills class assignment avoidance reading previous adult education experience women infants children wic benefit receipt variables significantly predicted persistence significance predictors varied based analyzing midpoint completion full completion explore characteristics sample representative participants selected group make midpoint group completed program results indicated representative members two groups differed english language status gender age reading related skills information access
|
https://doi.org/10.1371/journal.pone.0284843
|
Magzoub Toar|Kirsty K O'Brien|Tom Fahey
|
Comparison of self-reported health & healthcare utilisation between asylum seekers and refugees: an observational study
| 2,009 |
Royal College of Surgeons in Ireland|Royal College of Surgeons in Ireland|Royal College of Surgeons in Ireland
|
adult refugees asylum seekers living western countries experience high prevalence mental health problems especially post traumatic stress disorder ptsd depression anxiety study compares contrasts prevalence health problems potential risk factors well utilisation health services asylum seekers refugees irish contextcross sectional study using validated self reported health status questionnaires adult asylum seekers n 60 refugees n 28 30 countries living ireland outcome measures included general health status sf36 presence ptsd symptoms anxietydepression symptoms data chronic conditions pre post migration stressors also reported two groups compared utilisation health care system use counter medicationsasylum seekers significantly likely refugees report symptoms ptsd 63 95 ci 22179 depressionanxiety 58 95 ci 22154 significant difference found selfreported general health adjusted multivariable regression presence one chronic disease 40 95ci 13127 34 95 ci 12101 high levels pre migration stressors 36 95 ci 11119 33 95 ci 10104 post migration stressors 173 95 ci 49608 39 95 ci 12123 independent predictors self reported ptsd depressionanxiety symptoms respectively however residence status longer significantly associated ptsd depressionanxiety residence status may act marker explanatory variables results show strong relationship post migration stressors chi2 1974 df 1 p 0001in terms health care utilisation asylum seekers use gp services often refugees significant difference found groups use dentists medication hospitalisation mental health servicesasylum seekers higher level self reported ptsd depressionanxiety symptoms compared refugees however residence status appears act marker post migration stressors compared refugees asylum seekers utilise gp services often mental health services
|
https://doi.org/10.3389/fped.2018.00258
|
Nancy Atkinson|Sandra L. Saperstein|Sharon M. Desmond|Robert S. Gold|Amy Billing|Jing Tian
|
Rural eHealth Nutrition Education for Limited-Income Families: An Iterative and User-Centered Design Approach
| 2,009 |
University of Maryland, College Park|University of Maryland, College Park|Dean College|University of Maryland, College Park|University of Maryland, Baltimore
|
adult women living rural areas high rates obesity although rural populations deemed hard reach internetbased programming becoming viable strategy rural internet access increases however people able get online may find information designed needs especially harder reach populations results content gap many usersusercentered design methodology used create appropriate online materials research conducted apply usercentered approach design development health promotion website lowincome mothers living rural marylandthree iterative rounds concept testing conducted 1 identify name content needs site assess concerns registering healthrelated website 2 determine tone look website confirm content functionality 3 determine usability acceptability first two rounds involved focus group small group discussions third round involved usability testing individual women used prototype systemthe formative research revealed women limited incomes enthusiastic website providing nutrition physical activity information targeted incomes tailored personal goals needs priority content areas identified budgeting local resources information content could used children women able use prototype system effectivelythis research demonstrated usercentered design strategies help close content gap atrisk audiences
|
https://doi.org/10.1158/1055-9965.epi-22-0542
|
Kathleen Bobay|Teresa Jerofke|Marianne Weiss|Olga Yakusheva
|
Age-Related Differences in Perception of Quality of Discharge Teaching and Readiness for Hospital Discharge
| 2,010 | null |
adults aged 65 older account one third hospitalizations united states1 almost one fifth 196 medicare beneficiaries discharged acute care hospital readmitted within 30 days2 high readmission rates attributed inadequate discharge preparation lack patient family caregiver readiness poor discharge transition coordination unsuccessful coping demands daily living3 4 5 6 7 8 9 discharge needs may different older adults general population increased likelihood multiple comorbidities illnessinduced limitations impaired mobility fatigue anxiety cognitive impairment hearing impairments health literacy deficits living alone7 8 10 11 12 purpose study investigate differences perceptions quality discharge teaching readiness hospital discharge relationship postdischarge utilization emergency department ed visits readmissions across older adult age spectrum particular interest applicability quality discharge teaching discharge readiness assessment tools older adult population
|
https://doi.org/10.1145/3290605.3300587
|
Anna Zajacova|Elizabeth Lawrence
|
The Relationship Between Education and Health: Reducing Disparities Through a Contextual Approach
| 2,018 |
Western University|University of Nevada, Las Vegas
|
adults higher educational attainment live healthier longer lives compared less educated peers disparities large widening posit understanding educational macrolevel contexts association occurs key reducing health disparities improving population health article briefly review critically assess current state research relationship education health united states outline three directions research extend conceptualization education beyond attainment demonstrate centrality schooling process health highlight dual role education driver opportunity also reproducer inequality explain central role specific historical sociopolitical contexts educationhealth association embedded findings research agenda inform policies effective interventions reduce health disparities improve health americans
|
https://doi.org/10.1038/s41386-020-0761-5
|
Eric Emerson|Chris Hatton|Susannah Baines|Janet Robertson
|
The physical health of British adults with intellectual disability: cross sectional study
| 2,016 |
Lancaster University|Lancaster University|Lancaster University|Lancaster University
|
adults intellectual disability poorer health nondisabled peers however little known health hidden majority adults primarily mild intellectual disability use intellectual disability services aims present study estimate physical health status populationbased sample british adults without mild intellectual disability controlling potentially confounding effects resulting betweengroup differences gender age socioeconomic disadvantage neighborhood social capitalsecondary analysis data understanding society new longitudinal study focusing life experiences uk citizens identified 299 participants aged 1649 12 unweighted agerestricted sample intellectual disability 22927 intellectual disability multivariate logistic regression used investigate group differences adjusting potential confounding personal characteristics eg genderunadjusted comparisons indicated british adults intellectual disability markedly poorer health nondisabled peers majority indicators investigated including selfrated health multiple morbidity arthritis cancer diabetes obesity measured grip strength measured lung function polypharmacy adjusting betweengroup differences age gender marginal impact estimates adjusting betweengroup differences socioeconomic disadvantage neighborhood quality marked impact estimates number statistically significant differences reducing 13 8 statistically significant attenuation odds three indicators selfrated health sf12 physical component multiple morbiditythe hidden majority adults primarily mild intellectual disability use intellectual disability services significantly poorer health nondisabled peers may part reflect increased risk exposure well established social determinants poorer health
|
https://doi.org/10.1002/cam4.2005
|
Kelly R. Ylitalo|M. Renée Umstattd Meyer|Beth A. Lanning|Christina During|Ryan Laschober|Jackson O. Griggs
|
Simple screening tools to identify limited health literacy in a low-income patient population
| 2,018 |
Baylor University|Baylor University|Baylor University|Baylor University|Family Healthcare|Health Center|Family Healthcare|Health Center
|
adults limited health literacy difficulty managing chronic conditions higher hospitalization rates healthcare expenditures simple screening tools developed limited work evaluated instruments among lowincome populations study assessed health literacy among primary care patients federally qualified health center compared single screening question perceived difficulty completing medical formsa crosssectional survey administered englishspeaking patients 40 years newest vital sign nvs 6item questionnaire singleitem screening question perceived difficulty completing medical forms assessed health literacy logistic regression used identify predictors inadequate health literacy receiver operator curves compared nvs singleitem questionparticipants n 406 average aged 585 years 113 722 female identified hispaniclatino 192 nonhispanic white 310 nonhispanic black 409 89 406 participants 335 825 completed nvs patients declined nvs likely older p 001 male p 01 137 adequate health literacy older adults hispanic nonhispanic black patients patients missed office visits reporting less confidence completing medical forms significantly likely inadequate health literacy perceived confidence completing medical forms demonstrated low sensitivity high specificity multiple thresholdsthis first investigation compare nvs confidence completing medical forms question many patients declined health literacy assessments health literacy screening may identify patients need additional health education resources
|
https://doi.org/10.1016/j.jcgg.2014.01.005
|
Hillary D. Lum|Deborah E. Barnes|Mary Katen|Ying Shi|John Boscardin|Rebecca L. Sudore
|
Improving a Full Range of Advance Care Planning Behavior Change and Action Domains: The PREPARE Randomized Trial
| 2,018 |
University of Colorado Anschutz Medical Campus|University of Colorado Denver|Geriatric Research Education and Clinical Center|University of California, San Francisco|San Francisco VA Health Care System|University of California, San Francisco|San Francisco VA Health Care System|University of California, San Francisco|San Francisco VA Health Care System|University of California, San Francisco|University of California, San Francisco|San Francisco VA Health Care System
|
advance care planning acp engagement includes wide range behaviors actions related discussions documentation yet acp intervention studies measure full processthe objective study compare effects easytoread advance directive ad versus acp web site plus ad prepare ad behavior change processes actions including discussions documentationsecondary data completed acp trial participants primary care patients 60 years old two comorbidities used validated acp engagement survey examine sixmonth change subscales measuring behavior change processes knowledge contemplation selfefficacy readiness actions decision makers quality life flexibility decision makers asking clinicians questions specifically related discussions documentation used adjusted mixedeffects linear models compare mean change engagement timecompared adonly prepare ad resulted greater increases behavior change processes subscales actions related decision makers quality life flexibility pvalues 0005 interventions significantly increased proportion participants engaged acp discussions prepare ad 995 adonly 933 documentation prepare ad 995 adonly 904 greater increases prepare ad pvalues 0001both prepare plus easytoread ad adonly markedly increased acp engagement full range acp behaviors including discussions documentation engagement nearly 100 prepare ad future acp studies examine full range acp behaviors beyond ads impact prepare easytoread ad implementation health care systems
|
https://doi.org/10.1177/1075547006291990
|
Sarah Nouri|Deborah E. Barnes|Aiesha Volow|Ryan Mcmahan|Margot Kushel|Chengshi Jin|John Boscardin|Rebecca L. Sudore
|
Health Literacy Matters More Than Experience for Advance Care Planning Knowledge Among Older Adults
| 2,019 |
University of California, San Francisco|University of California, San Francisco|San Francisco VA Medical Center|San Francisco VA Medical Center|University of California, San Francisco|University of California, San Francisco|San Francisco General Hospital|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|San Francisco VA Medical Center|University of California, San Francisco|San Francisco General Hospital
|
advance care planning acp engagement low among vulnerable populations including limited health literacy lhl limited knowledge acp may modifiable mediator relationship lhl acp goal determine whether health literacy associated acp knowledgecrosssectional designa public health delivery system veterans affairs medical center san francisco caenglish spanishspeaking patients n 1400acp knowledge assessed seven validated multiplechoice questions health literacy measured using validated scale sociodemographic measures included age sex language education race health status social support prior acp experience defined documented legal forms andor goalsofcare discussions medical record used kruskalwallis tests linear regression examine associations acp knowledge lhl prior acp experience sociodemographic factorsmean age participants 65 10 years 48 women 34 lhl 32 spanish speaking 47 high school education less 70 nonwhite mean 7point knowledge scores lower limited vs adequate health literacy 38 sd 19 vs 55 sd 17 p 001 multivariable analysis acp knowledge scores 10 point lower among lhl 06 points lower among spanish speakers high school education less 05 points lower among individuals nonwhite race p 001 knowledge scores 002 points lower per year older age p 007 001 points higher per point greater social support p 005 prior acp experience associated knowledge adjustment p 7health literacy sociodemographics stronger predictors prior acp experience acp knowledge study suggests providing easytounderstand acp materials paramount offered even patients previous experience acp process j geriatr soc 6721512156 2019
|
https://doi.org/10.1037/a0029897
|
Gerónimo Jiménez|Woan Shin Tan|Amrit Virk|Chan Kee Low|Josip Car|Andy Hau Yan Ho
|
Overview of Systematic Reviews of Advance Care Planning: Summary of Evidence and Global Lessons
| 2,018 |
Singapore Centre for Environmental Life Sciences Engineering|Nanyang Technological University|Singapore Centre for Environmental Life Sciences Engineering|Nanyang Technological University|Singapore Centre for Environmental Life Sciences Engineering|Nanyang Technological University|Nanyang Technological University|Singapore Centre for Environmental Life Sciences Engineering|Nanyang Technological University|Imperial College London|Singapore Centre for Environmental Life Sciences Engineering|Nanyang Technological University
|
advance care planning acp involves important decision making future medical needs highvolume disparate nature acp research makes difficult grasp evidence derive clear policy lessons policymakers cliniciansthe aim study synthesize acp research evidence identify relevant contextual elements program features implementation principles impacted outcomes inform policy practicean overview systematic reviews using cochrane handbook systematic reviews interventions performed study quality assessed using modified version amstar measurement tool assess reviews toolmedline ebm reviews cochrane reviews cinahl global health psycinfo embase searched acprelated research inception database april 2017 searches supplemented gray literature manual searches eighty systematic reviews covering 1660 original articles included analysislegislations institutional policies cultural factors influence acp development positive perceptions toward acp necessarily translate endoflife conversations many factors related patients providers attitudes perceptions toward life mortality influence acp implementation decision making completion limited lowquality evidence points several acp benefits improved endoflife communication documentation care preferences dying preferred place health care savings recurring features make acp programs effective include repeated interactive discussion sessions decision aids interventions targeting multiple stakeholderspreliminary evidence highlights several elements influence acp process provides variety features could support successful effective sustainable acp implementation however evidence compartmentalized limited studies evaluating acp unified program assessing impact acp different populations settings contexts needed develop programs able unleash acps full potential
|
https://doi.org/10.3233/isu-170827
|
Rebecca L. Sudore|Gem M. Le|Ryan Mcmahan|Mariko Feuz|Mary Katen|Deborah E. Barnes
|
The advance care planning PREPARE study among older Veterans with serious and chronic illness: study protocol for a randomized controlled trial
| 2,015 |
University of California, San Francisco|University of California, San Francisco|San Francisco VA Medical Center|San Francisco VA Medical Center|San Francisco VA Medical Center|University of California, San Francisco
|
advance care planning acp process whereby patients prepare medical decisionmaking traditional objective acp focused completion advance directives developed new paradigm acp focused preparing patients loved ones communication informed medical decisionmaking operationalize new paradigm acp created interactive patientcentered website called prepare wwwprepareforyourcareorg designed diverse older adultsthis randomized controlled trial blinded outcome assessment designed determine efficacy prepare engage older veterans acp process veterans 60 years age two medical conditions seen primary care physician two times last year randomized one two study arms prepare study arm reviews prepare website easytoread advance directive control arm reviews advance directive primary outcome documentation advance directive acp discussions clinically important outcomes using validated surveys include acp behavior change process measures knowledge contemplation selfefficacy readiness full range acp action measures identifying surrogate identifying values goals choosing leeway flexibility surrogate communicating clinicians surrogates documenting ones wishes also assess satisfaction decisionmaking veteran activation within primary care visits direct audio recording examine outcomes 1 week 3 months 6 months two study arms use mixed effects linear poisson negative binomial regression mixed effects logistic regressionthis study determine whether prepare increases advance directive completion rates engagement acp process prepare efficacious could prove easy effective intervention help older adults engage acp process within outside medical environment prepare may also help older adults communicate medical wishes goals loved ones clinicians improve medical decisionmaking ensure wishes honored life courseclinicaltrialsgov nct01550731 registered 8 december 2011
|
https://doi.org/10.1007/s11999-014-4071-2
|
Daren K. Heyland
|
Failure to Engage Hospitalized Elderly Patients and Their Families in Advance Care Planning
| 2,013 | null |
advance care planning improve patientcentered care potentially reduce intensification care end lifeto inquire patients advance care planning activities hospitalization preferences care perspectives patients family members well measure realtime concordance expressed preferences care documentation preferences medical recordprospective studytwelve acute care hospitals canadaelderly patients high risk dying next 6 months family membersresponses inperson administered questionnaire concordance expressed preferences orders care documented medical recordof 513 patients 366 family members approached 278 patients 542 225 family members 615 consented participate mean ages patients family members 800 608 years respectively hospitalization patients 763 thought endoflife eol care 119 preferred lifeprolonging care 479 patients completed advance care plan 733 formally named surrogate decision maker health care patients discussed wishes 303 done family physician 553 member health care team agreement patients expressed preferences eol care documentation medical record 302 family members perspectives similar patientsmany elderly patients high risk dying family members expressed preferences medical treatments eol however communication health care professionals documentation preferences remains inadequate efforts reduce significant medical error omission warranted
|
https://doi.org/10.1016/j.evalprogplan.2016.05.005
|
Rebecca L. Sudore|Dean Schillinger|Mary Katen|Ying Shi|W. John Boscardin|Stacy Osua|Deborah E. Barnes
|
Engaging Diverse English- and Spanish-Speaking Older Adults in Advance Care Planning
| 2,018 |
San Francisco General Hospital|University of California, San Francisco|San Francisco VA Health Care System|Northern California Institute for Research and Education|San Francisco General Hospital|University of California, San Francisco|University of California, San Francisco|San Francisco VA Health Care System|Northern California Institute for Research and Education|University of California, San Francisco|San Francisco VA Health Care System|University of California, San Francisco|University of California, San Francisco|San Francisco VA Health Care System|Northern California Institute for Research and Education|San Francisco General Hospital|San Francisco VA Health Care System|University of California, San Francisco
|
advance care planning improves receipt medical care aligned patients values however remains suboptimal among diverse patient populations mitigate literacy cultural language barriers advance care planning easytoread advance directives patientdirected online advance care planning program called prepare care prepare created english spanishto compare efficacy prepare plus easytoread advance directive advance directive alone increase advance care planning documentation patientreported engagementa comparative efficacy randomized clinical trial conducted february 1 2014 november 30 2017 4 safetynet primarycare clinics san francisco among 986 englishspeaking spanishspeaking primary care patients 55 years older 2 chronic serious illnessesparticipants randomized prepare plus easytoread advance directive prepare arm advance directive alone clinicianlevel systemlevel interventions staff blinded followup measurementsthe primary outcome documentation new advance care planning ie legal forms andor documented discussions 15 months patientreported outcomes included advance care planning engagement baseline 1 week 3 months 6 months 12 months using validated surveys intentiontotreat analyses performed using mixedeffects logistic linear regression controlling time health literacy baseline advance care planning clustering physician stratifying languageamong 986 participants 603 women 383 men mean sd age 633 64 years 387 975 397 limited health literacy 445 451 spanish speaking participant characteristic differed 2 groups retention 859 832 969 among survivors compared advance directive alone prepare resulted higher rate advance care planning documentation unadjusted 430 207 481 vs 331 167 505 p 001 adjusted 430 vs 320 p 001 higher selfreported increased advance care planning engagement scores 981 vs 895 p 001 results remained significant among english speakers spanish speakersthe patientfacing prepare program easytoread advance directive without clinicianlevel systemlevel interventions increased documentation advance care planning patientreported engagement statistically higher gains prepare vs advance directive alone tools may mitigate literacy language barriers advance care planning allow patients begin planning could substantially improve process diverse englishspeaking spanishspeaking populationsclinicaltrialsgov identifiers nct01990235 nct02072941
|
https://doi.org/10.1186/s12884-017-1357-x
|
Josie Dixon|Tihana Matoševic|Martín Knapp
|
The economic evidence for advance care planning: Systematic review of evidence
| 2,015 |
London School of Economics and Political Science|London School of Economics and Political Science|London School of Economics and Political Science
|
advance care planning process discussion review concerning future care event losing capacity aimed improving appropriateness quality care also often considered means making better use healthcare resources end lifeto review summarise economic evidence advance care planninga systematic review academic literaturewe searched english language peerreviewed journal articles 19902014 using relevant research databases pubmed proquest cinahl plus full text econlit psycinfo socindex full text international bibliography social sciences empirical studies using statistical methods advance care planning costs variables includedthere published costeffectiveness studies included studies focus healthcare savings usually associated reduced demand hospital care advance care planning appears associated healthcare savings people circumstances people living dementia community people nursing homes areas high endoflife care spending evidence advance care planning likely expensivethere need clearer articulation likely mechanisms advance care planning lead reduced care costs improved costeffectiveness particularly people retain capacity also need consider wider costs including costs advance care planning facilitation interventions costs substitute health social informal care economic outcomes need considered context quality benefits
|
https://doi.org/10.1371/journal.pone.0038819
|
Lauren M. Uhler|Rafael E. Pérez Figueroa|Mark A. Dickson|Lauren McCullagh|André Kushniruk|Helen Monkman|Holly O. Witteman|Negin Hajizadeh
|
InformedTogether: Usability Evaluation of a Web-Based Decision Aid to Facilitate Shared Advance Care Planning for Severe Chronic Obstructive Pulmonary Disease
| 2,015 |
IJ Research (United States)|Northwell Health|Columbia University Irving Medical Center|Ypsilanti District Library|IJ Research (United States)|Northwell Health|University of Victoria|University of Victoria|Université Laval|Centre Hospitalier Universitaire de Québec|IJ Research (United States)|Northwell Health
|
advance care planning may help patients receive treatments better align goals care developed webbased decision aid called informedtogether facilitate shared advance care planning chronic obstructive pulmonary disease copd patients doctorsour objective assess usability informedtogether decision aid including whether users could interact decision aid engage tasks required shared decision making whether users found decision aid acceptable implications redesignwe conducted observational study 15 patients 8 doctors two ethnically socioeconomically diverse outpatient clinics data included quantitative qualitative observations patients doctors using decision aid tablet laptop computers data semistructured interviews patients shown decision aid researcher acting doctor pulmonary doctors observed using decision aid independently asked think aloud ie verbalize thoughts thematic analysis implemented explore key issues related decision aid usabilityalthough patients doctors found informedtogether acceptable would recommend doctors use decision aid copd patients many patients difficulty understanding icon arrays used communicate estimated prognoses could articulate definitions two treatment choicesfull code resuscitate dnr minor usability problems regarding content links layout consistency also identified corresponding recommendations outlined particular participants suggested including information potential changes quality life resulting alternative advance directives doctor participants thought decision aid long thought may cause nervousness among patients due topic areaa decision aid shared advance care planning severe copd found acceptable copd patients doctors however many patient participants demonstrate understanding treatment options prognostic estimates many participants endorsed use decision aid doctors patients copd although desired information quality life design must optimize comprehensibility including revising presentation statistical information icon array feasibility integration clinical workflow including shortening decision aid
|
https://doi.org/10.1021/ed068pa292.2
|
Quan M. Bui|Larry A. Allen|Lisa LeMond|Michela Brambatti|Eric Adler
|
Psychosocial Evaluation of Candidates for Heart Transplant and Ventricular Assist Devices: Beyond the Current Consensus
| 2,019 |
University of California, San Diego|University of Colorado Anschutz Medical Campus|University of Colorado Denver|Mayo Clinic Hospital|University of California, San Diego|University of California, San Diego
|
advanced heart failure therapies including heart transplantation durable mechanical circulatory support available limited number patients scarcity donors expense large burden care importance psychological social determinants health including cognitive status health literacy psychopathology social support medical adherence substance abuse emphasized advanced heart failure amplified context mechanical circulatory support heart transplantation psychosocial assessment advanced heart failure therapy candidates remains largely subjective requiring multidisciplinary evaluation may include psychiatrists social workers case managers financial coordinators pharmacists clinicians objective toolsincluding stanford integrated psychosocial assessment transplantation psychosocial assessment candidates transplantation transplant evaluation rating scalewere developed validated limited populations help standardize evaluation process small retrospective studies inconsistently shown tools may predict clinical outcomes transplant population higherrisk scores associated readmissions rejection episodes infections however difficult show tools predict mortality applicability mechanical circulatory support population less studied international society heart lung transplantation released consensus statement 2018 promote consistency psychosocial evaluation across advanced heart failure programs lacks specific recommendations given current state evidence stateoftheart review expands current consensus critically reviewing current studies supporting available objective assessment tools proposing psychosocial evaluation framework uses multidisciplinary approach offering future directions research
|
https://doi.org/10.1021/ed083p49
|
Stephanie M. Carlson|Andrew N. Meltzoff
|
Bilingual experience and executive functioning in young children
| 2,008 |
University of Washington|University of Washington
|
advanced inhibitory control skills found bilingual speakers compared monolingual controls bialystok 1999 examined whether effect generalized unstudied language group spanishenglish bilingual multiple measures executive function administering battery tasks 50 kindergarten children drawn three language groups native bilinguals monolinguals english english speakers enrolled secondlanguage immersion kindergarten despite significantly lower verbal scores parent educationincome level spanishenglish bilingual childrens raw scores differ peers statistically controlling factors age native bilingual children performed significantly better executive function battery groups importantly relative advantage significant tasks appear call managing conflicting attentional demands conflict tasks advantage impulsecontrol delay tasks results advance understanding generalizability specificity compensatory effects bilingual experience childrens cognitive development
|
https://doi.org/10.1097/ede.0000000000001312
|
Rochelle E. Tractenberg|Melody Wilkinson|Amy Bull|Tiffany Pellathy|Joan B. Riley
|
A developmental trajectory supporting the evaluation and achievement of competencies: Articulating the Mastery Rubric for the nurse practitioner (MR-NP) program curriculum
| 2,019 |
Georgetown University|Georgetown University|Georgetown University|Georgetown University|Georgetown University
|
advanced practice registered nursing aprn competencies exist structure supporting operationalization competencies aprn educators development mastery rubric mr aprns provides developmental trajectory supports educational institutions educators students aprns mr describes explicit knowledge skills abilities performed individual moving novice student graduation aprn careera curriculum development tool mastery rubric mr created structure curriculum career nurse practitioner np mrnp cognitive task analysis cta yielded first three required elements mr list knowledge skills abilities ksas established curriculum european guild structure blooms taxonomy cognitive behaviors provided second element mr specific developmental stages relevant curriculum body work method standard setting used create third required element mr performance level descriptors plds ksa stages although cta informed competencies still necessary formally assess alignment competencies resulting ksas achieved via degrees freedom analysis dofa validity evidence obtained analysis dofa ksas alignment principles andragogy learning outcomes assessment criteria analyses first time national competencies np evaluated mannercta 43 np competencies led seven ksas support developmental trajectory instruction documenting achievement towards independent performance competencies competencies objectively evaluable first time since publication due psychometric validity attributes pldderived developmental trajectory three qualitatively distinct performance levels independent practitioner make previously implicit developmental requirements competencies explicit first timethe mrnp provides first articulated observable developmental trajectory np competencies beyond formal curriculum focus psychometric validity brought bear learners would demonstrate development ultimately achievement competencies mrnp goes beyond competencies trajectories plds engage learner instructor developmental process throughout career
|
https://doi.org/10.1377/hlthaff.2011.1168
|
null | null | 2,017 |
Northern Border University
|
advancement mobile technologies smartphones pc tablets given great impact healthcare systems mobile technology offers innovative approaches addressing complex health concerns many mobile health applications mhealth apps currently available marketplaces apps designed facilitate various health issues problems intended used outside clinics however little research conducted address trend opportunities challenging issues apps purpose study investigate current state mhealth literature survey conducted major findings study include smartphones major platform mhealth apps number published software much higher published scientific research current mhealth apps lacking grounded based theory evaluation security usability issues still vulnerable findings suggest involvement healthcare stakeholders critical success mhealth apps
|
https://doi.org/10.2105/ajph.2014.302267
|
Hualing Gong|Da Yan
|
The impact of Danmaku-based and synchronous peer feedback on L2 oral performance: A mixed-method investigation
| 2,023 |
Xinyang College of Agriculture and Forestry|Xinyang College of Agriculture and Forestry
|
advancement research education propelled augmentation theoretical practical knowledge learningoriented feedback recent years channels modes orientations feedback became manifold copious empirical evidence body literature supported strength feedback enhancing learning outcomes promoting motivation learners however compared popularity implementation fruitfulness findings educational domains application stateoftheart technologyenhanced feedback fostering students l2 oral abilities remain far address knowledge gap present study endeavored investigate effect danmakubased synchronous peer feedback l2 oral performance acceptance thereof among students adopting mixedmethod design study recruited 74 n 74 undergraduate english majors chinese university 16week 2x2 experiment collected data analyzed statistical thematic analysis respectively findings revealed danmakubased synchronous peer feedback impactful students performance l2 oral production furthermore impacts peer feedback subdomains l2 competence statistically analyzed regarding students perceptions incorporation peer feedback generally favored participants satisfied motivated learning process lacked confidence assessment literacy furthermore students expressed agreement benefit reflective learning subsequent enrichment knowledge horizon research significant conceptual practical contribution followup researchers educators l2 education learningoriented feedback
|
https://doi.org/10.1162/rest_a_00848
|
Ceyda Oksel|Sadia Haider|Sara Fontanella|Clément Frainay|Adnan ?ustovi?
|
Classification of Pediatric Asthma: From Phenotype Discovery to Clinical Practice
| 2,018 |
Imperial College London|Imperial College London|Imperial College London|Toxalim Research Centre in Food Toxicology|Imperial College London|Imperial College London
|
advances big data analytics created opportunity step change unraveling mechanisms underlying development complex diseases asthma providing valuable insights drive better diagnostic decisionmaking clinical practice opening paths individualized treatment plans however translating findings datadriven analyses meaningful insights actionable solutions requires approaches tools move beyond mining patterning longitudinal data purpose review summarize recent advances phenotyping asthma discuss key hurdles currently hampering translation phenotypic variation mechanistic insights clinical setting suggest potential solutions may address limitations accelerate moving discoveries practice order advance field phenotypic discovery greater focus placed investigating extent withinphenotype variation advocate cautious modeling approach supervising findings delineate precisely characteristics individual trajectories assigned phenotype furthermore important employ different methods within study compare stability derived phenotypes assess immutability individual assignments phenotypes make step change toward precision stratified personalized medicine capitalize available big data assets develop genuine crossdisciplinary collaborations wherein data scientists turn data information using algorithms machine learning team medical professionals provide deep insights specific subjects clinical perspective
|
https://doi.org/10.1161/circulationaha.114.008730
|
Patrick A. Williams|Sayyed K. Zaidi|Rajarshi Sengupta
|
<i>AACR Cancer Disparities Progress Report 2022</i>
| 2,022 |
American Association For Cancer Research|American Association For Cancer Research|American Association For Cancer Research
|
advances cancer prevention early detection coupled breakthroughs treatments led steady decline overall us cancer mortality rates increase number people living longer fuller lives cancer diagnosis however evident large segments us population benefitted equally advances continue higher rates cancer incidence diagnosed aggressive cancer suffer worse outcomes american association cancer research aacr cancer disparities progress report 2022 httpswwwaacrorgcdpr2022 outlines recent progress cancer health disparities ongoing challenges faced racial ethnic minorities medically underserved populations emphasizes vital need advances cancer research patient care benefit populations commentary summarizes highlights reportracial ethnic minorities medically underserved populations united states continue share disproportionate burden cancer compared white population american indianalaskan native population experiences higher incidence rates lung colorectal kidney cancers well liver stomach cervical cancers caused infectious agents population also higher mortality kidney liver cancers compared white population asian population encompasses highly diverse group countries cultures ethnicities likely impacted cancers caused infectious agents black african american individuals constitute third largest racial ethnic population united states compared white men cancer incidence black men 6 higher cancer mortality 19 higher black women 8 lower cancer incidence white women 12 higher cancer mortality hispanic population one fastest growing ethnic groups united states higher incidence mortality liver stomach cervical cancers compared nonhispanic white population compared nonhispanic whites native hawaiian pacific islander groups higher incidence breast multiple myeloma lung cancers higher mortality prostate lung breast liver intrahepatic bile duct cancers groups experience disparities cancer burden include rural populations individuals belong sexual gender minority populations low socioeconomic status living persistent povertythe causes cancer health disparities stem adverse social determinants health sdoh complex interrelated overlapping factors operate individual community societal levels sdoh include socioeconomic factors modifiable cancer risk factors psychologic factors environmental factors health care access experiences well biological genetic factors increasingly evident structural racism systemic injustices key contributors adverse sdoh creating conditions perpetuate health inequities including cancer health disparities racial ethnic minorities medically underserved populationsroutine cancer screening one effective ways reduce burden cancer population level yet many disparities cancer screening exist racial ethnic minority groups medically underserved populations disparities stem mistrust health care system caused historical exploitation certain populations cultural beliefs stigmas around getting screened well suboptimal screening guidelines developed based studies performed white cisgendered participants research indicated effective ways increase knowledge screening reduce stigma comprise culturally appropriate communitycentered public health interventions evidence also accruing reducing structural financial barriers cancer screening effective approach increase access servicesuse anticancer treatments surgery radiotherapy chemotherapy molecularly targeted therapy immunotherapyalone combinationshas become standard care patients cancer despite major advances treatments recent years racial ethnic minority groups medically underserved populations frequently experience severe multilevel barriers access quality cancer treatment including delays lack access standardofcare treatments ninetythree percent respondents survey 165 cancer physicians practicing community hospitalbased settings agreed sdoh negatively impacted patients health outcomes many patients disadvantaged population groups also experience overt discrimination andor implicit bias receipt care influenced many factors including physician training one solution increase diversity healthcare workforce fewer black adults 22 report providers race compared white adults 74 among hispaniclatino adults 23 report provider race andor ethnicity language preference increasing diversity healthcare workers increase patientprovider trust communicationdevelopment new anticancer treatments cancer detection methods relies testing clinical trials ensure safety efficacy therefore imperative clinical trial participant population highly diverse also important equal representation subgroup ie oversampling nonmajority populations produce statistically powerful estimates effect maximize impact across groups unfortunately enrollment cancer clinical trials extremely low serious lack sociodemographic diversity among participate many individuallevel barriers patients prevent participation clinical trials include lack awareness clinical trials limited health literacy mistrust health care system well financial barriers costs cancer treatment medication transportation childcare lost work inadequate complete lack insurance among othersencouragingly recent data show racial ethnic disparities cancer outcomes eliminated every patient equitable access standard care treatments fact researchers shown racial ethnic minority patients respond better treatments many cancers compared white patients better outcomes offered similar access standard quality care therefore imperative sectors work together address challenges disparities cancer treatment necessity achieve health equity regard noted several clinical studies including accountability cancer undoing racism equity accure program shown multilevel interventions utilize patient navigation address current disparities cancer treatment improve outcomes patientsas genetic sequencing tumors becoming cheaper accessible use helped accelerate pace progress precision medicine genetic sequencing also helped identify risk loci genes brca12 increase predisposition individual developing certain types cancer unfortunately lack representation racial ethnic minority underrepresented groups studies examining mutations risk loci severely limited understanding genetic predispositions lead higher incidence mortality increased aggressiveness cancer certain populations instance cancer genome atlas tcga started 2006 joint effort nci national human genome research institute nhgri characterized 20000 primary cancer matched normal samples 77 percent individuals primarily european ancestry despite population making 578 percent us population furthermore data available tcga database germline somatic exomes patients primarily african ancestry found lower sequencing depth greater number genomic regions insufficient coverage somewhat attributed predominantly european biased reference genome continue increase understanding cancer risk pathogenesis treatment options groups researchers must increase diversity datasets regard us research program building diverse health database includes biological environmental lifestyle information 1 million people united states march 2022 project sequenced entire genomes 100000 people 50 selfreported part racial ethnic group historically underrepresented researchas people living longer fuller lives cancer diagnosis greater attention needed toward understanding survivorship experience every cancer survivor unique experience belonging medically underserved populations experience increased long lateterm side effects reduced healthrelated quality life insufficient palliative care including intense unnecessary endoflife interventions higher rates financial toxicity medical debt reduced adherence followup care key charting equitable path forward cancer survivors use communitybased culturallytailored solutions involvement patient advocates navigators address specific social psychologic medical physical needs patientsystemic inequities social injustices adversely impacted every aspect cancer research patient care including limited participation clinical trials differences cancer incidence outcomes among underserved populations low access quality cancer care worsened survivorship experience new research initiatives closing gaps progress slow cost cancer health disparities remains monumental report concludes action items call upon policy makers stakeholders join forces eliminating menace cancer health disparities calltoaction items include increasing funding nih overall particular nci national institute minority health health disparities centers disease control prevention collecting disaggregated patient data racial ethnic minorities well sexual gender minorities removing barriers improve clinical trial diversity increasing cancer screening access prevention efforts making health care accessible comprehensive improving workforce diversity levels cancer research care enacting health equity accountability act provisions fulfilling recommendations included aacr call action demands ongoing active participation broad spectrum stakeholders efforts must coupled actions eradicate systemic inequities social injustices significant barriers health equityno disclosures reported
|
https://doi.org/10.1016/j.pmedr.2016.12.012
|
Sherry Ruan|Liwei Jiang|Justin Xu|Bryce Joe-Kun Tham|Zhengneng Qiu|Yeshuang Zhu|Elizabeth L. Murnane|Emma Brunskill|James A. Landay
|
QuizBot
| 2,019 |
Stanford University|Colby College|Stanford University|Stanford University|Stanford University|Tsinghua University|Stanford University|Stanford University|Stanford University
|
advances conversational ai potential enable engaging effective ways teach factual knowledge investigate hypothesis created quizbot dialoguebased agent helps students learn factual knowledge science safety english vocabulary evaluated quizbot 76 students two withinsubject studies flashcard app traditional medium learning factual knowledge though systems used algorithm sequencing materials quizbot led students recognizing recalling 20 correct answers students used flashcard app using conversational agent time consuming practice second study volition students spent 26x time learning quizbot flashcards reported preferring strongly casual learning results second study showed quizbot yielded improved learning gains flashcards recall results suggest educational chatbot systems may beneficial use particularly learning outside traditional settings
|
https://doi.org/10.1093/geronb/58.6.p329
|
Lisa A. Marsch
|
Digital health data-driven approaches to understand human behavior
| 2,020 | null |
advances digital technologies data analytics created unparalleled opportunities assess modify health behavior thus accelerate ability science understand contribute improved health behavior health outcomes digital health data capture richness granularity individuals behavior confluence factors impact behavior moment withinindividual evolution behavior time data may contribute discovery science revealing digital markers healthrisk behavior well translational science informing personalized timely models intervention delivery may help inform diagnostic classification clinically problematic behavior clinical trajectories diagnosable disorders time manuscript provides review state science digital health datadriven approaches understanding human behavior reviews methods digital health assessment sources digital health data provides synthesis scientific literature evaluating digitally derived empirical data inform understanding health behavior particular focus understanding assessment diagnosis clinical trajectories psychiatric disorders concludes discussion future directions timely opportunities line research clinical application
|
https://doi.org/10.1353/csd.2011.0058
|
Samuel Cykert|Eugenia Eng|Paul R. Walker|Matthew Manning|Linda Robertson|Rohan Arya|Nora Jones|Dwight E. Heron
|
A system?based intervention to reduce Black?White disparities in the treatment of early stage lung cancer: A pragmatic trial at five cancer centers
| 2,019 |
University of North Carolina at Chapel Hill|East Carolina University|Cone Health|UPMC Hillman Cancer Center|University of South Carolina|UPMC Hillman Cancer Center
|
advances early diagnosis curative treatment reduced high mortality rates associated nonsmall cell lung cancer however racial disparity survival persists partly black patients receive less curative treatment white patientswe performed 5year pragmatic trial five cancer centers using systembased intervention patients diagnosed early stage lung cancer aged 1885 eligible intervention components included 1 realtime warning system derived electronic health records 2 racespecific feedback clinical teams treatment completion rates 3 nurse navigator consented patients compared retrospective concurrent controls primary outcome receipt curative treatmentthere 2841 early stage lung cancer patients 16 black retrospective group 360 32 black intervention group retrospective baseline crude treatment rates 78 white patients vs 69 black patients p 0001 difference race confirmed model adjusted age treatment site cancer stage gender comorbid illness incomeodds ratio 066 black patients 95 ci 051085 p 0001 within intervention cohort crude rate 965 black vs 95 white patients p 056 odds ratio adjusted analysis 21 95 ci 041104 p 039 black vs white patients group analyses confirmed treatment parity interventiona systembased intervention tested five cancer centers reduced racial gaps improved care
|
https://doi.org/10.1053/j.ajkd.2018.07.017
|
Heng Hsin Tung|Tien?Chang Lu|Liang Kung Chen|Liang Shen|Wu Shu|Kuei Hui Chu
|
Health literacy impact on elderly patients with heart failure in Taiwan
| 2,014 |
National Taipei University of Nursing and Health Science|Taipei Veterans General Hospital|National Yang Ming Chiao Tung University|Taipei Veterans General Hospital|National Taipei University of Nursing and Health Science|National Taipei University of Nursing and Health Science|National Yang Ming Chiao Tung University
|
advances medical technologies medical services require adequate health literacy patients order improve quality life however health literacy inadequate many places instances especially elderly living remote areas determine prevalence inadequate health literacy elderly patients suffering heart failure taiwan examine impact health literacy selfcare quality life identify sociodemographic factors associated health literacy ninetyeight individuals recruited using convenience sampling large medical center taiwan may 2011 may 2012 four instruments used study demographic questionnaire taiwan health literacy scale selfcare hf index v 6 minnesota living heart failure questionnaire findings reveal 60 patients heart failure study inadequate low health literacy factors associated health literacy hard change andor improve therefore developing innovative ways help patients dealing symptoms needed
|
https://doi.org/10.1002/art.37899
|
Éric Racine|Ofek Bar-Ilan|Judy Illes
|
Brain Imaging
| 2,006 |
Montreal Clinical Research Institute|Dominican University of California|Stanford University|Palo Alto University|Stanford University
|
advances neuroscience increasingly intersecting issues ethical legal social interest study analysis press coverage advanced technology brain imaging functional magnetic resonance imaging gained significant public visibility past ten years discussion issues scientific validity interpretation dominated ethical content popular specialized press coverage research higher order cognitive phenomena specifically attributed broad personal societal meaning neuroimages authors conclude neuroscience provides ideal model exploring science communication ethics multicultural context
|
https://doi.org/10.3390/jpm5040389
|
Amy R. Krentzman
|
Review of the application of positive psychology to substance use, addiction, and recovery research.
| 2,013 |
University of Michigan–Ann Arbor
|
advances positive psychology grown exponentially past decade addictions field experienced growth positive direction embodied recovery movement despite parallel developments great momentum sides little crosspollination article introduces positive psychology recovery movement describes research positive psychology addictions discusses future avenues theory research intervention based positivepsychology framework systematic review positive psychology applied substance use addiction recovery found nine studies discussed according following themes theoretical propositions character strengths drinking positive psychology recovery positive interventions addiction feeling good feeling bad current scholarship scant diverse covering wide range populations adults adolescents treatment topics character strengths recovery positive affect addictive behaviors work addiction cigarette smoking alcohol use disorders diversity country origin work originating us uk poland spain rigorous application lens tools approaches positive psychology addiction research generally aims recovery movement specifically potential development theory innovation prevention intervention work positive psychology primarily focused microsystems may primed make contributions predominantly macrosystems focus recovery movement psycinfo database record c 2013 apa rights reserved
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https://doi.org/10.1097/mpg.0000000000001793
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Tam H. Nguyen|Michael K. Paasche?Orlow|Lauren McCormack
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The state of the science of health literacy measurement
| 2,017 |
Boston University|Boston University|Boston University
|
advancing health literacy hl research requires highquality hl measures chapter provides overview state science hl measurement field started currently going divided eight key sections looking 1 history hl measurement 2 relationship hl definitions measurement 3 hl conceptual domains least frequently measured 4 methods used validate hl measures 5 characteristics participants measurement validation studies 6 practical considerations related administering hl measures 7 advantages disadvantages using objective versus subjective hl measures 8 future directions hl measurement based material presented chapter following conclusions drawn first enormous proliferation hl measures growth presents opportunities challenges field second move field forward urgent need better align hl measurement definitions hl third hl domains numeracy measured often others speaking listening consequently important think novel mechanisms measure hl domains rarely measured fourth hl measures often developed validated refined using classical measurement approaches however strong empirical practical rationales suggest making assertive shift toward using modern measurement approaches fifth hl measures well validated use minority populations consequently future validation studies mindful validation samples sixth hl measures administered using multiple modes frequently via paperandpencil surveys identifying mode administration suitable requires reflecting underlying measurement purpose characteristics participants measured considerations also made deciding subjective versus objective hl measure cumulatively chapter provides tools help readers select use appropriate measures hl needs also provides rationale strategies moving science hl measurement forward
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https://doi.org/10.1007/s11606-011-1794-6
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Adam E.M. Eltorai|Pranav Sharma|Jing Wang|Alan H. Daniels
|
Most American Academy of Orthopaedic Surgeons’ Online Patient Education Material Exceeds Average Patient Reading Level
| 2,015 |
Brown University|Providence College|Brown University|Providence College|Brown University|Providence College|Rhode Island Hospital|Providence College|Brown University
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advancing health literacy potential improve patient outcomes american academy orthopaedic surgeons aaos online patient education materials serve tool improve health literacy orthopaedic patients however unknown whether materials currently meet national institutes healthamerican medical associations recommended sixth grade readability guidelines health information mean us adult reading level eighth gradethe purposes study 1 evaluate mean grade level readability online aaos patient education materials 2 determine proportion online materials exceeded recommended sixth grade mean us eighth grade reading levelreading grade levels 996 260 261 online patient education entries aaos analyzed using fleschkincaid formula built microsoft word softwaremean grade level readability aaos patient education materials 92 sd 16 two hundred fiftyone 260 articles 97 readability score sixth grade level readability aaos articles exceeded sixth grade level average 32 grade levels 260 articles 210 81 readability score eighth grade level average reading level us adultsmost online patient education materials aaos readability levels far advanced many patients comprehend efforts adjust readability online education materials needs audience may improve health literacy orthopaedic patients patient education materials made comprehensible use simpler terms shorter sentences addition pictures broadly health websites aaos aspire comprehensible typical reader
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https://doi.org/10.3109/02770903.2014.905593
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Daniel J. Bowen|James T. Neill|Simon James Crisp
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Wilderness adventure therapy effects on the mental health of youth participants
| 2,016 |
University of Canberra|University of Canberra
|
adventure therapy offers prevention early intervention treatment modality people behavioural psychological psychosocial issues appeal youthatrisk often less responsive traditional psychotherapeutic interventions study evaluated wilderness adventure therapy wat outcomes based participants preprogram postprogram followup responses selfreport questionnaires sample consisted 36 adolescent outpatients mixed mental health issues completed 10week manualised wat intervention overall shortterm standardised mean effect size small positive statistically significant 026 moderate statistically significant improvements psychological resilience social selfesteem total shortterm effects within agebased adventure therapy metaanalytic benchmark 90 confidence intervals except change suicidality lower comparable benchmark shortterm changes retained threemonth followup except family functioning significant reduction suicidality significant improvement participants clinical ranges preprogram large statistically significant reduction depressive symptomology large large statistically significant improvements behavioural emotional functioning changes retained threemonth followup findings indicate wat effective traditional psychotherapy techniques clinically symptomatic people future research utilising comparison waitlist control group multiple sources data larger sample could help qualify extend findings
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https://doi.org/10.1177/003335490712200508
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Elizabeth J. Corwin|Carol J. Hogue|Bradley D. Pearce|Cherie C. Hill|Timothy D. Read|Jennifer G. Mullé|Anne L. Dunlop
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Protocol for the Emory University African American Vaginal, Oral, and Gut Microbiome in Pregnancy Cohort Study
| 2,017 |
Emory University|Emory University|Emory University|Emory University|Emory University|Emory University|Emory University
|
adverse birth neonatal outcomes disproportionately affect african american women infants compared racesethnicities significant research sought identify underlying factors contributing disparities current understanding remains limited constraining prevention early diagnosis treatment development next generation sequencing techniques contribution vaginal microbiome adverse maternal neonatal outcomes come consideration however microbiome pregnancy studies include african american women consider potential contribution nonvaginal microbiome sites consider effects sociodemographic behavioral factors microbiome conceived ongoing 5year longitudinal study biobehavioral determinants microbiome preterm birth black women intrarace study enable investigation risk protective factors within disparate group aim recruit 500 pregnant african american women enrolling study 814 weeks pregnancy participants asked complete questionnaires provide oral vaginal gut microbiome samples enrollment 2430 weeks chart review used identify pregnancy outcomes infections treatments complications dna extracted microbiome samples sequencing v3 v4 regions 16s rrna gene conducted processing mapping completed qiime operational taxonomic units otus mapped greengenes version 138 community state types csts diversity measures site time identified considered light demographic psychosocial clinical biobehavioral variables rich data set allow future consideration risk protective factors within groups women providing opportunity uncover roots persistent health disparity experienced african american families
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https://doi.org/10.1089/pop.2009.0019
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Raghav Prashant Sundar|Mark W. Becker|Nora M. Bello|Laura Bix
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Quantifying Age-Related Differences in Information Processing Behaviors When Viewing Prescription Drug Labels
| 2,012 |
Michigan State University|Michigan United|Michigan State University|Michigan United|Kansas State University|Michigan State University|Michigan United
|
adverse drug events ades significant problem health care effective warnings potential reduce prevalence ades little known patients access use prescription labeling investigated effectiveness prescription warning labels pwls small colorful stickers applied pharmacy conveying warning information two groups patients young adults 50 evaluated early stages information processing tracking eye movements participants interacted prescription vials pwls affixed later tested participants recognition memory pwls viewing participants often failed attend pwls effect pronounced older younger participants older participants also performed worse subsequent memory test however memory performance conditionalized whether participant fixated pwl agerelated differences memory longer significant suggesting difference memory performance groups attributable differences attention rather differences memory encoding recall important older adults recognized greater risk ades data provide compelling case understanding consumers attentive behavior crucial developing effective labeling standard prescription drugs
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https://doi.org/10.1016/j.jvs.2005.01.040
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George B. Kauffman
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Science and Russian culture in an age of Revolutions: V.I. Vernadsky and his scientific school
| 1,991 | null |
advertisement return issueprevbook media reviebook media reviewscience russian culture age revolutions vi vernadsky scientific schoolgeorge b kauffman cite j chem educ 1991 68 11 a292publication date printnovember 1 1991publication history received3 august 2009published online1 november 1991published inissue 1 november 1991httpsdoiorg101021ed068pa2922rights permissionsarticle views77altmetriccitationslearn metricsarticle views countercompliant sum full text article downloads since november 2008 pdf html across institutions individuals metrics regularly updated reflect usage leading last dayscitations number articles citing article calculated crossref updated daily find information crossref citation countsthe altmetric attention score quantitative measure attention research article received online clicking donut icon load page altmetriccom additional details score social media presence given article find information altmetric attention score score calculated share add toview inadd full text referenceadd description exportriscitationcitation abstractcitation referencesmore options share onfacebooktwitterwechatlinked inreddit pdf 3 mb get ealerts get ealerts
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https://doi.org/10.1353/hpu.2016.0022
|
Peter G. Mahaffy
|
Moving Chemistry Education into 3D: A Tetrahedral Metaphor for Understanding Chemistry. Union Carbide Award for Chemical Education
| 2,006 |
King's University College
|
advertisement return issueprevcommentarynextmoving chemistry education 3d tetrahedral metaphor understanding chemistry union carbide award chemical educationpeter mahaffy view author information department chemistry kings university college edmonton alberta canada t6b 2h3cite j chem educ 2006 83 1 49publication date webjanuary 1 2006publication history received3 august 2009published online1 january 2006published inissue 1 january 2006httpsdoiorg101021ed083p49rights permissionsarticle views2189altmetriccitations55learn metricsarticle views countercompliant sum full text article downloads since november 2008 pdf html across institutions individuals metrics regularly updated reflect usage leading last dayscitations number articles citing article calculated crossref updated daily find information crossref citation countsthe altmetric attention score quantitative measure attention research article received online clicking donut icon load page altmetriccom additional details score social media presence given article find information altmetric attention score score calculated share add toview inadd full text referenceadd description exportriscitationcitation abstractcitation referencesmore options share onfacebooktwitterwechatlinked inreddit pdf 648 kb get ealertssubjectschemistry educationhistory philosophyinorganic carbon compoundsstudents get ealerts
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https://doi.org/10.1177/1524839912463394
|
Rolf H.H. Groenwold|Tom Palmer|Kate Tilling
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To Adjust or Not to Adjust? When a “Confounder” Is Only Measured After Exposure
| 2,021 |
Leiden University Medical Center|Lancaster University|University of Bristol|University of Bristol
|
advice regarding analysis observational studies exposure effects usually adjustment factors occur exposure may caused exposure mediate effect exposure outcome potentially leading collider stratification bias however factors could also caused unmeasured confounding factors case adjusting also remove bias due confounding derive expressions collider stratification bias conditioning confounding bias conditioning mediator presence unmeasured confounding assuming associations linear interactions using simulations show generally neither conditioned unconditioned estimate unbiased tradeoff depends magnitude effect exposure mediated relative effect unmeasured confounders relations mediator illustrate use bias expressions via three examples neuroticism mortality adjusting mediator appears least biased option glycated hemoglobin levels systolic blood pressure adjusting gives smaller bias literacy primary school pupils adjusting gives smaller bias formulae simulations inform quantitative bias analysis well analysis strategies observational studies potential unmeasured confounding
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https://doi.org/10.1186/s12882-018-0901-x
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Judith H. Hibbard|Jessica Greene|Shoshanna Sofaer|Kirsten Firminger|Judith Hirsh
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An Experiment Shows That A Well-Designed Report On Costs And Quality Can Help Consumers Choose High-Value Health Care
| 2,012 |
University of Oregon|University of Oregon|Baruch College|City University of New York|The Graduate Center, CUNY
|
advocates health reform continue pursue policies tools make information comparative costs resource use available consumers reformers expect consumers use data choose highvalue providersthose offer higher quality lower pricesand thus contribute broader goal controlling national health care spending however communicating information effectively challenging might first appear example consumers interested quality health care cost many perceive lowcost provider substandard study 1421 employees examined different presentations information affect likelihood consumers make highvalue choices found substantial minority respondents shied away lowcost providers even consumers pay larger share health care costs likely equate high cost high quality time found presenting cost data alongside easytointerpret quality information highlighting highvalue options improved likelihood consumers would choose options reporting strategies follow format help consumers understand doctor provides higherquality care doctors necessarily cost
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https://doi.org/10.1353/hpu.2018.0027
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Shobha Srinivasan|Richard P. Moser|Gordon Willis|William T. Riley|Marcus Alexander|David Berrigan|Sarah Kobrin
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Small Is Essential: Importance of Subpopulation Research in Cancer Control
| 2,015 |
National Cancer Institute|National Cancer Institute|National Cancer Institute|National Cancer Institute|National Cancer Institute|National Cancer Institute|National Cancer Institute
|
affiliationsall authors division cancer control population sciences national cancer institute rockville md
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https://doi.org/10.1007/s11606-019-04894-y
|
Gaurav Khanna
|
Does Affirmative Action Incentivize Schooling? Evidence from India
| 2,020 |
University of California, San Diego
|
affirmative action raises likelihood getting college obtaining government job minority social groups india find minority group students incentivized stay school longer response changes future prospects identify causal relationships leverage variation group eligibility school age cohorts statelevel intensity implementation differenceindifferences regression discontinuity designs estimators consistently show affirmative action incentivizes 08 additional years education average minority group student 12 years education student marginal minority subgroup
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https://doi.org/10.1177/0270467614528902
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Karen Sliwa|Letitia Acquah|Bernard J. Gersh|Ana Olga Mocumbi
|
Impact of Socioeconomic Status, Ethnicity, and Urbanization on Risk Factor Profiles of Cardiovascular Disease in Africa
| 2,016 |
South African Medical Research Council|University of the Witwatersrand|University of Cape Town|South African Medical Research Council|University of the Witwatersrand|University of Cape Town|South African Medical Research Council|University of the Witwatersrand|University of Cape Town|South African Medical Research Council|University of the Witwatersrand|University of Cape Town
|
africa continent characterized marked ethnic sociodemographic economic diversity profound changes many regions past 2 decades diversity impact cardiovascular disease presentation outcomes within africa within individual countries one find regions predominantly communicable diseases rheumatic heart disease tuberculous pericarditis cardiomyopathy others marked increase noncommunicable disease hypertension hypertensive heart disease ischemic heart disease remains rare countries difficulties planning implementation effective health care african countries compounded paucity studies low rate investment research data acquisition fiduciary responsibilities companies working africa include effective efficient use natural resources promote overall health populations
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https://doi.org/10.1038/s41436-019-0498-x
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Serene Ansari|Erica G. Soltero|Elizabeth Lorenzo|Rebecca E. Lee
|
The impact of religiosity on dietary habits and physical activity in minority women participating in the Health is Power (HIP) study
| 2,017 |
Baylor College of Medicine|Arizona State University|Arizona State University|Arizona State University
|
african american aa hispaniclatina hl women report lower rates physical activity pa poorer dietary habits compared white counterpartsreligiosity act protective factor health however relationship religiosity pa diet unclearthis study aimed investigate influence religiosity pa fruit vegetable fv fat consumption minority womenhealth power hip 6month intervention participants aa 63 hl 37 randomized pa fv groupquestionnaires assessed religiosity baseline pa fv fat consumption baseline postinterventionhierarchical linear regression models used investigate religiosity predictor change pa fv fat controlling demographicsaa women significantly higher religiosity scores 4415sd 1066 compared hl women 3511sd 1282 t251 586 p b 0001across groups pa increased 15 fv intake increased 27 consumption calories fat decreased 5religiosity significant predictor pa diet p b 005the results study found association religiosity change pa dietmore longitudinal studies needed explore role religiosity health minority women
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https://doi.org/10.1097/01.qai.0000168180.76405.5f
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Sara Wilcox|Melissa Bopp|Larissa Oberrecht|Sandra K. Kammermann|Charles T. McElmurray
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Psychosocial and Perceived Environmental Correlates of Physical Activity in Rural and Older African American and White Women
| 2,003 |
University of South Carolina
|
african american rural older women among least active segments population study guided social cognitive theory examined correlates physical activity pa 102 rural older women 41 african american 706 92 years bivariate associations education marital status selfefficacy greater pros cons perceived stress social support perceived neighborhood safety positively associated pa age depressive symptoms perceived sidewalks health care provider discussion pa perceived traffic negatively associated pa hierarchical regression analysis sociodemographic r2 23 psychological ir2 9 social ir2 6 perceived physical environmental ir2 9 sets variables significant p 05 predictors pa model r2 47 response openended questions women cited individual social factors pa barriers motivators falls injuries heart attacks identified often risks findings support importance multilevel influences pa older rural women useful informing pa interventions
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https://doi.org/10.5785/31-1-628
|
Kim Stansbury|Maureen A. Wimsatt|Gaynell M. Simpson|F Vicente Martín|Nancy J. Nelson
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African American College Students: Literacy of Depression and Help Seeking
| 2,011 |
Institute of Social Work
|
african american college studentsliteracy depression help seeking kim l stansbury bio maureen wimsatt bio gaynell marie simpson bio fayetta martin bio nancy nelson bio depression serious public health concern united states affecting almost 188 million adults office disease prevention health promotion 2003 common mental disorder college students areharttreichel 2002 song et al 2008 estimates 1 4 experiencing episode age 24 american psychiatric assocation apa 2007 african american college students elevated risk depression due racism stress sleep deprivation lack academic social support dzokoto hicks miller 2007 kelly kelly brown kelly 1999 even though 114 african american students selfreported psychiatric diagnosis depression report history utilizing campus counseling community mental health services soet sevig 2006 nationwide 24 americans receive treatment whereas 16 african americans seek services specialty mental health clinics schnittker 2003 african americans often view depression personal weakness dzokoto et al 2007 best addressed faith prayer counseling pharmacology dzokoto et al shellman mokel wright 2007 stigmatization cost treatment lack availability services failing recognize depressive symptoms well known barriers mental health utilization brown palenchar 2004 cooper et al 2003 however date little research addresses african american college students mental health literacy regarding depression systematic empirical knowledge gap regarding african american college students recognition depressive symptoms perspectives treatment options depression must addressed avoid complications leading problems selfmedication drugs alcohol shellman et al therefore purpose research examine african american college students mental health literacy regarding depression previous studies using approach found individuals mental health literate likely seek help andor recommend professional assistance family friends experiencing symptoms depression jorm kitchener okearney dear 2004 methods sample fiftyfour african american college students participated survey mental health literacy inclusion criteria individuals selfidentified african american currently enrolled coursework institution ages 18 24 end page 497 procedure presentations study african american student organizations campus interested students completed written consent form survey students responses confidential instrument description mental health literacy survey consists two vignettes original survey jorm 2000 vignette features either tom mary characters experiencing dsmiv apa 2007 depressive symptoms renamed damon keisha reflect common african american names reading vignette students answered two openended questions would say anything wrong damonkeisha b without professional help think damonkeishas chance recovery researchers coded participants identified depression id group id based first question additionally researchers coded responses second question three categories recover professional help b limited chance recovery without professional help c recover without professional help respondents categorized helping professionals eg social workers psychologists clergy interventions eg antidepressants vitamins admission psychiatric hospital helpful harmful neither helpful harmful person vignette three additional questions guided work mental illness african american culture dzokoto et al 2007 kelly et al 1999 included stigma related mental illness african american culture b needed reduce stigma african american culture c find information mental health finally respondents provided age gender current class standing hometown year graduation family income parents educational background results mental health literacy identified depression general respondents female 38 54 18 years old
|
https://doi.org/10.1056/nejm199901143400203
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Elisa J. Gordon|Daniela Am?rtegui|Isaac Blancas|Catherine Wicklund|John Friedewald|Richard R. Sharp
|
African American Living Donors’ Attitudes About APOL1 Genetic Testing: A Mixed Methods Study
| 2,018 |
Northwestern University|Cal Humanities|Northwestern University|Northwestern University|Northwestern University|Northwestern University|Mayo Clinic
|
african american live kidney donors donors greater risk kidney failure european american donors apolipoprotein l1 gene apol1 variants african americans may associated disparitycrosssectional mixedmethods designafrican american donors 1 transplantation centersemistructured interviews assessed attitudes apol1 genetic testing willingness undergo apol1 testing hypothetical decisions donating 2 apol1 variants demographics surveys assessed perceptions ethnic identity genetics knowledge interview transcriptions analyzed using thematic analysis survey data analyzed using descriptive statistics23 donors participated semistructured interviews 96 reported transplantation centers routinely offer apol1 genetic testing african american potential donors 87 would willing undergo apol1 testing donating although study participants noted apol1 testing may deter african american potential donors donating 61 would donated even 2 highrisk apol1 variants several themes emerged study participants believed apol1 testing beneficial providing information help donors make informed donation decisions participants expressed concern apol1 variants placing donors harm kidney failure therefore valued taking preventive health measures participants believed potential donors would experience psychological distress learning 2 gene variants could harm recipients participants apprehensive insurance coverage costs apol1 testing feared apol1 genetic test results could discriminate african americansfindings may generalizable african american potential donorsfindings suggest african american donors support apol1 genetic testing yet fear apol1 variants genetic testing could adversely affect donors health ethnic identity transplantation centers using apol1 genetic testing address african american donors concerns apol1 genetic testing optimize future donors informed consent practices
|
https://doi.org/10.1038/sj.pcan.4500472
|
Said A. Ibrahim|Barbara H. Hanusa|Michael J. Hannon|Denise Kresevic|Judith A. Long|C. Kent Kwoh
|
Willingness and Access to Joint Replacement Among African American Patients With Knee Osteoarthritis: A Randomized, Controlled Intervention
| 2,013 |
Philadelphia VA Medical Center|University of Pennsylvania|VA Pittsburgh Healthcare System|VA Pittsburgh Healthcare System|University of Pittsburgh|Louis Stokes Cleveland VA Medical Center|Case Western Reserve University|University Hospitals Case Medical Center|Philadelphia VA Medical Center|University of Pennsylvania|VA Pittsburgh Healthcare System|University of Pittsburgh
|
african american patients significantly less likely undergo knee replacement management knee osteoarthritis oa racial difference preference willingness emerged key factor study undertaken examine efficacy patientcentered educational intervention patient willingness likelihood receiving referral orthopedic clinica total 639 african american patients moderatetosevere knee oa 3 veterans affairs primary care clinics enrolled randomized controlled trial 2 2 factorial design patients shown knee oa decisionaid video without brief counseling main outcome measures change patient willingness receipt referral orthopedic clinic also assessed whether patients discussed knee pain primary care provider saw orthopedic surgeon within 12 months interventionat baseline 67 participants definitelyprobably willing consider knee replacement difference among groups intervention increased patient willingness 75 groups 1 month received decision aid intervention alone gains sustained 3 months 12 months postintervention patients received intervention likely report engaging provider discussion knee pain 92 versus 85 receive referral orthopedic surgeon 18 versus 13 referral attend orthopedic consult 61 versus 50an educational intervention significantly increased willingness african american patients consider knee replacement also improved likelihood patientprovider discussion knee pain access surgical evaluation
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https://doi.org/10.1093/jnci/93.3.219
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Tatiana M. Davidson|John W. McGillicuddy|Martina Mueller|Brenda Brunner-Jackson|April Favella|Ashley B Anderson|Magaly Torres|Kenneth J. Ruggiero|Frank A. Treiber
|
Evaluation of an mHealth Medication Regimen Self-Management Program for African American and Hispanic Uncontrolled Hypertensives
| 2,015 |
Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina
|
african americans hispanics disproportionate rates uncontrolled essential hypertension eh compared nonhispanic whites medication nonadherence mna leading modifiable behavior improved blood pressure bp control smartphone medication adherence stops hypertension smash program developed using patientcentered theoryguided iterative design process electronic medication trays provided reminder signals short message service sms messaging reminded subjects monitor bp bluetoothenabled monitors motivational reinforcement text messages sent participants based upon levels adherence thirtyeight africanamerican 18 hispanic 20 uncontrolled hypertensives completed clinicbased anthropometric resting bp evaluations prior randomization months 1 3 6 generalized linear mixed modeling glmm revealed statistically significant timebytreatment interactions p lt 00001 indicating significant reductions resting systolic blood pressure sbp diastolic blood pressure dbp smash group vs standard care sc control group across time points 706 smash subjects vs 158 sc group reached bp control lt 14090 mmh month 1 p lt 0001 month 6 944 smash vs 412 sc group exhibited controlled bp p lt 0003 findings provide encouraging evidence efficacious mhealth chronic disease medical regimen selfmanagement programs developed following principles patientcentered theoryguided design
|
https://doi.org/10.1002/cncr.20978
|
Douglas Mogul|Xiaobin Luo|Eugene M. Chow|Allan B. Massie|Tanjala S. Purnell|Kathleen B. Schwarz|Andrew M. Cameron|John F.P. Bridges|Dorry L. Segev
|
Impact of Race and Ethnicity on Outcomes for Children Waitlisted for Pediatric Liver Transplantation
| 2,018 |
Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University
|
african americans minorities known face barriers health care influencing access organ transplantation known whether barriers exist among pediatric liver transplant waitlist candidates sought determine whether outcomes waitlist ie mortality deceased donor liver transplantation ddlt livingdonor liver transplantation ldlt varied raceethnicitynational registry data studied estimate raceethnicityspecific risk waitlist mortality ddlt ldlt children 18 years waitlisted march 2002 march 2015there evidence racialethnic disparities waitlist mortality compared caucasians ldlt varied raceethnicity 67 african americans 103 hispanic children receiving ldlt compared 124 caucasian 133 asian 94 mixother children adjusted cox proportional hazards model african americans half likely caucasians use ldlt hazard ratio hr 041055073 similar use ddlt hr 098106116 model considered mortality ddlt ldlt competing risks african americans significantly reduced incidence ldlt subhazard ratio shr 041056075 compared caucasians increased use ddlt shr 106116126compared caucasian children africanamerican children less likely use ldlt higher rates ddlt similar survival waitlist additional research necessary understand clinical socioeconomic factors contributing lower utilization ldlt among africanamerican children awaiting transplantation
|
https://doi.org/10.1007/s40615-016-0240-1
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Lisa A. Cooper|Debra Roter|Kathryn A. Carson|Lee Bone|Susan Larson|Edgar R. Miller|Michael S. Barr|David M. Levine
|
A Randomized Trial to Improve Patient-Centered Care and Hypertension Control in Underserved Primary Care Patients
| 2,011 |
Johns Hopkins University|Johns Hopkins University|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|American College of Physicians|Johns Hopkins Medicine|Johns Hopkins University
|
african americans persons low socioeconomic status ses disproportionately affected hypertension receive less patientcentered care less vulnerable patient populations moreover continuing medical education cme patientactivation interventions infrequently directed improve processes care populationsto compare effectiveness patientcentered interventions targeting patients physicians effectiveness minimal interventions underserved groupsrandomized controlled trial conducted january 2002 august 2005 patient followup 3 12 months 14 urban communitybased practices baltimore marylandfortyone primary care physicians 279 hypertension patientsphysician communication skills training patient coaching community health workersphysician communication behaviors patient ratings physicians participatory decisionmaking pdm patient involvement care pic reported adherence medications systolic diastolic blood pressure bp bp controlvisits trained versus control group physicians demonstrated positive communication change scores baseline 052 vs 082 p 004 12 months patientphysician intensive group compared minimal intervention group showed significantly greater improvements patient report physicians pdm 620 vs 524 p 003 pic dimensions related doctor facilitation 022 vs 017 p 003 information exchange 032 vs 022 p 0005 improvements patient adherence bp control differ across groups overall patient sample however among patients uncontrolled hypertension baseline nonsignificant reductions systolic bp observed among patients intervention groupsthe patientphysician intensive 132 mmhg physician intensivepatient minimal 106 mmhg patient intensivephysician minimal 168 mmhg compared patientphysician minimal group 20 mmhginterventions enhance physicians communication skills activate patients participate care positively affect patientcentered communication patient perceptions engagement care may improve systolic bp among urban africanamerican low ses patients uncontrolled hypertension
|
https://doi.org/10.1007/s40615-016-0226-z
|
Neeta Thakur|Melissa Martin|Elizabeth Castellanos|Sam S. Oh|Lindsey A. Roth|Celeste Eng|Emerita Brigino-Buenaventura|Adam Davis|Kelley Meade|Michael A. LeNoir|Harold J. Farber|Shannon Thyne|?aunak Sen|Kirsten Bibbins?Domingo|Luisa N. Borrell|Esteban G. Burchard
|
Socioeconomic status and asthma control in African American youth in SAGE II
| 2,014 |
Pulmonary and Critical Care Associates
|
african americans disproportionately burdened asthma assessed individual joint contribution socioeconomic status ses asthma morbidity among african american youthwe examined 686 african americans 821 years asthma account joint effects ses composite index derived maternal educational attainment household income insurance status ordinal logistic regression used estimate individual joint effect ses asthma control models adjusted age sex controller medication use utero smoke exposure family history asthma family history rhinitis breastfeeding daycare attendance mold exposureparticipants classified poorly controlled asthma 408 partially controlled asthma 297 controlled asthma 302 individual ses indicators low income strongest predictor poor asthma control children low income worse asthma control higher income 139 95 ci 092212 ses index ranged 49 ses associated 17 increased odds poor asthma control decrease index 95 ci 105132 ses index associated asthmarelated symptoms nocturnal awakenings limited activity missed school daysthe negative effects ses observed along entire socioeconomic gradient adverse asthma outcomes observed african american youth limited poor also found ses index may consistent useful predictor poor asthma outcomes indicator alone
|
https://doi.org/10.1093/jnci/93.5.388
|
Brian A. Primack|James E. Bost|Stephanie R. Land|Michael J. Fine
|
Volume of Tobacco Advertising in African American Markets: Systematic Review and Meta-Analysis
| 2,007 |
University of Pittsburgh|University of Pittsburgh|University of Pittsburgh|University of Pittsburgh|VA Pittsburgh Healthcare System
|
african americans currently bear greatest burden morbidity mortality due smoking exposure protobacco media messages predicts smoking study compared concentration proportion media messages tobacco density protobacco media messages per person protobacco media messages african american caucasian marketswe searched medline 1966 june 2006 psychinfo 1974 june 2006 cinahl 1982 june 2006 studies peerreviewed journals directly comparing volume protobacco media messages african american caucasian markets study extracted number total media messages number tobaccorelated messages number residents living market area calculated concentration density tobacco advertising marketout 131 studies identified 11 met eligibility criteria including seven comparing billboardsignage african american caucasian markets four comparing magazine advertising african american caucasian markets metaanalysis estimated pooled odds ratio 17 95 confidence interval ci 11 26 given billboard smokingrelated african american vs caucasian market areas ie concentration pooled rate ratio density smokingrelated billboards 26 95 ci 15 47 african american vs caucasian market areas magazine data insufficient metaanalysisavailable data indicated african americans exposed higher volume protobacco advertising terms concentration density findings important implications research policy measures educational interventions involving racial disparities due tobacco
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https://doi.org/10.1177/1359105314551950
|
Troyen A. Brennan|Claire M. Spettell|Victor G. Villagra|Elizabeth Ofili|Cheryl N. McMahill?Walraven|Elizabeth J. Lowy|Pamela Daniels|Alexander Quarshie|Robert Mayberry
|
Disease Management to Promote Blood Pressure Control Among African Americans
| 2,010 |
Aetna (United States)|Aetna (United States)|Vector (United States)|Morehouse School of Medicine|Aetna (United States)|Aetna (United States)|Morehouse School of Medicine|Morehouse School of Medicine|Morehouse School of Medicine
|
african americans higher prevalence hypertension poorer cardiovascular renal outcomes white americans objective study determine whether telephonic nurse disease management dm program designed african americans effective home monitoring program alone increase blood pressure bp control among african americans enrolled national health plan prospective randomized controlled study march 2006december 2007 conducted 12 months followup subject total 5932 health plan members randomly selected population selfidentified african americans age 23 older health maintenance organization plans hypertension 954 accepted 638 completed initial assessment 485 completed followup assessment intervention consisted telephonic nurse dm intervention group including educational materials lifestyle diet counseling home bp monitor vs home bp monitor alone control group measurements included proportion bp 12080 mean systolic bp mean diastolic bp frequency bp selfmonitoring results revealed systolic bp lower intervention group adjusted means 1236 vs 1267 mm hg p 003 difference diastolic bp intervention group 50 likely bp control odds ratio 150 95 confidence interval ci 0997227 p 0052 46 likely monitor bp least weekly 146 95 ci 107200 p 002 control group nurse dm program tailored african americans effective decreasing systolic bp increasing frequency selfmonitoring bp greater extent home monitoring alone recruitment program completion rates could improved maximal impact
|
https://doi.org/10.1080/24694452.2016.1270193
|
Joe Feinglass|Cheryl Rucker?Whitaker|Lee A. Lindquist|Walter J. McCarthy|William H. Pearce
|
Racial differences in primary and repeat lower extremity amputation: Results from a multihospital study
| 2,005 |
Rush University|Rush University
|
african americans much higher risk major belowknee lower extremity amputation lower rate limbpreserving vascular surgery angioplasty white patients article analyzes two potential pathways racial disparities primary amputation defined major amputation performed without prior attempt revascularization repeat amputation defined major amputation subsequent previous throughfoot major amputationrandomly selected medical records reviewed 248 african american 30 hispanic 235 white otherrace patients undergoing belowknee amputation 1995 2003 three chicago teaching hospitals chronic disease prevalence severity preadmission functional status clinical presentation vascular history used test riskadjusted effect race ethnicity rates primary repeat amputationcontrolling demographic functional chronic disease clinical characteristics african american patients 17 times likely undergone primary p 01 repeat p 03 amputation white otherrace amputees race remained significant independent risk factor even controlling higher severity illness greater disability complex presentation african american amputeeshigher rates primary repeat amputation african american patients study hospitals significant vascular surgery capacity aggressive policy limb salvage suggest rates may even higher less well equipped institutions improving access primary preventive care lowerincome patients could reduce amputation rates among african americans
|
https://doi.org/10.1128/jmbe.v17i1.1036
|
Kelly Brittain|Shannon M. Christy|Susan M. Rawl
|
African American Patients’ Intent to Screen for Colorectal Cancer: Do Cultural Factors, Health Literacy, Knowledge, Age and Gender Matter?
| 2,016 | null |
african americans higher colorectal cancer crc mortality rates compared racialethnic groups research suggests crc screening interventions african americans target cultural variables secondary analysis data 817 africanamericans screened crc conducted examine 1 relationships among cultural variables provider trust cancer fatalism health temporal orientation hto health literacy crc knowledge 2 age gender differences 3 relationships among cultural variables health literacy crc knowledge crc screening intention provider trust fatalism hto health literacy crc knowledge demonstrated significant relationships among study variables stool blood test intention model explained 43 variance age gender significant predictors colonoscopy intention model explained 41 variance gender significant predictor results suggest developing crc interventions african americans addressing cultural variables important particular attention given age gender
|
https://doi.org/10.55227/ijhess.v2i1.208
|
Sarah Bauerle Bass|Thomas F. Gordon|Sheryl Burt Ruzek|Caitlin Wolak|Dominique G. Ruggieri|Gabriella Mora|Michael J. Rovito|Johnson Britto|Lalitha Parameswaran|Zainab Abedin|Stephanie Ward|Anuradha Paranjape|Karen Lin|Brian F. Meyer|Khaliah Pitts
|
Developing a Computer Touch-Screen Interactive Colorectal Screening Decision Aid for a Low-Literacy African American Population
| 2,012 |
Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University|Temple University
|
african americans higher colorectal cancer crc mortality white americans yet lower rates crc screening increased screening aids early detection higher survival rates coupled low literacy rates burden crc morbidity mortality exacerbated population making important develop culturally literacy appropriate aids help lowliteracy african americans make informed decisions crc screening article outlines development lowliteracy computer touchscreen colonoscopy decision aid using innovative marketing method called perceptual mapping message vector modeling method used mathematically model key messages decision aid used modify existing crc screening tutorial different messages final tutorial delivered computer touchscreen technology increase access ease use participants testing showed users comfortable touchscreen technology also significantly willing colonoscopy compared usual care group results confirm importance including participants planning use innovative mapping message design methods lead significant crc screening attitude change
|
https://doi.org/10.2304/eerj.2005.4.3.3
|
L. Ebony Boulware|Patti L. Ephraim|Jessica M. Ameling|LaPricia Lewis-Boyér|Hamid Rabb|Raquel C. Greer|Deidra C. Crews|Bernard G. Jaar|Priscilla Auguste|Tanjala S. Purnell|Julio A. Lamprea-Monteleagre|Tope Olufade|Luis F. Gimenez|Courtney Cook|Tiffany Campbell|Ashley Woodall|Hema C. Ramamurthi|Cleomontina A. Davenport|Kingshuk Roy Choudhury|Matthew R. Weir|Donna S. Hanes|Nae Yuh Wang|Helene Vilme|Neil R. Powe
|
Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients
| 2,018 |
Duke University|Johns Hopkins University|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Welch Foundation|Johns Hopkins University|Johns Hopkins Medicine|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins Medicine|Welch Foundation|Johns Hopkins University|Johns Hopkins University|Johns Hopkins Medicine|Welch Foundation|Duke University|Duke University|University of Maryland, Baltimore|University of Maryland, Baltimore|Johns Hopkins University|Johns Hopkins Medicine|Duke University|San Francisco General Hospital|University of California, San Francisco
|
african americans persistently poor access living donor kidney transplants ldkt conducted small randomized trial provide preliminary evidence effect informational decision support donor financial assistance interventions african american hemodialysis patients pursuit ldktstudy participants randomly assigned receive 1 usual care 2 providing resources enhance african american patients readiness make decisions kidney disease prepared 3 prepared plus living kidney donor financial assistance program primary outcome patients actions pursue ldkt discussions family friends doctor initiation completion recipient ldkt medical evaluation identification donor also measured participants attitudes concerns perceptions interventions usefulnessof 329 screened 92 patients eligible randomized usual care n 31 prepared n 30 prepared plus financial assistance n 31 participants reported interventions helped decision making renal replacement treatments 62 however statistically significant improvements ldkt actions among groups 6 months participants utilized living donor financial assistance benefitfindings suggest interventions may need paired personal support navigation services overcome key communication logistical financial barriers ldktclinicaltrialsgov nct01439516 august 31 2011
|
https://doi.org/10.1017/s0261444811000395
|
Elizabeth Ojukwu|Lauren R. Powell|Sharina D. Person|Milagros C. Rosal|Stephenie C. Lemon|Jeroan J. Allison
|
Spirituality and Willingness to Participate in Health-Related Research Among African Americans
| 2,018 | null |
african americans remain underrepresented healthrelated research examined association spirituality using selfrating spirituality scale range 624 selfreported willingness participate healthrelated research studies among african americans covariates included gender education level employment status previous research experience adjusted associations calculated logistic regression models multiple imputation account missing data results logistic regression model show onepoint increase selfrating spirituality scale associated 24 increase odds likely participate research 124 95 ci 107144 less college degree 359 95 ci 151854 unemployed 234 95 ci 103533 previous research experience 292 95 ci 122699 reported increased willingness participate work offers new insight developing recruitment initiatives within african american spiritual communities
|
https://doi.org/10.7326/0003-4819-156-11-201206050-00419
|
Elizabeth B. Lynch|Laurin Mack|Elizabeth Avery|Yamin Wang|Rebecca Dawar|DeJuran Richardson|Kathryn S. Keim|Jennifer Ventrelle|Bradley M. Appelhans|Bettina Tahsin|Leon Fogelfeld
|
Randomized Trial of a Lifestyle Intervention for Urban Low-Income African Americans with Type 2 Diabetes
| 2,019 |
Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center|Rush University Medical Center
|
african americans suffer nonhispanic whites type 2 diabetes diabetes selfmanagement education dsme less effective improving glycemic control african americans objective determine whether novel culturally tailored dsme intervention would result sustained improvements glycemic control lowincome africanamerican patients public hospital clinicsthis randomized controlled trial n 211 compared changes hemoglobin a1c a1c 6 12 18 months two arms 1 lifestyle improvement food exercise life culturally tailored 28session communitybased intervention focused diet physical activity 2 standard care comparison group receiving two group dsme classes clusteradjusted ancova modeling used assess a1c changes baseline 6 12 18 months respectively armsat 6 months a1c decreased significantly intervention group control group 076 vs 021 p 003 however 12 18 months difference longer significant 12 months 063 intervention vs 045 control p 052 decrease a1c 18 months intervention 0026 p 0003 comparison arm 0018 p 0048 difference trend p 0472 arms intervention group greater improvements nutrition knowledge 111 vs 60 point change p 0002 diet quality 40 vs 05 point change p 0018 comparison group participants improved medication adherence 24 vs 10 p 005 12 monthsthe life intervention resulted improved nutrition knowledge diet quality comparison intervention resulted improved medication adherence life participants showed greater a1c reduction standard care 6 months difference groups longer significant 12 18 monthsnct01901952
|
https://doi.org/10.1080/10810730.2012.712619
|
Eric Plutzer
|
The Racial Gap in Confidence in Science
| 2,013 |
Pennsylvania State University
|
african americans compared whites starkly underrepresented scientific technological professions especially reluctant participate research subjects express attitudes skeptical science scientific institutions article seeks explain racial gap confidence science race socially defined putting empirical test explanations suggested research human capital inequality educational opportunity culture results show differential returns schooling account third racial divide various cultural mechanisms explaining balance
|
https://doi.org/10.1038/s41538-018-0018-4
|
Carol R. Horowitz|Tatiana Sabin|Michelle Ramos|Lynne D. Richardson|Diane Hauser|Mimsie Robinson|Kezhen Fei
|
Successful recruitment and retention of diverse participants in a genomics clinical trial: a good invitation to a great party
| 2,019 |
Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Institute for Family Health|Bethel University|Icahn School of Medicine at Mount Sinai
|
african ancestry aa individuals inadequately included translational genomics research limiting generalizability findings benefits genomic discoveries populations already facing disproportionately poor health outcomes aimed determine impact stakeholderengaged strategies recruitment retention aa adult patients clinical trial testing renal risk variants nearly exclusive aasour academicclinicalcommunity team developed ten key strategies recognize aas barriers facilitators participation using electronic health records ehrs identified potentially eligible patients recruiters reached letters phone calls medical visitsof 5481 aa patients reached 51 ineligible 37 enrolled 4 declined 7 undecided enrollment finished retained 93 3month 88 12month followup enrolled likely female seen community sites reached active strategies declined retained likely female healthliterate older many patients low income low clinician trust perceive racism health care none attributes correlate retentionwith robust stakeholder engagement recruiters patients communities active approaches successfully recruited retained aa patients genomic clinical trial
|
https://doi.org/10.1017/s0261444817000350
|
Élise Arrivé|Anne Marie France|Wemin Marie Louise|Diabate Bata|François Raffi|Roger Salamon|Philippe Msellati
|
Assessment of Adherence to Highly Active Antiretroviral Therapy in a Cohort of African HIV-Infected Children in Abidjan, Côte d'Ivoire
| 2,005 | null |
african hivinfected children benefit access antiretroviral treatments little known adherence crosssectional assessment adherence highly active antiretroviral therapy conducted among group children recruited observational cohort abidjan cte divoire adherence determined 1month recall child caregiver full adherence signifying interruptions prior month onethird reported less full adherence undetectable viral load associated full adherence subset children p value 10 p 0098 compared children full adherence less full adherence significantly older likely taking efavirenz findings underscore necessity assessing supporting childrens adherence routinely aids care institutions
|
https://doi.org/10.1080/14680777.2014.958867
|
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