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Glenda Crosling|Ron Edwards|Bill Schroder
|
Internationalizing the curriculum: the implementation experience in a Faculty of Business and Economics
| 2,008 |
Monash University|Monash University|Monash University
|
curriculum internationalization strategy adopted many universities prepare graduates employment global economy paper case study organizational change involved one institutions monash university melbourne australia attempts implement curriculum internationalization foundation subjects six core business disciplines faculty business economics monash encompassing five australian two offshore campuses three families degrees presents opportunity challenge implementing curricula change multicampus structure provides opportunity challenge number geographic dispersion teaching staff along differing academic cultures paper discuss organizational change accompanies curriculum internationalization process responses disciplinebased teams curriculum internationalization objective identify significant staff faculty issues requiring consideration change accompanies curriculum development powerful effect traditional notion academic autonomy need continued resources support changes
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https://doi.org/10.1097/wad.0b013e318211c6c9
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Eoin McElroy|Mathew Kearney|Jade Touhey|Joseph Evans|Yasmin Cooke|Mark Shevlin
|
The CSS-12: Development and Validation of a Short-Form Version of the Cyberchondria Severity Scale
| 2,019 |
University of Liverpool|University of Ulster|University of Liverpool|University of Liverpool|University of Ulster|University of Ulster
|
cyberchondria defined increase anxiety ones health status result excessive online searches mcelroy shevlin 2014 developed first multidimensional selfreport measure constructthe cyberchondria severity scale css css consists 33 items summed form total score andor 5 subscale scores aim present study develop shortform version css removing mistrust subscale participants undergraduate students two uk universities n 661 73 female mage 2219 years sd 588 students completed css short health anxiety inventory shai generalized anxiety disorder assessment gad7 twelve items chosen retention short form based exploratory factor analysis items corresponded four factors previously identified 33item scale minus mistrust subscale confirmatory factor analysis used validate structure css12 confirmatory bifactor modeling indicated majority item covariance accounted general cyberchondria factor construct validity assessed examining associations shai gad7 stronger correlations observed css12 shai compared gad7 css12 brief reliable valid measure worryanxiety attributable excessive online health research
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https://doi.org/10.1111/j.1467-842x.2005.tb00060.x
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Olga Stavrova|Daniel Ehlebracht
|
The Cynical Genius Illusion: Exploring and Debunking Lay Beliefs About Cynicism and Competence
| 2,018 |
Tilburg University|University of Cologne
|
cynicism refers negative appraisal human naturea belief selfinterest ultimate motive guiding human behavior explored laypersons beliefs cynicism competence extent beliefs correspond reality four studies showed laypeople tend believe cynical individuals cognitive superiority three studies based data 200000 individuals 30 countries debunked lay beliefs illusionary revealing cynical vs less cynical individuals generally worse cognitive ability academic competency tasks crosscultural analyses showed competent individuals held contingent attitudes endorsed cynicism warranted given sociocultural environment less competent individuals embraced cynicism unconditionally suggesting thatat low levels competenceholding cynical worldview might represent adaptive default strategy avoid potential costs falling prey others cunning
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https://doi.org/10.1186/1472-6947-5-16
|
Randi L. Wolf|Stephen J. Lepore|Jonathan L. Vandergrift|Lindsay Wetmore-Arkader|Elizabeth McGinty|Gabriel Pietrzak|Amy L. Yaroch
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Knowledge, Barriers, and Stage of Change as Correlates of Fruit and Vegetable Consumption among Urban and Mostly Immigrant Black Men
| 2,008 |
Columbia University
|
daily fruit vegetable consumption black men low remained relatively unchanged past 20 yearsto examine awareness fruit vegetable recommendations promoted federal agencies correlates fruit vegetable consumption among urban mostly immigrant population adult black mena crosssectional study analyzing baseline data n490 randomized controlled triala large health care workers unionknowledge perceived benefits stage readiness perceived barriers daily servings fruit vegetable intakeoneway analysis variance tests used compare fruit vegetable intake across main study variables regression analysis used identify independent predictors fruit vegetable intakefruit vegetable intake low mean three servingsday ninetyfour percent aware men consume least nine servings fruits vegetables daily 598 aware eating colorful variety important contrast half 547 aware single serving equal handful 941 correctly reported fruit vegetables important source fiber 796 correctly reported vitamin pills substitute eating fruits vegetables 945 recognized health benefits eating fruits vegetables although identification specific benefits minimal regression analysis greater level fruit vegetable consumption significantly associated greater knowledge fruit vegetable recommendations lower perceived barriers advanced stage change action vs contemplationpreparation perceived health benefits associated fruit vegetable consumptionthere lack awareness current fruit vegetable recommendations addition men reported fruit vegetable intakes far national recommendations greater efforts needed help urban primarily immigrant black men realize importance recommendations fruit vegetable consumption
|
https://doi.org/10.1016/s0738-3991(01)00167-7
|
David I. Douphrate|David Gimeno|Matthew W. Nonnenmann|G. Robert Hagevoort|Cecilia Rosas?Goulart|John Rosecrance
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Prevalence of work?related musculoskeletal symptoms among US large?herd dairy parlor workers
| 2,013 |
The University of Texas Health Science Center at San Antonio|The University of Texas Health Science Center at San Antonio|University of Iowa|New Mexico State University|Zoetis (United States)|Colorado State University
|
dairy production us moving towards largeherd milking operations resulting increase task specialization work demandsa modified version standardized nordic questionnaire administered assess mss prevalence among 452 us largeherd parlor workers worker demographics mss prevalences assessed differences based parlor configuration ie herringbone parallel rotary computedthreefourths 764 parlor workers reported workrelated mss least one body part highest prevalences reported upper extremity 55 herringbone workers reported higher prevalence mss wristhand rotary workers reported higher prevalences mss neck upper back shouldersour findings draw attention higher workrelated mss upper extremity among dairy parlor workers trend toward larger herd sizes us dairy farms continues need health safety research increase
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https://doi.org/10.1002/14651858.cd001431.pub5
|
Daniel Dor
|
From Englishization to Imposed Multilingualism: Globalization, the Internet, and the Political Economy of the Linguistic Code
| 2,004 | null |
daniel dor teaches department communication tel aviv university research interests include linguistic consequences globalization role media construction political hegemony culturalbiological evolution language author intifada hits headlines israeli press misreported outbreak second palestinian uprising 2003
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https://doi.org/10.1186/1748-5908-6-70
|
Joel Best
|
Lies, Calculations and Constructions: Beyond How to Lie with Statistics
| 2,005 | null |
darrell huffs lie statistics remains bestknown nontechnical call critical thinking statistics however drawing distinction statistics lying ignores process statistics socially constructed instance bad statistics often disseminated sincere albeit innumerate advocates eg inflated estimates number anorexia deaths research findings selectively highlighted attract media coverage eg recent study extent bullying spread computers made production dissemination dubious statistics easier critics may agree desirability increasing statistical literacy unclear might accept responsibility
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https://doi.org/10.1186/s12911-016-0281-8
|
Po-Ming Law|Rahul C. Basole|Yanhong Wu
|
Duet: Helping Data Analysis Novices Conduct Pairwise Comparisons by Minimal Specification
| 2,019 |
Georgia Institute of Technology|Georgia Institute of Technology|Visa (United Kingdom)
|
data analysis novices often encounter barriers executing lowlevel operations pairwise comparisons may also run barriers interpreting artifacts eg visualizations created result operations developed duet visual analysis system designed help data analysis novices conduct pairwise comparisons addressing execution interpretation barriers reduce barriers executing lowlevel operations pairwise comparison duet employs minimal specification one object group ie group records data table specified duet recommends object groups similar different specified one two object groups specified duet recommends similar different attributes lower barriers interpreting recommendations duet explains recommended groups attributes using visualizations textual descriptions conducted qualitative evaluation eight participants understand effectiveness duet results suggest minimal specification easy use duets explanations helpful interpreting recommendations despite usability issues
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https://doi.org/10.1016/j.amepre.2016.06.022
|
Ann S. Gray
|
Data and Statistical Literacy for Librarians
| 2,005 | null |
data statistical literacy librarians
|
https://doi.org/10.1016/j.breast.2018.04.020
|
Joachim Engel
|
STATISTICAL LITERACY FOR ACTIVE CITIZENSHIP: A CALL FOR DATA SCIENCE EDUCATION
| 2,017 |
Ludwigsburg University of Education
|
data abundant quantitative information state society wider world around us ever paradoxically recent trends public discourse point towards postfactual world seems content ignore misrepresent empirical evidence statistics educators challenged promote understanding statistics society order reroot public debate based facts instead emotions promote evidencebased policy decisions statistics education needs embrace two areas widely neglected secondary tertiary education understanding multivariate phenomena thinking learning complex datax0d first published may 2017 statistics education research journal archives
|
https://doi.org/10.1186/s13643-017-0446-2
|
Melissa K. Kjelvik|Elizabeth H. Schultheis
|
Getting Messy with Authentic Data: Exploring the Potential of Using Data from Scientific Research to Support Student Data Literacy
| 2,019 |
Michigan State University|Michigan State University
|
data becoming increasingly important science society thus data literacy vital asset students prepare careers outside science technology engineering mathematics go lead productive lives paper discuss strongest learning experiences surrounding data literacy may arise students given opportunities work authentic data scientific research first explore overlap fields quantitative reasoning data science data literacy specifically focusing data literacy results practicing quantitative reasoning data science context authentic data next identify describe features influence complexity authentic data sets selection curation scope size messiness implications dataliteracy instruction finally discuss areas future research aim identifying impact authentic data may student learning include defining desired learning outcomes surrounding data use classroom identification teaching best practices using data classroom develop students dataliteracy abilities
|
https://doi.org/10.1371/journal.pone.0152999
|
Gbenga Ogedegbe|Jonathan N. Tobin|Senaida Fernandez|Andrea Cassells|Marleny Diaz-Gloster|Chamanara Khalida|Thomas G. Pickering|Joseph E. Schwartz
|
Counseling African Americans to Control Hypertension
| 2,014 |
Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine|Clinical Directors Network|Rockefeller University|NYU Langone Health|Yeshiva University|Albert Einstein College of Medicine
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data limited implementation evidencebased multilevel interventions targeted blood pressure bp control hypertensive blacks receive care lowresource primary care practicescounseling african americans control hypertension clusterrandomized clinical trial 30 community health centers randomly assigned intervention condition ic usual care uc patients ic sites received patient education home bp monitoring monthly lifestyle counseling whereas physicians attended monthly hypertension case rounds received feedback patients home bp readings chart audits patients physicians uc sites received printed patient education material hypertension treatment guidelines respectively primary outcome bp control secondary outcomes mean changes systolic diastolic bps 12 months assessed automated bp device total 1059 patients mean age 56 years 28 men 59 obese 36 diabetes mellitus enrolled bp control rate similar groups ic493 versus uc445 odds ratio 121 95 confidence interval 090163 p021 prespecified subgroup analyses intervention associated greater bp control patients without diabetes mellitus ic540 versus uc447 odds ratio 145 confidence interval 102206 smallsized community health centers ic511 versus uc396 odds ratio 145 confidence interval 104245a practicebased multicomponent intervention better uc improving bp control among hypertensive blacks future research implementation behavioral modification strategies hypertension control lowresource settings focus development efficient tailored interventions highrisk populationhttpwwwclinicaltrialsgov unique identifier nct00233220
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https://doi.org/10.1007/s11606-015-3200-2
|
James M. Bebko
|
The Language Proficiency Profile-2: Assessment of the Global Communication Skills of Deaf Children Across Languages and Modalities of Expression
| 2,003 |
York University
|
data presented two studies investigate developmental trends concurrent validity measure language communication skills deaf children language proficiency profile2 lpp2 developed bebko mckinnon 1993 lpp2 designed evaluate overall linguisticcommunicative skills deaf children independent specific language modality expression focuses totality childrens communication skills experiment 1 investigated developmental trends lpp2 deaf hearing children studying combined sample deaf hearing children united states canada experiment 2 investigated relationship lpp2 two commonly used measures assess deaf children language development preschool language scale3 early reading skills test early reading abilitydeafhardofhearing results two studies indicate lpp2 good utility measure overall language development also predictor achievement english language early reading skills
|
https://doi.org/10.1186/s12905-024-03058-3
|
Junyong In|Sangseok Lee
|
Statistical data presentation
| 2,017 |
Dongguk University Ilsan Hospital|Inje University Sanggye Paik Hospital
|
data usually collected raw format thus inherent information difficult understand therefore raw data need summarized processed analyzed however matter well manipulated information derived raw data presented effective format otherwise would great loss authors readers article techniques data information presentation textual tabular graphical forms introduced text principal method explaining findings outlining trends providing contextual information table best suited representing individual information represents quantitative qualitative information graph effective visual tool displays data glance facilitates comparison reveal trends relationships within data changes time frequency distribution correlation relative share whole text tables graphs data information presentation powerful communication tools make article easy understand attract sustain interest readers efficiently present large amounts complex information moreover journal editors reviewers glance presentations reading whole article importance cannot ignored keywords data presentation data visualization graph statistics table
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https://doi.org/10.1186/s12885-019-5546-z
|
Ali Fakhari|Behzad Shalchi|Vahab Asle Rahimi|Reza Naghdi Sadeh|Elena Lak|Arezu Najafi|Aref Shayeghanmehr
|
Mental health literacy and COVID-19 related stress: The mediating role of healthy lifestyle in Tabriz
| 2,023 |
Tabriz University of Medical Sciences|Tabriz University of Medical Sciences|Tabriz University of Medical Sciences|Azarbaijan Shahid Madani University|Azarbaijan Shahid Madani University|Ferdowsi University of Mashhad|University of Warsaw
|
data concerning relationship mental health literacy mhl covid19 stress limited study explored relationship covid19related stress mhl healthy lifestyle components current study aimed investigate moderating role healthy lifestyle relationship mhl covid19related stress among people referring health complexes tabrizin descriptivecorrelational study 1011 people referred health complexes tabriz selected using cluster sampling responded covid19 stress scale css mental health knowledge questionnaire mhkq lifestyle questionnaire lsq data analysis performed using structural equation modeling spss ver19 lisrel ver 85 statistical software used classify process analyze data test research hypothesesthe results indicated stress caused covid19 negative relationship lifestyle mhl relationship lifestyle mhl positive positive effect healthy lifestyle standardized coefficient 023 addition mhl negative effect stress related coronavirus standard coefficient 022 relationship healthy lifestyle also negative stress related coronavirus standard coefficient 020 evaluation hypothetical research model using fit indices showed hypothetical model fits measurement model comparative fit index cfi 097 goodness fit index gfi 095 root mean square error approximation rmsea 0055 comparative indices well comparative fit index found close one greater 090this study highlights healthcare providers must develop effective preventive therapeutic interventions deal covid19related stress pay attention issue increasing level mhl international crises taking consideration moderating role healthy lifestyle develop educational treatment programs
|
https://doi.org/10.1007/s11764-019-00757-x
|
Xiaoming Li|Xiaoyi Fang|Danhua Lin|Ruoyu Mao|Jing Wang|Lesley Cottrell|Colin Harris|Bonita Stanton
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HIV/STD Risk Behaviors and Perceptions Among Rural-To-Urban Migrants in China
| 2,004 |
Wayne State University|Beijing Normal University|Beijing Normal University|Nanjing University|Nanjing University
|
data 2153 sexually active ruraltourban migrants china analyzed examine relationship movement ruraltourban migration increased hivstd sexually transmitted disease risk applicability constructs westernbased theory behavioral change study population measurements included migrant mobility sexual risk seven constructs protection motivation theory pmt data current study suggest high mobility among ruraltourban migrants associated increased sexual risk pmt constructs applicable identifying perceptions attitudes associated sexual risk behaviors culturally distinct population increased sexual risk associated increased perceptions extrinsic rewards intrinsic rewards response cost also consistent pmt increased sexual risk associated perceptions decreased severity vulnerability response efficacy selfefficacy controlling number key confounding factors seven pmt constructs associated sexual risk manner posited theory association mobility sexual risk underscores importance effective hivstd prevention efforts among vulnerable population social cognitive theories including pmt may form logical base prevention intervention programs targeting ruraltourban migrants china
|
https://doi.org/10.1111/j.1440-1819.2006.01584.x
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Michael Fertig|Robert E. Wright
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School quality, educational attainment and aggregation bias
| 2,005 |
RWI – Leibniz Institute for Economic Research|Centre for Economic Policy Research|University of Stirling
|
data 31 countries participating programme international student assessment pisa used estimate education production functions reading literacy analysis suggests probability finding statistically significant correctly signed class size effects increases higher level aggregation used measure class size
|
https://doi.org/10.18769/ijasos.961175
|
Maria Rasmusson|Lisbeth Åberg?Bengtsson
|
Does Performance in Digital Reading Relate to Computer Game Playing? A Study of Factor Structure and Gender Patterns in 15-Year-Olds' Reading Literacy Performance
| 2,014 |
Mid Sweden University|University of Borås
|
data swedish pisasample used 1 identify digital reading factor 2 investigate gender differences factor found 3 explore computer game playing might relate digital reading performance gender analyses conducted structural equation modeling techniques addition overall reading factor hypothesized digital reading factor identified overall reading performance taken account relative difference favor boys digital reading indicated effect mediated gameplaying factor comprising amount time spent playing computer games thus boys better performance digital reading explained computer gameplaying factor
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https://doi.org/10.1080/19345747.2015.1116035
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Kirsten Hancock|David Lawrence|Francis Mitrou|David Zarb|Donna Berthelsen|Jan Nicholson|Stephen R. Zubrick
|
The association between playgroup participation, learning competence and social-emotional wellbeing for children aged four–five years in Australia
| 2,012 |
Telethon Kids Institute|University of Western Australia|Telethon Kids Institute|University of Western Australia|Telethon Kids Institute|University of Western Australia|Queensland University of Technology|Queensland University of Technology|Murdoch Children's Research Institute|Parenting Research Centre|Telethon Kids Institute|University of Western Australia
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data growing australia longitudinal study australian children used examine associations playgroup participation outcomes children aged four five years controlling range socioeconomic family characteristics playgroup participation birth three years used predict learning competence socialemotional functioning outcomes age fourfive years learning competence boys girls disadvantaged families scored threefour per cent higher attended playgroup ages birthone year twothree years compared boys girls disadvantaged families attend playgroup social emotional functioning girls disadvantaged families attended playgroup ages birthone year twothree years scored nearly five per cent higher attend demographic characteristics also showed disadvantaged families families least likely access services despite data limitations study provides evidence continued participation playgroups associated better outcomes children disadvantaged families
|
https://doi.org/10.1016/j.jebo.2019.08.026
|
Suet?ling Pong
|
Grade level and achievement of immigrants' children: academic redshirting in Hong Kong
| 2,009 |
Pennsylvania State University
|
data hong kong pisa 2003 show 15yearold hong kong students immigrant parents mainland china grossly overrepresented grades modal grade attended native hong kong students sameage comparison grade level taken account puts immigrants children disadvantaged position mathematics reading science literacy tests academic advantage immigrants children hong kong revealed grade statistically controlled also mainland immigrant students repeaters outperform native hong kong repeaters immigrant redshirting possible driving force behind results
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https://doi.org/10.1177/1329878x1314900117
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Reinhard B. Koester|Roger C. Kormendi
|
TAXATION, AGGREGATE ACTIVITY AND ECONOMIC GROWTH: CROSS?COUNTRY EVIDENCE ON SOME SUPPLY?SIDE HYPOTHESES
| 1,989 |
University of Michigan–Ann Arbor|University of Michigan–Ann Arbor
|
data sixtythree countries used examine impact average marginal tax rates level growth economic activity apparent negative effects tax rates growth disappear upon controlling 1 potential endogeneity average tax rates per capita income 2 relation economic growth per capita income however controlling average tax rates increases marginal tax rates negative effects level economic activity evidence supports hypothesis reductions progressivity tax rates induce parallel shift upward growth path
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https://doi.org/10.1111/j.1469-7610.2010.02312.x
|
Mélanie Hawkins|Gerald R. Elsworth|Richard H. Osborne
|
Application of validity theory and methodology to patient-reported outcome measures (PROMs): building an argument for validity
| 2,018 |
Deakin University|Deakin University|University of Copenhagen
|
data subjective patientreported outcome measures proms used health sector make support decisions individuals groups populations contemporary validity theorists define validity statistical property test extent empirical evidence supports interpretation test scores intended use however validity testing theory methodology rarely evident prom validation literature application theory methodology would provide structure comprehensive validation planning support improved prom development sound arguments validity prom score interpretation use new context paper proposes application contemporary validity theory methodology prom validity testing validity testing principles applied hypothetical case study focus interpretation use scores translated prom measures health literacy health literacy questionnaire hlq although robust psychometric properties prom precondition use proms validity lies sound argument network empirical evidence supports intended interpretation use prom scores decision making particular context health sector yet apply contemporary theory methodology prom development validation theoretical methodological processes paper offered advancement theory practice prom validity testing health sector
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https://doi.org/10.1093/deafed/eng002
|
Gary R. Mottola
|
In Our Best Interest: Women, Financial Literacy, and Credit Card Behavior
| 2,013 | null |
data finra investor education foundations national financial capability study revealed women likely engage costly credit card behaviorslike incurring late overthelimit feesthan men controlling number demographic variables including financial literacy selfassessment mathematical ability genderbased differences credit card behavior eliminated findings suggest credit card management differences sexes could reduced parity existed men women important variables women tend trail men income financial literacy
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https://doi.org/10.1146/annurev-financial-111914-041834
|
Nermeen E. El Nokali|Heather J. Bachman|Elizabeth Votruba?Drzal
|
Parent Involvement and Children’s Academic and Social Development in Elementary School
| 2,010 |
University of Pittsburgh|University of Pittsburgh|University of Pittsburgh
|
data national institute child health human development nichd study early childcare youth development n 1364 used investigate childrens trajectories academic social development across 1st 3rd 5th grades hierarchical linear modeling used examine within betweenchild associations among maternal teacher reports parent involvement childrens standardized achievement scores social skills problem behaviors findings suggest withinchild improvements parent involvement predict declines problem behaviors improvements social skills predict changes achievement betweenchild analyses demonstrated children highly involved parents enhanced social functioning fewer behavior problems similar patterns findings emerged teacher parent reports parent involvement implications policy practice discussed
|
https://doi.org/10.1136/bmjgh-2022-009623
|
John Harraway
|
Learning statistics in the senior school using illustrated real data in context
| 2,009 |
University of Otago
|
data generating project work middle school successful component statistics training level censusatschool gaise cause projects statistics new zealand surfs also provide data investigation middle school beyond motivate students real data current research used classroom help take statistics training next level data described eleven research projects presented dvds matching data provided cds context outlined study design data collection discussed proposals made analyses answer questions dvds developed use 2009 feature illustrated researcher talks dvds cds also available viewing web range studies described along tasks carried feedback school teachers students relevance resource discussed
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https://doi.org/10.3390/su15075894
|
Wilma Berdien Kippers|Cindy L. Poortman|Kim Schildkamp|Arend J. Visscher
|
Data literacy: What do educators learn and struggle with during a data use intervention?
| 2,018 |
University of Twente|University of Twente|University of Twente|University of Twente
|
data literacy prerequisite making databased decisions paper focuses extent educators develop components data literacy 1year data use intervention well learn struggle concerning data literacy components data use intervention teams teachers school leaders data expert use data solve educational problem school employed mixed methods approach combining data pre posttest data literacy test n 27 interviews n 12 evaluations meetings n 33 logbooks findings show educators data literacy increased significantly participants data coach indicated educators learned example analyze data excel refute misconceptions still room improvement example educators struggled formulating data use purpose plausible sufficiently concrete measurable
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https://doi.org/10.3389/fpubh.2017.00124
|
Kashyap Vinay Singh|Nautiyal Neelam
|
Investigating and Understanding Library Data Services to Support Law Graduates Data Literacy Competencies: A Conceptual Framework
| 2,024 |
Apex Heart Institute|Apex Heart Institute
|
data literacy important ability modern knowledge culture data literacy application gaining traction society need consider wide range tools accessing converting altering data also necessary grasp relational databases ms access statistical software tools spss stata minitab ms excel data manipulation techniques data presenting software tools ms powerpoint ms excel increase available data offers distinct issues library services might libraries help example reskilling efforts build datadriven mindset study examines investigation understanding library data services order support law graduates data literacy competencies article discussed data literacy connections statistical literacy information literacy also offers data library competencies law graduates demonstrates become data literate
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https://doi.org/10.1016/j.ijans.2021.100280
|
Marieke van Geel|Trynke Keuning|Arend J. Visscher|Jean?Paul Fox
|
Changes in educators' data literacy during a data-based decision making intervention
| 2,017 |
University of Twente|Maastricht University|University of Twente|University of Twente|University of Twente
|
data literacy assumed precondition effective implementation databased decision making schools study aimed investigating changes 1182 educators data literacy regard student monitoring system data 2year intervention assessed using pretest posttest multivariate multilevel irt analysis conducted multivariate approach enabled identification differences initial data literacy development based educators characteristics findings showed significant improvements educators data literacy furthermore knowledge gap educators masters degree versus higher education closed gap teachers school leaders
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https://doi.org/10.1016/j.ridd.2018.05.004
|
David Crusoe
|
Data Literacy defined pro populo: To read this article, please provide a little information
| 2,016 |
Boys & Girls Clubs of America
|
data literacy fundamental importance societies emphasize extensive use data information decisionmaking yet prior definitions data literacy fall short addressing myriad ways individuals shepherds subjects data article proposes definition accurately reflect individual society including knowledge data collected analyzed visualized shared understanding data applied benefit detriment within cultural context security privacy article concludes proposing opportunities strengths limitations directions future research
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https://doi.org/10.1590/1413-812320152010.19692014
|
Giulio Sabbati
|
Statistical and Data Literacy, a practitioner’s view for policy-making: How to provide independent, objective and authoritative data and information for policy-making
| 2,022 | null |
data literacy ability search read understand create communicate data ask right questions data know cannot said explain story better provide insights data form infographics visually appealing elements respective knowledge profile referred data scientist within policymaking key question role data scientist working policymakers play moreover skills capabilities master crucial understanding instance type information policymakers need right format communicate data statistics likewise policymakers important recognise skills needed understand messages deriving data data scientists help understand data article gives practitioners view data literacy policymaking highlights steps data scientist follows communicate insights data statistics form data visualisation infographics looks tasks performed data scientist preparing papers ability undertake tasks regarded essential skills knowhow help cannot work effectively data
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https://doi.org/10.4103/1947-2714.97210
|
Velma Mc Bride Murry|Cady Berkel|Gene H. Brody|Shannon Miller|Yi Fu Chen
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Linking parental socialization to interpersonal protective processes, academic self-presentation, and expectations among rural African American youth.
| 2,009 |
Family Research Institute|University of Georgia|Arizona State University|Family Research Institute|University of Georgia|University of Georgia|Family Research Institute|University of Georgia
|
data obtained 2 waves longitudinal study 671 rural african american families 11yearold preadolescent used examine pathways racial ethnic socialization influence youth selfpresentation academic expectations academic anticipation structural equation modeling analyses indicated racial ethnic socialization linked youth expectations anticipation academic success youth selfpride included racial identity selfesteem academic selfpresentation results highlight need disaggregate racial ethnic socialization attain better understanding ways parenting domains uniquely forecast youth selfpride academic orientation
|
https://doi.org/10.1186/s12909-015-0289-2
|
Marina Videnovi?|Jeléna Radiši?
|
Mathematics related anxiety: Mathematics bogeyman or not?
| 2,011 |
Institut za filozofiju|Educational Research Institute
|
data pisa 2003 survey indicate high levels mathematics anxiety students serbia half students worry whether difficulties mathematics class whether earn poor marks aims study therefore examining relationship math anxiety achievement mathematics literacy scale establishing possible predictors math anxiety identification students groups relations relationship towards mathematics subject mathematics anxiety statistically negatively correlated school achievement achievement mathematics literacy scale sociodemographic factors motivational cognitive aspects related learning mathematics perception school classroom climate explain 40 variance mathematics anxiety based students relationship towards mathematics cam divided three groups dimensions apart uninterestedinterested mathematics presenceabsence anxiety group displaying anxiety scores lowest among three applying qualitative analysis students teachers attitudes specific issues related teaching learning mathematics examined
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https://doi.org/10.1186/s13104-015-1708-5
|
Baiba Kondrica|Ilze Ivanova|Tamara Grizane
|
Health literacy assessment of Vidzeme statistical region
| 2,021 |
University of Latvia|Tur?ba University
|
data health literacy population latvia limited aim study determine health literacy impacting factors inhabitants vidzeme statistical region latvia lv008 respondent survey n 383 using paperandpencil selfadministered approach telephone interviews conducted based european health literacy survey questionnaire hlseuq47 order ensure internal consistency reliability authors used cronbachs test 0965 confirmatory factor analysis cfa allowed determine factor results differentiate genders strong positive correlation r 0945 impacts results factors access appraise apply explained 30 variance factors understand explained 31 hl index division gender indicated 474 female respondents 466 male respondents limited health literacy inadequate problematic largest age group among respondents 1839year old lower level education lower income however cases observed respondents even higher education limited health literacy indicates towards need hl research latvia compared hl member states lv008 hl index 389 larger eu average 476
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https://doi.org/10.1007/s40670-021-01256-4
|
Gilles Wandeler|Olivia Keiser|Karolin Pfeiffer|Sabrina Pestilli|Christiane Fritz|Niklaus Daniel Labhardt|Franzisco Mbofana|Robert F Mudyiradima|Jan Emmel|Matthias Egger|Jochen Ehmer
|
Outcomes of Antiretroviral Treatment Programs in Rural Southern Africa
| 2,012 |
University Hospital of Bern|Institute of Social and Preventive Medicine|University of Bern|University of Bern|Institute of Social and Preventive Medicine|Ministry of Health|Ministry of Health and Child Welfare|University of Bern|Institute of Social and Preventive Medicine
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data outcomes antiretroviral treatment art programs rural subsaharan african scarce describe early losses longterm outcomes 6 rural programs southern africa limited access viral load monitoring secondline artpatients aged 16 years starting art 2 programs zimbabwe mozambique lesotho included evaluated risk factors followup starting art mortality loss followup ltfu 3 years art using logistic regression competing risk models odds ratios subdistribution hazard ratios adjusted gender age category cd4 category world health organization stage start art reportedamong 7725 patients 449 58 return initiation art 9575 personyears 698 96 least 1 followup visit died 1319 181 ltfu 3 years cumulative incidence death ltfu 125 115135 254 240269 respectively important differences countries follows zimbabwe 751 728773 alive art 3 years compared 554 528580 lesotho 516 480552 mozambique settings young age male gender predicted ltfu whereas advanced clinical stage low baseline cd4 counts predicted deathin african art programs limited access secondline treatment mortality ltfu high first 3 years art low retention care major threat sustainability art delivery southern africa particularly rural sites
|
https://doi.org/10.1186/s12877-017-0552-y
|
K. Mani|G. Rangan|HV Srinivas|S. Kalyanasundaram|Siddharth Narendran|Ananda Reddy
|
The yelandur study: a community-based approach to epilepsy in rural south India—epidemiological aspects
| 1,998 |
Indian Medical Association|Indian Medical Association|Indian Medical Association|Indian Medical Association|Indian Medical Association|Indian Medical Association
|
data epidemiology epilepsy rural community developing country would value planning decentralized management malady early stages commensurate available local resources detailed screening instrument covering various seizure types used trained paramedical workers doortodoor survey population 64963 rural south india prevalence period 1 april 1990 31 march 1991 crude prevalence rate per 1000 active epilepsy 438 males 340 females 391 minimum maximum prevalence rates latter computed validation sample 391 463 active epilepsy 028 077 inactive epilepsy 419 541 lifetime prevalence addition corresponding figures hotwater epilepsy type reflex epilepsy peculiar area 249 299 active phase 035 085 inactive phase 285 383 lifetime prevalence incidence rate epilepsy 493 per 100000 developed countries data support concept prevalence epilepsy developing countries twice developed world however role localregional variations borne mind extrapolating figures entire country
|
https://doi.org/10.1002/14651858.cd010783.pub3
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Aisha Lofters|Andrée Schuler|Morgan Slater|Nancy N. Baxter|Navindra Persaud|Andrew D. Pinto|Ed Kucharski|Sam Davie|Rosane Nisenbaum|Tara Kiran
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Using self-reported data on the social determinants of health in primary care to identify cancer screening disparities: opportunities and challenges
| 2,017 |
St. Michael's Hospital|St. Michael's Hospital|St. Michael's Hospital|University of Toronto|St. Michael's Hospital|St. Michael's Hospital|Cancer Care Ontario|St. Michael's Hospital|St. Michael's Hospital|University of Toronto
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data social determinants health help primary care practices target improvement efforts yet relevant data rarely available family practice located toronto ontario routinely collects patientlevel sociodemographic data via pilottested survey developed multiorganizational steering committee sought use data assess relationship social determinants colorectal cervical breast cancer screening describe opportunities challenges using data social determinants selfadministered patient surveypatients family practice eligible least one three cancer screening types based age screening guidelines june 30 2015 answered least one question sociodemographic survey included study linked selfreported data sociodemographic survey conducted waiting room patients electronic medical record data cancer screening records created individuallevel income variable lowincome cutoff defined poverty threshold took household size account sociodemographic characteristics patients overdue screening compared uptodate screening cancer type using chisquared testswe analysed data 5766 patients survey data survey participants significantly higher screening rates 729 787 744 colorectal cervical breast cancer screening respectively 13 036 patients survey data 592 653 589 respectively foreignborn patients significantly likely uptodate colorectal screening canadianborn peers showed significant differences breast cervical cancer screening found significant association lowincome cutoff variable cancer screening neighbourhood income quintile significantly associated cancer screening housing status also significantly associated colorectal cervical breast cancer screening large amount missing data lowincome cutoff variable approximately 25 across three cohortswhile able show neighbourhood income might underestimate incomerelated disparities screening individuallevel income also challenging variable collect future work area target income disparity cancer screening simultaneously explore best collect measures poverty
|
https://doi.org/10.1111/acem.13573
|
Lorenzo Ciccione|Mathias Sablé-Meyer|Esther Boissin|Mathilde Josserand|Cassandra Potier-Watkins|Serge Caparos|Stanislas Dehaene
|
Trend judgment as a perceptual building block of graphicacy and mathematics, across age, education, and culture
| 2,023 |
NeuroSpine Institute|Université des Lettres et des Sciences Humaines de Bamako|Cognitive Neuroimaging Lab|Laboratory for the Psychology of Child Development and Education|Laboratoire Dynamique du Langage|Université Paris Sciences et Lettres|Collège de France|Institut Universitaire de France|Paris 8 University|Collège de France
|
data plots widely used science journalism politics since efficiently allow depict large amount information graphicacy ability understand graphs thus become fundamental cultural skill comparable literacy numeracy introduce measure intuitive graphicacy assesses perceptual ability detect trend noisy scatterplots graph go 3943 educated participants responses vary sigmoid function tvalue statistician would compute detect significant trend find minimum level core intuitive graphicacy even unschooled participants living remote namibian villages n 87 6yearold 1stgraders never read graph n 27 sigmoid slope propose proxy intuitive graphicacy increases education tightly correlates statistical mathematical knowledge showing experience contributes refining graphical intuitions tool publicly available online allows quickly evaluate formally quantify perceptual building block graphicacy
|
https://doi.org/10.1016/j.jalz.2013.04.209
|
Jeffrey C. Oliver|Christine Kollen|Benjamin Hickson|Fernando Rios
|
Data Science Support at the Academic Library
| 2,019 |
University of Arizona|University of Arizona|University of Arizona|University of Arizona
|
data science rapidly growing field applications across scientific domains demand support data science literacy outpacing available resources college campuses academic library uniquely positioned provide training guidance number areas relevant data science university arizona libraries built successful data science support program focusing computational literacy geographic information systems reproducible science success program largely due strength library personnel strategic partnerships units outside library academic libraries support campus data science needs professional development current staff recruitment new personnel expertise dataintensive domains
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https://doi.org/10.1177/097133369000200102
|
Manfred Hauben|Robert F. Reynolds|Patrick Caubel
|
Deconstructing the Pharmacovigilance Hype Cycle
| 2,018 |
Pfizer (United States)|Pfizer (United States)|Pfizer (United States)
|
data science making increasing contributions pharmacovigilance although technical innovation works indisputable efficient progress realworld pharmacovigilance signal detection may hampered corresponding technology life cycle effects resulting tendency conclude large enough datasets intricate algorithms numbers speak discounting importance clinical scientific judgment practical consequence overzealous declarations regarding safety lack safety drugs describe concerns critical discussion key results conclusions case studies selected illustrate points
|
https://doi.org/10.1111/j.1728-4457.2011.00412.x
|
Rosario Isasi|Peter W. Andrews|Jay M. Baltz|Annelien L. Bredenoord|Paul R. Burton|Ing Ming Chiu|Sara Chandros Hull|Ji Won Jung|Armin Kurtz|Geoffrey Lomax|Tenneille E. Ludwig|Michael McDonald|Clive Morris|Huck Hui Ng|Heather M. Rooke|Alka Sharma|Glyn Stacey|Curtis A. Williams|Fanyi Zeng|Bartha Maria Knoppers
|
Identifiability and Privacy in Pluripotent Stem Cell Research
| 2,014 |
McGill University|University of Sheffield|Ottawa Hospital|University of Ottawa|University Medical Center Utrecht|University of Bristol|National Health Research Institutes|National Institutes of Health|National Human Genome Research Institute|Korea National Institute of Health|Korea Disease Control and Prevention Agency|Berlin-Brandenburger Centrum für Regenerative Therapien|Seoul National University|California Institute for Regenerative Medicine|WiCell|University of British Columbia|National Health and Medical Research Council|Genome Institute of Singapore|Agency for Science, Technology and Research|Ministry of Science and Technology|Government of India|National Institute for Biological Standards and Control|Brunel University London|McGill University
|
data sharing essential element research however recent scientific social developments challenged conventional methods protecting privacy provide guidance determining data sharing thresholds human pluripotent stem cell research aimed wide range stakeholders including research consortia biorepositories policymakers funders data sharing essential element research however recent scientific social developments challenged conventional methods protecting privacy provide guidance determining data sharing thresholds human pluripotent stem cell research aimed wide range stakeholders including research consortia biorepositories policymakers funders discovery technologies generate induced pluripotent stem cell ipsc lines corresponding derivation large numbers lines research potential therapeutic use resulted rejuvenated interest biorepositories mckernan watt 2013mckernan r watt fm nat biotechnol 2013 31 875877crossref pubmed scopus 52 google scholar stacey et al 2013stacey gn crook jm hei ludwig cell stem cell 2013 13 385388abstract full text full text pdf pubmed scopus 54 google scholar biorepositories vital infrastructures providing primary material primary samples cell lines associated data research clinical translation today biorepositories serve also primary resource authenticated quality controlled ethically sourced human pluripotent stem cell hpsc lines robust banking networks enable global access wellcharacterized traceable hpscs essential prerequisite scientific reproducibility stacey et al 2013stacey gn crook jm hei ludwig cell stem cell 2013 13 385388abstract full text full text pdf pubmed scopus 54 google scholar availability resources presents wide range therapeutic opportunities however sharing also comes attendant responsibility protect donors research participants hereinafter participants privacy competing factors require striking delicate balance amount quality data collected precautions taken sharing information comprehensive data curation important cellline misidentification continues pervasive problem undermining scope authenticity research findings addition wellannotated genomic epigenomic data participants phenotypic demographic data facilitates disease modeling drug development contributes understanding genetic variation role normal cell behavior next generation sequencing ngs technologies combined bioinformatic data systems enable data analysis wide range participants facilitating translation cellbasedtherapies kreiner irion 2013kreiner irion cell stem cell 2013 12 513516abstract full text full text pdf pubmed scopus 9 google scholar mckernan watt 2013mckernan r watt fm nat biotechnol 2013 31 875877crossref pubmed scopus 52 google scholar forum discuss challenges establishing thresholds sharing publishing individualsummary data associated hpsc research review ensuing scientific socioethical legal implications propose framework criteria data sharing policies recommendations directed wide range stakeholders fundamental scientific data perceived community resource data sharing constitutes ethical scientific imperative recognized international funders scientific organizations across disciplines jurisdictions knoppers 2010knoppers bm embo rep 2010 11 416419crossref pubmed scopus 31 google scholar kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar imperative underpinned principles reciprocity solidarity respect stakeholders data sharing envisaged tripartite responsibility data producers users funders isasi et al 2012isasi r knoppers bm andrews pw bredenoord colman hin le hull kim oj lomax g morris c et alinternational stem cell forum ethics working partyregen med 2012 7 439448crossref pubmed scopus 26 google scholar knoppers et al 2011knoppers bm isasi r benvenisty n kim oj lomax g morris c murray th lee eh perry richardson g et alinternational stem cell forum ethics working partystem cell rev 2011 7 482484crossref pubmed scopus 12 google scholar scientific integrity progress dependent sharing raw data researchers also ability widely disseminate research findings turn public trust earned maintained responsible stewardship latter entails protectingand possibly also promotingthe interests participants advancing societal benefits moreover trust requires respecting divergent interests balancing benefits risks proportionate appropriate manner rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar several scientific social developments prompting reconsideration imperative data sharing conceptualized implemented decreasing costs increasing accessibility ngs cloud computing along growing volume richness complexity genomic information available challenging individual privacy traditional methods designed manage secure data eg coding anonymization factors together reports ease reidentification scientific literature popular press contribute changing public attitudes meaning individual privacy attendant expectations fiduciary duties data stewards kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar empirical studies assess participants data sharing decisions attitudes demonstrate regarding clinical genetics research participants overall health informational altruists studies reassuring suggest inability guarantee privacy may deter individuals participating research rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar however also need consider mitigating actions ensure participants trust science example participants often wish involved decisionmaking concerns governance mechanisms safeguarding privacy addition studies show participants privacyutility tradeoff decisions vary real versus hypothetical scenarios kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar hpsc research specifically emerging evidence participants broadly support data sharing even maintaining privacy concerns research needed systematically assess participants views dasgupta et al 2014dasgupta bollinger j mathews dj neumann nm rattani sugarman j cell stem cell 2014 14 912abstract full text full text pdf pubmed scopus 25 google scholar crucial juncture novel statistical methods associated tools allow drawing inferences possibly revealing identity individual participants biomedical research genomic information intrinsically selfidentifying source familial information recent study demonstrated reidentification possible even absence reference sample gymrek et al 2013gymrek mcguire al golan halperin e erlich science 2013 339 321324crossref pubmed scopus 741 google scholar several genomic studies also demonstrated wide range scenarios reidentifying participants biomedical research could possible triangulating multiple publicly available data sources eg census genealogy data obituaries voter registries etc established relying 75 individual statistically independent snp loci could enable unique individual identifiability gymrek et al 2013gymrek mcguire al golan halperin e erlich science 2013 339 321324crossref pubmed scopus 741 google scholar rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar reidentification ability protected data traced back participant occur directly indirectly deliberately unintentionally different means 1 directly matching genomic data reference genotype 2 deduction linking nongenetic databases eg health care forensic administrative genealogical etc matching genotype associated data eg gender age disease status etc 3 inference profiling genomic data dna analysis eg gender blood type etc consequently individual identifiability currently present incremental levels overtly identifiable potentially identifiable rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar gymrek et al 2013gymrek mcguire al golan halperin e erlich science 2013 339 321324crossref pubmed scopus 741 google scholar kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar generalizability abovementioned methods tools continues evaluated evidencebased risk reassessments continue debated clear concepts identifiability privacy shifting expectations stakeholders proportional realistic risk assessment due consideration given existence multiple data resources potential data users malicious intruders also different data environments whole extend well beyond research context privacy risk assessments also situated society social media directtoconsumer genetic testing omnipresent knoppers 2010knoppers bm embo rep 2010 11 416419crossref pubmed scopus 31 google scholar manner individuals broadly openly sharing personal information genomic otherwise well family members information either directly association factors increase likelihood participant reidentification expanding range data resources publicly available used combination data sources reidentify individuals create vulnerabilities governance mechanisms decrease effectiveness data security measures challenge protections privacy confidentiality thereby provide opportunity participant reidentification gymrek et al 2013gymrek mcguire al golan halperin e erlich science 2013 339 321324crossref pubmed scopus 741 google scholar rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar reasons relying solely traditional methods based informed consent data coding anonymization irreversibly stripping identifiers naive insufficient protect participants privacy kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar sophisticated security measures combination sanctions deliberate breaches confidentiality required keep pace technological developments knoppers et al 2011knoppers bm isasi r benvenisty n kim oj lomax g morris c murray th lee eh perry richardson g et alinternational stem cell forum ethics working partystem cell rev 2011 7 482484crossref pubmed scopus 12 google scholar pivotal concern regarding identifiability potential personal health information associated specific individual possible harms discrimination eg employment insurance stigmatization stress anxiety kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar harms need confined individual could also extended community subpopulation participant belongs based disease condition ethnicity familial relations needless say unintended deliberate misuse disclosure personal information due participant reidentifiability breaches trust established researchers participants therefore risks harms restricted solely participants also present data stewards researchers entire scientific enterprise rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar knoppers et al 2011knoppers bm isasi r benvenisty n kim oj lomax g morris c murray th lee eh perry richardson g et alinternational stem cell forum ethics working partystem cell rev 2011 7 482484crossref pubmed scopus 12 google scholar also emphasized however present time concerns reidentification genomic data research context largely hypothetical knownpublished reports breaches confidentiality resulting actual harm participants genetic research published examples using statistical methods reidentify genomic data proofs concept rather malicious uses data gymrek et al 2013gymrek mcguire al golan halperin e erlich science 2013 339 321324crossref pubmed scopus 741 google scholar rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar given hesc line reflects contributions two genetically different individuals geneticgenotype data arising hesc line unique embryocell line directly attributable individual donor reason possibility donor reidentification based solely upon genotype hesc line remains extremely remote however hescassociated data would correspond directly genotype individual donor donors information gleaned using diverse molecular analyses could medical social significance donors related individuals moreover cases interpretations certain genetic data derived numerous loci eg ethnicity combined laboratory origin partial genotype information putative donor donors could sufficient donors identify identified others triangulation public information knoppers et al 2011knoppers bm isasi r benvenisty n kim oj lomax g morris c murray th lee eh perry richardson g et alinternational stem cell forum ethics working partystem cell rev 2011 7 482484crossref pubmed scopus 12 google scholar isasi et al 2012isasi r knoppers bm andrews pw bredenoord colman hin le hull kim oj lomax g morris c et alinternational stem cell forum ethics working partyregen med 2012 7 439448crossref pubmed scopus 26 google scholar contrast hesc lines ipscs contain donorspecific dna gene insertion reprogramming process results minor changes dna changes methylation patterns geneticgenomic data arising context remains virtually identical donor consideration given circumstances potential reidentifiability exacerbated example context donors affected rare disorders due small population size uniqueness genotype media publicity could allow discovery personal data linked genetic information isasi et al 2012isasi r knoppers bm andrews pw bredenoord colman hin le hull kim oj lomax g morris c et alinternational stem cell forum ethics working partyregen med 2012 7 439448crossref pubmed scopus 26 google scholar scientists research consortia biorepositories funding bodies envisage system data sharing grounded principles good governance ensures fair balance individual interests public benefits system rely establishing different thresholds data sharing minimize chances triangulation particular data set data sets could facilitate reidentification participant kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar thresholds situated along continuum overtly identifiable potentially identifiable datasamples rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar subject ongoing reassessment reflect pace scientific discoveries consider changing public attitudes determine contemporaneous concerns participants regards meaning individual privacy attendant expectations regarding scope fiduciary duties datasample custodians moreover goal open science principles transparency autonomy beneficence argue favor system broad informed consent sharing genotypic phenotypic data hpsc lines subject appropriate governance knoppers et al 2011knoppers bm isasi r benvenisty n kim oj lomax g morris c murray th lee eh perry richardson g et alinternational stem cell forum ethics working partystem cell rev 2011 7 482484crossref pubmed scopus 12 google scholar isasi et al 2012isasi r knoppers bm andrews pw bredenoord colman hin le hull kim oj lomax g morris c et alinternational stem cell forum ethics working partyregen med 2012 7 439448crossref pubmed scopus 26 google scholar robust consent process entails empowering participants make risksbenefits assessment participation also requires improving genetic literacy knoppers 2010knoppers bm embo rep 2010 11 416419crossref pubmed scopus 31 google scholar kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar end consent process explicitly address datasharing scenarios implications protection participants privacy confidentiality disclose reasonably foreseeable likelihood reidentification without overstating likelihood risks materializing also acknowledging nonabsolute effectiveness available protections propose framework criteria data sharing policies funding bodies scientists research consortia biorepositories policy should1be consistent participant consent conform applicable laws ethics within consent process limitations data protection measures disclosed2establish conditions releasing data include binding enforceable commitment researchers data custodians share data unauthorized third parties use data alone combination data sets either attempt create conditions reidentification individual participant end oversight mechanisms established3manage data associated given hpsc line eg genomic epigenomic phenotypic demographic available based proportional assessment risks individual identifiability tailored nature cell line derivation eg hescs versus ipscs cautious approach taken sharing raw sequence reads eg whole genomes full exomes short tandem repeats strs snps identity profiles given include sensitive personal information directly identifiable would facilitate reidentification otherwise deidentified data however research laboratories encouraged share str profiles cell lines bona fide researchers biorepositories identity data eg strs snps etc shared strict confidence solely purposes confirming cell line identity quality control purposes resolving cases cell line crosscontamination4stipulate appropriate sanctions breach authorized handle data5in conformity recommendation 3 make available sensitive personal data associated hpsc line bona fide researchers provided protocol isconsistent widely recognized good research practice applicable legal ethical requirementsaimed generating new knowledge understanding using rigorous scientific methodsintended publication sharing research findings scientific community without undue restrictions andreviewed independent oversight entity field hpsc research evolves changes potential reidentifiability participants data stewards should1make appropriate adjustments data sharing arrangements line considerations and2avail research concerns hpsc participants use information guide data sharing practices methods governance mechanisms ensure absolute protection participant identity rodriguez et al 2013rodriguez brooks ld greenberg jh green ed science 2013 339 275276crossref pubmed scopus 95 google scholar kaye 2012kaye j annu rev genomics hum genet 2012 13 415431crossref pubmed scopus 153 google scholar currently participant reidentification rare proportionate approach privacy context data sharing construed based reasonably foreseeable risks thereby distinguishing perceived real risks approach rely worst case hypothetical scenarios relate situations possibility identifiability remains negligible knoppers 2010knoppers bm embo rep 2010 11 416419crossref pubmed scopus 31 google scholar importantly subject ongoing reassessment reflect evolving scientific advances well changing public attitudes sometimes react hypothetical scenarios dasgupta et al 2014dasgupta bollinger j mathews dj neumann nm rattani sugarman j cell stem cell 2014 14 912abstract full text full text pdf pubmed scopus 25 google scholar proportionate criteria determining risks real remote identifiability needed avoid unnecessarily overexpanding privacy regulations could hinder scientific progress moreover drafting criteria question whether informationrich societies goal complete deidentifiability avoid privacyrelated risks realistic laudable goal knoppers 2010knoppers bm embo rep 2010 11 416419crossref pubmed scopus 31 google scholar amount legal protection ethical safeguards eliminate risks enforceable sanctions eg withholdingterminating actualfuture funding participation research projects disclosing misconduct funding bodies stakeholders misuse data realistic useful legal tools furthermore use transparent terminology coded refer deidentified cell lines databut instead acknowledges small potential risk reidentificationmay serve provide potential participants accurate basis making informed decisions whether assume risks permit cells data used research grateful international stem cell forum stem cell network canada funding support opinions expressed authors alone
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https://doi.org/10.1371/journal.pone.0172052
|
Barri Burrus|Kathleen Krieger|Regina Rutledge|Alexander Rabre|Sarah Axelson|Audra L Miller|LeBretia White|Christine Jackson
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Building Bridges to a Brighter Tomorrow: A Systematic Evidence Review of Interventions That Prepare Adolescents for Adulthood
| 2,018 |
RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families|RTI International|Administration for Children and Families
|
data suggest adverse social determinants adolescence set motion lifetime poor social health outcomes vulnerable youths particularly high risk regardto identify assess current evidence base adolescentfocused interventions designed influence adulthood preparation could affect longerterm social determinantsusing systematic review methodology conducted initial assessment intervention evaluations targeting 6 adulthood preparation subject aps areas assess quality character evidence base review specific evaluated interventions address least 1 6 aps areas healthy relationships adolescent development financial literacy parentchild communication educational career success healthy life skillsthe inclusion criteria follows 1 published english independent peerreviewed journal 2 conducted developed englishspeaking countries 3 implemented intervention addressed least 1 6 aps areas delivered inperson setting 4 included youths 5th 12thgrade levels aged 10 18 years point intervention implementation 5 included evaluation component comparison group baseline followup measures 6 included behavioral measures outcomes 7 reported statistical significance levels behavioral outcome measureswe developed abstraction form capture details article including key details intervention services implementer characteristics timing adulthood preparation foci evaluation design methods key behavioral measures results including key statistically significant results behaviorbased outcome measures assessed study quality using several key factors including randomization baseline equivalence treatment control groups attrition confounding factors characterized quality evidence high moderate low basis described design execution research assessment included information stated explicitly manuscripta total 36 independent intervention evaluations met criteria inclusion 27 75 included significant findings behavioral outcomes related adulthood preparation quality mixed across studies 36 studies reviewed 27 used randomized controlled design 15 group randomization 12 individual randomization whereas others used observational prepost designs ten studies used mixedmethods approaches n 32 studies used selfreport questionnaires baseline followup questionnaire 14 studies included multiple followup points studies reviewed 7 studies received highquality rating indicating significant issues identified within quality criteria rated 23 studies moderate quality indicating methodological challenges within 1 quality criteria categories common reasons studies downrated poor baseline equivalency across treatment groups discussion baseline equivalency high levels attrition finally 6 studies received lowquality rating methodological challenges across multiple quality domains studies broadly represented aps areas identified systematic differences study quality across aps areasalthough intervention results indicate behavioral changes may linked adulthood preparation skills many extant findings derived moderate poorquality studies additional work needed build evidence base using methodologically rigorous implementation evaluation designs execution public health implications interventions designed help adolescents better prepare adulthood may potential affect longerterm social determinants health wellbeing theorydriven approaches rigorously evaluated interventions could strengthen evidence base improve effectiveness adulthood preparation interventions
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https://doi.org/10.1371/journal.pone.0102028
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Dandan Huang|Melanie Tory|Bon Adriel Aseniero|Lyn Bartram|Scott Bateman|Sheelagh Carpendale|Anthony Tang|Robert Woodbury
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Personal Visualization and Personal Visual Analytics
| 2,015 |
University of Victoria|University of Victoria|University of Calgary|Simon Fraser University|University of Prince Edward Island|University of Calgary|University of Calgary|Simon Fraser University
|
data surrounds every one us daily lives ranging exercise logs archives interactions others social media online resources pertaining hobbies enormous potential us use data understand better make positive changes lives visualization vis visual analytics va offer substantial opportunities help individuals gain insights communities interests however designing tools support data analysis nonprofessional life brings unique set research design challenges investigate requirements research directions required take full advantage vis va personal context develop taxonomy design dimensions provide coherent vocabulary discussing personal visualization personal visual analytics identifying exploring clusters design space discuss challenges share perspectives future research work brings together research previously scattered across disciplines goal call research attention space engage researchers explore enabling techniques technology support people better understand data relevant personal lives interests needs
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https://doi.org/10.1186/s13071-017-2588-4
|
Rosemary Lucy Hill
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The political potential of numbers: data visualisation in the abortion debate
| 2,017 |
University of Leeds
|
data visualisation argued power change world implicitly better comes abortion sides make moral claims good visualisation conventions clean lines shapes simplify data lending rhetoric neutrality data whole story imperative therefore examine data visualisations used shape womens lives article draws findings persuasive data project google image scraper used locate abortionrelated visualisations circulating online images web locations data use social semiotically analysed understand visual rhetoric political use antiabortion groups likely use data visualisation prochoice groups thereby simplifying issue mobilising rhetoric neutrality argue data visualisations used hindrance womens access abortion critique visualisations needs come feminists article extends discussions data often reified objective showing rhetoric objectivity within data visualisation conventions harnessed work world potentially damaging womens rights
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https://doi.org/10.1186/s12903-018-0557-8
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Ryan Womack
|
Data Visualization and Information Literacy
| 2,015 | null |
data visualization information literacy
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https://doi.org/10.3389/fpubh.2017.00209
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Paul L. Morgan|George Farkas|Marianne M. Hillemeier|Carol Scheffner Hammer|Steve Maczuga
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24?Month?Old Children With Larger Oral Vocabularies Display Greater Academic and Behavioral Functioning at Kindergarten Entry
| 2,015 |
Pennsylvania State University|University of California, Irvine|Pennsylvania State University|Columbia University|Pennsylvania State University
|
data analyzed populationbased longitudinal sample 8650 us children identify factors associated predictive oral vocabulary size 24 months age b evaluate whether oral vocabulary size uniquely predictive academic behavioral functioning kindergarten entry children higher socioeconomic status households females experiencing higher quality parenting larger oral vocabularies children born low birth weight households mother health problems smaller oral vocabularies even extensive covariate adjustment 24monthold children larger oral vocabularies displayed greater reading mathematics achievement increased behavioral selfregulation fewer externalizing internalizing problem behaviors kindergarten entry
|
https://doi.org/10.1620/tjem.241.131
|
Fabienne van der Kleij|Theo J. H. M. Eggen
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Interpretation of the score reports from the Computer Program LOVS by teachers, internal support teachers and principals
| 2,013 |
University of Twente|Cito (Netherlands)|Cito (Netherlands)|University of Twente
|
datadriven decision making decision making conducted use pupil monitoring systems become increasingly popular netherlands considered promise means increasing pupils learning outcomes reports generated pupilmonitoring computer program lovs cito provide educators reliable objective data feedback however research suggested many users struggle interpreting reports study aims investigate extent reports correctly interpreted educators identify various potential stumbling blocks regards interpretation reports results suggest users encounter many stumbling blocks reports often cannot interpret entirely correctly
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https://doi.org/10.4103/jfmpc.jfmpc_793_20
|
Amanda Wilson|Jane Robertson|Patrick McElduff|Alison Jones|David Henry
|
Does It Matter Who Writes Medical News Stories?
| 2,010 |
University of Newcastle Australia|University of Newcastle Australia|University of Newcastle Australia|Western Sydney University|Institute for Clinical Evaluative Sciences|University of Newcastle Australia
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david henry colleagues review australian news stories fiveyear period assess whether quality associated wrote story specialist health journalist nonspecialist
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https://doi.org/10.3122/jabfm.2008.03.070255
|
Maria Hälleberg Nyman|Ulrica Nilsson|Karuna Dahlberg|Maria Jaensson
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Association Between Functional Health Literacy and Postoperative Recovery, Health Care Contacts, and Health-Related Quality of Life Among Patients Undergoing Day Surgery
| 2,018 |
Örebro University|Örebro University|Örebro University|Örebro University
|
day surgery puts demands patients manage recovery home according given instructions low health literacy levels shown associated poorer health outcomesto describe functional health literacy levels among patients sweden undergoing day surgery describe association functional health literacy fhl health care contacts quality recovery swqor healthrelated quality lifethis observational study part secondary analysis randomized clinical trial patients undergoing day surgery performed multiple centers october 2015 july 2016 included 704 patientsthe primary end point swqor fhl groups 14 days surgery secondary end points health care contacts euroqolvisual analog scales short form 36 health survey fhl groupsof 704 patients 418 594 women mean sd age inadequate problematic fhl levels 47 16 years 49 151 respectively 427 607 reported sufficient fhl 223 317 problematic fhl 54 77 inadequate fhl global score swqor indicated poor recovery inadequate 374 problematic 229 fhl statistically significant difference global score swqor sd inadequate 374 347 sufficient fhl 177 210 p 001 patients inadequate problematic fhl lower healthrelated quality life patients sufficient fhl terms euroqolvisual analog scale scores mean sd 73 191 73 191 78 174 respectively p 008 physical function mean sd 72 227 75 238 81 219 respectively p 001 bodily pain mean sd 51 287 53 274 61 270 respectively p 001 vitality mean sd 50 267 56 235 62 254 respectively p 001 social functioning mean sd 73 282 81 218 84 233 respectively p 004 mental health mean sd 65 254 73 212 77 212 respectively p 001 physical component summary mean sd 41 112 42 113 45 101 respectively p 004 differences fhl groups regarding health care contactsinadequate fhl patients undergoing day surgery associated poorer postoperative recovery lower healthrelated quality life health literacy relevant factor consider optimizing postoperative recovery patients undergoing day surgeryclinicaltrialsgov identifier nct02492191
|
https://doi.org/10.1007/s11606-014-2845-6
|
E De Jager|Alexander Levine|Rhea Udyavar|Helen Burstin|Nizar Bhulani|David B. Hoyt|Clifford Y. Ko|Joel S. Weissman|L. D. Britt|Adil H. Haider|Melinda Maggard-Gibbons
|
Disparities in Surgical Access: A Systematic Literature Review, Conceptual Model, and Evidence Map
| 2,019 |
Novem (Netherlands)|Australian Government|National Institute on Minority Health and Health Disparities|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|Novem (Netherlands)|American College of Surgeons|University of California, Los Angeles
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de jager elzerie mbbshonsab levine adele mpha udyavar rhea n mda burstin helen r md mphc bhulani nizar md mpha hoyt david b md facsd ko clifford md ms mshs facsdef weissman joel phda britt l md mph facsg haider adil h md mph facsa maggardgibbons melinda md mshs facse author information
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https://doi.org/10.2196/jmir.3142
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Michael McKee|Paul Winters|Ananda Sen|Philip Zazove|Kevin Fiscella
|
Emergency Department utilization among Deaf American Sign Language users
| 2,015 |
University of Michigan–Ann Arbor|University of Rochester|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Rochester
|
deaf american sign language asl users comprise linguistic minority population poor health care access due communication barriers low health literacy potentially health care barriers could increase emergency department ed use compare ed use deaf nondeaf patients retrospective cohort medical records sample derived 400 randomly selected charts 200 deaf asl users 200 hearing english speakers outpatient primary care health center high volume deaf patients abstracted data included patient demographics insurance health behavior ed use past 36 months deaf patients likely never smokers insured medicaid adjusted analysis deaf individuals significantly likely use ed odds ratio 197 95 confidence interval ci 111351 prior 36 months deaf american sign language users appear greater odds elevated ed utilization compared general hearing population efforts understand drivers increased ed utilization among deaf asl users much needed
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https://doi.org/10.1186/s12873-015-0051-4
|
Christina G.S. Palmer|Patrick Boudreault|Barbara A. Berman|Alicia Wolfson|Lionel Duarte|Vickie L. Venne|Janet S. Sinsheimer
|
Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study
| 2,017 |
Neurobehavioral Systems|Gallaudet University|UCLA Health|Neurobehavioral Systems|Neurobehavioral Systems|United States Department of Veterans Affairs|Veterans Health Administration|Applied Biomathematics (United States)
|
deaf american sign languageusers asl limited access cancer genetics information readily understand increasing risk health disparities compared effectiveness online cancer genetics information presented using bilingual approach asl english closed captioning monolingual approach english textbilingual modality would increase cancer genetics knowledge confidence create family tree education would interact modalitywe used parallel 21 randomized prepost study design stratified education 150 deaf aslusers 18 years old computer internet access participated online 100 70 high 30 low education 50 35 high 15 low education randomized bilingual monolingual modalities modalities provide virtually identical content creating family tree using family tree identify inherited cancer risk factors understanding cancer predisposition inherited role genetic counseling testing prevention treatment 25 truefalse items assessed knowledge likert scale item assessed confidence data collected within 2 weeks viewing informationsignificant interaction language modality education change knowledge scores observed p 01 high education group increased knowledge regardless modality bilingual p 001 56 monolingual p 001 108 low education group increased knowledge bilingual p 001 85 monolingual p 79 08 modality bilingual modality yielded greater confidence creating family tree p 03bilingual approach provides better opportunity lower educated deaf aslusers access cancer genetics information monolingual approach
|
https://doi.org/10.1016/s0140-6736(10)61508-5
|
Jean Andrews|Beth Hamilton|Kim Misener Dunn|M. Diane Clark
|
Early Reading for Young Deaf and Hard of Hearing Children: Alternative Frameworks
| 2,016 |
Lamar University|Lamar University|Gallaudet University|Clemson University|Lamar University
|
deaf children develop reading skills using visual language bridge meaning english print without use english auditory phonologyto end five deafcentric frameworks described take account use visual language visual learning well use deaf cultural role models teaching readingmoving away deficit model frameworks focus deaf 1 students act reading order document actual behaviors using bilingual american sign languageenglish philosophythese five models suggest involved reading simply bottomup codebased strategies based spoken languagemultiple pathways recommended based work treisman idea fault tolerant approaches permit encourage multiple pathways deaf readers
|
https://doi.org/10.1016/j.invent.2016.09.004
|
Jacqueline Leybaert|Bernadette Charlier
|
Visual Speech in the Head: The Effect of Cued-Speech on Rhyming, Remembering, and Spelling
| 1,996 |
Université Libre de Bruxelles|Université Libre de Bruxelles
|
deaf children rely mainly lipreading understand spoken language phonological representations develop lipread signal underspecified leading poor performances mental activities relying representations overcome difficulties systems designed deliver entirely visually specified information phonological contrasts spoken language paper explores consequences exposure one systems namely cuedspeech cs development phonological representations deaf children exposed early cs home show reliance inner speech rhyming remembering spelling similar displayed hearing children different deaf children exposed early cs argue degree specificity phonological information delivered deaf children important modality though perceive speech development phonological abilities
|
https://doi.org/10.1002/da.20882
|
Naomi Hyoguchi|Daisuke Kobayashi|Takeshi Kubota|Takao Saruta
|
Effects on Deaf Patients of Medication Education by Pharmacists
| 2,016 |
Kyushu University|Kyushu University|Kyushu University|Kyushu University
|
deaf people often experience difficulty understanding medication information provided pharmacists due communication barriers held medication education lectures deaf hard hearing hh individuals examined extent deaf participants understood medicationrelated information well attitude medication used two questionnaires compare results deaf participants hh hearing participants found lecture deaf participants understanding medication use lower hh hearing participants deaf participants knowledge increased lecture improve level exhibited hh participants however deaf participants felt confident using medication despite low comprehension levels conclusion adjusting medication information provided pharmacists according recipients reading level could help improve deaf patients knowledge however measures might increase deaf patients comprehension levels sufficiently
|
https://doi.org/10.1136/bmjopen-2019-034723
|
Philip Zazove|Helen E. Meador|Barbara D. Reed|Ananda Sen|Daniel W. Gorenflo
|
Cancer Prevention Knowledge of People with Profound Hearing Loss
| 2,009 |
Michigan Medicine|Ann Arbor Center for Independent Living|Michigan Medicine|Michigan Medicine|Michigan Medicine
|
deaf persons documented minority population low reading levels difficulty communicating physicians effect knowledge cancer prevention recommendations unknown crosssectional study 222 ddeaf persons michigan age 18 older chose one four ways voice video certified american sign language interpreter captions printed english complete selfadministered computer video questionnaire demographics hearing loss language history healthcare utilization healthcare information sources well family social variables twelve questions tested knowledge cancer prevention recommendations outcome measures percentage correct answers questions association multiple variables responses participants averaged 229 correct answers gender difference univariate analysis revealed smoking history types medical problems last physician visit women previous cancer preventive tests affect scores improved scores occurred computer use p 005 higher education p 001 income p 001 hearing spouses p 001 speaking english multiple situations p 0001 men previous prostate cancer testing p 004 obtaining health information books p 005 physicians p 0008 nurses p 003 internet p 002 believing smoking bad p 0001 also improved scores multivariate analysis revealed english use p 001 believing smoking bad p 005 associated improved scores persons profound hearing loss poor knowledge recommended cancer prevention interventions english use multiple settings strongly associated increased knowledge
|
https://doi.org/10.1007/s10865-009-9233-4
|
Adrian G. Dyer
|
Predictors of Reading Delay in Deaf Adolescents: The Relative Contributions of Rapid Automatized Naming Speed and Phonological Awareness and Decoding
| 2,003 |
University of East London
|
deaf readers often fail achieve ageappropriate reading levels hearing children two cognitive factors correlated reading delay phonological awareness decoding pad rapid automatized naming ran visual material study explored contribution factors reading reading delay sample deaf students n 49 mean age 13 years whose reading age ra around 7 years although pad performance poor deaf students compared ramatched hearing controls nevertheless correlated ra whether tested sign speech ran much faster deaf group ramatched hearing controls showed direct relationship reading level reading delay conclude contrast pad factor deaf hearing reading achievement ran may indirectly related reading deaf students
|
https://doi.org/10.1007/s10549-015-3563-4
|
Sandra Nitz|Shaaron Ainsworth|Claudia Nerdel|Helmut Prechtl
|
Do student perceptions of teaching predict the development of representational competence and biological knowledge?
| 2,014 |
Leibniz Institute for Science and Mathematics Education|University of Nottingham|Technical University of Munich|Leibniz Institute for Science and Mathematics Education
|
dealing representations crucial skill students representational competence essential learning science study analysed relationship representational competence content knowledge student perceptions teaching practices concerning use different representations impact students outcome teaching unit participants 931 students 51 secondary school classes representational competence content knowledge interactively related representational aspects moderately included teaching students develop rich representational competence although content knowledge increased significantly multilevel regression showed student perceptions interpreting constructing visualgraphical representations active social construction knowledge predicted students outcome class level whereas individually perceived amount terms use symbolic representations influenced students achievement individual level methodological practical implications findings discussed relation development representational competence classrooms
|
https://doi.org/10.1007/s11606-008-0846-z
|
Sebastian Kuntze
|
Prerequisites for understanding statistics about society: the interplay of context knowledge, statistical thinking, and critical thinking
| 2,016 | null |
dealing statistics society classroom raises questions instructional goals instance using statistics society instead statistics classroom goal statistics education around statistics society thinkable aim fostering statistical literacy statistical thinking form raises questions learners needs understanding statistics society eg facilitating understanding statistics society foster statistical literacy critical thinking context knowledge points need avoiding narrow focus statistics education also need knowing interplay three variables learners make sense statistics society poster presents corresponding relationship model suggests statistical thinking necessary understanding statistics society supported critical thinking knowledgeviews context however evidence interplay three factors model scarce particular confronted representations data society make sense critical thinking context knowledge always play supporting role contrary even impede statistical thinking
|
https://doi.org/10.1177/0004867415603129
|
Amanda P. Goodwin|Robert T. Jiménez
|
From the Editors
| 2,021 | null |
dear colleagues pleased present issue reading research quarterly full new ways thinking literacy assessments topics ranging digital reading multimodal composition biliteracy assessments effectiveness reading interventions international contexts sets group studies apart build strong foundation prior work add key understandings also lean similarities differences present across contexts readers texts tasks overall issue conveys advances understandings literacy hope find pieces exciting multifaceted comprehension heuristic proposed commentary designed invite members literacy community embrace unpack complexity digital reading also working promote greater clarity around important dimensions reading worthy consideration future organizing dimensions digital comprehension rand reading study groups 2002 framework help expand thinking validating familiar understandings text activity reader context part comprehension also highlighting important differences within across elements technology continues transform conceptions reading years ahead found piece riveting hope continue propel research forward area digital reading overwhelmingly presented benefits emergent bilinguals including impactful opportunities agentively expressing identities reshaping traditional classrooms expanding communicative repertoires findings underscore kresss 2003 assertion multimodal literacies offer inversion semiotic power p 9 allows composers express innovative empowering ways typically afforded written texts emerging bilingual learners biliteracy abilities often underestimated monolingual reading assessments dibels used identify students difficulties learning guide literacy instruction propose holistic form biliterate assessment uses writing means understand emerging bilingual learners actually know literacy examination students biliterate writing able uncover vast amount knowledge related literacy skills apparent either dibels spanish equivalent idel fact skills often remediated phonemic awareness ability decode words connect words ideas meaningful ways readily apparent students spanish english writing samples fact students writing samples illustrate well theory holistic bilingualism students knew one language eg alphabetic principle organization text fact punctuation marks needed meaning making frequently applied across languages one direction bidirectional ways studies like highlight possibilities using strengthsbased assessments better guide instruction students speaking minority home language exhibited higher reading selfconcept crosslagged paths revealed reciprocal effects reading achievement reading selfconcept grade 1 grade 2 particularly students german home language minority homelanguage students showed significantly lower effects reading achievement subsequent reading selfconcept grade 1 grade 2 grade 2 onward reading achievement predicted reading selfconcept vice versa explaining implications findings authors argue teachers might capitalize minority homelanguage students favorable initial reading selfconcept thereby support students subsequent reading development engage students writing digital process social process essential elements studied model include following sustained professional development including gradual release teacher inquiry b writing social practice c use digital tools engage students writing results suggested successes integration digital tools confidence teaching writing challenges persisted tools applied conventional writing forms rather exploring tools could allow students go beyond forms participate shared practice culture work shows complexities supports needed teachers engage students new forms writing supporting students orthographic processing skills early stages literacy educationa statistically significant interaction orthographic processing rime neighbors suggested effect rime neighbors spelling acquisition moderated learners orthographic processing ability thus spelling instruction perhaps tailored students levels orthographic processing ability students less developed orthographic processing skills grouping words based rime neighbors might help facilitate spelling acquisition nevertheless benefit rime neighbors less evident students welldeveloped orthographic processing skills highlights new way viewing spelling relevant theory research practice support overall validity single developmental pattern german students learning disabilities regarding development phonological processing depending aspect phonological information processing considered found evidence favor persistent deficits respect phonological awareness increasing differences phonological loop decreasing deficits alphanumeric rapid automatized naming results study important contribution knowledge works improve literacy outcomes students haiti fragile contexts despite many difficulties results demonstrate considerable gains literacy skill areasa program read learn might solution learning crisis additional poor fragile contexts would like thank authors reviewers staff support pieces make strong contribution field look forward watching impact field please remember follow us facebook ilarrq twitter drgoodwin4lit also remember check interviews authors online youtube videos httpswwwyoutubecomplaylistlistplpekvzxdk8qnih4nx5oj5xtexzsldc5t videos podcasts httpsilaonlinelibrarywileycompagejournal19362722homepagerrqauthorinterviews finally dont forget check first special issue science reading httpsilaonlinelibrarywileycomtoc19362722202055s1 stay tuned release second special issue science reading well
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https://doi.org/10.1001/archgenpsychiatry.2011.122
|
Elysha Kolitz|Juliana Pineider|Melissa Mauskar|Audrey Rutherford
|
The impact of an encounter with a gynaecologic dermatologist on quality of life, health literacy and education satisfaction for patients with vulvar lichen sclerosus: A survey study
| 2,021 |
The University of Texas Southwestern Medical Center|The University of Texas Southwestern Medical Center|The University of Texas Southwestern Medical Center|The University of Texas Southwestern Medical Center
|
dear editor vulvar lichen sclerosus vls chronic inflammatory dermatosis severely impact quality life qol14 women vls express disappointment medical care view social justice issue2 3 reasons unsatisfactory care multifactorial societal health system conditionspecific factors implicated2 3 5 ultimately patients eager learn vls associate quality care communication treatment education2 3 however decreased health literacy negatively impacts patients healthcare experience may diminish compliance5 purpose study investigate qol health literacy education satisfaction vls patients initial encounter gynaecologic dermatologist specialist crosssectional pilot survey emailed consenting adult women referred specialist vls specialist blinded participants history physical completed including taking patient photographs appendix s1 diagnosis confirmation specialist educated patient patients photograph printed annotated reference specialist demonstrated petrolatum much topical medication use applying correct amount dorsal hand standardized handout research article individualized written directions provided appendix s1 postencounter surveys collected electronically matched preencounter surveys using anonymous identifiers survey qol measured using vulvar quality life index vqli1 health literacy assessed selfrated disease understanding management capabilities6 patients satisfaction providerpatient interactions education queried survey questions adapted health literacy survey study hidradenitis suppurativa6 likert scale satisfied completely satisfied assessed education satisfaction pre postsurveys ordinal continuous data analysed using nonparametric wilcoxon matchedpairs signed rank test graphpad prism version 900 pvalues reported tests statistical significance comparisons twotailed alpha error set 5 total 31 women vls received survey 27 871 completed presurvey 25 806 completed postsurvey matched pre postsurveys complete responses included narrowing sample size 15 485 two women identified hispanic latinx spanish origin 13 women identified whitecaucasian average age 48 encounter vqli decreased significantly indicating improvement qol p 00083 patientreported health literacy significantly improved encounter determined patientrated knowledge p 00004 ability manage p 00002 tools treat p 00005 ability explain vls p 00039 amount education provided p 00012 survey responses prior patient encounter indicated patients less satisfied previous education healthcare providers 67 patients reported satisfied 27 somewhat satisfied figure 1a encounter data showed statistically significant improvement patients satisfaction rating regarding explanation disease complications treatment goals treatment duration 53 individuals reported completely satisfied 33 satisfied figure 1b results indicated education helpful trustworthy delivered suitably overall participants acknowledged positive experience specialist compared previous medical encounters patients indicated using patients photograph education 93 demonstrating apply medication 93 demonstrating amount use 87 listening patient experiences 87 differentiating factors satisfactory specialist encounter figure 1cd distinguishing factors impacting patient education satisfaction reported patients vulvar lichen sclerosus initial gynaecologic dermatology specialist encounter factors led dissatisfaction education patients answered satisfied red n 10 somewhat satisfied yellow n 4 one patient respond b factors led satisfaction education patients answered completely satisfied green n 8 satisfied blue n 5 two patients responded either somewhat satisfied satisfied included table c different methodologies information presented given patient previous medical encounters orange versus specialist blue factors 80 n 12 15 participants selected differentiating specialist encounter previous medical encounters study confirms prior findings demonstrate vls specialist encounters lead improved qol4 furthermore study revealed specialist encounter improved patients health literacy education satisfaction previous reports show patients vls may receive adequate information education condition speciality referral2 addressing patients concerns regarding prior experience health care2 able differentiate characteristics visit increased understanding vls confidence management overall satisfaction characteristics patient demonstration topical treatments utilizing patients photograph personalized education left significant impressions patients since treatment nonadherence population relates misunderstanding treatment quantity location2 7 simple techniques described may potentially address adherence challenges5 8 hope findings implemented amongst healthcare providers encounter patients limitations pilot study include small sample size selection recall observation biases annotated patient photographs demonstrations much apply topical treatments incorporated encounters dermatologic conditions requiring topical treatments future studies assess whether techniques translate improved patient treatment adherence clinical outcomes vls would like thank dr libby edwards originally created lichen sclerosus informational handout modified dr melissa mauskar authors declare conflict interests e kolitz data curation formal analysis resources writing original draft writing review editing j pineider data curation project administration resources writing original draft writing review editing mauskar conceptualization supporting investigation methodology project administration resources supervision writing original draft writing review editing rutherford conceptualization formal analysis investigation methodology project administration resources supervision writing original draft writing review editing data sharing applicable article datasets generated analysed current study please note publisher responsible content functionality supporting information supplied authors queries missing content directed corresponding author article
|
https://doi.org/10.1001/jamapsychiatry.2016.0004
|
Paul Sutcliffe|Dorothy V. M. Bishop|Stephen Houghton|Myra F. Taylor
|
Effect of Attentional State on Frequency Discrimination: A Comparison of Children With ADHD On and Off Medication
| 2,006 |
University of Sheffield|University of Oxford|University of Western Australia|University of Western Australia
|
debate continues hypothesis children language literacy difficulties genuine auditory processing deficit several recent studies reported deficits frequency discrimination fd unclear whether genuine perceptual impairments reflective comorbid attentional problems exist many children language literacy difficulties present study investigated fd children attention deficit hyperactivity disorder adhd attentional state altered stimulant medication auditory thresholds obtained using fd frequency modulation detection fm tasks fd task participants judged 2 pairs contained highlow frequency sound fm task children judged two tones wobbled ie modulated children adhd significantly poorer variable fd performance compared stimulant medication significantly worse controls fd runs stimulant medication however children adhd differ controls fm task findings demonstrate certain auditory discrimination tasks influenced childs attentional status addition significant relationships fd measures language reading abolished comorbid attentional difficulties taken account study implications design interpretation studies investigating links auditory discrimination difficulties language literacy
|
https://doi.org/10.1186/s12888-016-0809-6
|
A. H. Chin|Selam Negash|Roy H. Hamilton
|
Diversity and Disparity in Dementia
| 2,011 |
University of Pennsylvania|Penn Center for AIDS Research|Penn Center for AIDS Research|University of Pennsylvania
|
debate exists regarding differences prevalence alzheimer disease ad african americans hispanics united states evidence suggesting prevalence ad may considerably higher groups nonhispanic whites despite possible disparity patients minority ethnoracial groups often receive delayed diagnosis inadequate treatment dementia review investigates disparities conceptualizing dementia disease process product biological cultural factors ethnoracial differences biological risk factors genetics cardiovascular disease may help explain disparities incidence prevalence ad whereas racespecific cultural factors may impact diagnosis treatment cultural factors include differences perceptions normal aging lack adequate access medical care issues trust minority groups medical establishment diagnosis ad diverse populations may also complicated racial biases inherent cognitive screening tools widely used clinicians controlling literacy level using savings scores psychometric analyses potential mitigate biases also suggest emerging biomarkerbased diagnostic tools may useful characterizing diverse populations ad recognizing gap communication exists minority communities medical research community propose education outreach critical next step effort understand ad relates diverse populations
|
https://doi.org/10.1186/1471-244x-13-129
|
Christopher Burgess|Fay Johnston|David M. J. S. Bowman|Peter Whitehead
|
Healthy Country: Healthy People? Exploring the health benefits of Indigenous natural resource management
| 2,005 |
Flinders University|Centre for Remote Health|Charles Darwin University|Charles Darwin University
|
decades healthrelated research produced large body knowledge describing alarming rates morbidity mortality socialcultural disruption among indigenous australians failed deliver sustainable interventions arrest deepening spiral illhealth paper explores potential indigenous natural resource management nrm activities promote preserve indigenous health remote areas northern australiaa literature review health social science ecology peerreviewed journals secondary literatureeffective interventions indigenous health require transdisciplinary holistic approaches explicitly incorporate indigenous health beliefs engage social cultural drivers health aboriginal peoples maintain strong belief continued association caring ancestral lands key determinant health individual engagement country provides opportunities physical activity improved diet well boosting individual autonomy selfesteem internationally culturally congruent health promotion activities successful programs targeting substance abuse chronic diseases nrm fundamental maintenance biodiversity northern australia increased support indigenous involvement land sea nrm programs would also deliver concrete social benefits communities including opportunities sustainable culturally apt regional employment applied education economic development nrm may also reinvigorate societalcultural constructs increasing collective esteem social cohesion
|
https://doi.org/10.1002/14651858.cd004517.pub2
|
Margaret Holmes?Rovner|Sue Stableford|Angela Fagerlin|John T. Wei|Rodney L. Dunn|Janet Ohene-Frempong|Karen Kelly?Blake|David R. Rovner
|
Evidence-based patient choice: a prostate cancer decision aid in plain language
| 2,005 |
Michigan State University|VA Center for Clinical Management Research|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|Michigan State University|Michigan State University
|
decision aids da assist patients evaluating treatment options sharing decision making proliferated recent years require high literacy use plain language principles describe one first attempts design decision aid using principles reading research document design plain language da prototype addressed treatment decisions localized prostate cancer evaluation assessed impact knowledge decisions discussions doctors men newly diagnosed prostate cancerdocument development steps included preparing evidencebased da standard medical parlance iteratively translating emphasize shared decision making plain language three formats booklet internet audiotape scientific review medical content integrated expert health literacy review document structure design formative evaluation methods included focus groups n 4 survey new sample men newly diagnosed prostate cancer n 60 compared historical controls n 184a transparent description development process design elements reported formative evaluation among newly diagnosed prostate cancer patients found da clear useful reaching decision newly diagnosed patients reported discussions doctors treatment options showed increases knowledge side effects radiation therapythe plain language da presenting medical evidence text numerical formats appears acceptable useful decisionmaking localized prostate cancer treatment testing evaluate impact three media decisions made quality life survivorship period especially among low literacy men
|
https://doi.org/10.1186/s13033-018-0186-2
|
Alaa Rostom|Annette M. O’Connor|Peter Tugwell|George A. Wells
|
A randomized trial of a computerized versus an audio-booklet decision aid for women considering post-menopausal hormone replacement therapy
| 2,002 |
Ottawa Hospital|University of Ottawa|Ottawa Hospital|University of Ottawa|Ottawa Hospital|University of Ottawa|Ottawa Hospital|University of Ottawa
|
decision aids das increasingly developed help patients make shared health care decisions practitioners formal comparisons efficacy different delivery methods interactive computerized delivery methods advantage allowing patients control flow information receive feedback comprehension purpose study compare efficacy interactive computerized da women considering longterm hormone replacement therapy validated audiobooklet version intervention fiftyone perimenopausal women randomized use either computerized standard audiobooklet version da computerized version presented identical information addition feedback modules reinforce participants understanding patients interviewed pre postintervention questionnaire computerized da improved realistic expectations 527 baseline versus 276 audiobooklet p0015 knowledge kn scores improved 175 84 computer standard da groups respectively p0019 results study implications future da design areas patient kn understanding important setting informed consent
|
https://doi.org/10.1016/j.jad.2020.09.131
|
Dawn Stacey|France Légaré|Krystina B. Lewis|Michael J. Barry|Carol Bennett|Karen Eden|Margaret Holmes?Rovner|Hilary A. Llewellyn?Thomas|Anne Lyddiatt|Richard Thomson|Lyndal Trevena
|
Decision aids for people facing health treatment or screening decisions
| 2,017 |
University of Ottawa|Ottawa Hospital|The Quebec Population Health Research Network|Université Laval|University of Ottawa|Health Decisions (United States)|Ottawa Hospital|Oregon Health & Science University|Michigan State University|Dartmouth College|Newcastle University|University of Sydney
|
decision aids interventions support patients making decisions explicit providing information options associated benefitsharms helping clarify congruence decisions personal valuesto assess effects decision aids people facing treatment screening decisionsupdated search 2012 april 2015 central medline embase psycinfo grey literature includes cinahl september 2008we included published randomized controlled trials comparing decision aids usual care andor alternative interventions update excluded studies comparing detailed versus simple decision aidstwo reviewers independently screened citations inclusion extracted data assessed risk bias primary outcomes based international patient decision aid standards ipdas attributes related choice made decisionmaking processsecondary outcomes behavioural health health system effectswe pooled results using mean differences mds risk ratios rrs applying randomeffects model conducted subgroup analysis studies used patient decision aid prepare consultation used consultation used grade assess strength evidencewe included 105 studies involving 31043 participants update added 18 studies removed 28 previously included studies comparing detailed versus simple decision aids risk bias assessment rated two items selective reporting blinding participantspersonnel mostly unclear due inadequate reporting twelve 105 studies high risk biaswith regard attributes choice made decision aids increased participants knowledge md 1327100 95 confidence interval ci 1132 1523 52 studies n 13316 highquality evidence accuracy risk perceptions rr 210 95 ci 166 266 17 studies n 5096 moderatequality evidence congruency informed values care choices rr 206 95 ci 146 291 10 studies n 4626 lowquality evidence compared usual careregarding attributes related decisionmaking process compared usual care decision aids decreased decisional conflict related feeling uninformed md 928100 95 ci 1220 636 27 studies n 5707 highquality evidence indecision personal values md 881100 95 ci 1199 563 23 studies n 5068 highquality evidence proportion people passive decision making rr 068 95 ci 055 083 16 studies n 3180 moderatequality evidencedecision aids reduced proportion undecided participants appeared positive effect patientclinician communication moreover exposed decision aid either equally satisfied decision decisionmaking process andor preparation decision making compared usual caredecision aids also reduced number people choosing major elective invasive surgery favour conservative options rr 086 95 ci 075 100 18 studies n 3844 reduction reached statistical significance removing study prophylactic mastectomy breast cancer gene carriers rr 084 95 ci 073 097 17 studies n 3108 compared usual care decision aids reduced number people choosing prostatespecific antigen screening rr 088 95 ci 080 098 10 studies n 3996 increased choosing start new medications diabetes rr 165 95 ci 106 256 4 studies n 447 testing screening choices mostly differences decision aids usual carethe median effect decision aids length consultation 26 minutes longer 24 versus 21 75 increase costs decision aid group lower two studies similar usual care four studies people receiving decision aids appear differ receiving usual care terms anxiety general health outcomes conditionspecific health outcomes studies report adverse events associated use decision aidsin subgroup analysis compared results decision aids used preparation consultation versus consultation finding similar improvements pooled analysis knowledge accurate risk perception outcomes could conduct formal subgroup analyses studies subgroupcompared usual care across wide variety decision contexts people exposed decision aids feel knowledgeable better informed clearer values probably active role decision making accurate risk perceptions growing evidence decision aids may improve valuescongruent choices adverse effects health outcomes satisfaction new updated evidence indicating improved knowledge accurate risk perceptions decision aids used either within preparation consultation research needed effects adherence chosen option costeffectiveness use lower literacy populations
|
https://doi.org/10.1192/bjo.2018.18
|
Oliver Hirsch|H. Keller|Tanja Krones|Norbert Donner?Banzhoff
|
Acceptance of shared decision making with reference to an electronic library of decision aids (arriba-lib) and its association to decision making in patients: an evaluation study
| 2,011 |
Philipps University of Marburg|Philipps University of Marburg|Philipps University of Marburg|Philipps University of Marburg
|
decision aids based philosophy shared decision making designed help patients make informed choices among diagnostic treatment options delivering evidencebased information options outcomes patient decision aid regarded complex intervention consists several presumably relevant components decision aids rarely field tested assess patients physicians attitudes towards also unclear effect decision aids adherence chosen optionsthe electronic library decision aids arribalib used within clinical encounter modular structure contains evidencebased decision aids following topics cardiovascular prevention atrial fibrillation coronary heart disease oral antidiabetics conventional intensified insulin therapy unipolar depression conducted evaluation study 29 primary care physicians included 192 patients consultation patients filled questionnaires interviewed via telephone two months later used generalised estimation equations measure associations within patient variables traditional crosstab analysespatients highly satisfied arribalib process shared decision making twothirds patients reached telephone interview wanted counselled arribalib high congruence preferred perceived decision making patients reached telephone interview 807 said implemented decision independent gender education elderly patients likely say implemented decisionshared decision making multimodular electronic library decision aids arribalib accepted high number patients positive associations general aspects decision making patients used patient groups wide range individual characteristics
|
https://doi.org/10.1186/1741-7015-12-74
|
Julia C.M. van Weert|Barbara C. Van Munster|Remco Sanders|René Spijker|Lotty Hooft|Jesse Jansen
|
Decision aids to help older people make health decisions: a systematic review and meta-analysis
| 2,016 |
University of Amsterdam|University Medical Center Groningen|University of Amsterdam|University Medical Center Utrecht|University Medical Center Utrecht|University of Sydney
|
decision aids overall successful improving quality health decision making however unclear whether impact results using decision aids also apply older people aged 65 sought systematically review randomized controlled trials rcts clinical controlled trials ccts evaluating efficacy decision aids compared usual care alternative interventions older adults facing treatment screening care decisions systematic search 1 cochrane review decision aids 2 medline embase psycinfo cochrane library central registry studies cinahl included published rctsccts interventions designed improve shared decision making sdm older adults aged 65 rctsccts analysed effect intervention subgroup mean age 65 based international patient decision aid standards ipdas primary outcomes attributes decision decision process behavioral health health system effects considered secondary outcomes data could pooled metaanalysis conducted data metaanalysis possible synthesized qualitatively search strategy yielded 11034 references abstract full text screening 22 papers included decision aids performed better control resp usual care interventions increasing knowledge accurate risk perception older people decision attributes regard decision process attributes decision aids resulted lower decisional conflict patient participation review shows promising results effectiveness decision aids older adults decision aids improve older adults knowledge increase risk perception decrease decisional conflict seem enhance participation sdm must however noted body literature effectiveness decision aids older adults still infancy one decision aid specifically developed older adults mean age studies 65 70 indicating oldestold included future research expand design application evaluation decision aids older vulnerable adults
|
https://doi.org/10.1192/bjp.bp.106.022913
|
Robert J. Volk|Stephen H. Linder|María A. López-Olivo|Geetanjali R. Kamath|Daniel S. Reuland|Smita Saraykar|Viola B. Leal|Michael Pignone
|
Patient Decision Aids for Colorectal Cancer Screening
| 2,016 |
The University of Texas MD Anderson Cancer Center|The University of Texas Medical Branch at Galveston|The University of Texas MD Anderson Cancer Center|The University of Texas MD Anderson Cancer Center|University of North Carolina at Chapel Hill|The University of Texas MD Anderson Cancer Center|The University of Texas MD Anderson Cancer Center|University of North Carolina at Chapel Hill
|
decision aids prepare patients make decisions healthcare options consistent preferences helping patients choose among available options colorectal cancer screening important rates lower screening cancers systematic review describes studies evaluating patient decision aids colorectal cancer screening averagerisk adults impact knowledge screening intentions uptakesources included ovid medline elsevier embase ebsco cinahl plus ovid psycinfo july 21 2015 pertinent reference lists cochrane review patient decisions aids reviewers independently selected studies quantitatively evaluated decision aid compared one conditions within prepost evaluation using standardized form reviewers independently extracted study characteristics interventions comparators outcomes analysis conducted august 2015twentythree articles representing 21 trials including 11900 subjects eligible patients exposed decision aid showed greater knowledge exposed control condition mean difference183 100 95 ci155 211 likely interested screening pooled relative risk15 95 ci12 20 likely screened pooled relative risk13 95 ci11 14 decision aid patients greater knowledge patients receiving general colorectal cancer screening information pooled mean difference193 100 95 ci147 238 however significant differences screening interest behaviordecision aids improve knowledge interest screening lead increased screening information impact screening similar general colorectal cancer screening information
|
https://doi.org/10.2215/cjn.03951106
|
Nicole Paraskeva|Ella Guest|Helena Lewis?Smith|Diana Harcourt
|
Assessing the effectiveness of interventions to support patient decision making about breast reconstruction: A systematic review
| 2,018 |
University of the West of England|University of the West of England|University of the West of England|University of the West of England
|
decision making breast reconstruction br following diagnosis breast cancer ductal carcinoma situ dcis reduce future breast cancer risk difficult complex paper systematically reviews interventions aiming support patients facing option br assesses effectiveness improving range patient outcomesten databases searched articles published october 2017 evaluated interventions support patient decision making br within controlled trials included studies assessed methodological quality descriptive analyses patient outcomes within included studies performedthe search yielded 3291 articles eight studies met inclusion criteria resulting evaluation seven distinct interventions n 1212 six studies assessed weak methodological quality one moderate one strong quality three five interventions demonstrated reduction decisional conflict ds 026069 two three interventions resulted reductions decisional regret ds 027369 various time points treatment choice altered two five studies changes patientreported anxiety levels whilst impact depression mixed studies reported improvements patient satisfaction involvement decision making foundfew interventions currently available whilst findings encouraging improvements patient outcomes mixed research focus development evaluation effective interventions
|
https://doi.org/10.1007/s10461-010-9836-3
|
Moulikatou Adouni Lawani|Béatriz Valéra|Émilie Fortier-Brochu|France Légaré|Pierre?Hugues Carmichael|Luc Côté|Philippe Voyer|Edeltraut Kröger|Holly O. Witteman|Charo Rodríguez|Anik Giguère
|
Five shared decision-making tools in 5 months: use of rapid reviews to develop decision boxes for seniors living with dementia and their caregivers
| 2,017 |
Université Laval|Université Laval|Université Laval|Université Laval|Université Laval|Université Laval|Hôpital du Saint-Sacrement|Hôpital du Saint-Sacrement|Université Laval|McGill University|Hôpital du Saint-Sacrement
|
decision support tools build upon comprehensive timely syntheses literature rapid reviews may allow supporting development omitting certain components traditional systematic reviews thus aimed describe rapid review approach underlying development decision support tools ie five decision boxes db shared decisionmaking seniors living dementia caregivers healthcare providers included studies based pico questions participant intervention comparison outcome describing five specific decision gave priority higher quality evidence eg systematic reviews db first identified secondary sources literature namely clinical summaries clinical practice guidelines systematic reviews initial extraction searched primary studies academic databases grey literature fill gaps evidence extracted study designs sample sizes populations probabilities benefitsharms health options single reviewer conducted literature search study selection data extracted one reviewer verified second experienced reviewer two reviewers assessed quality evidence converted probabilities absolute risks ease understanding two five experts validated content db conducted descriptive statistical analyses review processes resources required approach allowed screening limited number references range 104 406review review included 15 26 studies 2 10 health options 11 62 health outcomes conducted 9 47 quality assessments team ten reviewers varying levels expertise supported specific steps information specialist biostatistician graphic designer time required complete rapid review varied 7 31 weeks per review mean sd 19 10 weeks data extraction required time 8 68 weeks average estimated cost rapid review c11646 sd c10914 approach enabled development clinical tools rapidly traditional systematic review future studies evaluate applicability approach teamstools
|
https://doi.org/10.1186/s12991-018-0205-3
|
Glenn Salkeld|Michelle Cunich|Jack Dowie|Kirsten Howard|Manish I. Patel|Graham J. Mann|Wendy Lipworth
|
The Role of Personalised Choice in Decision Support: A Randomized Controlled Trial of an Online Decision Aid for Prostate Cancer Screening
| 2,016 |
University of Sydney|University of Wollongong|University of Sydney|London School of Hygiene & Tropical Medicine|University of Sydney|Westmead Hospital|Westmead Institute for Medical Research|Westmead Hospital|University of Sydney
|
decision support tools assist people apply populationbased evidence benefits harms individual health decisions key question whether personalising choice within decisions aids leads better decision qualityto assess effect personalising content decision aid prostate cancer screening using prostate specific antigen psa testrandomized controlled trialaustralia1970 men aged 4069 years approached participate trial1447 men randomly allocated either standard decision aid fixed set five attributes personalised decision aid choice inclusion 10 attributesto determine whether difference two groups terms 1 emergent opinion generated decision aid psa test 2 selfrated decision quality completing online decision aid 3 intention undergo screening next 12 months also wanted determine whether men personalised choice group made use extra decision attributes5 men fixed attribute group scored psa test opinion generated aid compared 62 men personalised choice group 2 56938 2df p 0001 men used personalised decision aid slightly higher decision quality 2157 df 1444 p 0031 men personalised choice group made extensive use additional decision attributes difference two groups terms stated intention undergo screening next 12 monthstogether findings suggest personalised decision support systems could important development shared decisionmaking patientcentered careaustralian new zealand clinical trials registry anzctr actrn12612000723886
|
https://doi.org/10.7717/peerj.5185
|
Areej El?Jawahri|Susan L. Mitchell|Michael K. Paasche?Orlow|Jennifer S. Temel|Vicki A. Jackson|Renee R. Rutledge|Mihir Parikh|Aretha Delight Davis|Muriel R. Gillick|Michael J. Barry|Lenny López|Elizabeth Walker-Corkery|Yuchiao Chang|Kathleen Finn|Christopher M. Coley|Angelo E. Volandes
|
A Randomized Controlled Trial of a CPR and Intubation Video Decision Support Tool for Hospitalized Patients
| 2,015 |
Massachusetts General Hospital|Harvard University|Boston University|Massachusetts General Hospital|Massachusetts General Hospital|Oregon Health & Science University|University of California, San Francisco|Harvard University|Harvard University|Harvard University|Harvard University|Massachusetts General Hospital|Harvard University|Harvard University|Harvard University|Harvard University
|
decisions cardiopulmonary resuscitation cpr intubation core part advance care planning particularly seriously ill hospitalized patients however discussions often avoidedwe aimed examine impact video decision tool cpr intubation patients choices knowledge medical orders discussions providersthis prospective randomized trial conducted 9 march 2011 1 june 2013 internal medicine services two hospitals bostonone hundred fifty seriously ill hospitalized patients age 60 advanced illness prognosis 1 year less included mean age 76 51 womenthreeminute video describing cpr intubation plus verbal communication participants preferences physicians intervention n 75 control arm usual care n 75the primary outcome participants preferences cpr intubation immediately viewing video intervention arm secondary outcomes included orders withhold cprintubation documented discussions providers hospitalization participants knowledge cpr intubation fiveitem test range 05 higher scores indicate greater knowledgeintervention participants vs controls likely want cpr 64 vs 32 p 00001 intubation 72 vs 43 p 00001 intervention participants vs controls also likely orders withhold cpr 57 vs 19 p 00001 intubation 64 vs19 p 00001 hospital discharge documented discussions preferences 81 vs 43 p 00001 higher mean knowledge scores 411 vs 245 p 00001seriously ill patients viewed video cpr intubation likely want treatments better informed options orders forgo cpr intubation discuss preferences providersclinicaltrialsgov nct01325519 registry name prospective randomized trial using video images advance care planning seriously ill hospitalized patients
|
https://doi.org/10.1186/s12888-017-1448-2
|
Desalegn Anmut Bitew|Amare Belete Getahun|Getachew Muluye Gedef|Fantahun Andualem|Mihret Getnet
|
Determinants of household decision making autonomy among rural married women based on Ethiopian demography health survey: a multilevel analysis
| 2,024 |
University of Gondar|University of Gondar|University of Gondar|University of Gondar|University of Gondar
|
decisions made household level great impact welfare individual local community well welfare nation womens independent decision reproductive health increases womens access health information utilization reproductive services great impact maternal child health outcomes however women developing lowincome countries often limited autonomy control household decisions therefore main purpose research project investigate potential determinants rural womens household decision making autonomya multi level analysis performed using fourth ethiopian demographic health survey edhs 2016 data set weighted sample 8565 married rural women included final analysis women considered autonomous made decisions alone jointly husband three household decision components dichotomized yes 1 0 multico linearity chisquare tests checked variables fulfill assumptions excluded analysis four models fitted variables pvalue 025 bivariable multilevel logistic regression included multivariable multilevel logistic regression adjusted odds ratio aor 95 confidence interval 95 ci computed variables pvalue less 005 multivariable multilevel logistic regression declared statistically significant predictorsa total 8565 weighted participants involved total respondents 6855 ci 675 695 women decision making autonomy wealth index poor aor 084 95 ci 072 097 middle aor 085 95 ci 073 098 literacy illiterate aor 075 95 ci 066 086 respondents working status working aor 068 95 ci 060 076 decides marriage parents aor 076 95 ci 067 087 proportion early marriage community high proportion early marriage aor 135 95 ci 110 172women decision making autonomy significantly determined women economic participation wealth working status womens literacy proportion early marriage community womens involvement decision marriage improving womens economic participation enhancing womens participation decide marriage enhance womens decision making autonomy
|
https://doi.org/10.1519/jpt.0b013e31828df26f
|
Christian Heuser|Annika Diekmann|Christoph Kowalski|Anna Enders|Rupert Conrad|Holger Pfaff|Lena Ansmann|Nicole Ernstmann
|
Health literacy and patient participation in multidisciplinary tumor conferences in breast cancer care: a multilevel modeling approach
| 2,019 |
University Hospital Bonn|University Hospital Bonn|German Cancer Society|Fischer (Germany)|Federal Centre for Health Education|University Hospital Bonn|University of Cologne|Carl von Ossietzky Universität Oldenburg|University Hospital Bonn
|
decisions made multidisciplinary tumor conferences mtc consider patient preferences result better patient outcomes furthermore shown breast cancer centers germany patients participate mtcs participation associated sociodemographic breast cancer centerrelated factors health literacy hl shown predictive individual health behavior important prerequisite patient participation healthcare however far nothing known association hl mtc patient participation close gap research analyzed patient characteristics affect participation mtcs whether participation varies breast cancer centersin prospective multicenter cohort study newly diagnosed breast cancer patients surveyed directly surgery t1 well 10 weeks t2 40 weeks t3 surgery descriptive analysis ttests conducted correlations independent variables run logistic multilevel regression analysis applied estimate association patient participation mtcs t1 hl hlseuq16 1 sociodemographic diseaserelated characteristics n 863 patients variation breast cancer centers n 43 centersdescriptive results show 68 breast cancer patients took part mtc logistic multilevel regression model revealed patients inadequately hl less likely participate mtcs 031 95ci 0109 pseudor2 006 participation dependent breast cancer center icc 0161these findings first show significant differences hl patient participation mtcs large sample breast cancer patients future research patient participation mtcs hl questions concerning organization communication decisionmaking mtcs without patient participation addressed patient provider perspectives must equally considereddatabase health services research vfdpiat12001630 registered prospectively 01032012
|
https://doi.org/10.1161/jaha.114.001424
|
Hanne C. Lie|Corina S. Rueegg|Sophie D. Fosså|Jon H. Loge|Ellen Ruud|Cecilie E. Kiserud
|
Limited evidence of non-response bias despite modest response rate in a nationwide survey of long-term cancer survivors—results from the NOR-CAYACS study
| 2,019 |
Oslo University Hospital|Oslo University Hospital|University of Oslo|Oslo University Hospital|University of Oslo|Oslo University Hospital|Oslo University Hospital
|
declining response rates threaten generalizability health surveys investigate 1 effect item order response rate 2 characteristics early late nonresponders 3 potential nonresponse bias populationbased health survey childhood adolescent young adult cancer survivors cayacs mailed questionnaire survey 5361 eligible cayacs identified cancer registry norway crn representing range cancer diagnoses 302item questionnaire included range survivorshiprelated questions validated patientreported outcome measures investigate itemorder effects response rates constructed two versions questionnaire presenting cancerrelated sociodemographic items first crn provided demographic clinical information total population risk nonresponse bias estimated 1 comparing outcomes early late responders answered reminder 2 applying inverse probability participation weights construct total population 100 response compare 21 priori selected outcomes early responders responders early late total population eligible survey item order affect response rates cancer first 498 vs sociodemographic first 502 shorter time since diagnosis male gender malignant melanoma diagnosis remained significant predictors nonresponse multivariable multinomial regression model significant differences 1621 survey outcomes early late responders 1821 survey outcomes early responders responders total population despite modest response rate found little evidence response bias study surveys survivorreported outcomes low response rates may still valuable generalizable total survivor population
|
https://doi.org/10.1097/qai.0000000000000258
|
Y?ld?z Akvardar|Berna Binnur Akdede|Ay?egül Özerdem|Erhan Eser|?ule Topkaya|Köksal Alptek?n
|
Assessment of quality of life with the WHOQOL?BREF in a group of Turkish psychiatric patients compared with diabetic and healthy subjects
| 2,006 |
Dokuz Eylül University|Dokuz Eylül University|Dokuz Eylül University|Manisa Celal Bayar University|Sivas State Hospital|Dokuz Eylül University
|
decreased quality life often important cause consequence psychiatric illness needs included comprehensive treatment plan authors aimed identify psychiatric patients characterize quality lives compared others suffering chronic physical illness diabetes healthy individuals total 100 psychiatric patients recruited dokuz eyll university psychiatry department outpatient clinic 34 4th edition diagnostic statistical manual diagnosis alcohol dependence 38 schizophrenia 28 bipolar disorder total 35 patients diabetes 49 healthy individuals also included study world health organizations quality life questionnaire used measure quality life patients alcohol dependence bipolar disorder schizophrenia scored lower healthy subjects physical aspects quality life patients schizophrenia lower scores psychological domain compared patients bipolar disorder patients diabetes healthy subjects social relationship domain patients schizophrenia alcohol dependence scored lower compared healthy subjects patients schizophrenia worse respect social relationships bipolar patients diabetics world health organizations quality life questionnaire useful evaluating needs targets interventions psychiatric patients
|
https://doi.org/10.1186/1471-244x-11-10
|
D?m?tr?os Poimenidis|Vasileios Papavasileiou
|
ENERGY LITERACY, RECYCLING AND RATIONAL USE OF MATERIALS IN THE DAILY LIFE IN STUDENTS OF THE FIFTH CLASS PRIMARY SCHOOLS OF AN URBAN AREA
| 2,021 |
University of the Aegean|University of the Aegean
|
decreasing ecological impact reduction nonuse material energy important modern educational challenge context education sustainable developmentinformation environmental awareness enhancing students critical thinking shape tomorrows criticallyminded adult citizensthe purpose research capture highlight basic knowledge perceptions daily practices using material indirectly energy daily lives children counting existing energy literacyit implemented 132 students fifth grade three primary schools urban area rhodes using questionnaire 19 closedended questionsthe data analyzed statistical program spss 23 presented descriptivelythe results study show bicycle chosen limited number children environmentally friendly mean transportationhowever yet many children travel foot school contributing significantly saving resourcesalso according statements save lot water various daily personal uses brushing teeth faces using shower physical hygiene washing family carnevertheless use extensive amount bottled water drinking water resulting deterioration issue plastic production managementalthough know lot issue transporting food distant areas still consume lot foods daily life vegetarianism extremely rare way eating well knowledge local seasonal fruitsthey also state significant degree recycling separation materials school units attend homes implemented lesser degree compared schoolsfurthermore recycling light bulbs generally carried significant degree placement special lamp bins instead light glass bins ordinary glass bins sometimes confusedthis also case batterieswhen comes printing files printer generally good paper handling reuse enough ink savingsalso statements appears packaging materials taken account significant extent purchasing productsoverall quite environmentally friendly behaviour course needs reinforced specialized teaching approaches context education sustainable development possible final repetition study later time evaluation interventions context energy literacy
|
https://doi.org/10.1007/s00127-021-02052-6
|
Maria D. LaRusso|Ha Yeon Kim|Robert L. Selman|Paola Uccelli|Theo L. Dawson|Stephanie M. Jones|Suzanne Donovan|Catherine E. Snow
|
Contributions of Academic Language, Perspective Taking, and Complex Reasoning to Deep Reading Comprehension
| 2,016 |
Harvard University Press|Strategic Education Research Partnership|Harvard University Press|Harvard University Press|Harvard University Press|Harvard University Press|Strategic Education Research Partnership|Harvard University Press
|
deep reading comprehension refers process required succeed tasks defined common core state literacy standards well achieve proficiency challenging reading tasks program international student assessment pisa framework purpose study test hypothesis three skill domains frequently attended instruction theories reading comprehensionacademic language perspective taking complex reasoningpredict outcomes assessment deep reading comprehension global integrated scenariobased assessment gisa oreilly weeks sabatini halderman steinberg citation2014 designed reflect students abilities evaluate texts integrate information array texts use textual evidence formulate position features deep reading comprehension tested role academic language perspective taking complex reasoning explaining variance endofyear gisa scores controlling beginningofyear scores student demographics three predictors explained small significant amounts additional variance suggest three skill domains deserve greater attention theories reading comprehension instruction
|
https://doi.org/10.1186/s13034-022-00503-9
|
Gopi Shah Goda|Matthew Levy|Colleen Flaherty Manchester|Aaron Sojourner|Joshua Tasoff
|
Who is a passive saver under opt-in and auto-enrollment?
| 2,020 |
Stanford University|London School of Economics and Political Science|University of Minnesota|University of Minnesota|Claremont Graduate University
|
defaults shown powerful effect retirement saving behavior yet limited research affected defaults whether varies based features choice environment using administrative data employersponsored retirement accounts linked survey data estimate relationship retirement saving choices individual characteristics longterm discounting present bias financial literacy exponentialgrowth bias two distinct choice environments optin regime autoenrollment regime consistent conceptual model find determinants following default contribution behavior regimespecific optin regime financial literacy plays important role predicting total contributions active saving choices maxing contributions taxpreferred account contrast autoenrollment regime present bias significant behavioral predictor contribution behavior causal interpretation estimates suggests autoenrollment increases saving primarily among low financial literacy
|
https://doi.org/10.1016/j.jad.2012.02.009
|
Cressida Fforde|Lawrence Bamblett|Ray Lovett|Scott Gorringe|Bill Fogarty
|
Discourse, Deficit and Identity: Aboriginality, the Race Paradigm and the Language of Representation in Contemporary Australia
| 2,013 | null |
deficit discourse expressed mode language consistently frames aboriginal identity narrative deficiency interwoven notions authenticity turn adhere models identity still embedded within race paradigm suffering constraints perniciously benefiting tenacity recent work shows deficit discourse surrounding aboriginality intricately entwined within across different sites representation policy expression active within outside indigenous australia thus appears exhibit characteristics foucault termed discursive formation analysis requires multidisciplinary approach developing research overseas prevalence social impact deficit discourse indicates significant link discourse surrounding indigeneity outcomes indigenous peoples however emerging work field aboriginal education well growing understanding social impact related behaviours lateral violence influence deficit discourse significantly undertheorised little understood indigenous australian context article problematise issues explore theory methods change
|
https://doi.org/10.1002/jclp.22390
|
null | null | null |
University of Manchester|Wellcome Centre for Human Genetics|Wellcome Centre for Human Genetics|University of Manchester|Wellcome Centre for Human Genetics|University of Manchester|Wellcome Centre for Human Genetics|University of Manchester|Wellcome Centre for Human Genetics|University of Manchester|University of Manchester|Wellcome Centre for Human Genetics|Wellcome Centre for Human Genetics|University of Manchester|Wellcome Centre for Human Genetics|University of Manchester|Wellcome Centre for Human Genetics|University of Manchester
|
deficits phonological shortterm memory aspects verb grammar morphology proposed phenotypic markers specific language impairment sli suggestion traits likely different genetic influences investigation 300 firstdegree relatives 93 probands sli examined familial aggregation genetic linkage two measures thought index two traits nonword repetition tense marking particular involvement chromosomes 16q 19q examined previous studies found two regions related sli results showed strong association relatives probands scores nonword repetition contrast association found tense marking examined continuous measure however significant familial aggregation found tense marking treated binary measure cutoff point 15 sd suggestive possibility qualitative distinctions trait may familial quantitative variability may consequence nonfamilial factors linkage analyses supported previous findings sli consortium linkage chromosome 16q phonological shortterm memory chromosome 19q expressive language addition report new findings relate past tense phenotype continuous measure linkage found chromosomes evidence stronger chromosome 19 binary measure linkage observed chromosome 19 chromosome 16
|
https://doi.org/10.1007/s11910-013-0409-5
|
Debbie Gooch|Margaret J. Snowling|Charles Hulme
|
Time perception, phonological skills and executive function in children with dyslexia and/or ADHD symptoms
| 2,010 |
University of York|University of York|University of York
|
deficits time perception ability judge duration time intervals found children attentiondeficithyperactivity disorder adhd dyslexia paper investigates time perception phonological skills executive functions children dyslexia andor adhd symptoms aschildren dyslexiaonly n 17 asonly n 17 comorbid dyslexiaas n 25 typically developing controls n 42 matched age nonverbal ability assessed measures phonological skills executive function time perception duration discrimination time reproductionchildren dyslexia impaired measures phonological skill duration discrimination compared children without dyslexia though problems duration discrimination appeared attributable mild symptoms inattention group contrast children exhibited impairments measures time perception executive function compared children without children dyslexiaas showed additive combination deficits associated dyslexiaonly asonlydyslexia appear associated distinct patterns cognitive deficit present combination children dyslexiaas
|
https://doi.org/10.3390/ijerph18020633
|
L. J. Barker
|
Computer-Assisted Vocabulary Acquisition: The CSLU Vocabulary Tutor in Oral-Deaf Education
| 2,003 |
University of Colorado System
|
deficits vocabulary negative impact literacy interpersonal interaction deaf children part evaluation outcomes assessment conducted determine effectiveness computerbased vocabulary tutor elementary auditoryoral program participants 19 children 16 profoundly deaf 3 hearing vocabulary tutor displays line drawings photographs words learned computergenerated avatar talking head provides synthesized audiovisual speech driven text computer system also generates printed words corresponding imaged items audiovisual reception children memorized 218 new words everyday household items 4 weeks receptive vocabulary tested using avatar speak name item students retained half new words freely available vocabulary tutor whose characteristics tailored individual need provide languageintensive independent learning environment supplement classroom teaching content areas
|
https://doi.org/10.1002/nur.20363
|
James J. Choi
|
Contributions to Defined Contribution Pension Plans
| 2,015 |
Yale University|National Bureau of Economic Research
|
defined contribution dc pension plans increasingly important means financing retirement consumption individuals often substantial discretion much contributed dc pension plan studying dc contribution choices provides general insights determinants individual economic decision making literature found strong deviations many predictions classical frictionless optimizing models provide overview us dc pension system review literature effect matching contributions automatic enrollment active choice deadlines choice overload financial literacy peer effects mental accounting personal experience individuals dc contributions
|
https://doi.org/10.1016/j.rpped.2015.08.012
|
Richard H. Osborne|Christina Cheng|Sandra Nolte|Shandell Elmer|Stéphane Besançon|Shyam Sundar Budhathoki|Xavier Debussche|Sónia Dias|Peter Kolar?ík|Isabel Loureiro|Helle Terkildsen Maindal|Dulce Nascimento do Ó|James A. Smith|Astrid Klopstad Wahl|Gerald R Elsworth|Mélanie Hawkins
|
Health literacy measurement: embracing diversity in a strengths-based approach to promote health and equity, and avoid epistemic injustice
| 2,022 |
Swinburne University of Technology|University of Global Health Equity|University of Copenhagen|Swinburne University of Technology|University of Global Health Equity|Charité - Universitätsmedizin Berlin|Swinburne University of Technology|University of Global Health Equity|Nutrition & Santé (Spain)|Imperial College London|Primary Health Care|Mountain Medicine Society of Nepal|Universidade Nova de Lisboa|National School of Public Health|University of Pavol Jozef Šafárik|Universidade Nova de Lisboa|National School of Public Health|Aarhus University|Universidade Nova de Lisboa|National School of Public Health|Associacao Protectora dos Diabeticos de Portugal|Flinders University|University of Oslo|Swinburne University of Technology|University of Global Health Equity|Swinburne University of Technology|University of Global Health Equity
|
definitions health literacy evolved notions healthrelated literacy multidimensional concept incorporates importance social cultural knowledge practices contexts evolution evident development instruments seek measure health literacy different ways health literacy measurement important global health diverse stakeholders including use data inform health practice policy understand sources inequity practice paper explore potential negative consequences bias epistemic injustice occur health literacy instruments used across settings without due regard lived experiences people various contexts data collected health literacy measurement approach emicsensitive strengths based solution oriented needed minimise biased data interpretation use avoid epistemic injustice
|
https://doi.org/10.1093/sleep/27.3.541
|
Saif Ullah|Yixiong Wu|Azeem Iqbal Khan
|
Evaluating the Socioeconomic Factors on Deforestation in Northern Pakistan: A Study on Existing Economic Incentive Tools for Reducing Deforestation
| 2,023 |
Shanxi Agricultural University|Shanxi Agricultural University|University of Faisalabad|University of Agriculture Faisalabad
|
deforestation common threat environment substantial impact forests distribution across territorial boundaries simply defined loss forest cover commonly occurs result deforestation various reasons pakistan among countries high deforestation rate paper analyzes various socioeconomic factors cause deforestation northern pakistan existing economic incentive tools reducing deforestation data collected 602 respondents analyzed using descriptive statistics logistic regression model likert scale used determine mean socioeconomic factor score encouraging deforestation economic incentives used reduce deforestation gender distributions showed majority 659 respondents male 341 female family size majority respondents 668 family size 58 age 2125 years 460 recorded highest number average age respondents 24 years educationally 138 masters education 111 bachelors education 43 formal education 56 higher education level meaning masters phd students 561 primary education 90 secondary education occupation majority 504 respondents involved farming main occupation income major income recorded mean 25000 net minor income recorded mean 15500 net setting forest ablaze increasing farming activities low level literacy increasing timber mafia growing population poverty socioeconomic factors found economic incentives listed forest crop subsidies enhanced system taxes exploited forest products acquisition wellmonitored hunting licenses alternative job opportunities credit provision limited ban round log exports results logit regression established rewarding socioeconomic factors statistically significant variables p lt 005 conclusively adequately controlled applied economic incentives important instrument reducing deforestation therefore deforestation activities cannot entirely eradicated reduced barest minimum properly enforcing forest policies terms efficient forest policing goals study help implementation appropriate policies decisionmaking forest management well provide foundation future scenario analysis deforestation potential investigate potential environmental human implications
|
https://doi.org/10.1093/her/cyl034
|
Haifeng Zhang|Samantha M Loi|Shu’aijun Zhou|Mei Zhao|Xiaozhen Lv|Jing Wang|Xiao Wang|Nicola Lautenschlager|Xinguang Yu|Huali Wang
|
Dementia Literacy among Community-Dwelling Older Adults in Urban China: A Cross-sectional Study
| 2,017 |
Peking University|Peking University Sixth Hospital|University of Melbourne|Melbourne Health|Peking University|Peking University Sixth Hospital|Peking University|Peking University Sixth Hospital|Peking University|Peking University Sixth Hospital|Peking University|Peking University Sixth Hospital|Peking University|Peking University Sixth Hospital|University of Melbourne|Melbourne Health|Peking University|Peking University Sixth Hospital|Peking University|Peking University Sixth Hospital
|
delay seeking diagnosis dementia common china misinformation poor knowledge dementia may contribute study designed explore nationwide dementia literacy among older adults urban china investigate factors associated overall dementia literacyin crosssectional study convenience sample 3439 communitydwelling old adults aged 60 recruited 34 cities 20 provinces june 20 august 20 2014 participants administered facetoface mental health literacy questionnaire included prevalence symptoms intention options treatment dementia stepwise multivariate regression analysis used explore factors associated overall dementia literacythe response rate 874 overall dementia literacy 555 sd 209 among respondents correct response rate higher questions symptoms 587896 lower questions prevalence 222 choosing appropriate professional care personnel 222 male 1256 95 ci 10221543 lower per capita annual income 1314 95 ci 10641623 lower education 1462 95 ci 11621839 suspected depression 1248 95 ci 10091543 negatively associated overall dementia literacydementia literacy among communitydwelling older adults urban china remains low particular impact dementia appropriate treatment personnel community educational programs aiming close knowledge gap encouraged focus population highest risk low dementia literacy
|
https://doi.org/10.1186/s12906-017-1827-8
|
Lami Bayisa|Abilo Tadesse|Diriba Mulisa|Ebisa Turi|Tadesse Tolosa
|
Behavioral factors associated with delayed ART initiation among people living with HIV/AIDS (PLWH) in Nekemte referral Hospital, Western Ethiopia
| 2,021 |
Wollega University|University of Gondar|Wollega University|Wollega University|Wollega University
|
delayed initiation antiretroviral therapy art continues drive morbidity mortality onward human immune virus hiv infection transmission major causes hiv related life threatening events due delayed art initiation little documented timing art initiation hospital settings majority patients present advanced hiv disease opportunistic infections potentially high risk mortality discharge early initiation art needed reduce hiv related morbidity mortality reduce hiv infection transmission study aimed determine plwhs health belief factors related delayed art initiation hospitalbased crosssectional study conducted explore healthrelated beliefs among plwh delayed art initiation art clinic nekemte referral hospital western ethiopia january 1 2020 march 31 2020 time period january 1 2016 december 31 2019 consecutive sampling method used recruit 417 plwh patients interviewed obtain sociodemographic data relevant medical history obtained patients chart records collected data processed analyzed using epi data version 31 spss version 20 logistic regression models constructed identify independently associated behavioral factors delayed art initiation pvalue 005 used declare statistical significance mean age 417 plwh 335 sd98 years 75 urban dwellers attended formal education third 34 plwh initiated art delayed poor literacy status significantly associated delayed use art timing art initiation significantly affected respondents perceived threat perceived net benefit selfefficacy start art prevalence delayed art initiation relatively low strengthening mechanisms early hiv test linkage care awareness art benefit recommended initiate art early
|
https://doi.org/10.1080/07347332.2011.534014
|
Maria Psyridou|Kenneth Eklund|Anna?Maija Poikkeus|Minna Torppa
|
Reading outcomes of children with delayed early vocabulary: A follow-up from age 2–16
| 2,018 |
University of Jyväskylä|University of Jyväskylä|University of Jyväskylä|University of Jyväskylä
|
delays expressive vocabulary associated lower outcomes reading aim conduct longterm followup study investigate early expressive vocabulary delay late talking predicts reading development participants age 16 examine prediction different presence family risk dyslexia fr early receptive vocabulary delay expressive receptive vocabulary skills assessed age 225 years reading skills grades 2 3 8 9 age 816 longitudinal sample consisted 200 finnishspeaking children 108 fr dyslexia 92 came families without reading difficulties compared reading development five subgroups 1 fr vocabulary delay 2 fr late talkers 3 fr late talkers coexisting receptive vocabulary delay 4 fr late talkers 5 fr vocabulary delay group fr expressive receptive vocabulary delay difficulties reading comprehension reading fluency late talkers without receptive vocabulary difficulties tended become typical readers delays early vocabulary lead reading comprehension deficit specification expressive vocabulary deficit alone alleviate time whereas combined deficit stronger risk marker
|
https://doi.org/10.1177/0741713617731810
|
Ângela Gabrielly Quirino Freitas|Mathias Weller
|
Patient delays and system delays in breast cancer treatment in developed and developing countries
| 2,015 |
Universidade Estadual da Paraíba|Universidade Estadual da Paraíba
|
delays treating breast cancer associated advanced stage disease decrease patient survival rates scope integrative review analyze main causal factors types patient system delays underlying causal factors delays compared among studies conducted developing developed countries 53 studies selected 24 carried developing countries 29 developed countries respectively nonattribution symptoms cancer fear disease treatment low educational level frequent causes patient delay less comprehensive health insurance coverage olderyounger age false negative diagnosis tests three common causal factors system delay effects factors age decisive per se depended mainly social cultural context factors caused patient delay system delay studies conducted developing countries identified causal factors patient delay stronger focus patient delay combination studies conducted developed countries stronger focus aspects system delay treatment guidance breast cancer patients health care system
|
https://doi.org/10.1002/rrq.104
|
Palanivel Chinnakali|Nishant Gurnani|Ravi Prakash Upadhyay|Komal Parmar|Tejas M Suri|Kapil Yadav
|
High level of awareness but poor practices regarding dengue fever control: A cross-sectional study from North India
| 2,012 |
Indira Gandhi Medical College and Research Institute|All India Institute of Medical Sciences|All India Institute of Medical Sciences|All India Institute of Medical Sciences|All India Institute of Medical Sciences|All India Institute of Medical Sciences
|
delhi capital india suffered many outbreaks dengue recent past despite obvious magnitude problem scarce evidence exists documents knowledge awareness practices people regarding dengueto assess knowledge practices related control dengue fever assess differences knowledge practices based sex literacya crosssectional study conducted among persons visiting tertiary care hospital new delhi systematic sampling procedure adopted pretested questionnaire useda total 215 individuals interviewed majority respondents 963 heard dengue important sources information television 549 newspapermagazines 517 around 89 study participants considered dengue serious problem nearly 86 participants aware spread dengue mosquitoes 73 aware one correct breeding sites aedes mosquito mosquito matsliquidators used 61 respondents coils 56 repellant creams 22the awareness regarding dengue mosquito control measures satisfactory extent programs focus knowledge gets translated practice
|
https://doi.org/10.1177/0021909611427015
|
L. van de Steeg|Roelie Ijkema|Cordula Wagner|Maaike Langelaan
|
The effect of an e-learning course on nursing staff’s knowledge of delirium: a before-and-after study
| 2,015 |
Netherlands Institute for Health Services Research|Netherlands Institute for Health Services Research|Netherlands Institute for Health Services Research|Netherlands Institute for Health Services Research
|
delirium common condition hospitalized patients associated adverse outcomes longer hospital stay functional decline higher mortality well higher rates nursing home placement nurses often fail recognize delirium hospitalized patients might due lack knowledge delirium diagnosis treatment objective study test effectiveness elearning course nurses delirium knowledge describe nursing staffs baseline knowledge delirium describe demographic factors associated baseline delirium knowledge effectiveness elearning coursea beforeandafter study design using elearning course delirium course introduced nursing staff internal medicine surgical wards 17 dutch hospitals1196 invitations elearning course sent nursing staff included nurses nursing students healthcare assistants test scores final knowledge test mean 874 95 ci 867 882 significantly higher baseline mean 793 95 ci 785 801 baseline nursing staff difficulty questions related definition delirium symptoms course consequences patients risk mean score category 743 95 ci 731 755the elearning course significantly improved nursing staffs knowledge delirium subgroups participants question categories contrary studies baseline knowledge assessment showed overall nursing staff relatively knowledgeable regarding deliriumthe netherlands national trial register ntrntr 2885 19 april 2011
|
https://doi.org/10.1016/j.jaci.2018.11.022
|
Tesfalidet Tekelab|Birhanu Yadecha|Alemu Sufa Melka
|
Antenatal care and women’s decision making power as determinants of institutional delivery in rural area of Western Ethiopia
| 2,015 |
Wollega University|Wollega University|Wollega University
|
delivery skilled birth attendance serves indicator progress towards reducing maternal mortality ethiopia proportions births attended skilled personnel low 15 oromia region 147 current study identified factors associated utilization institutional delivery among married women rural area western ethiopia community based crosssectional study employed january 2 january 31 2015 among mothers gave birth last 2 years rural area east wollega zone multistage sampling procedure used select 798 study participants pretested structured questionnaire used collect data female high school graduates data collectors involved data collection process bivariate multivariable logistic regression model fit statistical significance determined 95 confidence level study revealed 397 mothers delivered health facilities age 1524 years aor 420 95 ci 207855 2534 years aor 221 95 ci 132369 womens educational level aor 200 95 ci 119334 womens decision making power aor 211 95 ci 154289 utilization antenatal care anc index pregnancy aor 156 95 ci 108223 parity one aor 220 95 ci 110438 showed significant positive association utilization institutional delivery study proportion institutional delivery low 397 age womens literacy status womens decision making power anc practice numbers live birth found important predictors institutional delivery findings current study highlight importance boosting women involvement formal education decision making power moreover since anc big pillar remaining maternal health services effort increase anc service utilization
|
https://doi.org/10.1002/acr.22748
|
Leslie Woltenberg
|
Cultivating Statistical Literacy Among Health Professions Students: a Curricular Model
| 2,021 |
University of Kentucky
|
delivery optimal evidencebased patientcentered care requires health care providers medical knowledge clinical skills also statistical literacy incumbent upon health professions education programs include critical content within curriculum mixedmethod explored health professions learners attitudes toward statistics affirms efficacious curricular model cultivation statistical literacy demonstration practical statistical significance model offers practical way integrate essential statistical methods application within medical curriculum model demonstrated success accomplishing learner competence received high degrees satisfaction via student evaluations
|
https://doi.org/10.1111/j.1525-1497.2006.00386.x
|
Michael Annear|Christine Toye|Kate Ellen J. Elliott|Fran McInerney|Claire Eccleston|Andrew Robinson
|
Dementia knowledge assessment scale (DKAS): confirmatory factor analysis and comparative subscale scores among an international cohort
| 2,017 |
University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania
|
dementia lifelimiting condition increasing global prevalence line population ageing context necessary accurately measure dementia knowledge across spectrum health professional lay populations aim informing targeted educational interventions improving literacy care support building prior exploratory analysis informed development preliminarily valid reliable version dementia knowledge assessment scale dkas confirmatory factor analysis cfa performed affirm construct validity proposed subscales increase measures utility academics educators large de novo sample 3649 volunteer respondents dementiarelated online course recruited evaluate performance dkas proposed subscales respondents represented diverse cohorts including health professionals students members general public analyses included cfa using structural equation modelling measures internal consistency nonparametric tests subscale correlation spearman correlation score differences cohorts kruskalwallis oneway analysis variance findings cfa supported 25item fourfactor model dkas two items removed due poor performance one item moved factors resultant model exhibited good reliability 85 h 87 overall scale acceptable subscale internal consistency 65 subscales subscales showed acceptable correlation without indication redundancy finally total dkas subscale scores showed good discrimination cohorts respondents would anticipated hold different levels knowledge basis education experience related dementia dkas confirmed reliable valid measure dementia knowledge diverse populations capable elucidating knowledge characteristics across four coherent domains 1 causes characteristics 2 communication behaviour 3 care considerations 4 risks health promotion importantly four confirmed subscales clearly distinguish groups might expected hold differing levels knowledge dementia allowing finegrained level detail established evaluating baseline understanding knowledge change associated educational intervention
|
https://doi.org/10.1186/1478-4491-6-6
|
Ingrid Arévalo-Rodríguez|Nadja Smailagic|Marta Roqué-Fíguls|Agustín Ciapponi|Erick Sanchez-Perez|Antri Giannakou|Olga Lucía Pedraza|Xavier Bonfill Cosp|Sarah Cullum
|
Mini-Mental State Examination (MMSE) for the early detection of dementia in people with mild cognitive impairment (MCI)
| 2,021 |
Hospital Universitario Ramón y Cajal|Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública|Instituto Ramón y Cajal de Investigación Sanitaria|University of Cambridge|Iberoamerican Cochrane Centre|Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública|Instituto de Efectividad Clínica y Sanitaria|Consejo Nacional de Investigaciones Científicas y Técnicas|Hospital Universitario Infantil San José|University of Bristol|Hospital Universitario Infantil San José|Iberoamerican Cochrane Centre|Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública|Universitat Autònoma de Barcelona|University of Auckland
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dementia progressive global cognitive impairment syndrome 2010 35 million people worldwide estimated living dementia people mild cognitive impairment mci progress dementia others remain stable recover full function great interest finding good predictors dementia people mci minimental state examination mmse bestknown often used short screening tool providing overall measure cognitive impairment clinical research community settingsto determine accuracy mini mental state examination early detection dementia people mild cognitive impairment search methods searched alois cochrane dementia cognitive improvement specialized register diagnostic intervention studies inception may 2014 medline ovidsp 1946 may 2014 embase ovidsp 1980 may 2014 biosis web science inception may 2014 web science core collection including conference proceedings citation index isi web science inception may 2014 psycinfo ovidsp inception may 2014 lilacs bireme 1982 may 2014 also searched specialized sources diagnostic test accuracy studies reviews recently may 2014 medion universities maastricht leuven wwwmediondatabasenl dare database abstracts reviews effects via cochrane library hta database health technology assessment database via cochrane library arif university birmingham uk wwwarifbhamacuk language date restrictions applied electronic searches methodological filters used method restrict search overall maximize sensitivity also checked reference lists relevant studies reviews tracked citations scopus science citation index used searches known relevant studies pubmed track related articles contacted research groups conducting work mmse dementia diagnosis try locate possibly relevant unpublished datawe considered longitudinal studies results mmse administered mci participants baseline obtained reference standard obtained followup time included participants recruited clinically classified individuals mci petersen revised petersen criteria matthews criteria clinical dementia rating 05 used acceptable commonly used reference standards dementia general alzheimers dementia lewy body dementia vascular dementia frontotemporal dementiawe screened titles generated electronic database searches two review authors independently assessed abstracts potentially relevant studies assessed identified full papers eligibility extracted data create two two tables dementia general dementias two authors independently performed quality assessment using quadas2 tool due high heterogeneity scarcity data derived estimates sensitivity fixed values specificity model fitted produce summary receiver operating characteristic curvein review included 11 heterogeneous studies total number 1569 mci patients followed conversion dementia four studies assessed role baseline scores mmse conversion mci allcause dementia eight studies assessed test conversion mci alzheimers disease dementia one study provided information mmse conversion mci vascular dementia conversion mci dementia general accuracy baseline mmse scores ranged sensitivities 23 76 specificities 40 94 relationship conversion mci alzheimers disease dementia accuracy baseline mmse scores ranged sensitivities 27 89 specificities 32 90 one study provided information conversion mci vascular dementia presenting sensitivity 36 specificity 80 incidence vascular dementia 62 although planned explore possible sources heterogeneity undertaken due scarcity studies included analysisour review find evidence supporting substantial role mmse standalone singleadministration test identification mci patients could develop dementia clinicians could prefer request additional extensive tests sure management patients important aspect assess future updates conversion dementia mci stages could predicted better mmse changes time instead single measurements also important assess set tests rather isolated one may successful predicting conversion mci dementia
|
https://doi.org/10.17323/jle.2019.9708
|
Christopher R. Carpenter|Jay Banerjee|Daniel C. Keyes|Debra Eagles|Linda Schnitker|David Barbic|Susan A. Fowler|Michael A. LaMantia
|
Accuracy of Dementia Screening Instruments in Emergency Medicine: A Diagnostic Meta?analysis
| 2,018 |
Washington University in St. Louis|University Hospitals of Leicester NHS Trust|University of Leicester|Mercy Medical Center|Mercy Hospital|Michigan State University|St. Mary Mercy Livonia|University of Ottawa|Queensland University of Technology|University of British Columbia|Washington University in St. Louis|University of Vermont
|
dementia underrecognized older adult emergency department ed patients threatens operational efficiency diagnostic accuracy patient satisfaction society academic emergency medicine geriatric ed guidelines advocate dementia screening using validated instrumentsthe objective perform systematic review metaanalysis diagnostic accuracy sufficiently brief screening instruments dementia geriatric ed patients secondary objective define evidencebased pretest probability dementia based published research estimate disease thresholds dementia screening appropriate systematic review registered prospero crd42017074855pubmed embase cinahl central dare scopus searched studies ed patients ages 65 years older dementia included sufficient details reconstruct 2 2 tables reported quadas2 used assess study quality metaanalysis reported one study evaluated instrument reference standard outcomes sensitivity specificity positive negative likelihood ratios lr lr identify test treatment thresholds employed paukerkassirer methoda total 1616 publications identified 16 underwent full textreview nine studies included weighted average dementia prevalence 31 range 1243 eight studies used mini mental status examination mmse reference standard study used mmse conjunction geriatricians neurocognitive evaluation blinding index test andor reference standard inadequate four studies eight instruments evaluated 2423 patients across four countries europe north america abbreviated mental test amt4 accurately ruled dementia lr 769 95 confidence interval ci 3451710 brief alzheimers screen accurately ruled dementia lr 010 95 ci 002028 using estimates diagnostic accuracy amt4 metaanalysis one trigger comprehensive geriatric vulnerability assessments ed dementia screening benefits patients prescreening probability dementia 14 36edbased diagnostic research dementia screening limited studies using inadequate criterion standard variable masking interpreters access index test criterion standard standardizing geriatric ed cognitive assessment methods measures nomenclature necessary reduce uncertainties diagnostic accuracy reliability relevance acute care setting amt4 currently accurate ed screening instrument increase probability dementia brief alzheimers screen accurate decrease probability dementia dementia screening one marker vulnerability initiate comprehensive geriatric assessment warranted based testtreatment threshold calculations
|
https://doi.org/10.1136/bmjopen-2016-015452
|
Kristine Yaffe|Cherie Falvey|Tamara B. Harris|Anne B. Newman|Suzanne Satterfield|Annemarie Koster|Hilsa N. Ayonayon|Eleanor M. Simonsick|Allison R. Kaup
|
O2-13-03: Do socioeconomic disparities explain higher dementia incidence among black older adults?
| 2,013 |
University of California, San Francisco|University of California, San Francisco|National Institutes of Health|University of Pittsburgh|University of Tennessee Health Science Center|National Institute on Aging|University of California, San Francisco|National Institute on Aging|University of California, San Francisco
|
dementia rates united states shown higher among black white elders whether increased incidence reflects greater risk factors among black white elders extensively evaluated sought determine blackwhite differences dementia rates existed among cohort community dwelling elders whether differences observed could explained socioeconomic status ses indicators income financial adequacy education literacy healthrelated factors evaluated dementia risk among 3075 black white elders mean age 741 years 417 black 515 female participating prospective health aging body composition study free dementia baseline dementia determined 12 year followup prescribed dementia medications hospital records decline global cognition examine influence ses health related factors dementia rates conducted series coxproportional hazard models variables sequentially added base model covariate blocks followup 575 187 participants developed dementia black participants greater risk developing dementia white participants 219 vs 164 p0001 unadjusted hazard ratio hr 157 95 confidence interval ci 133 184 hr lessened somewhat adjustment demographics apoe e4 comorbidities lifestyle factors 140 95 ci 117 168 greatly reduced longer statistically significant ses added model hr 117 95 ci 095145 additional adjustment baseline 3ms score attenuated effect size slightly results suggest differences risk factors especially ses may contribute higher dementia rates observed among black compared white elders strategies aimed reducing disparities may favorably impact dementia incidence
|
https://doi.org/10.1371/journal.pone.0218305
|
Daniel A. Wagner
|
Who's a Literate? Assessmen t Issues in a Global Perspective
| 1,990 |
Philadelphia University|University of Pennsylvania
|
demographic economic changes around world linkage literacy development made literacy critical issue especially developing countries uncertainty nature extent literacy necessitated taking new look literacy assessment policymakers hampered little data also failure capture varying types levels literacy society dichotomies like literateilliterate inappropriate conceptualising problem limit potential effective decisionmaking paper analyses problems determining reliable valid criteria literacy way problem whos literate resolved serious policy implications
|
https://doi.org/10.1016/j.ijmedinf.2020.104232
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